This is a great discussion about stage 4 prostate cancer. I was diagnosed in feb 2023. I was 57 years old. Now…My PSA is less than .1 since June. 2023. I’m not dying of cancer yet!!!! I’ve cut out ALL carbs and sugar from my diet. Hopefully I’ll get old enough to enjoy my retirement
I knew nothing about cancer, first heard of PSMA here. My prostate G 9, 5 bone met. I requested a PMSA Scan, they said no since it is never apppved.. Ins approved it, the scan shows more cancer, lung, liver, throat, stomach, and one on spine. These would have never been addressed unless I demanded the PMSA scan. Yes this sux but it being unknown it could have been worse. Thank you for this channel.
I am very grateful we have found this organization. We have talked to Jonathan on the helpline and he has been extremely helpful. After 3 doses of docatexel, hubby's psa stabilized. When the treatment was finished, the psa started to rise. He is now getting lu-177 and after the first dose the psa rose. We see the oncologist on Monday and will know if it has come down, or at least stabilized. These videos are such great information.
Thanks for the video , my psma scan shows me clear today -) still in remission, psa of 0.03 , in 2022 diagnosed with stage 4 Gleason 10 , metastasis !10 of them , to the spine, hip and lymph nodes! 6 cycles of Taxotere , first and second hormone therapy at the same time , and also managed to get radiation to the main tumor to finish off , thanks to my oncologist in France ( no insurance problems ) all on the state social security! Even planes and taxis paid for ! Today I did Corsica Nice by plane , Nice to Monaco by taxi ! All covered! Way better than the UK and the US ( sorry I had to say it )
@@terriblepainter7675yes , why ? I know as well in the UK the NHS is free , but they don’t pay for flights and taxis , but in France they do, I feel so sorry for people in the US having to pay for scans and treatments!!
@@homestudiotutorialsMy understanding is that the french health care system is a universal health care largely financed by the government national health insurance, not by the social security system. I am just confused by your term social security. I am learning about the system in France.
@@terriblepainter7675yes it’s the secu as we call it here that covers it in my case cos I have worked all my life here , there is universal coverage for people are out on the streets or how have never worked, can’t remember what it is called ! But to get taxis and planes covered you have to have a special status called long illness which includes cancer of course, and then you don’t even need to have a mutuelle , ( the extra bit of insurance you have to have ) cos everything is covered, I am just surprised to hear them always talking about insurance coverage on here ! It’s madness to me !!
Hey, that is very very awesome emphasizing the degree of awesomeness in any regard. I am exactly in your shoes. The only thing that I have not done is radiation to the main tumor in the prostate my current oncologist and urologist will not acquiesce to my desire to get my prostate radiated so I went around them and found a Radiation oncologist that will do it even though he caveats everything by saying there is no known benefit, but it sounds like there was a benefit for you. Congratulations.
Thank you Alex for bringing these videos to us in such a professional but sensitive way. Your clear questions bring out key information and your caring manner helps us to feel comfortable approaching what can be very challenging topics. Your work is much appreciated
Thank you for this wealth of valuable information you're giving us, PCRI. As a daughter of an ailing father who's suffering from metastatic prostate cancer, your videos help me navigate this complicated situation we are in now. I hope you'd discuss about bone marrow infiltration soon.
Informative, as always. Thanks! It's frustrating (but not surprising) to hear how much insurance influences treatment plans. I get my care through the VA San Diego, so insurance issues are a lesser concern for me. However, the VA does seem slow to adapt newer technologies. VA required that I have a negative bone scan result before authorizing a PSMA PET scan. That was guaranteed at my PSA level of 0.37 ng/mL. (The PSMA PET scan also came back negative.)
Awesome I have Metastatic prostate cancer to my bones and liver , I'm one year in now . My Oncologist started me right away with Chemo 6 rounds Taxotere Zolodex injection Nubeqa Zometa I'm hoping to start doing Zometa every 3 months going forward . All in all happy with my Oncologist and Urologist. These videos by Alex and Dr Scholz gives me confidence I'm on the right treatment and allows me to take notes and ask questions ? All the best
I had IBRT with HDR Brachytherapy in March for Gleason 9 PSA 24.2. Just had 4 month followup PSA now 135! Scheduled for another PSMA PET, but pretty much guarantees it's now metastatic. Can't help but believe that the biopsy and the HDR released the cancer into my body as PET scan prior to treatment was clear.
Refer to UA-cam "Prostate Cancer 101. ..@ 22.41". Dr. Matthew Cooperberg says: "Each prostate biopsy does carry low risk of bleeding and infection. Biopsy does not spread prostate cancer."
Refer to UA-cam "Prostate Cancer 101" .... @ 22:41, Dr. Matthew Cooperberg says: "Each prostate biopsy does carry a low risk of bleeding and infection. Biopsy does not spread prostate cancer."
can you do a video about eggs and dairy effecting prostate cancer ? I have seen a lot of conflicting information on this topic concerning fat free dairy thanks
We have watched several UA-cam videos of diet. Most were Dr Scholz. It is what my husband is following strictly. I don't remember how to find them. But probably just put PCRI diet in the search bar.
🎯 Key points for quick navigation: 00:00:00 *🩺 Introduction to Bone Metastasis in Prostate Cancer* - Overview of prostate cancer metastasizing to bones, - Explanation of how cancer spreads and metastasizes, - Concerns related to prognosis and treatment discussions. 00:03:03 *🧬 Treatment Sensitivity & Remission* - Importance of treatment sensitivity in cancer prognosis, - Explanation of PSA levels and their impact on survival, - Cases of remission with appropriate treatments. 00:04:56 *💊 Treatment Options for Bone Metastasis* - Various treatment strategies for bone metastasis, - Importance of combination approaches, including chemotherapy, - Details about hormone and radiation therapies. 00:08:06 *🚀 Hormone Therapy and New Developments* - Role of hormone therapy in treating bone metastasis, - PSA targeting using hormone therapy, - Impact of new imaging techniques on treatment duration. 00:09:53 *🦴 EXa and Immune Therapies* - Impact and side effects of EXa in bone metastasis, - Use and insurance considerations for treatments like Provenge, - Sequencing treatments for optimal results. 00:14:02 *🎯 Sequencing and Effectiveness of Treatments* - Discussion on sequencing chemotherapy and PCTO, - Comparing side effects and effectiveness of treatments, - Decision factors for choosing therapy methods. 00:18:00 *⚙️ Treatment Timing and Patient Advocacy* - Importance of timing in treatment and monitoring PSA levels, - Issues in community treatment settings, - Encouraging patient self-advocacy and timely responses to treatment progress. 00:19:10 *🏃♂️ Managing Treatment Side Effects* - Strategies to handle treatment side effects, especially fatigue, - Importance of fitness during treatment, - Exploring different chemotherapy schedules and supportive care options. 00:20:30 *🤝 Importance of Seeking Multiple Opinions* - Encouragement to seek multiple medical opinions, - Emphasizing individual cancer differences in treatment response, - Resources and support available for advanced prostate cancer patients. Made with HARPA AI
Is anyone able to make a video clear up between myths & facts? Is it true that Pluvicto was talked about to help(not cure) all prostate cancers that show PSMA markers, but it really doesn’t treat prostate cancer in bones but only in soft tissue? Why do so many people say Xofigo is a road to a quick prostate cancer patient’s death? Is there anything new for those that zytiga/xtandi only worked for less than 3 months?
Thanks for your informative discussions. My questions is: At 74, I have oligo-metastatic (one pelvic bone, two lymph node spots) currently on second generation hormone mono therapy (Finasteride with Nubeqa) and the radiation oncologist was concerned with spot radiation on the prostate due to high level of PVR. So, is PAE an option for killing cancer cells in the prostate? Normally used for BPH, but if cancer cells are the quickest growing, perhaps they are more sensitive to the effects of nutrient deprivation due to PAE. Also, PAE has much lower side effects problems than radiation. I have not heard you discuss this option. What due you think?
My dad had prostate cancer years ago and had the “radical” surgery to removed it. This has been about 32 years ago. They said they got it all. He’s now 92yo, and has had no issues from it, other than bad incontinence. Upon a trip to the ER yesterday for chest pain, he was diagnosed with Bone Mets. I’m kind of confused how he got this now since it’s been a long time since his surgery. Is this possible? It showed up on a CT Scan of his chest. They confirmed with scan of his abdomen. Dr told me it wasn’t on a scan from two years ago. She also said n So I’m confused and concerned about what to do next and how do I know if it’s aggressive m? Thanks 😊
Just a practical question. You say you will link videos in the description but for the life of me I cannot seem to find those links 😂 can you help me find them?
For a stage 4, Gleason 4+5=9, patient who responded well to meds to bring the PSA down from 1,300 to 0.09 in ~4 months, how do you determine remission vs cure if the PSA has been steady for 21 months? Total journey time from diagnosis to now is 25 months.
@@nicktotmianin288 My husbands is at 1, 383 right now and has been as high as 2,999. We got him down to a 3 one time but it didn't last long. We are supposed to try pluvicto next month.
This is a great discussion about stage 4 prostate cancer. I was diagnosed in feb 2023. I was 57 years old. Now…My PSA is less than .1 since June. 2023. I’m not dying of cancer yet!!!!
I’ve cut out ALL carbs and sugar from my diet. Hopefully I’ll get old enough to enjoy my retirement
GOOD Luck 👍
I am on Keto diet also
@@davidf9630 yes good luck, i always tell people just tell God u want to stay, not leaving
Wishing you the very best of Luck.
Wish you a quick recovery.
I knew nothing about cancer, first heard of PSMA here. My prostate G 9, 5 bone met. I requested a PMSA Scan, they said no since it is never apppved.. Ins approved it, the scan shows more cancer, lung, liver, throat, stomach, and one on spine. These would have never been addressed unless I demanded the PMSA scan. Yes this sux but it being unknown it could have been worse.
Thank you for this channel.
Superb information on an ongoing basis. Thank you both and your team very much for all you do.
I am very grateful we have found this organization. We have talked to Jonathan on the helpline and he has been extremely helpful. After 3 doses of docatexel, hubby's psa stabilized. When the treatment was finished, the psa started to rise. He is now getting lu-177 and after the first dose the psa rose. We see the oncologist on Monday and will know if it has come down, or at least stabilized. These videos are such great information.
I am struggling to find answers and expectations. Where can I find the helpline number? Thank you.
Great explanation
Very helpful information
Thank you
Gives me options .
Thanks for the video , my psma scan shows me clear today -) still in remission, psa of 0.03 , in 2022 diagnosed with stage 4 Gleason 10 , metastasis !10 of them , to the spine, hip and lymph nodes! 6 cycles of Taxotere , first and second hormone therapy at the same time , and also managed to get radiation to the main tumor to finish off , thanks to my oncologist in France ( no insurance problems ) all on the state social security! Even planes and taxis paid for ! Today I did Corsica Nice by plane , Nice to Monaco by taxi ! All covered! Way better than the UK and the US ( sorry I had to say it )
Congratulations, but I am confused by your message. French Social security paid for your treatment ?
@@terriblepainter7675yes , why ? I know as well in the UK the NHS is free , but they don’t pay for flights and taxis , but in France they do, I feel so sorry for people in the US having to pay for scans and treatments!!
@@homestudiotutorialsMy understanding is that the french health care system is a universal health care largely financed by the government national health insurance, not by the social security system. I am just confused by your term social security. I am learning about the system in France.
@@terriblepainter7675yes it’s the secu as we call it here that covers it in my case cos I have worked all my life here , there is universal coverage for people are out on the streets or how have never worked, can’t remember what it is called ! But to get taxis and planes covered you have to have a special status called long illness which includes cancer of course, and then you don’t even need to have a mutuelle , ( the extra bit of insurance you have to have ) cos everything is covered, I am just surprised to hear them always talking about insurance coverage on here ! It’s madness to me !!
Hey, that is very very awesome emphasizing the degree of awesomeness in any regard. I am exactly in your shoes. The only thing that I have not done is radiation to the main tumor in the prostate my current oncologist and urologist will not acquiesce to my desire to get my prostate radiated so I went around them and found a Radiation oncologist that will do it even though he caveats everything by saying there is no known benefit, but it sounds like there was a benefit for you. Congratulations.
Please discuss the cases that the psma scans do not pick up the disease.
great content , fellow HCP here
Very concise & informative. Thanks!
Thank you Alex for bringing these videos to us in such a professional but sensitive way. Your clear questions bring out key information and your caring manner helps us to feel comfortable approaching what can be very challenging topics. Your work is much appreciated
Thank you for this wealth of valuable information you're giving us, PCRI. As a daughter of an ailing father who's suffering from metastatic prostate cancer, your videos help me navigate this complicated situation we are in now.
I hope you'd discuss about bone marrow infiltration soon.
Hi. What ongoing treatment are you on - ADT & 2nd generation drugs ? An answer would be nice to have to complement your existing journey.
Thank you for doing these videos. It is very helpful. And gives me a bit of hope. Bless you for this.
Informative, as always. Thanks!
It's frustrating (but not surprising) to hear how much insurance influences treatment plans. I get my care through the VA San Diego, so insurance issues are a lesser concern for me. However, the VA does seem slow to adapt newer technologies. VA required that I have a negative bone scan result before authorizing a PSMA PET scan. That was guaranteed at my PSA level of 0.37 ng/mL. (The PSMA PET scan also came back negative.)
Congratulations.
So, the negative psma says you are free from metastasis.
Thank you. I have aggressive metastatic prostate cancer, but it has been very responsive to ADT & Pluvicto (study trial).
Awesome
I have Metastatic prostate cancer to my bones and liver , I'm one year in now .
My Oncologist started me right away with Chemo 6 rounds Taxotere
Zolodex injection
Nubeqa
Zometa
I'm hoping to start doing Zometa every 3 months going forward .
All in all happy with my Oncologist and Urologist.
These videos by Alex and Dr Scholz gives me confidence I'm on the right treatment and allows me to take notes and ask questions ?
All the best
Best to you!
Awesome
I had IBRT with HDR Brachytherapy in March for Gleason 9 PSA 24.2. Just had 4 month followup PSA now 135! Scheduled for another PSMA PET, but pretty much guarantees it's now metastatic. Can't help but believe that the biopsy and the HDR released the cancer into my body as PET scan prior to treatment was clear.
Refer to UA-cam "Prostate Cancer 101. ..@ 22.41".
Dr. Matthew Cooperberg says: "Each prostate biopsy does carry low risk of bleeding and infection. Biopsy does not spread prostate cancer."
Refer to UA-cam "Prostate Cancer 101" .... @ 22:41, Dr. Matthew Cooperberg says: "Each prostate biopsy does carry a low risk of bleeding and infection. Biopsy does not spread prostate cancer."
Very informative discussion. Thank you.
can u have .4 PSA with bone metz
can you do a video about eggs and dairy effecting prostate cancer ? I have seen a lot of conflicting information on this topic concerning fat free dairy thanks
We have watched several UA-cam videos of diet. Most were Dr Scholz. It is what my husband is following strictly. I don't remember how to find them. But probably just put PCRI diet in the search bar.
🎯 Key points for quick navigation:
00:00:00 *🩺 Introduction to Bone Metastasis in Prostate Cancer*
- Overview of prostate cancer metastasizing to bones,
- Explanation of how cancer spreads and metastasizes,
- Concerns related to prognosis and treatment discussions.
00:03:03 *🧬 Treatment Sensitivity & Remission*
- Importance of treatment sensitivity in cancer prognosis,
- Explanation of PSA levels and their impact on survival,
- Cases of remission with appropriate treatments.
00:04:56 *💊 Treatment Options for Bone Metastasis*
- Various treatment strategies for bone metastasis,
- Importance of combination approaches, including chemotherapy,
- Details about hormone and radiation therapies.
00:08:06 *🚀 Hormone Therapy and New Developments*
- Role of hormone therapy in treating bone metastasis,
- PSA targeting using hormone therapy,
- Impact of new imaging techniques on treatment duration.
00:09:53 *🦴 EXa and Immune Therapies*
- Impact and side effects of EXa in bone metastasis,
- Use and insurance considerations for treatments like Provenge,
- Sequencing treatments for optimal results.
00:14:02 *🎯 Sequencing and Effectiveness of Treatments*
- Discussion on sequencing chemotherapy and PCTO,
- Comparing side effects and effectiveness of treatments,
- Decision factors for choosing therapy methods.
00:18:00 *⚙️ Treatment Timing and Patient Advocacy*
- Importance of timing in treatment and monitoring PSA levels,
- Issues in community treatment settings,
- Encouraging patient self-advocacy and timely responses to treatment progress.
00:19:10 *🏃♂️ Managing Treatment Side Effects*
- Strategies to handle treatment side effects, especially fatigue,
- Importance of fitness during treatment,
- Exploring different chemotherapy schedules and supportive care options.
00:20:30 *🤝 Importance of Seeking Multiple Opinions*
- Encouragement to seek multiple medical opinions,
- Emphasizing individual cancer differences in treatment response,
- Resources and support available for advanced prostate cancer patients.
Made with HARPA AI
Is anyone able to make a video clear up between myths & facts? Is it true that Pluvicto was talked about to help(not cure) all prostate cancers that show PSMA markers, but it really doesn’t treat prostate cancer in bones but only in soft tissue? Why do so many people say Xofigo is a road to a quick prostate cancer patient’s death? Is there anything new for those that zytiga/xtandi only worked for less than 3 months?
Thanks for your informative discussions. My questions is: At 74, I have oligo-metastatic (one pelvic bone, two lymph node spots) currently on second generation hormone mono therapy (Finasteride with Nubeqa) and the radiation oncologist was concerned with spot radiation on the prostate due to high level of PVR. So, is PAE an option for killing cancer cells in the prostate? Normally used for BPH, but if cancer cells are the quickest growing, perhaps they are more sensitive to the effects of nutrient deprivation due to PAE. Also, PAE has much lower side effects problems than radiation. I have not heard you discuss this option. What due you think?
My dad had prostate cancer years ago and had the “radical” surgery to removed it. This has been about 32 years ago. They said they got it all. He’s now 92yo, and has had no issues from it, other than bad incontinence.
Upon a trip to the ER yesterday for chest pain, he was diagnosed with Bone Mets. I’m kind of confused how he got this now since it’s been a long time since his surgery. Is this possible?
It showed up on a CT Scan of his chest. They confirmed with scan of his abdomen. Dr told me it wasn’t on a scan from two years ago. She also said n
So I’m confused and concerned about what to do next and how do I know if it’s aggressive m? Thanks 😊
WHEN I TOLD MY DOCTOR I WANT TO LIVE ONLY 10 YEARS, HE WAS ANGRY.
Just a practical question. You say you will link videos in the description but for the life of me I cannot seem to find those links 😂 can you help me find them?
For a stage 4, Gleason 4+5=9, patient who responded well to meds to bring the PSA down from 1,300 to 0.09 in ~4 months, how do you determine remission vs cure if the PSA has been steady for 21 months? Total journey time from diagnosis to now is 25 months.
May I ask what meds you are taking?
@@comfortablynumbly, Lupron, Xtandi, and Xgeva.
Is PSA 1,300 (never heard of such high) not a misprint?
@@nicktotmianin288, not a misprint. I know guys who started higher.
@@nicktotmianin288 My husbands is at 1, 383 right now and has been as high as 2,999. We got him down to a 3 one time but it didn't last long. We are supposed to try pluvicto next month.
Thanks, many thanks.