Thank you! I'm in the US. When I was in Jr. High, I started having horrific headaches. EEG showed nothing and they said I was rebounding on Excedrin Aspirin. I went on to have severe panic disorder, then diagnosed with Fibromyalgia, or hundreds of negative blood tests "it's all in your head"! Then in 2017 I had a MRI looking for MS, the result of gait issues, seizures etc. The MRI was to no avail, so they decided to diagnose me with PTSD and kick me out the door. In 2021 I was MRI on my brain again, still nothing. My seizures were worse, and my gait issues were becoming problematic. The neuro doc classified me again, PTSD. Finally in 2022 I had such severe seizures, that they rushed me to the hospital thinking I was having a stroke. THEN............a doctor from Main, I think it was, came in and talked to me. He spent 1.45 hours giving me tests, and listening to me. The symptoms in me affect the right side especially. Speech issues, I'm looking at you, I know exactly where I am, my mouth., just won't speak. He said I believe you have what's called Functional Neurological Disorder, FND for short. I was sent for an EEG to make sure there wasn't anything else. So, after 43ish years of being gaslit, told it was in my head, etc., I finally have an answer. It's not well known here in the states, in fact, I hurt my leg 6 weeks ago, as soon as we arrived at the ER, I had a bad seizure, they insisted I fell and hit my head. I had to explain I had FND, threw severe shuddering, and they had never heard of it. I'm now 58 years old and am trying to find out everything about it. I have so many more things but won't list them all here. Thank you to the UK, for driving hard at trying to spread awareness, and all the publishing. I pray the US will follow. I'm not crazy after all!
Thank you! I'm in the US. When I was in Jr. High, I started having horrific headaches. EEG showed nothing and they said I was rebounding on Excedrin Aspirin. I went on to have severe panic disorder, then diagnosed with Fibromyalgia, or hundreds of negative blood tests "it's all in your head"! Then in 2017 I had a MRI looking for MS, the result of gait issues, seizures etc. The MRI was to no avail, so they decided to diagnose me with PTSD and kick me out the door. In 2021 I was MRI on my brain again, still nothing. My seizures were worse, and my gait issues were becoming problematic. The neuro doc classified me again, PTSD. Finally in 2022 I had such severe seizures, that they rushed me to the hospital thinking I was having a stroke. THEN............a doctor from Main, I think it was, came in and talked to me. He spent 1.45 hours giving me tests, and listening to me. The symptoms in me affect the right side especially. Speech issues, I'm looking at you, I know exactly where I am, my mouth., just won't speak. He said I believe you have what's called Functional Neurological Disorder, FND for short. I was sent for an EEG to make sure there wasn't anything else. So, after 43ish years of being gaslit, told it was in my head, etc., I finally have an answer. It's not well known here in the states, in fact, I hurt my leg 6 weeks ago, as soon as we arrived at the ER, I had a bad seizure, they insisted I fell and hit my head. I had to explain I had FND, threw severe shuddering, and they had never heard of it. I'm now 58 years old and am trying to find out everything about it. I have so many more things but won't list them all here.
Thank you to the UK, for driving hard at trying to spread awareness, and all the publishing. I pray the US will follow. I'm not crazy after all!
Thank you, was an amazing day, your work you do is amazing.