They cost her £3.00 and she charges £30.00 for a product that you can only use one time, people with ME would do anything to feel better and she's preying on their misery to make money. It's disgusting.
So you expect everyone in the world to sell their products for what it cost them to make it? You do realise it's a business? How is she meant to make any profit if she sold it for £3? It's not like it's a necessary item either like sanitary products which are profiting too, otherwise they wouldn't be able to continue their business and keep making more products. She isn't forcing people to buy it either. Yeah it might not cure them but it's a choice people make to buy it. What about all these miracle skincare claiming they'll fix your skin conditions, surely they're trying to profit off people's misery too then. You can literally apply that to a million things.
This is primarily the BBC's fault. They acted without the necessary due diligence expected of any responsible broadcaster, and particularly the state regulated, national broadcaster. Would they have allowed this entirely scientifically unevidenced sales pitch to be broadcast in this manner at a potentially vulnerable, economically exploitable population for cancer, or MND or Alzheimer's or just about any mainstream health condition? Of course not. Shamefully ME-CFS was treated by the BBC & DD as nothing but an "entertainment condition", which was hugely disrespectful of the considerable number of people whose lives are blighted by it.. The only thing the Dragons cared about in their cross examination was the 1000%, price-gouging sized mark-up.
I've been sick for 20 years and I would like to say thank you so much for this coverage. It means so much to see ME represented accurately in the media 💖
@@Mel87y firstly I'm so sorry you're going through this as well. Please know that, although you may feel it, you're not alone. There are many groups on places like Facebook with people who have lots of knowledge, there may even be support groups in your area and there are some amazing charities such as Action for ME, Invest in ME Research and Decode ME (I'm UK based) . I've been better than I currently am (a virus has knocked me off my feet) and I've been worse. I listen to my body and if I need to rest I don't ignore it, I also don't push myself beyond what I know I can do. I get regular blood tests and look over the results myself so I can keep track and see if something is very close to the margins of "normal". I hope this helps!
@@Mel87y I did write a much longer reply but for some reason it isn't here. Listen to your body and look for support. There are many charities and support groups with expert knowledge. I hope this one posts!
As someone who has lost a precious love one who died from M.E and who lives with severe M.E I want to thank This morning for having such a decent doctor and the show for obviously being so concerned for our welfare. I hope you'll invite representatives from M.E charities who wrote the letter and perhaps a family who have suffered the loss of their loved ones to M.E who have spent years since trying to prevent the deaths of my peers from occurring through their heartache for their precious daughters because I think its important that those who died are remembered and centred when it comes to this kind of story. Its *incredibly* important to recognise their deaths and why its so desperately needed for proper biomedical research and why misleading untested products like this are so dangerous. It leads to further stigma and trivialising of our condition and its unbearable given the consequences of that. I wish Dr Nighat were my GP 💙
@@burntcrumpets5616yes. Many have in the 17 years I have been ill. My friend was Victoria Webster. Mostly due to stigma and ignorance around the condition and neglect that caused. If you really care also look up Maeve Boothby-O'Neill and Merryn Crofts who died recently and whose parents campaign to try to prevent others with M.E from facing the same fate.
@@lustforlife247what a horrible belittling response, I have had ME for 14 years now, I'm well educated on it and I can tell you it is very rare for people to die from it. Either way, there isn't any need for such a response from you.
Really good, reliable information here to counteract at least some of the harm done by the BBC program. I have ME and have been retired and incapable of standing for more than a few minutes for years. I am definitely not opposed to non-mainstream treatments. However in the case of my ME and those who I know, nothing like ear seeds helps. They may improve individual wellbeing but are definitely NOT a treatment for ME. To suggest otherwise as the woman in the Dragons' Den episode did is to peddle false hope to people with ME and everyone who knows them. It's also taking money from desperate people with diminishing financial resources who are willing to try ANYTHING
Does anyone remember the first episode of Dr House when he ridicules his patient complaint of cfs/fibromyalgia? He gives him candy as placebo to show how it is all in his head. Sad, so sad. We have been dismissed and ridiculed by the medical profession for decades. I am pleased by this video. I might not die bedridden after all. Maybe in another 10 years doctors will start paying attention. Millions of cfs people can't all be imagining similar symptoms, can they?
Known by many as the lazy disease and people who suffer from it are often thought of as lazy, work shy, antisocial...or just wanting to sit at home and claim benefits. There are without a doubt a minority that are "playing the system"...but more in depth diagnosis could help to limit that along with more awareness. It is currently diagnosed purely based on your symptoms which doesn't help...so I could go to my GP tomorrow and claim to have it and tick all of the boxes of M.E which are asked of me, and end up sitting at home claiming disability benefits in the very near future and I don't have M.E at all. I think because of that, it's gained a reputation which to the genuine sufferers, isn't fair.
I used to work 7 days a week(probably to prove to people although I didn't know it at the time) and I know am not lazy but spent most of my adult years watching people judge me and talk behind my back close friends and family even I didn't know what was wrong. When all that people see is me when am resting I am labelled lazy no one takes it seriously when I say am not well. I spent too many years trying to prove that am not lazy. Finally diagnosed I don't know anything about disability benefits, when I was unemployed for 6 months (contract ended) I didn't collect anything from the government. I just want to be well and believed when I say I really can't make it. It's isolating because your friends think you are choosing to not hangout. My condition has gotten worse my job doesn't believe me despite the diagnosis. I now spend most of my time and energy when not working nauseous and lying flat doing basic household chores so I don't live in squalor and be judged more as lazy or eating junk food all day. I am still trying to figure out how to go out for longer than 30 mins without getting a fever and sick for a day or 2. I really feel sorry for anyone who has M.E and hope there was someway I could help.
Please include ME on your socials. It’s tumbleweeds as far as this topic goes on there at the moment and this clip by Dr Nighat needs to be seen by a wider audience
They’ve just lost a lot of credibility. They’ve went from being dragons to being donkeys. They’re willing to invest in snake oil in order to exploit the desperation of people that are already vulnerable? Reprehensible behaviour.
I have been house bound for 10+ years and my doctors in the US dont acknowledge ME. They just say people with chronic IC are often anti social. Im not anti social. I miss socializing. I'm constantly exhausted! If i get stressed it's like I become sedated. I have often wondered if it wasn't this condition but my doctors say it's not real.
Relate. I was never at home and was one of the most social people you could meet before mono triggered this. I even had a dr ask if I wanted a real life like it was a choice. Cruel doesn't even cut it the way we are treated. Sending love 💙
@@Mel87y its not very recognised or well treated in the UK. Very common to have medical gaslighting and drs be dismissive. Not only have I suffered that kind of neglect but I have *avoidable* permanent harms from undiagnosed other issues that the GP wouldn't investigate and dismissed as 'just m.e' even though they aren't m.e symptoms and in the same breath he dismisses its seriousness. The harms I have are serious and have led to surgeries and loss of function and disfigurement.
@@sparklingblackrose3 that maybe for you but in London there are clinics and GPS who want to help ppl and fund all sorts of treatments it is recognised in the UK there is associations and clinics who help people get diagnosed
@@Mel87y I live near london. This is not a true reflection. I also have hundreds of friends across the UK who access care. I am yet to meet anyone who holds the view you do and who is able to access good supportive care. In the past couple of years there have been three cases of people denied life saving care that I know of, one of whom was denied care and paid the ultimate price and whose parents are fighting to have a coroner prevent this from happening again. Maeve Boothby-O'neill. Her story is covered in The Times because her father is a journalist there. As well as that Merryn Crofts died from similar neglect by the NHS in 2017 because the drs 'didn't believe' in M.E and refused care. I lost my friend Victoria Webster even earlier through this illness too. I won't have anyone erase the loss of these beautiful people taken too early because of neglect and stigma around this condition. They deserved better and *especially* deserve to be remembered after what the UK allowed to happen to them which led to their deaths and their cases should be looked at to prevent this kind of suffering and loss in the future.
I'm glad this has been addressed and thank the doctor for doing so. I would say though that it's not really a diagnosis of exclusion anymore, I would have liked her to explain PEM as the defining feature, and also to highlight the severity to a greater extent. Ie I'm moderate-severe and am mostly bedbound. Since we know the very severe might be unable to sit up, tolerate people or eat, 'housebound' doesn't come close to summarising the extent of it. I do think she did a great job and a lot of this was down to time constraints. I hope they have her back and all of this will get clarified and covered in more detail. In a weird way dragons den might have done us a favour, at least there is media interest in our illness for once.
To market a product claiming its a cure fir ME suffers without any independent medical research and relevant approval could lead her to incur both large civil fines and possible criminal prosecution..I don't think the trading standards authority would be very happy on her claims..I'm just amazed not a single Dragon asked her fir medical evidence that ear seeds even work and whether the product has independent medical approval for its distribution and sale.
Not saying if this works or not, but for definitely if a product comes up which has a potential threat to the big pharmaceutical companies they will always put it down. The normal people are not scientist, so what ever will be told to the normal person they would just have to believe.
Thank you Dr Nighat for your explanation of ME 🥹 And thank you Dermot for inviting her back to discuss ME in more detail - the public do not understand this condition (indeed many doctors do not either) and therefore this exposure is sorely needed
I think exposure is needed, but as it is diagnosed by symptoms only, there may be a concern of more and more people abusing the system as a result. Too easy to go to a GP, claim to have M.E, nod along to every symptom question you're asked, or embellishing responses... and then sit at home claiming benefits...and that in itself doesn't help its reputation, which is sad and wrong for the genuine sufferers. A good friend of mine feels that her life has been stolen by M.E so I do feel for the individuals really suffering with it.
@stevenalderley9036 as someone with ME I had to fight for 5+ years to finally get diagnosed. No one walks in and just fakes the diagnosis. And my story on that is far from unique. I work full time from home still. I have the moderate symptoms. I wake in pain each morning and have extremely similar symptoms to MS which still doesn't have a reliable single test diagnosis either. In ME Facebook groups even people with severe symptoms are struggling to get approved for pip and have to live in poverty or rely on friends/family. Your concern about faking to get benefits is unfounded.
It's not the severely severe that are housebound. Severe are housebound, most are bedbound. Severe are all completely bedbound in the dark, can't have any light or sound, doubly incontinent, often tube fed, often on oxygen. They can and do often die. I'm in the severe category and I'm stuck in bed at least 95% when I'm at my wellest. You constantly feel so ill you can't understand how you're still alive and I'm in constant agony though some of that is from other illnesses. I also have fibromyalgia, PoTS, hypermobile type Ehlers Danlos known as hEDS. Plus lots of comorbidities of the hEDS, PoTS being one, and digestive issues, bladder issues, severe allergy issues. Also other stuff going on that affects my immunity so I'm immuno-compomised and vaccines don't work on me so I'm doubly at risk.
Should've said not just. Most moderately affected are also housebound a lot of the time and use mobility aids such as crutches, walkers, scooters or wheelchairs. They can't work full time and try to work from home if they can still work at all. A lot can't. It's usually only mildly affected that can have a "normal" job. Sadly a lot push themselves too much, trying to carry on as normal when they need to be resting and pacing. Then they crash and never go back to where they were.this is how most of us became severe. If you're mild or newly diagnosed, please learn from our mistakes.
Thank you for being respectful and telling the truth about our horrible condition. I’m bedridden 95% of the time and have been sick since I was 16. For many, especially the extremely severe it’s like living death. The truth about our illness is hardly ever told, and we are constantly belittled and gaslighted. Most people have never heard of ME/CFS because word hasn’t gotten out even though there are millions of us. Nice to know some people actually care and are respectful. Thank you for this, please have her on the show again to spread the word on our disease!❤
Wow. Diagnosed with ME over 40 years and extra severe, with near zero medical help, I appreciate this coverage. Go on, tell the world the truth. Thank you.
You need to get Toby Morrison on to talk about CFS Health ! He's helped so many people including myself. I feel like more people should know how to recover from CFS. It's a process ❤ Seriously he's amazing. Please invite him on. CFS etc is such a sentence, like being dead but still walking 😢 Toby makes people better 🎉🎉🎉🎉
From the doctor's own admissions, the NHS is not able to help those with M.E. The fact that this lady is presenting this idea of ear seeds, something a lot of people probably haven't heard of, is a good thing as awareness of alternative treatments. You don't have to buy hers if you think it's expensive. You can buy way cheaper ones that do the same job.
Except it's mere quackery. If I told you I had a cure for the common cold and it only costs $10 a bottle would you like to place an order? Perhaps I could offer you trepanning for that headache? All of these alternative medicines and procedures have their roots in ancient times before science was widely practised and should be consigned to the history bin, along with religion.
@@Bercilakdehautdesert-yt1gd That's your opinion. The fact is that in this case, and in many other cases, Western medicine is not able to offer any help for the patient. If people want to try alternative methods which fill that much needed gap, and it works, then good for them. You should question yourself as to why more and more people are searching for other medical systems, and it's because Western medicine, while it is excellent for certain situations, is extremely lacking for most others.
It wasn’t even pitched at ME. She was sharing HER personal experiences. And as someone who suffers from neuropathy with NO CURE this product has helped my symptoms SIGNIFICANTLY
It was most definitely pitched to M.E. sufferers. Its all well have a personal experience but there needed to balance provided on this publicly funded broadcast .
@@knightbrucie she used her personal experience of having M.E. When we go to doctors surgeries for medication it doesn’t work the same for everyone. Likewise, this product may work for some individuals and not for others. For example, it has helped my neuropathy symptoms however this may not be the case for another individual who has neuropathy.
@@ellie3690 I'm glad you got some relief from this, truly. However the general public will take this at face value. It needed to be handled better by the BBC.
They cost her £3.00 and she charges £30.00 for a product that you can only use one time, people with ME would do anything to feel better and she's preying on their misery to make money. It's disgusting.
So is every other pharmacy I don’t blame her for making money from it everyone else does it’s the world we live in
So you expect everyone in the world to sell their products for what it cost them to make it? You do realise it's a business? How is she meant to make any profit if she sold it for £3? It's not like it's a necessary item either like sanitary products which are profiting too, otherwise they wouldn't be able to continue their business and keep making more products. She isn't forcing people to buy it either. Yeah it might not cure them but it's a choice people make to buy it. What about all these miracle skincare claiming they'll fix your skin conditions, surely they're trying to profit off people's misery too then. You can literally apply that to a million things.
@@flipperbigg8943
That's called whataboutism
This is primarily the BBC's fault. They acted without the necessary due diligence expected of any responsible broadcaster, and particularly the state regulated, national broadcaster. Would they have allowed this entirely scientifically unevidenced sales pitch to be broadcast in this manner at a potentially vulnerable, economically exploitable population for cancer, or MND or Alzheimer's or just about any mainstream health condition? Of course not.
Shamefully ME-CFS was treated by the BBC & DD as nothing but an "entertainment condition", which was hugely disrespectful of the considerable number of people whose lives are blighted by it.. The only thing the Dragons cared about in their cross examination was the 1000%, price-gouging sized mark-up.
Thank you for this and love Dr Nighat! Looking forward to the more in depth coverage with her on ME.
Probably not a cure for ME but could help other things as it is accupressure.
There is 0 evidence that it can help with anything
I've been sick for 20 years and I would like to say thank you so much for this coverage. It means so much to see ME represented accurately in the media 💖
Wow me too but mine is new I hope you recover ❤
@@Mel87y firstly I'm so sorry you're going through this as well. Please know that, although you may feel it, you're not alone. There are many groups on places like Facebook with people who have lots of knowledge, there may even be support groups in your area and there are some amazing charities such as Action for ME, Invest in ME Research and Decode ME (I'm UK based) .
I've been better than I currently am (a virus has knocked me off my feet) and I've been worse. I listen to my body and if I need to rest I don't ignore it, I also don't push myself beyond what I know I can do. I get regular blood tests and look over the results myself so I can keep track and see if something is very close to the margins of "normal". I hope this helps!
@@Mel87y oh and thank you! I think I'll always have to be careful but life is better than it used to be!
@@myMEpuzzle ahh good!
@@Mel87y I did write a much longer reply but for some reason it isn't here. Listen to your body and look for support. There are many charities and support groups with expert knowledge. I hope this one posts!
As someone who has lost a precious love one who died from M.E and who lives with severe M.E I want to thank This morning for having such a decent doctor and the show for obviously being so concerned for our welfare. I hope you'll invite representatives from M.E charities who wrote the letter and perhaps a family who have suffered the loss of their loved ones to M.E who have spent years since trying to prevent the deaths of my peers from occurring through their heartache for their precious daughters because I think its important that those who died are remembered and centred when it comes to this kind of story. Its *incredibly* important to recognise their deaths and why its so desperately needed for proper biomedical research and why misleading untested products like this are so dangerous. It leads to further stigma and trivialising of our condition and its unbearable given the consequences of that. I wish Dr Nighat were my GP 💙
Died.......from M.E.???
@@burntcrumpets5616yes people can, clearly you aren’t educated on the matter
@@lustforlife247 goodness.......I hope to Betsy it's not contagious!
@@burntcrumpets5616yes. Many have in the 17 years I have been ill. My friend was Victoria Webster. Mostly due to stigma and ignorance around the condition and neglect that caused. If you really care also look up Maeve Boothby-O'Neill and Merryn Crofts who died recently and whose parents campaign to try to prevent others with M.E from facing the same fate.
@@lustforlife247what a horrible belittling response, I have had ME for 14 years now, I'm well educated on it and I can tell you it is very rare for people to die from it. Either way, there isn't any need for such a response from you.
Please bring Dr. Nighat back! I would love a larger scale discussion about ME on This Morning.
Really good, reliable information here to counteract at least some of the harm done by the BBC program. I have ME and have been retired and incapable of standing for more than a few minutes for years. I am definitely not opposed to non-mainstream treatments. However in the case of my ME and those who I know, nothing like ear seeds helps. They may improve individual wellbeing but are definitely NOT a treatment for ME.
To suggest otherwise as the woman in the Dragons' Den episode did is to peddle false hope to people with ME and everyone who knows them. It's also taking money from desperate people with diminishing financial resources who are willing to try ANYTHING
Does anyone remember the first episode of Dr House when he ridicules his patient complaint of cfs/fibromyalgia? He gives him candy as placebo to show how it is all in his head. Sad, so sad. We have been dismissed and ridiculed by the medical profession for decades. I am pleased by this video. I might not die bedridden after all. Maybe in another 10 years doctors will start paying attention. Millions of cfs people can't all be imagining similar symptoms, can they?
I feel so sorry for anyone with ME, it sounds horrible and frustrating. My mum has ME and I find not a lot of people take it seriously.
Known by many as the lazy disease and people who suffer from it are often thought of as lazy, work shy, antisocial...or just wanting to sit at home and claim benefits. There are without a doubt a minority that are "playing the system"...but more in depth diagnosis could help to limit that along with more awareness. It is currently diagnosed purely based on your symptoms which doesn't help...so I could go to my GP tomorrow and claim to have it and tick all of the boxes of M.E which are asked of me, and end up sitting at home claiming disability benefits in the very near future and I don't have M.E at all. I think because of that, it's gained a reputation which to the genuine sufferers, isn't fair.
I used to work 7 days a week(probably to prove to people although I didn't know it at the time) and I know am not lazy but spent most of my adult years watching people judge me and talk behind my back close friends and family even I didn't know what was wrong. When all that people see is me when am resting I am labelled lazy no one takes it seriously when I say am not well. I spent too many years trying to prove that am not lazy. Finally diagnosed I don't know anything about disability benefits, when I was unemployed for 6 months (contract ended) I didn't collect anything from the government. I just want to be well and believed when I say I really can't make it. It's isolating because your friends think you are choosing to not hangout. My condition has gotten worse my job doesn't believe me despite the diagnosis. I now spend most of my time and energy when not working nauseous and lying flat doing basic household chores so I don't live in squalor and be judged more as lazy or eating junk food all day. I am still trying to figure out how to go out for longer than 30 mins without getting a fever and sick for a day or 2. I really feel sorry for anyone who has M.E and hope there was someway I could help.
Please include ME on your socials. It’s tumbleweeds as far as this topic goes on there at the moment and this clip by Dr Nighat needs to be seen by a wider audience
They’ve just lost a lot of credibility. They’ve went from being dragons to being donkeys. They’re willing to invest in snake oil in order to exploit the desperation of people that are already vulnerable? Reprehensible behaviour.
I loved it when they tore apart pyramid schemes and silly ideas like flow signals, now they actively invest in voodoo such as this and crystals
Many thanks to Dr Nighat, Sian, and Dermot for covering this issue and being allies to the ME/cfs community 💙
I have been house bound for 10+ years and my doctors in the US dont acknowledge ME. They just say people with chronic IC are often anti social. Im not anti social. I miss socializing. I'm constantly exhausted! If i get stressed it's like I become sedated. I have often wondered if it wasn't this condition but my doctors say it's not real.
Relate. I was never at home and was one of the most social people you could meet before mono triggered this. I even had a dr ask if I wanted a real life like it was a choice. Cruel doesn't even cut it the way we are treated. Sending love 💙
Your doctors are deluded it’s very real and very recognised in the uk🤗
@@Mel87y its not very recognised or well treated in the UK. Very common to have medical gaslighting and drs be dismissive. Not only have I suffered that kind of neglect but I have *avoidable* permanent harms from undiagnosed other issues that the GP wouldn't investigate and dismissed as 'just m.e' even though they aren't m.e symptoms and in the same breath he dismisses its seriousness. The harms I have are serious and have led to surgeries and loss of function and disfigurement.
@@sparklingblackrose3 that maybe for you but in London there are clinics and GPS who want to help ppl and fund all sorts of treatments it is recognised in the UK there is associations and clinics who help people get diagnosed
@@Mel87y I live near london. This is not a true reflection. I also have hundreds of friends across the UK who access care. I am yet to meet anyone who holds the view you do and who is able to access good supportive care. In the past couple of years there have been three cases of people denied life saving care that I know of, one of whom was denied care and paid the ultimate price and whose parents are fighting to have a coroner prevent this from happening again. Maeve Boothby-O'neill. Her story is covered in The Times because her father is a journalist there. As well as that Merryn Crofts died from similar neglect by the NHS in 2017 because the drs 'didn't believe' in M.E and refused care. I lost my friend Victoria Webster even earlier through this illness too. I won't have anyone erase the loss of these beautiful people taken too early because of neglect and stigma around this condition. They deserved better and *especially* deserve to be remembered after what the UK allowed to happen to them which led to their deaths and their cases should be looked at to prevent this kind of suffering and loss in the future.
now they're saying that Steven's brother was on the board of directors for the lady's company. very fishy
I thought the company just involved her.. she has a board of directors?
@@kay-fg8zy apparently the brother was a part of the company. they spoke about it on GB news
I'm glad this has been addressed and thank the doctor for doing so. I would say though that it's not really a diagnosis of exclusion anymore, I would have liked her to explain PEM as the defining feature, and also to highlight the severity to a greater extent. Ie I'm moderate-severe and am mostly bedbound. Since we know the very severe might be unable to sit up, tolerate people or eat, 'housebound' doesn't come close to summarising the extent of it. I do think she did a great job and a lot of this was down to time constraints. I hope they have her back and all of this will get clarified and covered in more detail. In a weird way dragons den might have done us a favour, at least there is media interest in our illness for once.
I agree. She needs to clarify the different severities. I've just commented on this myself. I'm severe and terrified of becoming very severe.
To market a product claiming its a cure fir ME suffers without any independent medical research and relevant approval could lead her to incur both large civil fines and possible criminal prosecution..I don't think the trading standards authority would be very happy on her claims..I'm just amazed not a single Dragon asked her fir medical evidence that ear seeds even work and whether the product has independent medical approval for its distribution and sale.
Thank you for covering this
she deleted me from instagram when I said the seeds didn't help my cfs/me
Not saying if this works or not, but for definitely if a product comes up which has a potential threat to the big pharmaceutical companies they will always put it down. The normal people are not scientist, so what ever will be told to the normal person they would just have to believe.
Thank you Dr Nighat for your explanation of ME 🥹
And thank you Dermot for inviting her back to discuss ME in more detail - the public do not understand this condition (indeed many doctors do not either) and therefore this exposure is sorely needed
I think exposure is needed, but as it is diagnosed by symptoms only, there may be a concern of more and more people abusing the system as a result. Too easy to go to a GP, claim to have M.E, nod along to every symptom question you're asked, or embellishing responses... and then sit at home claiming benefits...and that in itself doesn't help its reputation, which is sad and wrong for the genuine sufferers. A good friend of mine feels that her life has been stolen by M.E so I do feel for the individuals really suffering with it.
@stevenalderley9036 as someone with ME I had to fight for 5+ years to finally get diagnosed. No one walks in and just fakes the diagnosis. And my story on that is far from unique.
I work full time from home still. I have the moderate symptoms. I wake in pain each morning and have extremely similar symptoms to MS which still doesn't have a reliable single test diagnosis either.
In ME Facebook groups even people with severe symptoms are struggling to get approved for pip and have to live in poverty or rely on friends/family. Your concern about faking to get benefits is unfounded.
It's not the severely severe that are housebound. Severe are housebound, most are bedbound. Severe are all completely bedbound in the dark, can't have any light or sound, doubly incontinent, often tube fed, often on oxygen. They can and do often die. I'm in the severe category and I'm stuck in bed at least 95% when I'm at my wellest. You constantly feel so ill you can't understand how you're still alive and I'm in constant agony though some of that is from other illnesses. I also have fibromyalgia, PoTS, hypermobile type Ehlers Danlos known as hEDS. Plus lots of comorbidities of the hEDS, PoTS being one, and digestive issues, bladder issues, severe allergy issues. Also other stuff going on that affects my immunity so I'm immuno-compomised and vaccines don't work on me so I'm doubly at risk.
Should've said not just. Most moderately affected are also housebound a lot of the time and use mobility aids such as crutches, walkers, scooters or wheelchairs. They can't work full time and try to work from home if they can still work at all. A lot can't. It's usually only mildly affected that can have a "normal" job. Sadly a lot push themselves too much, trying to carry on as normal when they need to be resting and pacing. Then they crash and never go back to where they were.this is how most of us became severe. If you're mild or newly diagnosed, please learn from our mistakes.
Yeah I thought that was a bit weird on dragons den - a big claim - of course health plays a part but a single thing cured ME?
Can get 600 for £1.88 on Temu 😂
This Morning must've learned from their mistake with coeliac. Thank goodness they didnt. Ring Feltz on to give her two pence!
Only thing that’s helped me if getting medical cannabis from integro uk not silly things you stick in your ear.
This Doctor said she has tried it as well, 01:19 but then she doesn't say if it helped in any way or not. Strange!! 🤔
Reading between the lines to says its killing the charitys and doctors fees and this method probably works but not for these people=losing money
You hit the nail on the head, my dear.
Aren't they dangerous? What if they come unstuck during the night and go in your ear??
They are not a cure. They temporarily relieve symptoms.
Thank you for being respectful and telling the truth about our horrible condition. I’m bedridden 95% of the time and have been sick since I was 16. For many, especially the extremely severe it’s like living death. The truth about our illness is hardly ever told, and we are constantly belittled and gaslighted. Most people have never heard of ME/CFS because word hasn’t gotten out even though there are millions of us.
Nice to know some people actually care and are respectful. Thank you for this, please have her on the show again to spread the word on our disease!❤
Wow. Diagnosed with ME over 40 years and extra severe, with near zero medical help, I appreciate this coverage. Go on, tell the world the truth. Thank you.
Diagnosis of exclusion seems like a cop out by the doctor.
As someone diagnosed with ME it is a huge cop out all you really get is some lessons on "pacing" and no other treatment or aid
" "
Clearly worked for the entrepreneur unless shes lieing through her teeth
I know someone who got a piercing for this for headaches.
The woman pitching literally looked like the troll meme.
You need to get Toby Morrison on to talk about CFS Health ! He's helped so many people including myself. I feel like more people should know how to recover from CFS. It's a process ❤ Seriously he's amazing. Please invite him on. CFS etc is such a sentence, like being dead but still walking 😢 Toby makes people better 🎉🎉🎉🎉
He's been a major encouragement for me too
From the doctor's own admissions, the NHS is not able to help those with M.E. The fact that this lady is presenting this idea of ear seeds, something a lot of people probably haven't heard of, is a good thing as awareness of alternative treatments.
You don't have to buy hers if you think it's expensive. You can buy way cheaper ones that do the same job.
Except it's mere quackery. If I told you I had a cure for the common cold and it only costs $10 a bottle would you like to place an order? Perhaps I could offer you trepanning for that headache? All of these alternative medicines and procedures have their roots in ancient times before science was widely practised and should be consigned to the history bin, along with religion.
@@Bercilakdehautdesert-yt1gd That's your opinion. The fact is that in this case, and in many other cases, Western medicine is not able to offer any help for the patient. If people want to try alternative methods which fill that much needed gap, and it works, then good for them.
You should question yourself as to why more and more people are searching for other medical systems, and it's because Western medicine, while it is excellent for certain situations, is extremely lacking for most others.
Seeds helped my insomnia but for ME? Mmmm
It wasn’t even pitched at ME. She was sharing HER personal experiences. And as someone who suffers from neuropathy with NO CURE this product has helped my symptoms SIGNIFICANTLY
It was most definitely pitched to M.E. sufferers. Its all well have a personal experience but there needed to balance provided on this publicly funded broadcast .
@@knightbrucie she used her personal experience of having M.E. When we go to doctors surgeries for medication it doesn’t work the same for everyone. Likewise, this product may work for some individuals and not for others. For example, it has helped my neuropathy symptoms however this may not be the case for another individual who has neuropathy.
@@ellie3690 I'm glad you got some relief from this, truly. However the general public will take this at face value. It needed to be handled better by the BBC.
She did pitch it as a cure. You are buying snake oil