Treatments for

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  • Опубліковано 20 вер 2024
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    0:33 How does prostate cancer metastasize to the bones?
    2:09 Can a patient go from having bone metastases to a full remission?
    4:55 What options, other than spot radiation, are there for treating bone metastases?
    7:52 Is hormone therapy always a necessity for those with bone metastases?
    9:02 How flexible is the timeframe for a typical course of hormone therapy?
    11:00 How do treatments like Xgeva work to treat bone metastases?
    12:23 What treatment options are there after first/second-generation hormone therapies?
    13:28 How is the effectiveness of Provenge usually tracked?
    14:05 What is the next step after Provenge?
    15:51 When would Xofigo be prescribed as opposed to Pluvicto?
    17:18 How quickly should patients be adjusting their treatment strategies?
    19:09 How well do patients usually handle the side effects of these treatments?
    20:35 Alex's conclusions
    21:19 If you need more help
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    Who we are:
    The Prostate Cancer Research Institute (PCRI) is a 501(c)(3) not-for-profit organization that is dedicated to helping you research your treatment options. We understand that you have many questions, and we can help you find the answers that are specific to your case. All of our resources are designed by a multidisciplinary team of advocates and expert physicians for patients. We believe that by educating yourself about the disease, you will have more productive interactions with your medical professionals and receive better-individualized care. Feel free to explore our website at pcri.org or contact our free helpline with any questions that you have at pcri.org/helpline. Our Federal Tax ID # is 95-4617875 and qualifies for maximum charitable gift deductions by individual donors.
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КОМЕНТАРІ • 60

  • @davidf9630
    @davidf9630 6 місяців тому +19

    This is a great discussion about stage 4 prostate cancer. I was diagnosed in feb 2023. I was 57 years old. Now…My PSA is less than .1 since June. 2023. I’m not dying of cancer yet!!!!
    I’ve cut out ALL carbs and sugar from my diet. Hopefully I’ll get old enough to enjoy my retirement

    • @jaymo7161
      @jaymo7161 4 місяці тому

      GOOD Luck 👍

    • @paulsmith4369
      @paulsmith4369 4 місяці тому +1

      I am on Keto diet also

    • @barneyclancy4312
      @barneyclancy4312 2 місяці тому

      @@davidf9630 yes good luck, i always tell people just tell God u want to stay, not leaving

    • @JosephIrvine-b5w
      @JosephIrvine-b5w 5 днів тому

      Wishing you the very best of Luck.

  • @Murhillwoodwork
    @Murhillwoodwork 3 місяці тому +2

    Thank you Alex for bringing these videos to us in such a professional but sensitive way. Your clear questions bring out key information and your caring manner helps us to feel comfortable approaching what can be very challenging topics. Your work is much appreciated

  • @justmagallanes
    @justmagallanes Місяць тому +1

    Thank you for this wealth of valuable information you're giving us, PCRI. As a daughter of an ailing father who's suffering from metastatic prostate cancer, your videos help me navigate this complicated situation we are in now.
    I hope you'd discuss about bone marrow infiltration soon.

  • @homestudiotutorials
    @homestudiotutorials 6 місяців тому +25

    Thanks for the video , my psma scan shows me clear today -) still in remission, psa of 0.03 , in 2022 diagnosed with stage 4 Gleason 10 , metastasis !10 of them , to the spine, hip and lymph nodes! 6 cycles of Taxotere , first and second hormone therapy at the same time , and also managed to get radiation to the main tumor to finish off , thanks to my oncologist in France ( no insurance problems ) all on the state social security! Even planes and taxis paid for ! Today I did Corsica Nice by plane , Nice to Monaco by taxi ! All covered! Way better than the UK and the US ( sorry I had to say it )

    • @terriblepainter7675
      @terriblepainter7675 5 місяців тому

      Congratulations, but I am confused by your message. French Social security paid for your treatment ?

    • @homestudiotutorials
      @homestudiotutorials 5 місяців тому

      @@terriblepainter7675yes , why ? I know as well in the UK the NHS is free , but they don’t pay for flights and taxis , but in France they do, I feel so sorry for people in the US having to pay for scans and treatments!!

    • @terriblepainter7675
      @terriblepainter7675 5 місяців тому

      @@homestudiotutorialsMy understanding is that the french health care system is a universal health care largely financed by the government national health insurance, not by the social security system. I am just confused by your term social security. I am learning about the system in France.

    • @homestudiotutorials
      @homestudiotutorials 5 місяців тому

      @@terriblepainter7675yes it’s the secu as we call it here that covers it in my case cos I have worked all my life here , there is universal coverage for people are out on the streets or how have never worked, can’t remember what it is called ! But to get taxis and planes covered you have to have a special status called long illness which includes cancer of course, and then you don’t even need to have a mutuelle , ( the extra bit of insurance you have to have ) cos everything is covered, I am just surprised to hear them always talking about insurance coverage on here ! It’s madness to me !!

    • @KennyBillings-sy1mg
      @KennyBillings-sy1mg 5 місяців тому +1

      Hey, that is very very awesome emphasizing the degree of awesomeness in any regard. I am exactly in your shoes. The only thing that I have not done is radiation to the main tumor in the prostate my current oncologist and urologist will not acquiesce to my desire to get my prostate radiated so I went around them and found a Radiation oncologist that will do it even though he caveats everything by saying there is no known benefit, but it sounds like there was a benefit for you. Congratulations.

  • @johnmartinez9295
    @johnmartinez9295 6 місяців тому +6

    I knew nothing about cancer, first heard of PSMA here. My prostate G 9, 5 bone met. I requested a PMSA Scan, they said no since it is never apppved.. Ins approved it, the scan shows more cancer, lung, liver, throat, stomach, and one on spine. These would have never been addressed unless I demanded the PMSA scan. Yes this sux but it being unknown it could have been worse.
    Thank you for this channel.

  • @andrewsmith-jf6ou
    @andrewsmith-jf6ou 6 місяців тому +5

    Superb information on an ongoing basis. Thank you both and your team very much for all you do.

  • @louvin5671
    @louvin5671 6 місяців тому +5

    I am very grateful we have found this organization. We have talked to Jonathan on the helpline and he has been extremely helpful. After 3 doses of docatexel, hubby's psa stabilized. When the treatment was finished, the psa started to rise. He is now getting lu-177 and after the first dose the psa rose. We see the oncologist on Monday and will know if it has come down, or at least stabilized. These videos are such great information.

    • @kimberlymolisani4833
      @kimberlymolisani4833 2 місяці тому

      I am struggling to find answers and expectations. Where can I find the helpline number? Thank you.

  • @timw41
    @timw41 11 днів тому

    Thank you for doing these videos. It is very helpful. And gives me a bit of hope. Bless you for this.

  • @carmenvilleneuve5482
    @carmenvilleneuve5482 6 місяців тому +7

    Great explanation
    Very helpful information
    Thank you
    Gives me options .

  • @kennethhalpin3611
    @kennethhalpin3611 Місяць тому

    I had IBRT with HDR Brachytherapy in March for Gleason 9 PSA 24.2. Just had 4 month followup PSA now 135! Scheduled for another PSMA PET, but pretty much guarantees it's now metastatic. Can't help but believe that the biopsy and the HDR released the cancer into my body as PET scan prior to treatment was clear.

  • @handonmgt
    @handonmgt 6 місяців тому +3

    Please discuss the cases that the psma scans do not pick up the disease.

  • @1958zed
    @1958zed 6 місяців тому +3

    Informative, as always. Thanks!
    It's frustrating (but not surprising) to hear how much insurance influences treatment plans. I get my care through the VA San Diego, so insurance issues are a lesser concern for me. However, the VA does seem slow to adapt newer technologies. VA required that I have a negative bone scan result before authorizing a PSMA PET scan. That was guaranteed at my PSA level of 0.37 ng/mL. (The PSMA PET scan also came back negative.)

  • @PatB415
    @PatB415 6 місяців тому +1

    Very concise & informative. Thanks!

  • @dr.shajuthomas3737
    @dr.shajuthomas3737 3 місяці тому

    Very informative discussion. Thank you.

  • @j.polishboy4871
    @j.polishboy4871 6 місяців тому +6

    Thank you. I have aggressive metastatic prostate cancer, but it has been very responsive to ADT & Pluvicto (study trial).

    • @carmenvilleneuve5482
      @carmenvilleneuve5482 6 місяців тому +4

      Awesome
      I have Metastatic prostate cancer to my bones and liver , I'm one year in now .
      My Oncologist started me right away with Chemo 6 rounds Taxotere
      Zolodex injection
      Nubeqa
      Zometa
      I'm hoping to start doing Zometa every 3 months going forward .
      All in all happy with my Oncologist and Urologist.
      These videos by Alex and Dr Scholz gives me confidence I'm on the right treatment and allows me to take notes and ask questions ?
      All the best

    • @j.polishboy4871
      @j.polishboy4871 6 місяців тому

      Best to you!

  • @barrie888
    @barrie888 6 місяців тому +1

    great content , fellow HCP here

  • @stitcheruk1150
    @stitcheruk1150 5 місяців тому +2

    Hi. What ongoing treatment are you on - ADT & 2nd generation drugs ? An answer would be nice to have to complement your existing journey.

  • @rickedwards2
    @rickedwards2 5 місяців тому +1

    can you do a video about eggs and dairy effecting prostate cancer ? I have seen a lot of conflicting information on this topic concerning fat free dairy thanks

  • @m4rinos
    @m4rinos Місяць тому

    Just a practical question. You say you will link videos in the description but for the life of me I cannot seem to find those links 😂 can you help me find them?

  • @barneyclancy4312
    @barneyclancy4312 2 місяці тому +1

    can u have .4 PSA with bone metz

  • @brianlandsberger8200
    @brianlandsberger8200 5 місяців тому +1

    Thanks for your informative discussions. My questions is: At 74, I have oligo-metastatic (one pelvic bone, two lymph node spots) currently on second generation hormone mono therapy (Finasteride with Nubeqa) and the radiation oncologist was concerned with spot radiation on the prostate due to high level of PVR. So, is PAE an option for killing cancer cells in the prostate? Normally used for BPH, but if cancer cells are the quickest growing, perhaps they are more sensitive to the effects of nutrient deprivation due to PAE. Also, PAE has much lower side effects problems than radiation. I have not heard you discuss this option. What due you think?

  • @salsamink
    @salsamink 6 місяців тому +2

    Is anyone able to make a video clear up between myths & facts? Is it true that Pluvicto was talked about to help(not cure) all prostate cancers that show PSMA markers, but it really doesn’t treat prostate cancer in bones but only in soft tissue? Why do so many people say Xofigo is a road to a quick prostate cancer patient’s death? Is there anything new for those that zytiga/xtandi only worked for less than 3 months?

  • @KDean22
    @KDean22 5 місяців тому +1

    WHEN I TOLD MY DOCTOR I WANT TO LIVE ONLY 10 YEARS, HE WAS ANGRY.

  • @bobliening5783
    @bobliening5783 6 місяців тому +4

    For a stage 4, Gleason 4+5=9, patient who responded well to meds to bring the PSA down from 1,300 to 0.09 in ~4 months, how do you determine remission vs cure if the PSA has been steady for 21 months? Total journey time from diagnosis to now is 25 months.

    • @bocapete88
      @bocapete88 6 місяців тому +1

      May I ask what meds you are taking?

    • @bobliening5783
      @bobliening5783 6 місяців тому

      @@bocapete88, Lupron, Xtandi, and Xgeva.

    • @nicktotmianin288
      @nicktotmianin288 6 місяців тому +1

      Is PSA 1,300 (never heard of such high) not a misprint?

    • @bobliening5783
      @bobliening5783 6 місяців тому

      @@nicktotmianin288, not a misprint. I know guys who started higher.

    • @denickisandels
      @denickisandels 5 місяців тому

      @@nicktotmianin288 My husbands is at 1, 383 right now and has been as high as 2,999. We got him down to a 3 one time but it didn't last long. We are supposed to try pluvicto next month.

  • @kawaahangar4570
    @kawaahangar4570 5 місяців тому

    Thanks, many thanks.