10 Years After Electroconvulsive Therapy: Aging with repetitive Brain Injury & Neural Fatigue
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- Опубліковано 5 вер 2024
- I get a lot of questions about life after ECT. What is day to day life like? Does ECT cause a brain injury? What does ECT's neural fatigue look like? Does ECT's electrical injury effect your muscles? Does it cause brain damage and CNS damage? Does ECT change your personality? Does ECT cause memory loss? Does ECT make you tired? Does Brain Injury cause fatigue? Does ECT cause neuronal fatigue? Hopefully this video is a visual representation of those answers. It was filmed May 2019, 11 years and 11 months after treatment.
Please sign my petition to help others get the brain injury assessment and rehabilitation they may need after ECT. www.Change.org/PatientSafetyECT
If you choose to use these supplements, please talk to your doctor about getting an Amino Acid plasma test through Quest Diagnositics first to establish your baseline Serine levels. Then track your levels monthly. We discovered that although I was initially deficient in serine, after supplementing with it for months, I came into normal ranges. Months later, I surpassed normal ranges. My doctor had me lower the dose and then discontinued it all together.
This is the serine I used: montiff.com/v3/...
This is a link to the ATP I use at breakfast and lunch: montiff.com/v3/...
I'm not paid to advertise for Montiff, Inc. I trust it because Don Tyson, the retired NIH researcher I mention in the video, is the one working with my doctor. He owns Montiff.
This is the pea protein isolate that I use: www.amazon.com.... Again, this is not a paid advertisement, it's just what I found works for me.
I am not a doctor. I am sharing what my doctor is using to help me. Please be sure to consult your own doctor before starting or stopping any supplements. This vlog is not medical advise.
It’s like having a phone with a battery that can’t keep a charge so your have to keep running back and forth to the charger and use your phone sparingly.
EXACTLY! I say that all the time! After ECT, my body became like a smart phone that cannot keep a charge!
I feel the same way. Foggy anxious I forget things especially when I feel unprepared to go places. My body is starting to feel pain too.
Its awful I want to cry all the time.
My voice lately is undetectable the way I speak and I am having to wear earplugs because concerts and live music is to loud
I have a horrible memory not for long-term but for short term. I write everything down and use my calendar app that helps give me a notifications. When I heard you speak of very similar symptoms I totally was teary eyed because I always say I hope and pray that no one has these problems.
Like you, I'd never wish this on anyone. I'm so sorry it's happened to you, too. Assistive technology (ear filters, calander app, reminders, speech device, power wheelchair, software to organize thoughts when writing, etc) is crucial to develop compensatory strategies.
i was given electroshock and it destroyed my life.
I'm sorry. I understand. It destroyed mine, too. We're slowly gathering resources to help rebuild our lives after treatment on this website www.LifeAfterECT.com
@@SarahPriceHancock so why do u have electroconvulsive therapy
My doctors thought I had treatment resistant schizoaffective bipolar because they did not recognize I actually had fungal hepatic encephalopathy. So I did not respond to meds because they were giving me psychiatric medication instead of an antifungal. They told my family ECT was the only treatment left... because they didn't realize I had a psychiatric symptoms due to encephalopathy.
@@SarahPriceHancock thank you for that, they shocked me because im autistic, now i have ptsd from it and find it difficult to talk and interact.
I'm so sorry. Many autistics are reporting being shocked with ECT. Many people with and without Autism develop PTSD from the experience. I'm so sorry. We all deserve better, more humane treatments that have actually have safety testing on record with the FDA or other appropriate international medical device regulators.
Well Formulated Ketogenic Diet may be something to try. It's not for everyone as most people can't resist eating carbs/sugar. I've been in ketosis since 2015. Depression, Psoriasis, GERD, Migraines all gone. Diabetes under much better control, 20 units insulin/day instead of total 200 units before keto. My brain runs much better on ketones. I measure my ketone level. May you receive blessings of health.
I've not eaten added sugar since 2017. My body does tolerate ketosis. I'm grateful it's working for you.
I’m excited to try those supplements you suggested
This is where I buy them. montiff.com/v3/shop/antioxidants-vitamins-and-minerals-and-special-preparations/a-t-p-25-mg-enteric-preperation/
Before taking the Serine, get an Amino Acid blood plasma level from Quest so that you can track your serine levels. Initially, I was deficient. But then, after months of use, we discovered my body simply cannot process it, so it began to pool and I had to discontinue it. I still take the ATP though.
Poke. Dropping by to suggest some reading about the neuroprotective effects of ketones. And the action of insulin degrading hormone in regards to removing amyloid plaque in the brain, and how chronically high insulin interferes with that.
In summary: keto.
Also, hot damn, so much of psychiatry is straight up abuse...
While I genuinely appreciate your input, the myelin sheath is quite sensitive to acidosis, vulnerable to further degeneration when marinating in an acidic environment.
Do you know the details of your ect treatment? Current, length of stimulation?
Though I know settings for pulse width and power percentage, doctors did not record Hz--since length of time the Thymatron pulses out 900mA is determined by Hz setting, it's impossible to know how long stimulation lasted without that variable.
Is it possible to get tested for Homocysteine or Methylmalonic acid. ? I see that you take ATP &L Serine along with Gut paste & that you cannot tolerate vinegar.
I'll have to ask my doctor.
Do you ride a bike or go on a crosstrainer? I find that kind of exercise easy in terms of coordination and I feel moore energy and a happier mood for a couple of hours if Im lucky. I often think its easier to ride my bicycle than to walk, its like I dont have to put as much effort into steering each individual step, the pedals guides them.
Dont know if thats something for you. But I thought I would mention it. Listening to music and exercise like that sometimes brings me joy and a little break from the brain fog that I have.
Those are exceptional helps. I'm grateful they help you. They used to help me, too. At this time, I am living with what seems to be progressive visual and auditory processing disorders. I am growing more sensitive to movement and noise as I age. I cannot process movement and get dizzy watching TV or going out in my wheelchair. I also have "central vestibular" issues so balance is extremely impacted. ECT's High energy field also altered how my muscles use potassium, sodium, calcium and other voltage gated ions. As I age, exercise (as good as it feels) lands me in bed proportionate to the amount of exercise I do. It's called exercise intolerance, causing nausea, muscle cramping, muscle twitching and achey grossness.
@@SarahPriceHancock Oh, how unfair! Can I ask you about the auditory processing disorder? Does that affekt ones ability to for axample understand what someone is saying when they speak, even if the hearing technically is not that bad?
@@SarahPriceHancock I have to add that I really, really hope that you find the strength to keep fighting and shining light on what is done to vulnerable people in the name of health care, for as long as possible. You are doing truly important work!
@@josefinesvenson638 Yes, it can effect people in different ways. Sometimes it is slowed processing. So it's like the person has a delayed reaction to what they are hearing. Sometimes sound just sounds like noise, not words, music or whatever the sound is. Hyperacusis can make sound painful. It can also make all sound louder than it should be. It's like the mental filters are off and so all sound comes it at the same level of noise and the person cannot decide which to listen to or focus on one particular noise while ignoring other noises. When they tested my hearing 10 years ago, they said I had nearly perfect hearing, but extremely delayed responses. When they re-tested my hearing last year, they said I still have near perfect hearing. Although my response time is now quicker (nearly back to baseline), it's a "startle response" to everything I hear (worse when I am tired). For the past decade, I've used wax earplugs. But last year my audiologist fit me with ER 15/25s. If you've seen videos when people cry as audiologists turn on hearing aids, I wish I had someone record my response to putting in my ear filters. I cried in relief that the sound was suddenly reduced by 25 dB.
@@josefinesvenson638 Thank you for your kind feedback. I hope we can improve the quality of life for everyone who has had ECT. If you haven't yet signed and shared my petition to help others get necessary assessment and rehabilitation you can find it here www.change.org/PatientSafetyECT
Sarah have they ever tried treating you for infammation of the brain? I know sometimes the electrical current can travel outside of the bilateral region and I was wondering if maybe anyone has looked into that?
What a great question and fabulous observation. Yes, electricity does travel the path of least resistance through the brain made up of 72% water and neurons designed to conduct electricity. ECT seems to heighten neuro inflammation likely because it damages the myelin sheath designed to protect nerves. My doctor has me on a diet designed by a researchers who worked at the NIH to identify and rate inflammatory foods. Ive been using that diet for 3 years now. Deviating from it causes severe anger, insomnia and symptoms that some could confuse with depression. But I've worked hard to make it my lifestyle.
Sarah Price Hancock
If people are getting multiple ECT treatments then one would infer that the changes to the brain occur over repeated ECT. If a person had one ECT treatment, they may have no symptoms at all. However, with multiple ECT treatments it can have lasting symptoms. Do you agree with my theory?
Your theory is confirmed by research.