Thanks so much for the information. Recently diagnosed with osteoporosis. I’d also like to applaud your specialty, after a lifetime of subluxations, bowel, urinary bleeds, uterine rupture at 28 weeks and brain aneurysms resulting in craniotomy clipping. I saw amazing specialists for each condition BUT at age 57 when sent to a Rheumatologist, after a detailed history he was able to put everything together, he recognized the signs of a rare genetic condition…Vascular Ehlers-Danlos Syndrome and had me see Genetics for confirmation. No other specialty was able to look at the entire picture. Would love to hear your take on connective disorders.
@@lizturner267 here are some great resources for you EDS resourses:UA-cam Channels ua-cam.com/channels/652wu-mvi2ghwQN-is7LIQ.html ua-cam.com/channels/O5M4DiVydA_cgNAlslUwNw.html?app=desktop Other EDS websites with patient education videos www.chronicpainpartners.com/webinars/ www.hypermobility.org/videos www.ehlers-danlos.com/ Podcasts www.hypermobilitymd.com/podcast www.hypermobilityhappyhour.com/home
Thanks so much for the resources. I’ll few the UA-cam’s but find the hypermobile type of ED doesn’t relate well with the vascular type 😊 thanks again, I appreciate your videos?
Beautifully explained
Thank you so much 🙂
Excellent &graceful explanation God bless
Feeling proud of you
Wonderfully explained!! Love the interview style, thank you!
Thank you so much!!!
Thanks so much for the information. Recently diagnosed with osteoporosis.
I’d also like to applaud your specialty, after a lifetime of subluxations, bowel, urinary bleeds, uterine rupture at 28 weeks and brain aneurysms resulting in craniotomy clipping. I saw amazing specialists for each condition BUT at age 57 when sent to a Rheumatologist, after a detailed history he was able to put everything together, he recognized the signs of a rare genetic condition…Vascular Ehlers-Danlos Syndrome and had me see Genetics for confirmation. No other specialty was able to look at the entire picture.
Would love to hear your take on connective disorders.
@@lizturner267 here are some great resources for you EDS resourses:UA-cam Channels
ua-cam.com/channels/652wu-mvi2ghwQN-is7LIQ.html
ua-cam.com/channels/O5M4DiVydA_cgNAlslUwNw.html?app=desktop
Other EDS websites with patient education videos
www.chronicpainpartners.com/webinars/
www.hypermobility.org/videos
www.ehlers-danlos.com/
Podcasts
www.hypermobilitymd.com/podcast
www.hypermobilityhappyhour.com/home
Thanks so much for the resources. I’ll few the UA-cam’s but find the hypermobile type of ED doesn’t relate well with the vascular type 😊 thanks again, I appreciate your videos?
Very very nice and informative vlog 🌹 wonderfully explain and Love the interview style . thanks 👍 plz also make vlog full badly pain in SLE patient.
Excellent explain
Thank you so much! I'm glad you found the explanation helpful.