CALI'S MEDICAL DAY ROUTINE| MEDICAL NEEDS MORNING ROUTINE| SPECIAL NEEDS| PFEIFFER SYNDROME
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- Опубліковано 18 жов 2024
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My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well you can learn all about it here, • WHAT IS PFEIFFER SYNDR...
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You are the greatest parents, from any part of the world, from ANY era, that this little girl could possibly have.
I’d like to say if all children of the world had parents like you two; just imagine how so much much better many would be. Very special parents. ❤❤❤❤
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I love watching you parents interact with your kids........Those babies are just so happy.
The little boy in the laundry room is so happy to see his mum that it warms my heart. I love your family
God Bless you… Such strong amazing parents… God grant this girl a long happy life…
She is such a little love bug. Wish I lived close by, I would offer to babysit. I pray that God provides a miracle and Cali can breathe on her own. These are the 2 happiest children with devoted and loving parents. 🩷💙😘😘
Thank you so much! I love how much of a love bug she is these days.
Yes and still thankful for the miracles already done❤😊
True. God blessed them with wonderful dedicated loving parents. Awesome. ❤❤❤❤
Yes they give such a protect. My goodness both of those babies have beautiful demeanors I believe because of their wonderful parents
Your such wonderful parents and ur baby’s are soooo cute I’m
gonna ask my mum
F
O
R
a baby like
Oh God . This is too much for my little baby . I pray for complete healing. Indeed you are a good mother. Thank you for taking care of her.
I’m so in love with your beautiful family! Cali warms my heart every time I see her. I admire you as parents and strive to be as great as you with the family I care for. May God grant Cali healing and deliverance! God bless you all! ❤️❤️❤️❤️❤️❤️🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
Kudos…I remember the early…the magical child you have created and cared for without skipping a beat is LOVE beyond measure! I hope you know how much encouragement you bring to other special needs families!
Blessings for all!
May God continue to Bless you all
I love the Johnson family 🥰 I am always happy to see your parents ❤️
We love you back!! I love when my parents come to visit as well.
You are such a caring mother ❤
This is what I like about you no-frills nor fancy just living your day-to-day life, its very attractive YOU RESONATE with EVERYONE whether we want to admit it or not
Seeing the kids smiling,laughing, playing,being happy is such a blessing for all of us to enjoy❤
She is just completely blessed with her parents wings of love!!!!!
Cali is such an amazing and brave little girl who has such a cute and adorable baby brother. You doing a great job.❤❤❤
You guys are such a beautiful family!! The kids are making such amazing strides. You and Rome are rockstar parents!! 🙏🏾❤️
You guys are Great parents❗️I'm a respiratory Therapist, and guys do a great job with her airway care .🙏🏿👏🏿
GOD Bless You Family 🙏🏾 Simply Amazing!
Such a good Mommy! Just stumbled across your channel. Just seeing the care you give your beautiful daughter made my heart smile. 🙏♥️
I'm so glad to see that the family is growing and that Cali is doing great. I remember her when she was smaller and to get this update warms my heart greatly. I deffo need to spend more time with my nieces and nephews. God bless her and the family. Watching from the UK 😊
Awe Cali and Romen are little Sweethearts They Just love their Mama and Dada so much!!! loving that baby giggles from Rommy!!!!! I had a friend Miranda who was in a wheelchair all her life and pretty black hair Just like Cali's hair, I used to be an Asst. Nurse to my friend Miranda like if she needed Meds, and tube feeding as well, enjoy spending the time with Cali she is such a happy little girl, Thank you for sharing😍😍😍🥰🥰😇💖💖💖💖💖💖
You are a wonderful great parents...Cali is an evidence of what God cannot do does not Exist..It's marvelous and amazing to see you go through this every morning. God reward your labour of love ❤️. Kudos
Thank you for showing us Cali morning ❤
GOD Bless you for all and thank you for everything
I respect Cali's mother, she's such a strong woman
Great parents raising great kids. Cali is doing so well. Romen is so cute. Keep up the good work👍.
I couldnt stop smiling throughout. This warmed my heart ❤
Cali, look very, healthy. And happy.
Its interesting to see other people going through this as well, she looks so happy to yall doing amazing! A great family ❤
You have such a beautiful family! God bless. 🙌
Every child deserves a parent and every parent like u deserves a child
Hi Felisha ❤ just a reminder ive been following you and Rome for 2-3 yrs now ive seen cali grow up on this channel ❤ its so beautiful to watch her grow Thanks to you and Rome for inviting us all into your hm and dsiley routines than i watched you give us an insight when you gave birth to lil Romey ❤ ive basically watched it all ❣️💐 sending best wishes and many blessings your way wth hugs 🤗🤗🤗 from California by Disneyland Anaheim ❤ love you all god bless you today and always you have an absolutely beautiful family and not to mention your sooo beautiful enjoy your life wth your family ❤
You both are amazing parents ❤❤
God has blessed all y'all hearts mom & dad there is no words to describe you , you still young and so deacated , I'm so glad babygirl is so blessed . ❤
Aww god bless her she’s such a beautiful young girl and a blessing to go thru all what she’s going thru and understand it to certain degree and she’s so lovable and playful and how she loves her mommy and kudos for her and to have patience too to go thru her treatment and god bless her and her family for the love and support that they give her plus their son too and I just love watching their channel to learn more about their family bcuz I’ve a physical challenged son whom is now a grown man but he doesn’t walk at all due too his disability but I just leave it in gods hands to make a way for me and my family
Where is dad? Just Asking 🤷
@@lisaharris6670he’s there but I think mama and Cali are the main content creators 😂
THE BEST PARENTS, THE WIFE HAS THE BEST HUSBAND AND THE HUSBAND HAS THE BEST WIFE. MAY GOD ALWAYS, ALWAYS, AAALLLLLLLLWWWWWWWAAAAAYYYYYSSSSSSSS BE WITH ALL OF YOU.
Kudos to you mom. Excellent care and nurturing…takes a little more effort to care for special needs children but you did it with such ease. I know it’s the love that you feel that propels you. God bless you big.
See how beautiful she is and how far she made it. Yeeeeaaaaahh girl, You are loved
Romey in the laundry room, cracks me up! Little dude is getting some good sleep.. ❤😂 🤭 And Cali's personality is just changing day by day!
I've been a peds nurse for about 10 years now(also homecare) I'm so glad they fixed the shake vest thbe with clips. The amount of time the old ones comes out while shaking was always annoying. Hopefully they make a better locking mechanism for the mini one and extensions tube 😅.
Also a suggestion, something when the syringe is connected and your having difficulty pushing her feed,she may need to release some gas from her tummy. By gravity or using a Farrel bag will help 🥰 Hope yall Enjoyed Cabo ☀️❤️
I am new to this lovely Johnson family channel. We saw the day nurse and I heard Falesha mention a night nurse. I am glad the family has that kind of medical support. But how do they travel in terms of the nurses and the equipment? That will probably be revealed in the next video. I am wondering if that is the same type of vest for cystic fibrosis patients?
@@Shelly_R Depending on the agency their nurse can travel on vacation with them and still provide medical care. The vest, I'm not sure but it does look similar.
Oh my God is the first I am watching I am so touch by the love this mom is showing on this little girl I am tearfull it so amazing I will be praying for The healing power of the great physician Jesus. God is good🙏🏼👍🏽🙏🏼
She is so tiny and beautiful. I love her
She is so loved
Your the most beautiful mother on the world and your husband amazing father...I pray that God heals your little angel and always blesses all of you
You are a great mom I'm so happy watching your videos and getting educated about everything that you do for your daughter is amazing ❤❤
Oh look at my big girl!!!! Shes grown so much!
Haven't seen this family in a long time. So happy to see you guys going strong . Hugs from Zimbabwe
This is too much for this little beautiful soul; may God's healing hand touch her and may God give U the virtue of patience; great parents ever!
Seeing Kali like this am happy one day God will heal her completely she's so happy
I love how she still waves that little hand like she did as a baby 🥰🕊️💗🕯️
Cali est une enfant très forte, hyper courageuse. Que Dieu lui accorde longue vie❤❤❤
For real you are the best mom ever, and you daughter is very beautiful ❤😊
May God continue to bless your Family as you continue taking care of this little Angel. You really inspire me as I continue to take care of my 3 children who suffer from protein allergies and hence they cannot even go visiting without mè.
My Pretty little Princess Cali❤ and the little Prince is getting big I love following you all.😊
Thank you for the love Leslie
Sending Healing Prayers , Prayers to this Precious Little Angel and Her Family , May God and Jesus Christ Continue to Bless Them All.
Calli my friend you are a real live doll wish i could meet you some day but you will be my inspiration always ❤❤❤
Hi Cali and little brother...both so cute!!!...wishing you all all God`s blessings and safety....Peace.
She is such a wonderful little girl brave and you are such wonderful parents for making her feel ❤ such a wonderful family 💕🥰
Happy family 👨👩👧👦❤❤❤
You such a great mother, she also adorable little girl she no her rut in
I would sit there with them. I was a single mother, I had no help, worked full time and had a daughter with disabilities. I extremely exhausted and stayed ill. I needed relief and found getting their hair done was worth the cost. Only a suggestion one mom to a another. Much love
Hi! Yeah, I will take her to get her hair done when she gets a bit older. It's been a process to get her fine with me and her nurses doing her hair.
you are both,somekinds guardian angel on earth dear ...you show us how the love is
I love following you. We are touched by the way you care for the baby girl. My God for sure bless the Johnson family. I am humbled we love you.
Good has blessed you with the love and strength you need Romy is wonderful husband you have beautiful children God is awesome l have watched since she was a baby ❤beautiful 🙏 family God bless you all keeping you in my prayers 🙏 ❤️ ❤. Love and blessings Thank you for sharing your family ❤
My Cali Pooh Pooh is growing up such a smart big girl learning alot from school Lil Romey is hilarious he's happy when he see his sis lol his cute deep voice Cali has tons of beautiful thick hair like u mommy Praying the family trip is safe, fun Felesha u have awesome parents ur such a daddy's girl Rome is a great dad yall on point love yall as well Johnson Crew
Cali is such a little love bug and growing up so beautiful and fast
Une petite beauté très courageuse , et des parents formidables. Courage à vous, que DIEU vous protège. Ce n'est pas du tout facile tous les jours. Il y a des moments ou les parents craquent et pleurent , tenez bon. ❤❤❤
I just clicked into your video..May I ask why was the baby in crib in the laundry room..?? You are doing a very good job with your babies..❤️❤️
New to your channel it popped up in my recommended. I'm so happy I found u guys . My daughter went through all of that now she is on oxygen but still have a trach and G tube.
God bless you all. I watch you guys everyday from Ghana
I'm fairly new to your channel and I am enjoying it. That laundry room idea was great. Was that a machine for static noise to help your son sleep? We could have used that with our daughter 18 years ago. We used to turn on the blow dryer or the vacuum cleaner and we also used a white noise CD with a portable CD player. I don't even think portable CD players exist anymore? Anything to help with sleep.
Wow next video, the nurse that gets to go to Cabo is living her best life
She is just so precious 💕
Thank you, Tina!
Why can't the baby share Cali room while your parents are visiting?
Prays for trip all be safe and well..Blessings
Thanks, Peggy!!
Blessings to this family ❤
Beautiful family. Baby is so happy.
Great job. Beautiful family
Mãezona linda sempre cuidando dos filhos lindos ❤
Hey.. am from India... I can see myself when ur doing all those stuff to Cally... She is realy pritty and a appreciate ur efforts... ❤
Wish I could afford all my son's medical requirements
cali is so bright
This two Babies is sooo cute ❤❤❤❤❤
Courage à toi ma sœur que bon Dieu protège toute la famille de gros bisous ❤❤❤
princess cali you are doing so well ❤❤❤❤❤❤❤.your mummy and daddy our just the best person's 😊😊😊😊 all the way from Cameron 😊
My prayer is for Cali to be able to eat and breath normally God we need a miracle for adorable baby Cali😢😢❤❤🎉🎉
Fantastic parents! ❤
Thank you for sharing!!! ❤❤❤❤
You're doing amazing mom
You are a great mother/wife/friend/family love you God bless you & family 🥰🙏😃💯🤙
You should go for a Doctor u r ready, good a what u do😊💯
i love their hair
Cuteness overload 🥰🥰
You guys have a beautiful family I love you guys the Johnson family continue to post more photos of you guys ❤️❤️❤️❤️❤️❤️enjoy your family trip beautiful people ❤️❤️❤️
Beautiful children
Thank you so much
I came across your morning routine video. The good Lord definitely knew what he was doing when he made you her
mommy! She's going to grow up knowing nothing but love and the sense of being cherished. She obviously is.
You iron mom.💐♥️ proud of you.🇱🇰
Have a great vacation!
Best wishes to cali❤❤ and lots of love ..romey is so cute ❤🎉
She's a gift of life
Cali is adorable as is Ruben (hope I got his name right) and you are a wonderful parents!❤❤❤
Happy Babies!!
Wr love u Cali❤❤❤❤ keep it up
Little Romey he so handsome ❤
Such a beautiful family ❤❤❤❤❤❤