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Mandy's Story of LIVING with HCM
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- Опубліковано 11 лис 2010
- One patients story - Mandy Housenick, Sports reporter, (Allentown PA) and HCM patient since age 15 shares her story of being a teenage athlete one day to HCM patient the next.
Thank you for your extreme positivity 🌺I have HCM and have very little symptoms but that doesn’t change the seriousness of what I have. Sidelined but LUCKY and THRIVING 😃🥰👍🙏❤️😘
I was diagnosed when I was like 21. It shattered my life just knowing I have a heart condition that can end my life any second. After seeing my uncles pass away one by one from it , it’s not easy to cope with. Now it’s constantly in my head , I’m constantly listening to my heart beat , anything happened to me I relate it my heart. I have caused myself symptoms from being anxious about it. Now it’s hard to tell if it’s anxiety or heart related . Tbh I’ve never had symptoms , I get palpitations now and then but the doctors just tell me it’s normal . I was seeing my cardiologist every year and every time all my results came back normal . She told I have a normal heart weirdly and there is no thickening or irregular heart beat. She told me live normally and come every 2 years instead . I haven’t been past 4 years maybe I should go but just watching and hearing stories gets me more and more anxious and hate life
Bro I'm scared I hit the gym alot and idk what to do
I experienced sudden cardiac arrest. I too was misdiagnosed and was treated for asthma for 16 years. Even after an episode of sudden cardiac arrest, and having an angiogram, I was told my heart was clear. HCM is real and hereditary.
How old were you when you had an arrest?
I was diagnosed with a heart murmur growing up come to find out at 20 i have HCM and had mutiple small heart attacks and was told i was Blessed and Lucky to be alive
ok how on earth you know you had multiple heart attack ....
@@zimzimzim8722 because the beat HCM doctor out here Dr. Maron told me. The day I was diagnosed I was having a small heart attack
Best *
dont worry u r not alone..
Hi have HOCM. I don't do sports so I guess it's a good thing in a way, but I do exercise to keep healthy...and eat healthy where I can...don't smoke or drink either...
I lterally tear up when i think of the day i was diagnosed
I’m with you lately it’s been a rough one
@@thecotacompany9671 just gotta keep moving forward
I was diagnosed with HOCM when I was 19 years old but i was having chest pain when i was 10 years old. Whereby my dad didnt bring me to doctor for further check up. This HOCM causes me trauma and succumb me to stroke during last Dec. Till now I'm yet recovered from stroke!!!!! This HOCM is really a killer!!!!
My nephew died in a Hotel room with sudden cardiac arrest. Autopsy showed HCM. He didn't know he had it..
How old was he? 😢
i was diagnosed with HCM at 2 months old i was never able to play sports but do marching band
At two months? So your around 5? Lol. Just missing with you. I'm sure your fine. May God bless you. But if you were diagnosed that early. Why do they say 5 year expectancy??? Smh..
@@hotlatino7220 i’m actually 20 believe or not, with the proper care and treatment people can live a full life in their 80s
I wonder how she's doing today
I have HCM and I got open heart surgery. They cut out a muscle mass that was blocking the valve function of my heart. WHERE is her scar on her chest. She should have one like mine 3:48 A scar that starts 2 inches where your neck begins on your chest. IS this before her operation ?
pudge I don't mean to bother you but do you mind if I ask you a couple of questions about hcm?
Also some people don't get the surgery
Our story’s are similar please follow
from where did you got that operation.? my 2yrs son has this symptom. pls reply me. yr advices all great
HCM heart surgery can be done through an artery and a vein in your groin. I had it done at the Mayo Clinic in Rochester, Mn.
When I was diagnosed with HCM, my doctor just told me to monitor how I feel.
Dain BaughnSmith Hello! I don't mean to bother you but do you mind if I ask you a few questions about hcm?
clumsy HOPE sure. I’m not an expert though.
Dain BaughnSmith I just wanted to ask how you were diagnosed and why you have it or what caused it. I've been having some heart problems and I'm terrified of having HCM. I've had every test except for an echocardiogram and everything looks normal. I don't have a murmur, an enlarged heart or anyone in my family with it so would you possibly know my chance of having it? I'm also 16 and have had another heart condition since I was 12. I don't mean to waste your time, I'm just a little nervous.
Four years ago(when I was ten) my pediatrician hears a murmur and told us to go to children’s hospital to get it checked out. Long story short I have been living with no symptoms(except a very noticeable murmur) for four years. HCM is usually genetic, but if you know both sides of your genetics, then it still is possible to have HCM and have it be a fluke. My doctor says HCM will not usually skip a generation. My doctor also says the only real way to know, is to get an echocardiogram. Again, I’m not an expert but if you really are worried about it and want to be assured one way or another, then I would get an echo.
Dain BaughnSmith okay, thank you bunches!
disguised at 31..:(..lving on medicine..
Hi I’m about to start a informative blog
@@thecotacompany9671 Mandy. Is this you?
@@hotlatino7220 no my name is Joseph Cota
Why not push for a septal myectomy or alcohol ablation? I’m currently getting medically separated from the navy for HCM and plan on getting to a center of excellence as soon as I’m home. I’m not gonna stop until I get the answer I want. I can’t do really any physical activities anymore and this is no way to live.
Do you mind me asking how that’s going? I’m looking to do the same myself.
Hi, I was just diagnosed with HCM. I just started the process for a med board while in the Navy also. I hope everything is going well for you.
@@oisinlane7464 Hi, sorry for the late reply. I just recently got the go ahead from my cardiologist at the Cleveland clinic to have a septal myectomy. I will be going probably within the next month to have it done.
@@magallyzuniga53 Hey, sorry to hear about your diagnosis. I recently got the green light from my cardiologist at the Cleveland clinic to have a septal myectomy. I will be going back probably within the next month to have it done. How are you ?
@@joeb3949 my 2 yrs son has this symptom. doctor said to wait for next two years. this can be cured right?
God Bless the cardiologist thinks I have this Go Philliessssss
My mom is diagonosed of hcm her age is 55 how can i help her to control it
Go to the doctors plZ .
Follow my channel she isn’t alone
Hi
I have HCM and swim competitively.
In fact exercise is recommended.
Comments, please.
My doctor told me to limit sports and to especially avoid strength exercises like pull ups, push ups, bench presses. (But there are still a few medical examinations ahead to fully evaluate my condition.)
diagnosed *
My daughter get almost same heart defect as you, but she is only three months old. Doctors in Children Hospital Philadelphia kind of gave up. Now I am bringing her home without treatment. Now only Allah can fix her.
There’s no way they sent your daughter home at 3 months old with a heart defect and no treatment
Is
do you live long with hcm
depends on the circumstances... some live a while while others die suddenly
I got it please say something positive
@@tyrekusjones8128 how are you doing today
So basically your just on meds. Must've these videos end up wit the person saying thanks to the Lvad that bridged me towards getting my new heart. You were just on medication?
HCM patients rarely use LVADs as the LV cavity is too small. Only 4-5% need transplants, the majority are on medical management with 25% needing ICD to protect against sudden cardiac arrest.
This is what hank gathers died of