What Do You Wish You Had Known Before Bladder Removal Surgery? A Response from Survivors
Вставка
- Опубліковано 5 лис 2014
- Speakers: Jonathan L Wright, MD, MS, FACS, Department of Urology, University of Washington School of Medicine, Seattle Cancer Care Alliance; Pat Boumansour, Patient Advocate; Tammy Linden, Patient Advocate; Randy Layne, Patient Advocate
Topic: Understanding bladder removal surgery and diversion options, feedback from survivors on their advice and what they wish they had known beforehand.
For more information and webinars go to: www.bcan.org
Most surgeons will recommend total removal of the bladder for 2 reasons. 1) Removal is easier and quicker. 2) there is very little follow-up required. If you insist on bladder preservation it is time consuming and requires extensive follow-up afterwards. Even though the surgeon recommended removal I insisted on bladder preservation and I am glad I did.
Thank you all for this presentation. I just finished my 6 weeks of BCG and will find out next Tuesday or soon after if it was successful. I have been pretty uptight and discouraged wondering if a bladder removal will be in my immediate future, but each of you have lifted my spirits. Thanks, truly. Steve.
Steve Skinner I believe u had a turbt. And treated with 6 weekly dose s of bcg. u will near to visit ur doc after the last 6 doge and went for cystoscope. (maybe spelling in correct. Sorry I just came back today from my maintense doge. when for 3 because reccurance. My doc told me, more screening to monitor the staging to control. otherwise have to remove the bladder. Fist few times bcg were hell, especially 1 and second days. Subsequent days urgent to peeing and painful make it worse. Was shocked when know I had, lonely and dont know where to seek right advse. Prayed to GOD give me 3yrs so that I can support my son to college. No GOD kind enough to give me more. Near 4 yrs . Any bonus will spend more time doing volunteering works and help others Now 65 own business in build industry. Execise , sometimes carry weight to build own body resistance. . Dont worry too much. My physchrist told me. live 1 day at a time dont worry too much, plan ahead I told him he contradict himself.. He saked me to go back and think. I finally got the meaning.We live every every sec , every minute meaningful. we can plan ahead ut treat every as a bonus.. live our life we have never dont before. I we did tell our spouse our parents how much we love them, tell them now. if we feel shy to tell our children we love them the them now. Do thing u never do before. like give $2 to ur cleaner and say thank you. etcc Be more caring and smiles look at the bright side. . Pray to GOD. OUR CREATOR. . Rember, it is not how long we live. It is how meani gful. Ants only live for a week I believe. Let us not live in vain. MAY GOD BLESS U AND GUIDE U TO THE RIGHT PARTH. WISH U GOOD HEALTH. GOOD BLESS
yamoto shintaro thank you for the reply. Peace my friend.
agree with Martha's comment
Aside from the Dr Wright's slides - this would be much more user friendly if you replace this with a transcript that people can skim for the information - this is too long to hang in with. I did but most people won't.
Hello. I had trouble hearing some of the speakers. Is there a way to enable closed captions? Thank you.
Had two BCG treatments but they didn’t help. Full bladder removal next week.
Rick, You are probably going through hell right now with all the post-op treatments but, rest assured, it will end. I had a radical cystectomy in March 2019. I know exactly what you are going through. IT WILL GET BETTER! I was so fortunate to have the support of my wife during my ordeal. Unfortunately for me, I never regained my ability to urinate normally and have to rely on a catheter. Like everything in life, you adjust to the 'new normal'. It's a bitch - but there it is. I'm just grateful for the extended extra life to be with my loved ones... Well, except for the coronavirus. But this too shall pass away. Hang tough, buddy and if you feel like it, let me know how you are doing. You're not alone in this. Take it one day at a time and drive on!
All the best!
Jim in California
I'm a 45 year old male with a painful bladder deep when I urinate and in souht africa doctors can not help me i walk with this pain for many years
Hope you get better❤
My mum is just about to have this what do I tell my mum so we can help her. She has had the tumers removed but they are talking about removing her bladder ! What do I need to know please. I will watch this 10 times but might miss the bit I need to know that will make a difference
Hi Richard - we're sorry to hear of your mom's diagnosis but glad you have reached out and hope we can help.
Please check out New Normal playlist that discuss bladder removal and choosing a urinary diversion from a patient's point of view: ua-cam.com/play/PLGqJDn4OPMjVvNlBtRkBBWlP_7W1nGK5I.html
Additionally, visit our website for downloadable fact sheets on each procedure: www.bcan.org/learn/online-resource-library/patient-tips/
Please also feel free to reach out to Alejandra Spangler at info@bcan.org for further assistance.
Thank you so much for geting back to me. I will look at the infomation thanks again for putting this valuable information on UA-cam
I have bladder cancer
How are you doing ..any update..?
I can only decifer 40 % of what tammi said. So frustrating