Walking in my AFOs

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  • Опубліковано 26 жов 2024

КОМЕНТАРІ • 135

  • @BadBatchArmada99
    @BadBatchArmada99 6 років тому +12

    This is awesome. I have worn AFO'S my entire life. I have had both hinged ones like that and sold backed ones. Although I've never had two upper straps always just the one at the very top. That is a really cool and unique design I like it. and I came to the same conclusion as you with the skater shoes, I love tearing the soles out when I first get them. I don't know if you mind tieing your shoes or not but I recently found these elastic laces called Ulaces and they are awesome and save a ton of time because instead of having to pull all the laces up to make room the ulace stretches as you slide your afo in and then stay tight automatically all day it eliminates the tieing and untieing process. Iam excited because I just got fitted for a new pair of afo's last week I hope to get my new ones soon. I have never met anyone else that wears them but I love showing mine off I am proud to wear them. You are awesome for making this video to show everyone just because we wear afo's we're just like everyone else we put our shoes on one foot at a time.

  • @asanyr9902
    @asanyr9902 4 роки тому +8

    I have EDS, i get my AFOs tomorrow! I can’t wait!
    Edit: 3-week update! They’ve really helped with my pain, and paired with the other braces i have, I can almost walk without crutches!! Sadly I don’t have any shoes that properly fit my AFOs, but soon I get custom-fit ones!

    • @NotYourAverageZebra
      @NotYourAverageZebra  4 роки тому +3

      Check out some airwalks, etnies, vans, skater shoes can be stretched easier to fit. I do have a video about stretching out those shoes. Thats awesome they are helping with pain.

    • @kassidyquintessaamaryllis6496
      @kassidyquintessaamaryllis6496 2 роки тому

      @@NotYourAverageZebra how do you stretch them? Should I get a shoe stretcher?

  • @rhondawilson1141
    @rhondawilson1141 6 років тому +5

    Thanks so much. I was nervous about getting my afo but you make it look easier than I expected.

  • @MsRespect247
    @MsRespect247 7 років тому +17

    I have eds hypermobility type 3, POTS, tethered cord, chairi malformation, scoliosis, high functioning autism, ptsd, sensory processing disorder, dyslexia, chronic pain and fatigue, depression, anxiety, etc. I'm a zebra warrior! and love the video you made!! I also have afos, and kafos Now due to a server dislocation in my lower back causing paraplegic issues resulting into kafos to help me stand and walk.

    • @SerendipityArtandGaming
      @SerendipityArtandGaming 2 роки тому

      I didn’t know Hypermobilitu had numbers, minus the (for now) tethered cord, chairi malformation, and scoliosis, I have the same thing 🙂. I luckily can walk, though I am in constant oain

  • @emmamccoy8381
    @emmamccoy8381 7 років тому +3

    Hey Jozee! I just found your UA-cam videos. I love how you break EVERYTHING down step by step whether you're showing us your braces (AFO's) or explaining about pain or any other thing. To you it's an everyday thing but to us it helps us understand everything better ☺

  • @NinjaJoanie
    @NinjaJoanie 7 років тому +2

    I was just prescribed an AFO, and will be going to the orthotic & prosthetic company soon to have my custom one made! Thanks for this video - it answered a few questions I had!

  • @brofenix
    @brofenix 4 роки тому +2

    Very interesting! Wishing you the best with your condition, Ehlers Danlos Syndrome seems extremely difficult to manage and deal with. You're amazing for powering through each day.

  • @janjohnson989
    @janjohnson989 2 роки тому +2

    Love your video. This is very helpful as we have the exact same AFO and always looking for comfort tips. Can you post info on the shoes that you altered and the foam insert? Was it custom made or an alteration of something off the shell. Thank you so much!

  • @mf1602ful
    @mf1602ful Рік тому

    After I wear a plastic ones , I decided to get the metal ones , the traditional attached in the shoes, are more comfortable, less painful and so much fresh.
    By the way i am suffering fibromyalgia , afos give me more stabilization and less pain to walk.
    Thanks for sharing.

  • @jfragghianti
    @jfragghianti 4 роки тому +5

    Getting some soon for foot drop. I’m kinda nervous about it

  • @chloev2163
    @chloev2163 Рік тому +1

    Thank you for posting this video, I am a physical therapy student studying CP and I have a case study about a boy who is in HS and is having trouble walking but does not want to wear his AFOs. It was nice to see what AFOs look like on a typical younger person who knows how to style them or even hide them.

  • @Actasif88
    @Actasif88 6 років тому +5

    Great video! I'm a Physical Therapy student and we are discussing orthotics at the moment. Are theses considered articulated AFOs? I noticed when you were ambulating you didn't have any problem with dorsi flexion (flexing toes upward) and plantar flexion (pushing your toes downward). Do these orthotics allow you to push off the ground when you are ambulating?

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому

      Thanks! These are articulated. Yes. I can flex my toes upwards, but not downwards. And i don't believe so?? I can't go on my tippy toes or anything.

    • @Actasif88
      @Actasif88 6 років тому

      Great! What is the main reason for wearing the orthotics? Is it to help with side to side stabilization? Or is it more to prevent the hyper extension of your knee?

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому +4

      Due to ehlers danlos syndrome my ankles are very unstable. I used to sublux my ankles, dislocate tendons in my feet and ankles, break bones in my feet. These AFOs help keep my knees from hyper extending as well as keeping my legs in place.

  • @SadeRSykes23
    @SadeRSykes23 6 років тому +2

    Thank you for the video I have 2 Solid AFO braces but have a hard time finding shoes big enough to fit i like vans and stuff but its too narrow :/ you design of the AFO is really cool too, I have pink brace and white straps.

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому

      I have a really hard time finding shoes as well. Everything is too narrow.😕

    • @tanagiberson4770
      @tanagiberson4770 6 років тому

      I don't have afo but you could try guys shoes they generally run wider than girl

    • @amandabieber9515
      @amandabieber9515 6 років тому +1

      amanda

  • @SerendipityArtandGaming
    @SerendipityArtandGaming 2 роки тому

    Omg!! I saw the word not your average zebra and new what was coming! I may need them- I already have do’s and still am really unstable and in pain

  • @TheTamarack
    @TheTamarack 7 років тому +3

    Thank you for sharing these helpful videos, Jozee. These informational videos are immensely helpful for other people who are new to using custom braces.
    We are the manufacturer of the joints that your orthotist installed in your braces and we truly hope that they're helping you to walk and participate in your favorite activities with improved mobility and comfort.
    ^Jason P, Sales & Marketing Manager @ Tamarack Habilitation Technologies, Inc.

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому

      +Tamarack Habilitation Technologies im glad the videos are helping people, alot of the videos have come as requests from other people that wear custom braces or were told they need to. They are working out very well for me! Have a great day!

  • @eddiedavis2273
    @eddiedavis2273 Рік тому

    Hello Josie, could you please tell me why do you have two straps on Tops of your feet and the one diagonal strap across your shin? I have AFO’s that literally have two straps. One strap is across the front of my ankle and the other strap is at the very top of my shin. I wanted to get more straps because I thought it would reduce my foot from slipping inside the AFO. Could you please give me your feedback?? Thank you! Eddie

  • @NorseButterfly
    @NorseButterfly 7 років тому +3

    Thanks for sharing! I go into the rheum for my 2nd appointment tomorrow. There's a lot that's going to be addressed.

  • @samanthabaxter3666
    @samanthabaxter3666 2 роки тому

    My daughter is 8 and going into AFOs next week.

  • @victoriacogley4532
    @victoriacogley4532 6 місяців тому

    Here's a tip that I've learned from wearing you should get a shoe size a size 8 and you wouldn't have to worry about stretching about stretching them out

  • @karengenoff5851
    @karengenoff5851 4 роки тому +1

    Thanks i just had a new ago made for my left foot but so hard to find shoes that fit with it. Can u send me the brand u buy and where. Appreciate any and all help you can provide. Thank u. Karen genoff

    • @NotYourAverageZebra
      @NotYourAverageZebra  4 роки тому +1

      Hey, i always look out for men skater shoes. Right now I still use the brand Airwalk. But there many skater brands. I also have a video on how to stretch out shoes so when you buy any that are to tight, you can loosen them.

    • @karengenoff5851
      @karengenoff5851 4 роки тому

      Not Your Average Zebra thank you so much I will look on the internet and order some to try
      Any and all suggested are appreciated
      Take care and look forward to seeing more updates on ur videos
      Best of luck and be safe!
      Karen genoff

  • @caroljeanscott5571
    @caroljeanscott5571 3 роки тому

    I wear an AFO, the old style attached to the shoe, the plastic brace just didn't work for me. It doesn't bother me when I wear an outfit and people can see the brace.

  • @jyotika48
    @jyotika48 5 років тому

    I have a foot drop issue and I have to wear afos too... I like to dress up but I'm conscious about the afos being visible in short dresses... what do you do when you want to wear frocks skirts and such? A dress up with afos please...

  • @tammyleblanc4437
    @tammyleblanc4437 Рік тому

    I got AFO's like your recently, I got blisters on the back of my heels. Did that happen to you? If so, did you need to have your AFO's adjusted or just get bigger shoes? Thanks..

    • @NotYourAverageZebra
      @NotYourAverageZebra  Рік тому

      I used to. Bring it up to the orthosis place. I ended up getting them often, i got mine switched to boots on the insides. If you have the boots and getting blisters it might need a strap or an adjustment.

  • @starboy8825
    @starboy8825 6 років тому +1

    I have, POTS, EDS, gastroparesis, MCAD, syncable migranes, PTSD, sensory issues, brain damage and a lot of other crap. My afo braces also have the foam piece built into them though? I’ve never seen them with the foam piece separate

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому

      Yes i did have a different set like that. This type of foam is what my orthotics guy suggested because I 'll get bad painful pressure points and sometimes my skin would start to break open. I didnt know this type of foam was a thing until he told me.

    • @starboy8825
      @starboy8825 6 років тому

      Ah, that makes sense. Also thanks for replying to me!

    • @amandabieber9515
      @amandabieber9515 6 років тому +1

      amanda CP

  • @robinkosowan6812
    @robinkosowan6812 2 роки тому

    I have a similar type of afo but I can’t find proper shoes!!! What brand of shoes do you have? I’ve tried vans but I can’t get my toes in.

  • @usmanafridi6549
    @usmanafridi6549 3 роки тому

    Kindly share one of the rigid AFO video and show its impact of gait pattern , ground reaction force ...

    • @NotYourAverageZebra
      @NotYourAverageZebra  3 роки тому

      Hey, i would love to connect with you about this and what you'd like to see shown. My FB is not your average zebra and my Instagram is jomuscella_13

  • @pebbles7864
    @pebbles7864 2 роки тому

    Do these really keep your feet from hurting if you walk long distances? I’m getting ready to get an AFO. My shoe inserts aren’t working at all for my severe pronation and I feel like it’s going to take a miracle for my feet to stop killing me. Thanks great video!

    • @NotYourAverageZebra
      @NotYourAverageZebra  2 роки тому

      They do for me. I had to get alot of padding,straps aand all.. i get them maintenced every 6ish months to keep up on it all. Hopedully it helps you a bit

  • @caitlinliddell839
    @caitlinliddell839 7 років тому +1

    I love the socks! :) My knee hyper-extends too but I've never been in braces before. I looked for your FB but couldn't find it. I'd love to be friends if you'd like.

  • @wayotanke2264
    @wayotanke2264 3 роки тому

    Thank you for sharing just stumbled on your video after getting new afo braces. Please whats the name of the black foam padding boot you put on first. I need just that to help with pressure spots. Hope you see this and I get a response. Thanks.

    • @NotYourAverageZebra
      @NotYourAverageZebra  3 роки тому

      Those are foam boots. There may be a specific name but i always nlknew them as foam boots. If you ask the place you got your leg braces from they can help with getting those.

    • @wayotanke2264
      @wayotanke2264 3 роки тому

      @@NotYourAverageZebra Thanks for the response. Will ask and search. Thx.

  • @nickknapp2746
    @nickknapp2746 5 років тому

    Awesome, is this for foot drop? My left foot is kinda wonky so I’m thinking about getting an afo brace

    • @NotYourAverageZebra
      @NotYourAverageZebra  5 років тому

      I have ehlers danlos syndrome. Because of it, my feet and legs are unstable without the AFOs on.

  • @anthonycampbell711
    @anthonycampbell711 5 років тому

    I have drop foot in both feed and weak ankles. Right now my stability and walking is not good and my balance is not the greatest either. I'm getting afo s tomorrow actually so I'm really hoping they help. What was your walking and standing like before you got yours?

  • @marissahammett5391
    @marissahammett5391 7 років тому +2

    I have a question, when I ware my afo(they look just like yours) I get this burning, it's very painful, sinsation at the ball of my foot when I ware it for to long. do you get that feeling? and if so what do you do about it besides from taking them off.

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому

      +RissaRae yes. I know what your talking about. So painful. One of the reason I have a white pad(got them from my foot doctor) in the one brace near my toes is becuase i figured out a pressure point on the side of my foot. The pain is usually caused by inflammation in the metatarsals area. The pads have helped a bit

    • @marissahammett5391
      @marissahammett5391 7 років тому

      oh ok, thank you so much for the information. I'll be making an appointment to see my foot doctor soon so I can see if that's what I need to have added onto my brace.

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому

      +RissaRae yea no problem. I'm pretty sure they were just bunion cushions. Put on the pinky toe side of it.

  • @adelaidealfieri7801
    @adelaidealfieri7801 5 років тому +1

    Hi! Thanks so much for sharing with us!
    It seems I’ve just developed, drop feet? (Lol drop foot, but in both feet) I was wondering how you got such beautiful AFO braces? Did you have to special order them??!! I really want a pair like that! The regular ones are sooo depressing. Any information would excite me greatly! LOL Cheers!
    Sincerely, Addie

    • @NotYourAverageZebra
      @NotYourAverageZebra  5 років тому +1

      Thanks for watching! I went through my foot doctor who sent me to a orthotic and prosthetic place to get them molded and made. I was able to pick out the design i wanted on it. I hope you can get something to help with it all.

  • @moriahsmoot413
    @moriahsmoot413 Рік тому

    Hey did you have to buy bigger size shoes ?

  • @angadyadav01
    @angadyadav01 6 років тому +1

    I have same problem but i don't know from where i can buy this thing

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому +1

      Foot doctor or a specialist has to request them. And see a prosthetic/orthosis place to make them. They are shaped to your legs and feet.

    • @angadyadav01
      @angadyadav01 6 років тому

      I got it,Thanks........

  • @maryelinroca4716
    @maryelinroca4716 2 роки тому

    I have a 4 year old that I think will need to use them. But I am just afraid because it’s a big adjustment. I’m concerned have u been bullied because of it? Have u has it all ur life? Why do u use it? I think my son could have a very mild cp. he is also visually impaired.

    • @NotYourAverageZebra
      @NotYourAverageZebra  2 роки тому

      I havent had these all my life and i use them becuase i have EDS(ehlers danlos syndrome). I got them as an adult. As an adult ive gotten comments but only from other adults. but i always say adults typically have more judgments towards adults. Kids tend to just ask and move on. Once a kid hears "my legs works different and they help me walk" they usually move on.

  • @vikasravindran1312
    @vikasravindran1312 Рік тому

    Nice video. 🙏

  • @francisconieto8756
    @francisconieto8756 6 років тому +1

    What is that for?

  • @tomharrigan3227
    @tomharrigan3227 7 років тому +1

    Thanks for sharing

  • @tonjivaneseealons3183
    @tonjivaneseealons3183 6 років тому

    Where did you get your cushion pads from for your pressure spots?I've been trying to break my braces in for about a week but my right brace really agitate my ankle bone after standing in it for a certain amount of hrs

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому +1

      I did get them from my foot doctor. They are bunion pads. You could also buy them at the store. I have heard from other that the orthosis place that made them usually have those pads as well.

  • @marksmales2204
    @marksmales2204 3 роки тому

    Do they not hurt your foot & ankles? After wearing them for a long time?
    I have a NeoG Reflex AFO for my right ankle, which hurts after so many hours. 😟

    • @NotYourAverageZebra
      @NotYourAverageZebra  3 роки тому

      If they hurt talk to the one that makes the AFOs they could help out with that. There's other insert boots and pads to put inside.

  • @slm322
    @slm322 5 років тому

    I just got my very first molded afo like yours.. however the foam inserts would help greatly.. did you get them where you got your braces? Is it something i could order online?

    • @NotYourAverageZebra
      @NotYourAverageZebra  5 років тому

      +Stacey Myers Hi, I actually got them from my orthotic and prosthetic place that did the molds. If you contact them before they really start on the molds and cuts of plastic, I'm sure they can create them to have the foam inserts instead. These work alot better because they do go around my foot and ankle.

    • @slm322
      @slm322 5 років тому

      Not Your Average Zebra Thank You sooo much!!

    • @slm322
      @slm322 5 років тому

      Not Your Average Zebra Last question your socks were cute are they just plain novelty socks?

    • @NotYourAverageZebra
      @NotYourAverageZebra  5 років тому

      Regular long sock you buy at the store and online. All of mine have fun designs on them😂

    • @slm322
      @slm322 5 років тому

      Not Your Average Zebra Thank You.. You have helped a bunch..

  • @abeabe9000
    @abeabe9000 10 місяців тому

    What kind of afos are these

  • @sandykhoury6681
    @sandykhoury6681 5 років тому +1

    Is this a rigid afo? Or articulated??

  • @giselimelo7533
    @giselimelo7533 7 років тому +5

    perfeito 👏 também uso órteses para os pés

    • @Whatyoutubers
      @Whatyoutubers 7 років тому +1

      Gisele Pereira io pense era la unica usaba ortesis yo uso tambe ¡

  • @riinak7212
    @riinak7212 5 років тому

    Is there a difference in gait between when you have your leg braces on vs. when they're off?

    • @NotYourAverageZebra
      @NotYourAverageZebra  5 років тому

      There is. I was thinking of sound a video with and without my braces

  • @kennedymailloux4325
    @kennedymailloux4325 7 років тому +2

    Is it painful or hard for you to walk?

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому +3

      +Kennedy Mailloux if I don't wear them it's painful and a bit difficult to walk. With them on, I walk alot better and I'll only get pain when I spend too much time on my feet.

    • @pbaburao8861
      @pbaburao8861 6 років тому

      @@NotYourAverageZebra
      Hi, m pretty glad after seeing this video got motivarion dear if you can please tel me where i can buy those splints.
      Thankyou!

    • @NotYourAverageZebra
      @NotYourAverageZebra  6 років тому

      @@pbaburao8861 there are braces you can buy in stores that can help with ankle insability. but these kind that I have are molded to my legs. I had to get them made through a orthotics and prosthetics place.

    • @tonjivaneseealons3183
      @tonjivaneseealons3183 6 років тому

      @@NotYourAverageZebra where did you get your cushion from for your pressure spots?

  • @jbrown5562
    @jbrown5562 4 роки тому

    Getting mine soon it’s only 1 I had a stroke and it effected the left side of my body

    • @NotYourAverageZebra
      @NotYourAverageZebra  4 роки тому

      I hope it helps with what you need it to help with. will take a bit to get used to but I hope it helps.

    • @jbrown5562
      @jbrown5562 4 роки тому

      Not Your Average Zebra hi yeah it helps for some reason I had really bad knee hyper extension after the stroke and my ago helps with Thst a loti feel so secure and I look better walking thank you for commenting

    • @jbrown5562
      @jbrown5562 4 роки тому

      A f o *

    • @jbrown5562
      @jbrown5562 4 роки тому

      I’m struggling with putting my shoes on but I get my injections on my left arm and hand soon so I’ll be able to put my shoes on with both hands and I feel thst will help but I love my ado I had to learn not to sleep with it on because it hurts my foot so now I just pop it off before bed time

  • @rp81177
    @rp81177 Рік тому

    Im getting kafo braces, never had braces in my life so its all new to me. But with the afo part of my braces will they eventually cause muscle loss in my calfs

    • @NotYourAverageZebra
      @NotYourAverageZebra  Рік тому

      I was told it could.. So I do exercise with them on and I do some stuff while they are off to keep muscle built.

    • @rp81177
      @rp81177 Рік тому

      @NotYourAverageZebra same here, I'm supposed to be in the braces full time from time I'm up till bed so that's what I do. But do what I can excersie wise so the muscle loss don't happen, as the braces are all new to me I'm looking for as much advice as possible. Thanks for you advice

  • @gisellesancho-lee7556
    @gisellesancho-lee7556 7 років тому +1

    Hi, can you wear them with VANS?

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому

      +Giselle Sancho-Lee I was recently at the vans store and noticed some of their shoes would actually work.

    • @gisellesancho-lee7556
      @gisellesancho-lee7556 7 років тому

      do you know if the hightops original would work? I want them but I saw online that the insoles do not come out of the shoes so it would feel tight with AFOS

    • @gisellesancho-lee7556
      @gisellesancho-lee7556 7 років тому

      Can you drive with them on your feet?

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому

      +Giselle Sancho-Lee the high tops may work with AFOS that do not have stopper or hinges.

    • @NotYourAverageZebra
      @NotYourAverageZebra  7 років тому

      +Giselle Sancho-Lee yes I can drive with them on. It took awhile to get used to because i can't point my toes. So i have to put the seat up more.

  • @alvinlozano6379
    @alvinlozano6379 6 років тому +1

    Is it the same afo for cerebral palsy?

  • @geraldinetycoonpt1713
    @geraldinetycoonpt1713 2 роки тому

    Is this BICAAL?

  • @skv176
    @skv176 4 роки тому

    Where it get and what's the prise in india.where it get in India..

    • @NotYourAverageZebra
      @NotYourAverageZebra  4 роки тому

      You would need to check with a doctor, im not sure how you would get them in india

  • @Whatyoutubers
    @Whatyoutubers 7 років тому +2

    Good video ¡¡

  • @lisafroes6739
    @lisafroes6739 5 років тому

    I have my for 3 Days and very hard to walk with it Yet

    • @NotYourAverageZebra
      @NotYourAverageZebra  5 років тому

      Start small then expand the time to wear them.. It will take a bit to get used to.. If anything gets painful or you start getting sores, just let the one who made them know.

  • @Asad01122
    @Asad01122 6 років тому +1

    Beautiful I wear 2 socks

  • @okashaqureshi5532
    @okashaqureshi5532 6 років тому +1

    sis could you please tell me whats your weight ... i wear these too

  • @Asad01122
    @Asad01122 7 років тому +1

    Its pain full

  • @emilyjude9025
    @emilyjude9025 3 роки тому

    How much it costs

    • @NotYourAverageZebra
      @NotYourAverageZebra  3 роки тому

      My insurance paid.So I'm not 100% sure. Best bet would ask a foot doctor if they help you get a price

  • @ricardogonzalez448
    @ricardogonzalez448 4 роки тому

    I used to wear them alll the time I hated them now that I’m an adult my walking is so much worse I wish everyday that I could wear them

  • @Heirshmohammed4302
    @Heirshmohammed4302 5 років тому

    I like to see your walking without brace..

  • @elmunawarah4535
    @elmunawarah4535 Рік тому

    Like

  • @ilkinmuxdarov4153
    @ilkinmuxdarov4153 Рік тому

    Gvveheuheeh❤❤❤❤❤

  • @charliemedcalf4171
    @charliemedcalf4171 5 років тому

    Can you send them to me

  • @chrisvegab.6229
    @chrisvegab.6229 6 років тому +1

    I hate that