Wow. This woman is a piece of work. My husband just died from FTD - why be so impatient with him and why belittle him? She’s so annoyed. I feel so sorry for this man. I’d give anything to have my very flawed, diminished husband back for five minutes. Who cares if he can’t see the layers and layers of his “work.” He still is a sweet man. To lose his CREATIVE mind is a tragedy??? Losing any part of your person or your mind is horrible. My husband was a Harvard Law School graduate. And we weren’t bemoaning this loss of this aspect of who he was. It was his loss of basic dignity which was so devastating.
I think she’s caught up in the anger she feels at the disease. Being a caregiver is probably the hardest thing any of us have to go through. Especially with a disease as brutal as FTD.
His legacy will live on forever and ever just like his soul when we die our earthly bodies die they are not perfect but when we go up to heaven, our soul will get a perfectly beautiful body inner soul will live on forever. Can I get an amen
This video is disgraceful. The lack of empathy and compassion for this man is appalling. Yes, raising awareness = raising desperately needed funds. But this is not the way to do it. This man is not a “clown”. He is is man losing himself, and he knows it. Show him some respect, and give him the dignity he deserves. JFC.
I can relate. My bro got FTD year ago along with ALS. I can’t express how painful it is to understand and process all that is rapidly happening. My heart is with everyone living with this.
My husband has FTD and I appreciated this sharing because it was unemotional but educational. Watching someone you love change right before your eyes is to say the least heart breaking. When she shared the child like sweetness of a kiss on top of her head…
I dont mean to be off topic but does any of you know of a tool to log back into an Instagram account..? I was dumb forgot my login password. I would love any assistance you can give me.
Thank you for helping raise awareness to FTD! My mom was diagnosed with FTD 5 years ago and is now in the later stages. FTD is so hard and heartbreaking! My thoughts and prayers go out to everyone who is dealing with FTD in their life!
My dad was diagnosed with it back in October 2020, it's such a horrible disease especially when he gets agitated and aggressive, not fun to deal with, especially on the bad days when he is yelling at you and cursing you and blaming you for everything. I know your post is a year old but I am wondering if you tried anything to calm the aggression and agitation? We tried antipsychotics and anti-depressants and it seemed it made things worse and not better. After he was off of them, he seemed to stabilize with more "good" days than bad days but over the last month or so it seems as the number of bad days seems to be increasing. I was wondering have you tried CBD or medical marijuana and if so how were the results?
David was a great teacher for me. I feel really sad that this is happening to him. I am wondering wether this was genetic or caused by cadmium and all the toxic elements we have used in our artistic careers.
Been with my mamma for two years. I'm not sure what form of demintia she has but it's gaining momentum, so it seems. She reads constantly and plays word search games. We walk daily and consume a good diet. It's such a back and forth target, always moving. Similar to fog moving in, then lifting only to return later. I'm 60, she's 78. This stuff can kill two at the time. I hadn't a clue this would be my test of a lifetime. No one to share, no one to care. My God provide us the strength and compassion to be loving care providers.
His loved ones are so negative it drives me nuts.I could just picture that if they met me, they would focus on the shit I can't do insteat of the shit I can
They are being filmed and treat him like that! Wonder how bad she makes her husband feel off camera. Did the producers of this video even realize this? I feel so bad for David now.
The constant strain of living with someone going through this disease is incredibly hard on carers and family, who are grieving while trying to function too. Extend some grace...
my mom has this disease and I haven't seen her in 7 years. She literally went on a campaign of terror against me and my family. I was so baffled by her behavior, i didnt even know who she was anymore. No one in my family has helped me or reached out to me. She recently lost her older brother and his wife and she's been acting aloof and psychotic. I am glad that I don't have to deal with her and her disease anymore. My family back home in Texas just thinks I am crazy. I have severe ptsd because of what she put me through.
It's a sad case, but let us accept the things that we cannot change and the understanding to know the difference, give him all the love and the respect that he so deserve,we never know the day when it's our turn.
Why are his loved ones so are focused on what he can't do and constantly reminding him of what he has lost, why not work with who he is that day and enjoy the time he has left....
I agree i felt loved ones too negative with him. Make an effort of focusing on all the good you have left. I just lost 2 family members in last 2 years..We cherished every minute and didn't dwell on the end. Give the guy a break. I speak from experience.
I’m sure it was for the sake of this video , I’m sure in his day to day living they will focus on all he can do rather than not . But it was important to highlight the changes in his life because of dementia and the knock on effect it has . Untill it’s Recognised for exactly what it is knothing will change .
She is so abrupt with him... not very loving towards him and dwelling on the negative. Please give this lovely man a break. Boy they say opposites attract ... try to understand him instead of putting him down. She appears to be more concerned about her experience instead of his.
Hi there, we are very sorry to hear this. Please visit our website, www.psp.org, there are support groups and information available. You can also call us at 347-294-2873. We are here to help.
@@sandradee7682 my dad was a house painter and I honestly believe his FTD diagnosis has a lot to do with his profession. He's 79 years old so when he was working there were a lot of oil based paints, paints with lead in it, and then of course the solvents. These guys didn't know any better as they did what they could to earn a living and to provide food and shelter for their families, it's horrible that's for sure.
Well compared to my girlfriend with FTD He’s doing a whole lot better than my girlfriend. She can’t talk can’t walk. She just likes sweets. Coke and french fries that’s what I bring her assistant living. She used to be a Great dancer. And now she can’t walk. But I’m still there to see her, And hold her hand. Tell her I love her and then I leave
Oh, did I not mention that I am blind? I am so sorry about that. I may be blind, but I can do pretty damn well in the world, so can everyone else with a disability and a disease he still a good person at least look at the bright side
He has Lewy body dementia, which is horrific and heartbreaking too, I totally understand his choice, he must have known there was no hope and that he would just get worse. I wouldn't want to live like that either.
I'm in the process of finding out which form of FTD I have. It's looking like non-fluent / Broca's. I'm in the early days and I'm trying to educate myself and my family asap while I can. This UA-cams is unusable for me because there is SO much 'background music' that I can't follow what you are saying. I'm not just whiney; I want/need to understand what you're saying. Please turn back-ground music etc. in your vids? Thank you.
Nope...She thinking about herself first. Just sad. This seems to be going over a lot of people's heads. Doesn't bode well when we lose compassion from our being.
Wow. This woman is a piece of work. My husband just died from FTD - why be so impatient with him and why belittle him? She’s so annoyed. I feel so sorry for this man. I’d give anything to have my very flawed, diminished husband back for five minutes. Who cares if he can’t see the layers and layers of his “work.” He still is a sweet man. To lose his CREATIVE mind is a tragedy??? Losing any part of your person or your mind is horrible. My husband was a Harvard Law School graduate. And we weren’t bemoaning this loss of this aspect of who he was. It was his loss of basic dignity which was so devastating.
I agree. And I’m so sorry. I wish I could give you those 5 minutes. 💔
I'm not seeing what you are saying at all. What women? It was his family talking, not just one women.
I think she’s caught up in the anger she feels at the disease. Being a caregiver is probably the hardest thing any of us have to go through. Especially with a disease as brutal as FTD.
His legacy will live on forever and ever just like his soul when we die our earthly bodies die they are not perfect but when we go up to heaven, our soul will get a perfectly beautiful body inner soul will live on forever. Can I get an amen
This video is disgraceful. The lack of empathy and compassion for this man is appalling. Yes, raising awareness = raising desperately needed funds. But this is not the way to do it. This man is not a “clown”. He is is man losing himself, and he knows it. Show him some respect, and give him the dignity he deserves. JFC.
I can relate. My bro got FTD year ago along with ALS. I can’t express how painful it is to understand and process all that is rapidly happening. My heart is with everyone living with this.
Surely it's obvious that his ability has changed but they need to let him feel proud of the ability he still
has.
I agree. He still needs to know he has worth.
My husband has FTD and I appreciated this sharing because it was unemotional but educational. Watching someone you love change right before your eyes is to say the least heart breaking.
When she shared the child like sweetness of a kiss on top of her head…
My heart goes out to you all. I am a caregiver for my wife. I hope for a cure as you do.
I dont mean to be off topic but does any of you know of a tool to log back into an Instagram account..?
I was dumb forgot my login password. I would love any assistance you can give me.
My mom passed from this at the age of almost 39.
Thank you for helping raise awareness to FTD! My mom was diagnosed with FTD 5 years ago and is now in the later stages. FTD is so hard and heartbreaking! My thoughts and prayers go out to everyone who is dealing with FTD in their life!
My dad was diagnosed with it back in October 2020, it's such a horrible disease especially when he gets agitated and aggressive, not fun to deal with, especially on the bad days when he is yelling at you and cursing you and blaming you for everything. I know your post is a year old but I am wondering if you tried anything to calm the aggression and agitation? We tried antipsychotics and anti-depressants and it seemed it made things worse and not better. After he was off of them, he seemed to stabilize with more "good" days than bad days but over the last month or so it seems as the number of bad days seems to be increasing. I was wondering have you tried CBD or medical marijuana and if so how were the results?
At least he has left a legacy, some people go their whole life without achieving anything.
Im sorry you are going through this. My husband was also diagnosed june 1st and im terrified
David was a great teacher for me. I feel really sad that this is happening to him. I am wondering wether this was genetic or caused by cadmium and all the toxic elements we have used in our artistic careers.
Been with my mamma for two years. I'm not sure what form of demintia she has but it's gaining momentum, so it seems.
She reads constantly and plays word search games. We walk daily and consume a good diet. It's such a back and forth target, always moving. Similar to fog moving in, then lifting only to return later.
I'm 60, she's 78. This stuff can kill two at the time. I hadn't a clue this would be my test of a lifetime. No one to share, no one to care.
My God provide us the strength and compassion to be loving care providers.
His loved ones are so negative it drives me nuts.I could just picture that if they met me, they would focus on the shit I can't do insteat of the shit I can
They are being filmed and treat him like that! Wonder how bad she makes her husband feel off camera. Did the producers of this video even realize this? I feel so bad for David now.
Social economics
The constant strain of living with someone going through this disease is incredibly hard on carers and family, who are grieving while trying to function too. Extend some grace...
Heartbreaking.
I'm so sorry you have to experience this. My husband suffered for ten tears with it then mercifully cancer took him.
I love him
my mom has this disease and I haven't seen her in 7 years. She literally went on a campaign of terror against me and my family. I was so baffled by her behavior, i didnt even know who she was anymore. No one in my family has helped me or reached out to me. She recently lost her older brother and his wife and she's been acting aloof and psychotic. I am glad that I don't have to deal with her and her disease anymore. My family back home in Texas just thinks I am crazy. I have severe ptsd because of what she put me through.
It's a sad case, but let us accept the things that we cannot change and the understanding to know the difference, give him all the love and the respect that he so deserve,we never know the day when it's our turn.
Why are his loved ones so are focused on what he can't do and constantly reminding him of what he has lost, why not work with who he is that day and enjoy the time he has left....
It's tough to say the least. Unless you're going through it, it's impossible to understand.
My thoughts too! His work is still beautiful! stop asking questions he can't answer. Just join him in his world
I agree i felt loved ones too negative with him. Make an effort of focusing on all the good you have left. I just lost 2 family members in last 2 years..We cherished every minute and didn't dwell on the end. Give the guy a break. I speak from experience.
I’m sure it was for the sake of this video , I’m sure in his day to day living they will focus on all he can do rather than not . But it was important to highlight the changes in his life because of dementia and the knock on effect it has . Untill it’s Recognised for exactly what it is knothing will change .
She is so abrupt with him... not very loving towards him and dwelling on the negative. Please give this lovely man a break. Boy they say opposites attract ... try to understand him instead of putting him down. She appears to be more concerned about her experience instead of his.
Can’t help stop in like 30 minutes
🙏🙏🙏🙏🙏
My mother in law was diagnosed with this yesterday, My wife and I feel overwhelmed as to where to start to help her. She lives alone and far from us.
Hi there, we are very sorry to hear this. Please visit our website, www.psp.org, there are support groups and information available. You can also call us at 347-294-2873. We are here to help.
My farmer boyfriend- something was wrong. 30 yrs of pesticides. Brain is shutting down. He is so hot and cold. So sad.
So sorry it is a big responsability too big for one person.Dont do it alone.Carers lose alot of thier life.Take time for yourself.
Also heavy metals in the atmosphere from chemtrailing which is then rained down on to the soil and food crops. It is criminal.
@@sandradee7682 my dad was a house painter and I honestly believe his FTD diagnosis has a lot to do with his profession. He's 79 years old so when he was working there were a lot of oil based paints, paints with lead in it, and then of course the solvents. These guys didn't know any better as they did what they could to earn a living and to provide food and shelter for their families, it's horrible that's for sure.
Can Keto help prevent further deterioration? I know they're calling alzheimers Diabetes t3 now. Seems like keto would be worth giving a shot.
Well compared to my girlfriend with FTD He’s doing a whole lot better than my girlfriend. She can’t talk can’t walk. She just likes sweets. Coke and french fries that’s what I bring her assistant living. She used to be a Great dancer. And now she can’t walk. But I’m still there to see her, And hold her hand. Tell her I love her and then I leave
I’m so sorry. I can’t imagine how difficult it is. But she is grateful for you, and you will never regret anything. I wish you peace.
Oh, did I not mention that I am blind? I am so sorry about that. I may be blind, but I can do pretty damn well in the world, so can everyone else with a disability and a disease he still a good person at least look at the bright side
Robin Williams made his choice
Bonnie Young Did he have this??
@@jessiesvids10 No! He had lewly dementia.
He has Lewy body dementia, which is horrific and heartbreaking too, I totally understand his choice, he must have known there was no hope and that he would just get worse. I wouldn't want to live like that either.
@@jessiesvids10 No, he didn’t.
I'm in the process of finding out which form of FTD I have. It's looking like non-fluent / Broca's. I'm in the early days and I'm trying to educate myself and my family asap while I can. This UA-cams is unusable for me because there is SO much 'background music' that I can't follow what you are saying. I'm not just whiney; I want/need to understand what you're saying. Please turn back-ground music etc. in your vids? Thank you.
Is it possible that certain medications such as antidepressants or hypertension medication could be causing this?
Mac Clift I have been wondering the same thing.
hope not, I am on both last 20 years.
naemasufi yeah, me too. Been on some of these various meds for a while & probably will be on them the rest of my life.
@@wandarhiner8250 yeah, I'm 64 still working in care, every forgetful moment gets e thinking
No
The wife is a really Debbie Downer! She is not adding to his quality of life.
Nope...She thinking about herself first. Just sad. This seems to be going over a lot of people's heads. Doesn't bode well when we lose compassion from our being.
Unless you're in that situation yourself, better not to judge. She's very likely exhausted, grieving and struggling just to keep them functioning.