The ALS Association did nothing for my father except expect us to drive from Louisville to Lexington for them to look at him. He was a veteran and the VA didn’t do much either. My sister, our mother and I did around the clock care for him for over 2 years. I could remove his trachea tube, clean it and have it back in before he drew another breath. He had the oxygen breathing machine, catheter, feeding tube. When he passed after being flat on his back for over two years, he had a tiny sore behind right ear. No bed sores any where else.
Just listened to your story, i live in oregon near mt hood. I’m keeping you in my prayers and thoughts, hope tomorrow brings sunshine , i know we dont get many of those. Lol.
It can be. Painful cramps and muscle aches. Later on in the disease when the muscle has died the bone isnt protected causing more pain when sitting or lying down. The neurone death itself isnt considered painful but the consequences are.
I wouldn’t believe I would live to see this day but doctor Jude has given me reasons to live again. Thank you for using your h e r bal med to reverse my Als disease. #drjuderobert
No one reverses ALS- are you the 1? No. Are you joking or trying to shamelessly sell something? Not cool. If you are sick, I hope you are doing better...but don't make stuff up.
The ALS Association did nothing for my father except expect us to drive from Louisville to Lexington for them to look at him. He was a veteran and the VA didn’t do much either. My sister, our mother and I did around the clock care for him for over 2 years. I could remove his trachea tube, clean it and have it back in before he drew another breath. He had the oxygen breathing machine, catheter, feeding tube. When he passed after being flat on his back for over two years, he had a tiny sore behind right ear. No bed sores any where else.
Sad. God bless you.
My oldest brother had ALS he passed away 7 years ago 😢😢 I miss him
Just listened to your story, i live in oregon near mt hood. I’m keeping you in my prayers and thoughts, hope tomorrow brings sunshine , i know we dont get many of those. Lol.
My brother has this😢
🙏
Poor man Awful disease, is Als painful?
It can be. Painful cramps and muscle aches. Later on in the disease when the muscle has died the bone isnt protected causing more pain when sitting or lying down. The neurone death itself isnt considered painful but the consequences are.
@@tiptoptonic I have similar symptoms with lyme disease, muscle spasms burning constant muscle and joint pain..
@@GTschumacheranyone would take Lyme disease over als…can’t compare
#drjuderobert
I wouldn’t believe I would live to see this day but doctor Jude has given me reasons to live again. Thank you for using your h e r bal med to reverse my Als disease. #drjuderobert
No one reverses ALS- are you the 1? No. Are you joking or trying to shamelessly sell something? Not cool. If you are sick, I hope you are doing better...but don't make stuff up.
ALS is progressive, it cannot be stopped only slowed.
It does have you and will get you so please find a cure