Oddly enough I was told by military doctors I was a behavioral health issue and was put on Paxil against my wishes. I stopped taking it after the first bottle seeing that it wasnt fixing my problem as I knew it wouldnt. My platelets were abnormally high for my whole adult life from age 18 yet they all dismissed them as not an issue. My symptoms were always what this lady doctor called "constitutional." Tingling and numbness in hands, crushing fatigue, lightheadedness, feeling sweaty all the time, redness, and lost my voice and was unable to project my voice anymore but could exercise well. My white blood cells were always just a tad bit low, platelets in the 400,000's, and my red blood cells were in the mid range around 5.00. My hemoglobin used to around 16.2 but now runs around 15.7 to 15.9 and my hematocrit runs around 45 to 49. Diagnosed as ET but now I have a new doc and he thinks it's PV. I am JAK 2.. No apologies from military medical people for labeling me a nutcase though. I am taking aspirin only and am 60. I am doing meditation and prayer and exercise and good diet.
Interestingly enough, you can also ask your patients if they have a history of easily getting shocks from static electricity (more than most people). It's a strange observation but it could be tied to the excess Iron in the blood.
Vij Chauhan it’s a roller coaster ride drink alpha tea and sour sop tea and try to detox your body get off of inflammation foods and don’t smoke you will be fine I’m talking to a natural doctor who thinks he can stop it
Dustin Deyo ah thank you so much im 38 and mine is primary too.. ive had one venesection and told to take aspirin.. surely it cant be that simple.. at the moment im just struggling with stomach pains and muscle pains in my calfs.. trying to find anything any info the uk is a nightmare im finding.. but trying my best to find support available.
@@vijchauhan6529 how are you feeling with your stomach and legs now? Did they give you any treatment that helps? My mother is suffering from severe stomach pain every night with no relief
@@angelapirona9159 I'm doing ok thanks. I'm doing my best to be moving around as much as I can even if it's just walking from one room to another. I'm now on weekly interferon. Itchiness particularly after showers is my biggest difficulty along with my mood changing after taking my injections. I'm finding taking antihistamines, with ibrupfens in the morning and at night along with a mild sedative helps me massively have a decent night's sleep
I had Polycythemia and had to get a phlebotomy about once a month, because my Hemoglobin was around 55 g/dl and my Doctor ordered it. Finally I wondered about people with Anemia that were short of red-blood-cells analogously like an opposite to Polycythemia! Then I looked up the foods that people with Anemia do not eat because they are iron blockers. Many of these foods are called Oxalate's and absorb Iron. So then I started eating these foods (with Oxalate s) abundantly and after a few weeks I had my Hemoglobin checked by my Doctor and my Hemoglobin was down to 16 g/dl and now over a year later my Hemoglobin is still 16 g/dl. That is a drop of 39 g/dl’s in a very short time and it held good. Sometimes just a simple procedures are workable. Of course I believe that my mental procedures, meditations & thoughts had something added to this procedure that was synergy related that made it more effective. Make it clear that I am not prescribing anything to anyone, but expressing my own thoughts and experience. However I would recommend that medical personnel investigate this. Cordially, Robert Shrewsbury
@@HerreraRaza Yes I did eat foods high in oxalates. Part of my work was also spiritual, because I actually talked to my themer-bones that manufacture blood and told them to stop producing so much hemoglobin and to bring it down from 55 Gdl's to 16 gdl's and I repeated this many times for condensation. The body needs directives, so I always couple spiritual with physics and quantum physics/metaphysics with my work. Remember that "Faith without works is dead" this why I use whatever means that work for me. Oxalic acid diluted to a Ph of about 6.5 may be workable, however I would be very, very careful and have my blood tested often for iron reduction, just me thinking out loud. I am a layman and not a professional in medicine and do not advise anyone, although I have studied natural medicine and am a metallurgist and so I know some about chemistry. I hold a Masters and a Bachelors degree in Theology and have studied Kabbalah and Hermetic's for three decades now.
@@robertshrewsbury9344 did you experience stomach pain? My mum is experiencing terrible stomach pain day and night. She is on Hydrea. All her test results are coming back clear
@@robertshrewsbury9344 i has my cbc done yesterday and my rbc hgb(18) and hct were raised, my doctor directed me to test for pv, I'm 21 and I'm scared i might've this condition
@@il3mendo The scary part of PV is it can trigger the same symptoms as thyroidism, metabolic syndromes and autoimmune gastro diseases. I am hypothyroid with kidney failure, gastro issues, elevated hemoglobin and hematocrit. Those bloods have been elevated for 9 years. My new doctor is paying attention to it. I had moderate hydronephrosis last year too. I have a scan this coming week and more blood work to check both hemo and hema. A blood test for the JAK-2 mutation will rule in or out PV. With that said, Celiac causes malabsorption of key vitamins which will raise those blood levels you mentioned. If you supplement vitamins, go with liquid vitamins instead.
@@Pr0ph3cy-k5z in fact I have also EoE, macrocytic anemia, some doctor called it anemia of chronic disease, and sometimes evem with a pure carnivore diet my iron and iron saturation were really low. Even Alt and AST were really high, close to 100, after 1 year of GF diet. I have noticed that even my TSH are influenced by some IgE reaction. My TSH goes from hypo to hyper, within 2 weeks of time, based on my eating habits: with hypo I ate some GF pizza, GF pasta and with hyper when I ate just and omega 3 diet based on fish and meat with crude olive oil. No doctor cared so much about my high hemoglobulin, they do not know. Since I was diagnosed as a seronegative celiac disease with a total villi atrophy, I think that my body lost the ability to maturate the B cell antigen and most likely this is the price that I am paying. I have also did the urine test, and I have a really really high lymphocytes count and ketones ( ketones due to my Ketogenic diet but the lymphocytes most likely due to a kidney inflammation). I had also 2 years ago and high homocycteine (30) despite a GF diet. It seems that by the struggles that I am going through, I have learnt so much. 🙏
@@Pr0ph3cy-k5z I also improved a lot with Questran. It seems that my problem with my diet was bile salt malabsortion despite a diet free of sugar, lactose, wheat, cereals, additive, fibers and so on. Through the video capsule endoscopy I was also diagnosed with gastroparesis ( vitamin B 12 deficiency ?). Thank you for your answer however.
I had Polycythemia/cancer and my g/dl's was 62 g/dl's instead of 16 and I had to get a pint of blood (Phlebotomy) drained out of me a lot. So I started taking oxalate foods until my hemoglobin was back down to normal at 16 g/dl's Strawberries are good oxalated, but so is rhubarb, but I thought rhubarb was too much Oxalate, so I stuck with strawberries. I am aware that too much oxalic can also be harmful.
Oddly enough I was told by military doctors I was a behavioral health issue and was put on Paxil against my wishes. I stopped taking it after the first bottle seeing that it wasnt fixing my problem as I knew it wouldnt. My platelets were abnormally high for my whole adult life from age 18 yet they all dismissed them as not an issue. My symptoms were always what this lady doctor called "constitutional." Tingling and numbness in hands, crushing fatigue, lightheadedness, feeling sweaty all the time, redness, and lost my voice and was unable to project my voice anymore but could exercise well. My white blood cells were always just a tad bit low, platelets in the 400,000's, and my red blood cells were in the mid range around 5.00. My hemoglobin used to around 16.2 but now runs around 15.7 to 15.9 and my hematocrit runs around 45 to 49. Diagnosed as ET but now I have a new doc and he thinks it's PV. I am JAK 2.. No apologies from military medical people for labeling me a nutcase though. I am taking aspirin only and am 60. I am doing meditation and prayer and exercise and good diet.
Interestingly enough, you can also ask your patients if they have a history of easily getting shocks from static electricity (more than most people). It's a strange observation but it could be tied to the excess Iron in the blood.
Omg. This was the reason 😱😱😱
Mine is primary and it sucks im 37 and have had it for 7 years it’s a roller coaster ride can’t wait for them to get a cure for it
Dustin Deyo ive just been diagnosed.. any chance of telling how youve been feeling.. i cant find anything or anyone to discuss this with
Vij Chauhan it’s a roller coaster ride drink alpha tea and sour sop tea and try to detox your body get off of inflammation foods and don’t smoke you will be fine I’m talking to a natural doctor who thinks he can stop it
Dustin Deyo ah thank you so much im 38 and mine is primary too.. ive had one venesection and told to take aspirin.. surely it cant be that simple.. at the moment im just struggling with stomach pains and muscle pains in my calfs.. trying to find anything any info the uk is a nightmare im finding.. but trying my best to find support available.
@@vijchauhan6529 how are you feeling with your stomach and legs now? Did they give you any treatment that helps? My mother is suffering from severe stomach pain every night with no relief
@@angelapirona9159 I'm doing ok thanks. I'm doing my best to be moving around as much as I can even if it's just walking from one room to another. I'm now on weekly interferon. Itchiness particularly after showers is my biggest difficulty along with my mood changing after taking my injections. I'm finding taking antihistamines, with ibrupfens in the morning and at night along with a mild sedative helps me massively have a decent night's sleep
I had Polycythemia and had to get a phlebotomy about once a month, because my Hemoglobin was around 55 g/dl and my Doctor ordered it.
Finally I wondered about people with Anemia that were short of red-blood-cells analogously like an opposite to Polycythemia!
Then I looked up the foods that people with Anemia do not eat because they are iron blockers.
Many of these foods are called Oxalate's and absorb Iron. So then I started eating these foods (with Oxalate s) abundantly and after a
few weeks I had my Hemoglobin checked by my Doctor and my Hemoglobin was down to 16 g/dl and now over a year later my Hemoglobin is still 16 g/dl. That is a drop of 39 g/dl’s in a very short time and it held good. Sometimes just a simple procedures are workable.
Of course I believe that my mental procedures, meditations & thoughts had something added to this procedure that was synergy related that made it more effective.
Make it clear that I am not prescribing
anything to anyone, but expressing my own thoughts and experience.
However I would recommend that medical personnel investigate this.
Cordially, Robert Shrewsbury
so you started eating foods that are high in oxalates...right?
@@HerreraRaza Yes I did eat foods high in oxalates.
Part of my work was also spiritual, because I actually talked to my themer-bones that manufacture blood and told them to stop producing so much hemoglobin and to bring it down from 55 Gdl's to 16 gdl's and I repeated this many times for condensation. The body needs directives, so I always couple spiritual with physics and quantum physics/metaphysics with my work. Remember that "Faith without works is dead" this why I use whatever means that work for me.
Oxalic acid diluted to a Ph of about 6.5 may be workable, however I would be very, very careful and have my blood tested often for iron reduction, just me thinking out loud.
I am a layman and not a professional in medicine and do not advise anyone, although I have studied natural medicine and am a metallurgist and so I know some about chemistry. I hold a Masters and a Bachelors degree in Theology and have studied Kabbalah and Hermetic's for three decades now.
@@robertshrewsbury9344 did you experience stomach pain? My mum is experiencing terrible stomach pain day and night. She is on Hydrea. All her test results are coming back clear
@@angelapirona9159 I had a lot of stomach pain and and ulcers!
@@robertshrewsbury9344 i has my cbc done yesterday and my rbc hgb(18) and hct were raised, my doctor directed me to test for pv, I'm 21 and I'm scared i might've this condition
I have high hemoglobulin, high mcv and mch (celiac disease with mthfr, thyroid and previously a metabolic syndrome) with low mov and rdw.
Did the celiac cause your blood counts to be high? I know crohn's disease and uc can do that.
@@Pr0ph3cy-k5z i do not know.
@@il3mendo The scary part of PV is it can trigger the same symptoms as thyroidism, metabolic syndromes and autoimmune gastro diseases. I am hypothyroid with kidney failure, gastro issues, elevated hemoglobin and hematocrit. Those bloods have been elevated for 9 years. My new doctor is paying attention to it. I had moderate hydronephrosis last year too. I have a scan this coming week and more blood work to check both hemo and hema. A blood test for the JAK-2 mutation will rule in or out PV. With that said, Celiac causes malabsorption of key vitamins which will raise those blood levels you mentioned. If you supplement vitamins, go with liquid vitamins instead.
@@Pr0ph3cy-k5z in fact I have also EoE, macrocytic anemia, some doctor called it anemia of chronic disease, and sometimes evem with a pure carnivore diet my iron and iron saturation were really low.
Even Alt and AST were really high, close to 100, after 1 year of GF diet.
I have noticed that even my TSH are influenced by some IgE reaction.
My TSH goes from hypo to hyper, within 2 weeks of time, based on my eating habits: with hypo I ate some GF pizza, GF pasta and with hyper when I ate just and omega 3 diet based on fish and meat with crude olive oil.
No doctor cared so much about my high hemoglobulin, they do not know.
Since I was diagnosed as a seronegative celiac disease with a total villi atrophy, I think that my body lost the ability to maturate the B cell antigen and most likely this is the price that I am paying.
I have also did the urine test, and I have a really really high lymphocytes count and ketones ( ketones due to my Ketogenic diet but the lymphocytes most likely due to a kidney inflammation).
I had also 2 years ago and high homocycteine (30) despite a GF diet.
It seems that by the struggles that I am going through, I have learnt so much. 🙏
@@Pr0ph3cy-k5z I also improved a lot with Questran.
It seems that my problem with my diet was bile salt malabsortion despite a diet free of sugar, lactose, wheat, cereals, additive, fibers and so on.
Through the video capsule endoscopy I was also diagnosed with gastroparesis ( vitamin B 12 deficiency ?). Thank you for your answer however.
I had Polycythemia/cancer and my g/dl's was 62 g/dl's instead of 16 and I had to get a pint of blood (Phlebotomy) drained out of me a lot. So I started taking oxalate foods until my hemoglobin was back down to normal at 16 g/dl's Strawberries are good oxalated, but so is rhubarb, but I thought rhubarb was too much Oxalate, so I stuck with strawberries. I am aware that too much oxalic can also be harmful.
Thank you so much Dr Dagba for curing me of polycythemia vera🙏🏼
There's no cure..??
@@jamesl3523Don't fall for these dr booga booga bs cures.
John looks terrified of this woman.
I have anemia
O