Living With CFS (Chronic Fatigue Syndrome) - Part 1

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  • Опубліковано 8 січ 2025

КОМЕНТАРІ • 42

  • @jasparvowden
    @jasparvowden  Рік тому +1

    Here is a link for part 2 of the video, thank you to everybody who has watched so far, please reach out and share your story, no matter the battles you are going through, we can support one another
    ua-cam.com/video/4bV5QsJSpkU/v-deo.html

  • @atoptreetops1026
    @atoptreetops1026 Рік тому +2

    Great testimony brother. I am really pleased that you see this trial as an opportunity to learn and grow from. Many people in this CFS community are absolutely miserable and have a terrible defeatist attitude. Which to a point I understand, but as you stated our minds are incredibly powerfully and we must believe and trust that we will get better and learn to focus that energy in a productive and beneficial way.
    This journey has been a rollercoaster. However, I'm done feeling sorry for myself and have chosen to not let this disease define who I am.
    "Circumstances don't make the man, they only reveal him to himself."

    • @jasparvowden
      @jasparvowden  Рік тому +1

      Thanks mate yes you are spot on there is too much negativity surrounding what we are capable of and not just the CFS community but humanity in general. Yes I understand for some people the negativity is probably justified but for most people we have the power to change our entire being for the better and that should excite us all!
      I'm so happy to hear that you have not given up on yourself and will keep searching for answers and better health, awesome bro!! Keep at it 👍

  • @jackdawson1054
    @jackdawson1054 22 дні тому

    thank you for making this, so beautiful and I loved the reference to kipchoge he is so wonderful! I am proud of you and wish you all the best!!

    • @jasparvowden
      @jasparvowden  22 дні тому

      Thanks so much for the lovely comment mate! Kipchoge is a massive inspiration to me. All the best to you too 😁 cheers

  • @FetchCraft11
    @FetchCraft11 Рік тому +4

    none of us can change the past, but we can enjoy the "present" moment, Creating a better future in the process.

    • @jasparvowden
      @jasparvowden  Рік тому

      Sure can, well said bro! Cheers 🙂👍

  • @seanbirnie2468
    @seanbirnie2468 Рік тому +5

    More people need to see this. The amount of wisdom Jaspar has shown in his fitness and in general life is staggering. If someone with Chronic Fatigue can be fit, anyone can.

    • @jasparvowden
      @jasparvowden  Рік тому

      Thanks Sean mate I really appreciate that 🙂 I hope the message reaches more people!

    • @cosmicmuffin322
      @cosmicmuffin322 Рік тому +4

      No. Most people with ME/CFS cannot be fit and it's extremely dangerous for them to try. He is very lucky to be in remission and able to do exercise. But even for him, physical activity provoked relapses.

    • @jasparvowden
      @jasparvowden  Рік тому +1

      @@cosmicmuffin322 I believe the right amount of exercise is crucial in this context. Doing too much is certainly a bad idea and can send us backwards. But there's always something we can do to start. Even if it's lifting a small weight while in bed, or performing a couple of squats if we are out of bed, whatever is manageable, that's a start. And even if it seems insignificant at the time, it will have a positive impact long term.

    • @seanbirnie2468
      @seanbirnie2468 Рік тому

      I was more saying that if someone who had a sickness as severe as Chronic Fatigue (even a "mild") version of it, it means that MOST people can be fit, but I definitely didn't phrase it in the best way. Thank you for Sharing i didn't know how horrible it ME/CFS could be, but i also stand by my point: You can always do something. @@cosmicmuffin322

    • @jasparvowden
      @jasparvowden  Рік тому +1

      @@selinaraines101 hi mate, thanks for commenting, I'm aware this is a very touchy subject, trust me I've suffered for over 20 years with this illness I don't take this subject lightly. I think I'm not explaining myself correctly here, and it's gotten way off topic with the conversation surrounding exercise. In terms of dumbbells, you can get ones that weigh the same as a can of beans which is what I'm referring to here. Also, I have helped a friend of mine who also suffers with CFS regain a lot of strength and confidence after a serious car accident which triggered a major relapse and we had great results rebuilding his abilities and confidence through very small and incremental improvements over a couple of years. Also, I'm not prescribing exercise for anyone here, I was simply replying to a comment that someone mentioned relating to exercise. Now aside from exercise, the main message here is that we have a lot of hopeful and effective health practices that are well known nowadays and I reference some amazing people in the part 2 of this video. Also, the main message here is simple: do not give up hope, and keep searching for answers. I believe that a lot of us with not just CFS but many diagnoses are left with feelings of helplessness and no hope, especially if doctors can't fix us with drugs, they basically say 'you're sick for life' and there are many examples through human history where people have defied this rhetoric and made complete recoveries which I find hopeful and inspiring. So to clarify, I'm not prescribing anything, I'm sending a message of hope. May I ask if you have watched my video? Because this has gotten far off topic which is a shame. But I do appreciate you commenting as I wish to create a helpful conversation for everybody so I appreciate it. Thanks mate, all the best

  • @pierrelambie8978
    @pierrelambie8978 Рік тому +4

    Hey! I'm really enjoying your content so far, i think you deserve so much more attention. I'm looking forward to become a personnal trainer myself in a near future and you represent a very good source of inspiration to me! I would love to learn more about how you became a personnal trainer in a future video ( your source of inspiration, what you studied, etc). I find the subjects you talk about in your content very interesting, keep up the good work! Greetings from Europe.

    • @jasparvowden
      @jasparvowden  Рік тому +1

      Hey Pierre thank you so much for the kind words and encouragement, I appreciate that a lot! That's really awesome mate, I'm excited for you! You'll be changing people's lives for the better 😁 I would love to make a video on that topic, I had never thought about that before! I will put something together for you mate 👍

  • @cosmicmuffin322
    @cosmicmuffin322 Рік тому +5

    You are very lucky to have a supportive mother who did everything to try to help you. I imagine that is the reason you still believe in the "power of the mind". For those of us with severe ME/CFS who had no support, it's much more difficult to believe that positive thinking or whatever is going to make us better. When I got sick over 15 years ago my mother, a healthcare professional, immediately gave up on me and left me to look after myself (I am semi-bedbound). I try every single day to have a positive outlook, foster good habits and make the most of life, but it's not the same when you are alone.

    • @jasparvowden
      @jasparvowden  Рік тому

      Thank you for sharing mate, yes I am extremely lucky to have had the support from my mother and I still believe in the power of the mind completely. I'm very sorry to hear that, I can't imagine the pain that would have caused you. Human connection and love certainly plays a massive role in our well being. I still believe in you mate, please stay in touch, you're not alone

    • @mihakavcic7237
      @mihakavcic7237 Рік тому +1

      Are you ok with that?

    • @jasparvowden
      @jasparvowden  Рік тому

      Sorry I don't understand the question?

    • @mihakavcic7237
      @mihakavcic7237 Рік тому +1

      @jasparvowden I still believe in the power of the mind completely.
      Are you ok with that?
      Because we still don't know where the problem is.
      Clueless... Absolutely clueless.

    • @jasparvowden
      @jasparvowden  Рік тому

      Yes because the mind is not seperate to the body. I'm not saying I have the answers, just hope

  • @debramartin9396
    @debramartin9396 Рік тому +2

    I diagnosed myself around 1 year ago. I feel tired and weak and sick everyday. Even going for a short walk exhausts me. I dream of going to work one day.

    • @jasparvowden
      @jasparvowden  Рік тому

      Thanks for sharing Debra and I feel for you! It feels like forever when you're stuck in your body like that but I'm sure you will find a path to good health one way or another. Is there anything you've tried or are planning on trying to help with your recovery?

  • @Truerealism747
    @Truerealism747 Рік тому +2

    26 years for me now it's more fybromyalgia 24/7 but it's related to I now no Asperger's add heds

    • @jasparvowden
      @jasparvowden  Рік тому

      That must be very painful, however I suppose there's some relief in having a more clear diagnosis. Have you found anything that helps with your symptoms?

    • @Truerealism747
      @Truerealism747 Рік тому +1

      @@jasparvowden ime going to try a jaw splint tmj fybromyalgia connection even though I get no tmj anymore and maybe ADHD meds vitamin c infusion next week

    • @jasparvowden
      @jasparvowden  Рік тому

      I wonder why they're trying the splint if you get no tmj symptoms any more? Good to hear that's improved though. I hope the new meds also help you out mate all the best with that!

    • @Truerealism747
      @Truerealism747 Рік тому

      @@jasparvowden well because when they out pegs in my jaw ime week in my legs in UA-cam check out tmj fybromyalgia connection the jaw pull s on the subconscious brain with hypomobility ime trying anything constant 24/7 muscle pain is hard do yourself have add or Asperger's combined

  • @germanside7890
    @germanside7890 Рік тому +2

  • @Michael-o8k7g
    @Michael-o8k7g Рік тому +1

    Take co q 10. D3. K2. And iodide fir chronic f. Aldo neuro mag.

    • @jasparvowden
      @jasparvowden  Рік тому

      I'm happy to hear you found a solution for yourself mate!