Radiation Treatment: Managing Your Side Effects
Вставка
- Опубліковано 8 сер 2017
- This video has 4 presentations. Dr. Elizabeth Kurien, a radiation oncologist, explains how side effects depend on the area of the body getting treatment and the amount of radiation given. She talks about when side effects usually develop. Safiya Nanji, an oncology nurse, describes some common side effects. Matthew Scott, a radiation therapist, explains the 2 most common side effects and gives some tips on how to manage them. Kallee Marshall, a registered dietitian, talks about the importance of nutrition and hydration (getting enough fluids) and to maintain your weight during treatment. Two patients also share their experiences.
27 treatments to right chest wall. The burns were really extreme. We had to stop for 10 days before last 7 treatments. My plastic surgeon intervened and saved me from more problems. My radiologist did not explain how severe my side effects were going to be. I am an RN. I believe in teaching. I believe in truth. I was a hospice nurse for 18 years. I saw so much lying. After all big money is the main concern for clinics. Why were all of my breat cancer women bald before they died?
I agree, they lie and down play side effects. My breast turned red, cracked and had blisters and they would hardly acknowledge my pain and suffering. "Take Tylenol, use intermittent ice and keep Eucerin on my breasts.😕
I suffered brutally from radiation poisoning after my ct scan. Burned my joints and insides so bad I threw up for 6 months and have difficulty walking. Even so called ct scan levels can do significant damage. Zero forms about the risks. They are killing as many people as they save.
I agree. Hospice RN also. My patients were burnt all the time. Now me soon. I can't take it.
Yes! There is A LOT of lying (outright or by omission) all the time. It's frustrating.
@@virginiawaters6076 my rad treatments ended 4 months ago for HER2 positive metastatic breast cancer. Last week I developed neuropathy (weakness, numbness and achy nerve pain all down by right arm from shoulder to fingertips. I'm getting to regret having elected for radiotherapy.)
Dr. Kurien really helped me understand what is occurring, with the side effects I am experiencing, following my Brachytherapy. Her explanation of the physiology, reassures me that these symptoms will hopefully be temporary. My body just needs to adjust and heal. So glad I found this video! Thank you.
Really it was very helpful information. Thanks to all of you
I just completed my radiotherapy (radiation) 1week ago
I have 4 treatments left. Yay!!!
We really needed to know that, thanks
How were the side effects
4 years🤞🏻🤞🏻
@@thomasjust2663 how rude. Cancer sufferers are so proud of beating it we share our news. How nasty you are and I sincerely hope you never have to face this.
I wouldn’t be surprised if all of these radiation oncologists would refuse the treatment themselves even if they had cancer.
my rad onc took this treatment herself
Well done. This was very helpful and informative. Thank you!
I had 2 rounds of radioactive iodine treatment, for my thyroid canser. I had total thyroidectomy last oct 2020,then after 5months follow my radiation therapy. I had flakes in my scalp, fatigue, dry skin and i vomit when i in hospital.
I had a total of 43 treatments back in 1988 for Hodgkin's Disease. I was 19. There was virtually no support or information. I'm glad to see that there is more help and support for patients
do we need to rest from work after radiation?
Just got done with radiation to my soft pallet. I’ve been working out for years so I was muscular when starting therapy. First four weeks I stayed strong and worked out hard, ate well. After 4th week I couldn’t eat as much. Couldn’t work out since my body lacked the fuel to do the job. I lost a total of 20 pounds. I’m 150, 5’10”. I look like crap now and am starting to slowly eat a little more, but not enough. I’m going to wait and restart my workout in November.
I pray you are better? I just saw this?? I am praying for you!!!!!
@@susiepingleton3614 Thank you. I appreciate your concern. Been doing well. Haven’t been to the gym yet. Weight gaining is difficult, but it’s going slowly but surely.
God Bless your will to try. Its important to understand its a slow process but victory is within reach friend keep up the good work❤
Side effects radiation post prostatectomy are very serious and Urologist and Oncologist can not help. Is there any cure for burning urethra and perinium pain
Thank you so much for video and info. I am scared to death. Traumatized by the Cancer and would love to runaway forever due to the Treatments needed. I have spoken to the doctors and they always seem to 'not understand this FULLY'. I am also claustrophobic so the MASK and machine will be a huge problem. I have asked for a Sedative. Anyway, just finished 3 cancer surgeries on throat, esophagus, lymph-nodes etc. Pet/Ct Scan came back with PROBLEMS. Needing immediate Treatment. Radiation and possibly chemo. The damage it seems to do to Saliva Glands and Good cells is a real problem. They seem to SLIDE PAST THESE SIDE EFFECTS & DAMAGE so as to keep you in you seat and from running out. lol I noticed in the Video the patients staying away from the real problems which CAN OCCUR. Like 20% weight loss forces doctors to install a PUMP in your stomach. Swallowing is a problem (even water) so how can you eat? They respond: 'Some are worse than others'. wow! I do not have a choice. I have to do the treatments or die by June 2020, I kept getting 'Oncology Opinions' all over town and the doctors kept saying 'basically the same thing'. We were HOPING surgery would do the trick but, the PET SCAN ruined that idea. Lymph-vascular Invasion sounds horrific. And throat, tongue, esophagus cancer. A War zone. I am a soldier, Veteran 9th Infantry Division. Vietnam so this caused some deep seeded PTSD to raise its ugly head in me....Yes, seeing a psychologist. Trauma Specialist. We shall see. Maybe I'll check back in 2 months or more and tell you all, 'IT WASN'T AS BAD AS THOUGHT IT WOULD BE'. ?? I am begging the hospital for SUPPORT. 100% SUPPORT. We shall see. Sometimes they promise a lot and deliver little. I was in the hospital and pain mgmt. sucked. Horrific pain issues never addressed. Bless you all. Thank you for allowing me to vent this. I start December 9, 2019. City of Hope. Damn! Lt this War begin. I need to fight, I know and try to stay as positive as possible. reading above you wouldn't think I could do that. I am not that depressed just scared. Frightened of the mask etc. The sedative will help I am sure. Psalm 46:10 Be Still......and Know that I am God. Is my favorite verse and in my Screenplay. A Movie I wrote about my life. Starting in an Orphanage in Maine. Faith Based. It is in God's hands.
In Jesus mighty name your are healed brother James 🙌🙌🙌
May the Lord bless and keep you James!
Hope things are going well!! I refused my radiation. My gut instinct told me not to.
I just read your account, I hope you are well, or with God in heaven. Thank you for your share here, my cousin's about to enter radiation. I know God is the great healer oh, he knows every cell in our bodies. We must be brave, I can tell you are. A valiant Soldier, thank you
@@MP-mj4dh me too M P but, recently after the letter ABOVE we did a PET/CT SCAN in May 2020 and it SPREAD through my Nodes. And microscopic cancer cells in my throat and on my tongue. Darn it. I tried to OUT THINK IT.....Prayed daily, all day. I love PSALMS. 91:1 and Psalms 46:10 ....went to Church throughout the week. Until they closed our church due to the Virus. Sadly. Maybe they'll re-open it soon? Anyway, after 7 months of RUNNING but, having surgeries to cut it out I cannot run any longer and MUST DO TREATMENTS. CHEMO & RADIATION. July 10, 2020 at 2 pm. City of Hope, Duarte, CA jhall68@socal.rr.com ...let me know how you're doing. I wish I had the guts to have that much strength to stop this. My FATHER died of Brain Cancer September 4, 1991 IN MY ARMS. In Las Vegas, NV. 4 1/2 Months after he STOPPED TREATMENTS. He felt so sick during Chemo. Vomiting. Headaches. Skin dried badly. Eyes deteriorated. Lots of SIDE EFFECTS. Bathroom constantly. I am scared to death of this. Take care M P. Bless you.
Were you still able to work immediately afterward or do you need days off?
Im scared for my Dad is going to start soon, By heart aches for all ppl dealing with this disease
How to control / reduce ther rt theray side effects
Hi, I have one question, is radio therapy for tumor in brain decrease the year of life..
My brother had in the head and die, 4 weeks after radiotherapy in brain for 2 tumors. Lost all his head, burn his face skin, very tired and weak. There was zero positive side.
Side/effect I hv rediation for my andomen itish and derhira liquid is best diet
I am in third week of radiation tonsil and lymph node treatment. My mouth is very sore. No saliva, can't swallow, can't eat, can only sip very small amounts of water.
You can get artificial saliva from your chemist ..
Praying for you🙏
How did it go?
Sore throat 18 month after cancer severe surgery.
I'm a yoga instructor & Fitness Trainer, I appreciate you, keep it up, 🌹
No mitigations mentioned really except to exercise and rest. I am not convinced this really extends life or improves quality of life. Many oncologists say they would do this.
I really want to know my limb bars in my back have gone back my first week I had chemo radiation then the doctor says oh you have prostate cancer and it's an oldest tree both of them at the same time but here's what I don't like when I get the prostate and take the pills it makes me angry and furious but it's the same time is it easy just to have my other treatment done to my landmarks on my back it makes me walk better...
What about shampoo for people who received radiation 3 years ago?
Did any of you get sick or develop never had before symptoms after a ct scan. 14mgy and 325 slices microwaved my insides and made me brutally sick for months
This happened to me. Had a CT scan with no contrast and right after it I felt weird sensations in my neck. Months went by and it got extremely painful to where I couldn’t touch my neck. Now after getting ultrasounds and MRI, it appears I have a 3cm solid heterogenous area under my chin, an enlarged right thyroid with cystic lesions and an enlarged submandibular gland. It’s horrible
@@Rick_Sanchez_Jr.😨 CT scans have high levels of radiation right?
I'm going to be having radiation treatment starting next month for an inoperable brain tumor (fortunately benign). I'm not looking forward to it.
@S benign simply means it's not cancer. It's still growing and if not treated then I will become deaf. It's already causing an imbalance when I walk . Not crazy. Just fighting for my life.
I hope your not leading pepole on! i havent eaten solid food in six and a half years, i live on two cal protien and spit mucas all day also aloe vera gel was the best thing i did too prevent blisstering. If you can help me eat solid food again please let me know
Increase your liquid intake significantly.... Especially fruits high in Vitamin C...... Oranges, pineapples, papaya..... Etc. Breath through your nose at times..... Stay stress - free.
My Husband had Radiation treatment over a year ago for his vocal cord cancer. What causes him to be sick so much since the radiation he gets chills, vomiting, tired etc. what can he do to help these sicknesses he gets
You have a lot of endocrine glands and thyroid and so on in your neck. That is serious body chemistry and when it is unbalanced, it really throws you off. They have counter balance chemistry to keep the symptoms down. He should be recording when and under what circumstances he is having side effects so they will know what to give him. Get another endocrine specialist if your doctors are not effective in treating symptoms. I look up all of my medication and treatments on the John Hopkins site. They are very detailed. I have to look up a lot of their terms on Duckduckgo. It's worth the trouble.
How is ur husband
Unloading side effects.
is brain radation caused by using phone or not?
I'm claustrophobic, do the main exit doors lock you in when receiving radiation?
@@lisalangan2857 Thanks, that definitely is a help 😊
They can't have people accidently walking in and getting radiation, so the doors lock, but if you were standing in front of one, they would open it for you immediately. They never take their eyes off you except when you are changing into your gown. You might even ask for a demonstration of the door. The equipment is big, and they have you change into your gown right there, so the room is extra large compared to other treatment rooms. I was claustrophobic when I had my nuclear medicine marking because the back panel was right in my face, but that is only for 5 minutes. Radiation is usually only 10 minutes. You are not inside something. A big arm like dental equipment moves around you on a bed.
@@noeljohnson3918 that is very kind of you to take the time to send me this message, thank you so much
I have severe claustrophobia so took ATIVAN 2 mg. Not enough to knock me out but, enough to get thru it bravely. As. A US Army Sergeant I was ashamed but, even Generals hate small spaces I learned from nurses’
@@jameshall8455 I know exactly how you feel with that damn phobia
I'm lucky enough not to have cancer but I had pains earlier in the yr and was worried
I've always been a bit claustrophobic but it escalated when I had a bad experience as a teen which knocked me back and shattered my confidence so claustrophobia for me increased unnecessarily and I found avoiding things like simple short bus trips or even staying in a hotel ,
Thanks for your advice
My sister have been going for radiation therapy after total mastectomy from a very long time. She has developed a wound at the site of operation which has refused to heal up after many treatment and gets severe pain in shoulder and hand. Can any one help to give a remedy for her condition and relieve her from pain and oozing from the wound.
If this is still problem. Try hyperbaric O2 therapy
How is her
Question is: why the hell go for radiatiob after total mastectomie??🤷♀️
@@ninamaximova9669 I'd also like to know the answer to this ___^ Am in the middle of radiotherapy now & this is after both a Dx Mastectomy with a total node dissection & chemotherapy ????
@@missyemerald you have the right to stop it and refuse to continue. Modern medical systeem overdoes a lot of things to earn money.
skin getting red??? mine turned dark purple and then black and then peeled off and i am a white woman
I had severe burns on my neck that peeled off in chunks.
@@heatherrose9484 same here..
How many weeks after therapy did the skin peeled off?
@@Kris-em3cy i would say around treatment 20 or so. i had 35 total
they failed to tell me all of the side effects and im really struggling with those now
Is it wise to do a body detox while going thru this? Please answer.
Ask your doctor. Not strangers on UA-cam my friend. That'll only get you injured. Good luck. God speed. Get well. I start chemo/Radiation July 10th City of Hope, Duarte, California
Radation damage is cellular damage, so no, doesn't help.
Your DNA is physically damaged at those places.
@@daLiraX 😔😳😞
Unfortunately I lost my hair til this day ( 15 years later ) in a perfect half circle on one side of my head .....sucks. ☢️😤😰
- I'll never forget ....riding down to mayo clinic ...grabbed a handful of my hair on the side of my head and said ," I think the lady who said I'd lose my hair was wrong!"........
- I pulled my hand away and to my horror...it didn't stay on my head. Yah that bummed me out.
Small price to pay to be alive though.
I had a hair transplant, it isn't perfect, but it helped a lot. For me it was worth the cost. I lost all my hair across the back of my head from the occipital bone down.
Do you really need music underground???........NO
All I got was a pamphlet.
2:31 "it does not matter" what an idiotic statement, it may not matter to this so called doctor, but it sure matter to the patient!!
I totally agree with you! I just finished 5 weeks of radiation last week. With both my oncologist and the radiation doctor, in their “sales pitch” they kept saying “just a little this” or “just mild that” and my gut instinct told me they were lying and boy was I right. They made it seem like I go for ten minute treatments then can go home and do what’s normal. I was very very sick and down for the count. Had I known, I would have made other arrangements with my job and checking in on my homebound father every day. Any time I mentioned how bad I felt, it was blown off. I suffered terribly and now, a week after finishing, I don’t feel any better. The truth would have been nice!
I had radiation to chest almost a year ago...have been relatively well since but started to develop skin lesions,itching in area of radiation about two months ago. The site where the ink was injected started to itch and burn then blistered. Now my back has acne like lesions and itches quite frequently.
@@gailmatt1734 have the effects improved at all for you?
@@TheDevilsRaspberry Thank you for asking. After my radiation and chemo treatments, I had the surgery I needed. I am just about a year past it all, and am still suffering from effects. Maybe they got a little better over time, but maybe I just got used to the constant pain…it’s never gone away. I have trouble walking and rarely leave my house. Never were long term effects ever mentioned, but I found out all I’m going through is common. What an awful experience! ❤️
@S 😂😂😂
Does more harm then good.wood only be my last choice if all else fails.
:(
Ummm hello Can we use our brains? There is NO SUCH THING AS A SIDE EFFECT! There are effects. Please make a note of it.
I can't stand the loss of taste. It kills your appetite. They need a way to protect your tongue from exposure. This is horrible to be going through. I pray it returns after my treatment
Don't worry man your tastebuds will return just after your treatments end my mom is going with same thing she had oral cancer in her lower left jaw, her saliva is thickened, her mouth is filled with mucus, got ulcers in her throat, cheek and tounge and lost taste. Well her radiation just ended on 7 february and rn we are waiting for her saliva to get thin again so she'll atleast be able to eat instead of depending on liquid diet, even got trismus in other jaw due to surgery
I got a dry mouth after the 3rd treatment followed by lost of taste. So it's a struggle to eat. Force it but i gag everytime. And while I go to treatment I walk pass the cafeteria at the place I get my treatment. I can smell and wish I could eat normally. But trying to eat is a different sort of it's own. 3 more weeks to go.
How was your taste? Was it back?
@@Kris-em3cy no. But it's tough when your hungry but lose the desire to eat when you cant taste. 12 radiation sessions to go.
@@Kris-em3cy yes I can taste my food again. But I am having the hardest time swallowing my food.,my throat got fried.
After the radiation “treatment” ends up inevitably killing the patient, they will blame it on the “cancer advancing”. Same with chemo. By then, your money is taken and their depopulation agenda is fulfilled after reducing carbon emissions from your oxygen consumption
YOU PEOPLE BETTER STOP TRUSTING DOCTORS, GET YOUR RESULTS, GO HOPME AND RESEARCH, MAKE INFORMED DECISIONS, U DO HAVE OPTIONS.
Most people that I’ve seen get treatment passed away after a few months.
They are killing people. My ct scan microwaved my insides and I threw up for 6 months. These ct scans are even doing significant damage to peopel
That is not true
I did not died
I am in life why you right negative thought you have readation help
Well of course that's not everybody.im just giving you my opinion on how their body's reacted to the treatment. Some live.some die.truth.
You should not have to involve a bunch of expensive and clueless strangers into your world. Your “team” will leave you to make your own decisions about comfort and lifestyle anyway. What a messed up system.
We are by the STRIPS OF JESUS CHRISTUS
WHAT GOD CANNOT DO DOES NOT EXIST
My right side stopped, muscles are stuck.