Charlie Canam

After a normal and healthy pregnancy, Jessica Hay and Justin Canam welcomed their daughter Charlie Canam during the summer of 2020 at her local hospital in Woodstock, New Brunswick.
When Charlie was born, her care team classified her as a “floppy baby,” - meaning she had low muscle tone. Because of this, she was transferred to the Neonatal Intensive Care Unit (NICU) in Fredericton.
Charlie began experiencing seizures in the NICU, and her care team noticed she had different facial features that indicated a possible underlying condition. Charlie spent the next three months receiving care and undergoing various tests, including genetic testing through the IWK.