Treating

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  • Опубліковано 20 чер 2024
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    0:41 What is prostate cancer treatment like for younger patients?
    2:49 What non-surgical options would a Gleason 8-9 patient generally have?
    4:16 What forms of radiation treatments have the best clinical outcomes?
    5:11 What side effects do brachytherapy and hormone therapy have?
    6:15 How does the new PSMA scan affect treatment for younger patients?
    6:55 How can younger patients treat drug-resistant erectile dysfunction?
    7:42 Can radiation treatment cause urinary side effects?
    8:51 What cure rates do modern forms of radiation treatment have?
    10:18 Can younger patients get prescribed early chemotherapy?
    11:37 How should younger patients prioritize quality of life when deciding treatment?
    13:11 Alex's conclusions
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    Who we are:
    The Prostate Cancer Research Institute (PCRI) is a 501(c)(3) not-for-profit organization that is dedicated to helping you research your treatment options. We understand that you have many questions, and we can help you find the answers that are specific to your case. All of our resources are designed by a multidisciplinary team of advocates and expert physicians, for patients. We believe that by educating yourself about the disease, you will have more productive interactions with your medical professionals and receive better-individualized care. Feel free to explore our website at pcri.org or contact our free helpline with any questions that you have at pcri.org/helpline. Our Federal Tax ID # is 95-4617875 and qualifies for maximum charitable gift deductions by individual donors.

КОМЕНТАРІ • 66

  • @aero3085
    @aero3085 7 місяців тому +23

    I’m Gleason 3+4 7, urologist scheduled emergency prostatectomy. I chose a whole food, plant based diet no alcohol, dairy, cheese, poultry, meat, processed foods, chips, flips, soda, ice cream etc. began a cardio, strength fitness plan and hired Dr Scholz. No meds. No surgery. No diaper. No E.D. no hormone therapy, no testosterone blocker. Never felt better in my entire life. PSA is decreasing.

    • @robertjayroe9900
      @robertjayroe9900 7 місяців тому +4

      You say decreasing. What was your numbers and what are they now? How many months?

    • @mikedeezl
      @mikedeezl 7 місяців тому

      how old are you @aero3085? how long has this process been for you? what was your PSA before compared to now?
      I am following the same path to healing (whole foods, no sugar, dairy, processed foods)

    • @aero3085
      @aero3085 7 місяців тому +3

      @@mikedeezl I'm 61, diagnosed July 2022, PSA was 5.83, went plant based Aug 2022 PSA was 5.03 July 2023. Currently on active surveillance. Read paper "Kathy Parnay" wrote about her husband.

    • @aero3085
      @aero3085 7 місяців тому

      @@robertjayroe9900 PSA went from 5.83 to 5.03 in the first 13 months of my whole food plant based food plan. Lost 50lbs, never felt better. The side effects of the alternative (pc treatment) was simply to horrific for me. It takes some discipline. Research Ken Malik and Kathy Parnay. Spoke with them both prior to committing.

    • @rpw612willi4
      @rpw612willi4 7 місяців тому

      Kathy Parnay paper? Not familiar with it.@@aero3085

  • @douglaschartier6249
    @douglaschartier6249 7 місяців тому +11

    53yrs (@ 8.3 PSA @ Primary Care last Sept(22)- 8.7 @ urologist in Oct- Bioposy in Dec: Gleason 9- PSMA/MRI/Bone Scans showed no clear evidence of spread outside the capsule-but some cells were beginning to breach the capsule wall) Your UA-cam videos helped me decide to opt out of surgery and pursue combo therapy- first started Orgovyx (Jan) then Zytiga (Feb)then permanent Brachytherapy (March) then external beam radiation therapy 25 sessions-5weeksX5days a week in May-June- I’m 9 months into the 18months of combo hormone therapy and my PSA has been undetectable since June… side effects of the radiation are lingering but improving weekly it seems… the side effects of the hormone therapy are crappy but manageable but I’m still watching the calendar for August 18, 2024 to end the Orgovyx Zytiga and prednisone that it prescribed with the Zytiga - but so far I’m doing much better than
    I had imagined I would be.

  • @barrie888
    @barrie888 7 місяців тому +5

    Dr here, not a Urologist. i feel much better educated to counsel my pts now, tks

  • @ianw5725
    @ianw5725 7 місяців тому +8

    Firstly I want to thank both of you for all that you do. I was diagnosed with Gleason 3+4 Pirads 5 aged 59 in February. My prostate is 19 cc so too small for brachytherapy. I am uk based and was offered unilateral nerve sparing surgery or IMRT with ADT. Neither sounded good enough quality of life. Instead I got on a trial of 2 fraction MRI guided SBRT. On the Meridian LNAC. It seems to have worked with minimal side effects. Still early days so I will report back next year. Many thanks again for life changing channel.

  • @andreasboueke9468
    @andreasboueke9468 7 місяців тому +8

    I was diagnosed with Gleason 8 five months ago. Paid my own PSMA-PET-Scan which hsowed a minimal mestastcis in one lymph knot. I "did my research" as Alex always says. I am german and ended up at the Protone-Center, WPE, in Essen Germany. Superb experience. 30 days of protone-therapy. Easy going, few sideffects during the treatment, two weeks afterwards almost no sideffects. Now I still have hormonetherapy, maybe for two years. We will see. I am very optimistic, but with this video I am entering into the idea of maybe getting chemo one day in case metastasis might show up after hormontherapy ended. Alex & Dr. Schulz have acompanied my therapy-experience on UA-cam more effectively than my own urologist has... Thank you very much.

    • @sivakumarachanta
      @sivakumarachanta 7 місяців тому +1

      Hi ! My experience was similar except that I was 64 when diagnosed with PC / Gleason score 4 to 8. I too have undergone Intensity modulated proton beam therapy in India. My ADT with Leuprolide injections q’ly, for 2 years), end in Apr 2024.
      The journey is “so far do good”, but I would like too see where it goes from mid 2024.
      I am physically very active with weight training & cycling etc.

    • @thisizMalik
      @thisizMalik 3 місяці тому

      ​@@sivakumarachantaHello Siva, what was your PSA and Pirad when you got initially diagnosed

  • @michaelcasey6546
    @michaelcasey6546 7 місяців тому +6

    Alex, thank you so much to both yourself and Mark not just for proven helpful information but for giving courage and hope to so many men out there. God bless you.

  • @ellenfalveycarroll4489
    @ellenfalveycarroll4489 7 місяців тому

    Thank you for your great knowledge 🇨🇮❤

  • @brandywvstrong9673
    @brandywvstrong9673 7 місяців тому +2

    You guys are the best. Thank you all for these informative videos.
    🙏🏻💙🙏🏻

  • @georgefitzhugh6455
    @georgefitzhugh6455 7 місяців тому +3

    Thank you for sharing your experience and knowledge

  • @melandyosgoodthings3142
    @melandyosgoodthings3142 7 місяців тому +2

    Thank you for sharing factual and detailed information about treatment and outcomes.

  • @jimmielynn6829
    @jimmielynn6829 7 місяців тому +4

    I was diagnosed with prostate cancer that metastasized to the bone in my back in 2014. Obviously I was treated with chemo and many of the drugs that were approved by FDA about two years ago. My oncologist suggested to have radiation treatments I believe I had 49 and no promises but if I was willing, I could possibly come up with not having to take any medication at all that has been the case for the last two years. My my PSA have been undetectable I want to say for at least three years or so even prior to the The radiation treatment, but for some unknown reason I started getting back pain in the lower lumbar and had CT scans nuclear MRI and bone density. I haven’t been told that the prostate cancer might have returned. I assumed the back pain is being caused by heavy, lifting, and a diagnosed compression fracture, I am concerned now because my oncologist has scheduled a PET scan to see if the probability of the cancer coming back I assume in that area I’ve heard the PET scan is very accurate and will be able to seek that out but it is a concern because my PSA have been undetectable is that normal?

    • @Trailjunkie62
      @Trailjunkie62 5 місяців тому +1

      Any further details to your situation? Pray you are doing well!

  • @lorrainebird486
    @lorrainebird486 3 місяці тому +1

    Thank you for these videos they are very helpful. My husband is 56, initial PSA 115, Gleason 3+5=8. Treatment= HT, Zoladex three monthly injections and Abiraterone+ steroids, Full pelvic RT 6 months ago. Hormone treatment for life. Now base PSA was 0.04 has just risen to 0.06 in 2 months (first rise since treatment began) Obviously its got some way to go before its a problem, but two things I want to know more about. 1. Should he be having Chemo as an early treatment as mentioned in this video. 2. is there any advantage to considering subcapsular orchiectomy as an option if and when HT is starting to fail. Thank you.

  • @rpw612willi4
    @rpw612willi4 7 місяців тому

    How do I best ask a question for response, as I’ve tried on your website more than once, and have not heard back, it’s been about a week. Please advise. Thank you

  • @bnjmn_smth
    @bnjmn_smth 7 місяців тому +2

    Have you done a video discussing IRE / Nanoknife?

    • @dondgc2298
      @dondgc2298 Місяць тому +2

      I had Nano in April of 2022. Two years later and I’m having the exact same locations treated with HIFU because cancer has grown again where it appeared to be destroyed. Aside from not permanently destroying my cancer, the procedure was great and painless. But according to my doctor HIFU currently has a better recurrence frequency.

  • @Trailjunkie62
    @Trailjunkie62 7 місяців тому +2

    While encouraging this discussion with all the modern techniques for treatment the studies and trials don’t lie. Long term survival past the 5 year marker surgery has a significant advantage over other options. Do your homework fellas and decide what’s more important to you personally. It’s been explained to me that the prostate removal is off the table after radiation because of the damage radiation leaves behind…so more treatment options available after prostatectomy if you have a recurrence down the road

    • @robertmonroe3678
      @robertmonroe3678 7 місяців тому +1

      It seems Dr Schulz’s position is that radiation is so much more accurate (and powerful) now that recurrence in the prostate is very unlikely (virtually matching prostatectomy) AND the wider margins means cancer on the edge (or just over the edge) of the prostate is killed by radiation (advantage radiation). And improved radiation control and space-oar, etc means less side effects for radiation.

    • @Trailjunkie62
      @Trailjunkie62 7 місяців тому

      @@robertmonroe3678 Believe me this sounds wonderful as I am two months away from prostatectomy but the reality is there’s no long term studies to back everything your saying. It’s purely a gamble long term

    • @BlueStateEmpire
      @BlueStateEmpire 7 місяців тому +1

      Dr. Scholz states the opposite. What is your source for making such a contradictory statement?

    • @dondgc2298
      @dondgc2298 Місяць тому +1

      I’ve done my homework. And I disagree with you.

    • @jazandriz
      @jazandriz 20 днів тому +1

      Studies don’t lie but all studies have bias. Selection bias is likely unless randomization was done and people don’t like being randomized to surgery vs radiation. Current Consensus for high risk cases seems to be that cure rates are similar so I was told to decide based on side effects..

  • @outdoorbill6271
    @outdoorbill6271 7 місяців тому +1

    As always great job explaining options however one of the things you failed to talk about and is very often used as a reason to avoid radiation in younger patients is secondary cancer due to the radiation treatment. Can you please give some statistics on this? Thank you

    • @jazandriz
      @jazandriz 20 днів тому +1

      My surgeon said relative risk of bladder cancer is high but absolute risk is low single digits.

  • @DorkGuitar
    @DorkGuitar 7 місяців тому +2

    No consideration for focal therapy in this age range?

  • @jazandriz
    @jazandriz 20 днів тому

    Around 9:45 he says cure rates with radiation are higher than surgery. This is not consistent with what I have read and heard from other doctors. Everyone had told me cute rates are similar but side effects differ.

  • @md.sakilkhan6511
    @md.sakilkhan6511 7 місяців тому

    My father old 65 years, he attacked by postage Cancer Gleason 4+4=8 with born mata oncologists suggest him zoladex 3.6 and zolidernic acid. My question is that its right way of tritment?

  • @troyelam8978
    @troyelam8978 Місяць тому +1

    I’ve just been diagnosed with a lesion on my prostate. I would like to go the Whole Foods, no fat, no sugar, no meat option in the hopes that I can maintain health. However, I also have BPH. The swelling isn’t going to go by itself. Either way I’m going to need surgery, even just for that, right? I wonder if the surgery to cure the BPH will aggravate the possible cancerous lesion?

    • @dondgc2298
      @dondgc2298 Місяць тому +1

      Knowledge is power. Before you make any decisions about any of this, find out exactly what kind of “lesion” you’re dealing with. If it is, in fact, cancerous, find out if it has spread. Then, when you know the answer to those questions, you can make informed decisions. Good luck.

    • @dmcarden
      @dmcarden 16 днів тому

      Similar situation. However, had cancer in 2021, did partial gland with hifu..but two lesions showed up, one on either side..so need to find out type of lesion as dondgc2298 says below. In my case, psa is rising along with lesions..so i assume cancer is back. I switched to plant based after my initial treatment..but cancer seems to be prevalent in my family.

    • @troyelam8978
      @troyelam8978 16 днів тому +2

      @@dmcarden there are different types of lesions? I assumed all lesions are cancerous.
      My urologist is already telling me that if it comes back cancerous, he would recommend having my prostate removed, and he’s pretty adamant about it, though I know I have the final say. He says I’m too young, 51, to be worrying about the cancer coming back. he said I should just deal with it once and for all. I kind of agree with that, but I damn sure don’t want to have any problems getting it up or uncontrollable peeing.

    • @dmcarden
      @dmcarden 16 днів тому

      @troyelam8978 yeah some lesions can be benign. When I first was diagnosed I was 59 and told the same..that I'm young and removal is best...even tried to push me to do it quickly and I had just 2 very small lesions. They make most of their money through surgery and a good percentage still need radiation after. For me, surgery is definitely not even a consideration

    • @troyelam8978
      @troyelam8978 16 днів тому

      @@dmcarden damn, knowing what to do once I’m diagnosed is scarier than the diagnosis! I’ve made peace with the fact that I most likely have prostate cancer, but I don’t want to do a procedure that’s irreversible and causes lifelong symptoms, for very little increased benefit. Though, I think I will make the decision based on which procedure provides the greatest protection against reoccurrence. At 51 I’m healthy and strong enough to withstand, hormone therapies, etc. I don’t want to have to do all those things at 65! So if I can get rid of the cancer in one swoop, I would choose the procedure that can most likely make that happen.

  • @clintcarter
    @clintcarter 5 місяців тому

    🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

  • @Sirena_Edonismo
    @Sirena_Edonismo 7 місяців тому +2

    How come you don't ever discus Proton Beam Therapy. Much more effective with much fewer side effects.

    • @mperloe
      @mperloe 7 місяців тому

      Unfortunately there are no studies showing that is the case, only marketing materials. Dr. Rossi spoke at recent PCRI meeting and noted that SBRT with proton will lead to more side effects. So proton is usually 45 sessions vs 5 with SBRT.

    • @robertmonroe3678
      @robertmonroe3678 7 місяців тому

      He did address that in an earlier video and suggested that the most modern (and most accurate) photon radiation (plus spacer gel) avoids the issues proton radiation purportedly addresses. Sooo, in his opinion there is no advantage to proton radiation and in fact, proton radiation may be inferior. And proton radiation centers and practitioners may not be quite as up to date.

    • @Sirena_Edonismo
      @Sirena_Edonismo 7 місяців тому

      Seems like all my information about the benefits of proton beam therapy are being censored and only negative misinformation is being allowed. Very sad for an otherwise informative channel

    • @dondgc2298
      @dondgc2298 Місяць тому

      @@Sirena_Edonismoare you a doctor? If so that would be helpful information.

    • @Sirena_Edonismo
      @Sirena_Edonismo Місяць тому

      @@dondgc2298 I’m a patient and can speak first hand for the treatment, the results and the lack of negative side effects. I have also personally met and talked with hundreds of other patients who have gone through the treatment with the same positive outcomes

  • @jacobclemence2730
    @jacobclemence2730 24 дні тому

    :)