I have POTS! (over a decade of misdiagnosis)

Hi all, in this video I explain a bit about POTS and how I came to get diagnosed with it after well over a decade of struggling with my health.
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[@FindingYourSerenity]

As I mention at the end 1 in 10 of women with POTS have ADHD & also there are studies that show that Atomoxetine can make POTS symptoms worse.

[@Boho_Gypsy]

I have commented on your videos before (because we are so alike! I grew up with a narcissist parent, am intp, have adhd and autism, and i also take atomoxetine for three years now). I don't have POTS, but I do have an electrical heart condition. Atomoxetine has exasperated my condition to an extent, so my doctor has added in clonidine. Absolute game changer. It might be worth checking into if you want to stay on medication xxxx

[@mikahist4155]

POTS has to do with not having enough blood in the body, so while standing the blood levels only reach up to upper breast. Try compression sleeves for the arms.

[@FindingYourSerenity]

Oh interesting I've not heard that one. My symptoms do get worse when I put my arms above my head for a period of time.

[@mikahist4155]

Girl, you may changed or saved my life. I was always feeling like my energy levels/blood reach just to the upper chest. That my head doesn't get enough oxygen, my venes on the hands are always 98 only 2 mm wide. Last weak I wore a very tight body suit for my upper body cause i wanted to get in shape- crazy how my mind worked all clear when blood was pumped bc of the suit up to my head. You should try it, it's a body shaper/body suit only for arms. I have bought it accidently in xs. Would need m or s size. Peace🕊️

[@semmanuellinus6339]

Can you talk about cognitive disengagement syndrome?

[@FindingYourSerenity]

I've not heard of that but will look into it thanks