Aortic Dissection: Fact or Fiction?
Вставка
- Опубліковано 4 жов 2024
- This webinar that aims to demystify thoracic aortic aneurysm and dissection. Our panel of distinguished experts in genetics, cardiac surgery, and cardiology tackle common misconceptions and shed light on the facts surrounding aortic aneurysm and dissection.
Disclaimer: This webinar is intended for educational and informational purposes only. The information presented in this webinar, while provided by medical experts, should not be considered a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. While we strive to present the most up-to-date and accurate information, medical knowledge is constantly evolving. The John Ritter Foundation and the participating experts cannot verify the completeness or accuracy of any information provided.
Alana Cecchi is a Alana is a board-certified genetic counselor who specializes in aortic and vascular disease at UTHealth in Houston, TX. She conducts clinical research as part of the John Ritter Research Program and sees patients for genetic counseling and risk assessment in the Multidisciplinary Aortic and Vascular Disease Clinic at UT Physicians.
Dr. David Liang is a cardiologist at Hoag hospital in Newport Beach CA. lHe eads the Clinic for Marfan Syndrome and Related Conditions in the Elaine & Robert Matranga Aortic Center. Dr. Liang is a nationally recognized specialist in the field of Marfan syndrome and genetic aortic conditions.
And Dr. Eric Roselli is a cardiac surgeon at Cleveland clinic in Cleveland, OH. Chief of Adult Cardiac Surgery, Director of the Aorta Center. He focuses on surgery for thoracic aortic aneurysm and dissection. Dr. Roselli performs approximately 350 aortic surgeries a year, including minimally invasive aortic valve repair, complex aorta operations, high-risk reoperation surgery. - Наука та технологія
Thank you for the great information!
My name is Donna wood and my brother chip Wilson of Arizona died several years ago of three aortic dissections. The doctors said because of that number at one time surgery was impossible and we lost him 12 days after his diagnosis. He had. No idea he had a problem of that sort.
I'm so sorry for your loss, Donna. If you haven't already done so we would encourage you to speak with your medical provider about aortic imaging, as aortic dissections can "run in families." You can read more about family screening on our website: johnritterfoundation.org/family-screening/
About 5 days before he died, my guy felt achy, and he said he wasn't sure if it was muscular or glandular.
I'm so sorry for your loss.
Hello, my name is Kiersten and I had a type one aortic dissection at age 30 I am now 32 and having continuous heart problems I had genetic testing done and I did have a mutation that was related to Loeys Dietz Syndrome I now have within the year, developed a murmur, and three of my valves are leaking and the aorta is bicuspid and is now growing sclerosis I think is the right word .. my heart rate is not being stabilized with medication anymore and I feel like I am not being heard .. I am feeling worse and dizzy 😵💫 all the time with 4 kids and a stay at home mom ..
I just had an echo and from the last year I also have a murmur and I’m just overwhelmed I am on the hunt for a second opinion because I just feel like I am being made to feel like I am being dramatic and i am just scared ..
Hi Kiersten,
I'm so sorry to hear about everything you are dealing with. And with 4 kids I can only imagine you are feeling overwhelmed. I recommend reaching out to our free Aorta Advocate program. These folks have lived experience with aortic dissection and many of them have similar journeys. In addition to empathizing, they can help you navigate looking for a second opinion and an aortic team you feel confident in. You can submit a request through our website here: johnritterfoundation.org/aorta-advocates/