Thank you so much for the detail explanations. I was diagnosed in 2019 and didn’t educate myself properly, I had a relapse in 2023 and am determined to understand Vasculitis MPA as much as possible. This was a huge help in my quest
We are so glad this was helpful. Relapses unfortunately happen to many vasculitis patients-even when they are doing everything "right." I wanted to share some other resources you may find helpful as you work to better educate yourself about your MPA diagnosis. 1. Vasculitis Foundation Virtual Support Groups: We offer weekly and monthly virtual support group meetings where you can connect with and learn from other people who are living with vasculitis www.vasculitisfoundation.org/living-well/find-support/ 2. Video playlist of all of our MPA related videos ua-cam.com/play/PLr6Bwau6uSmvxKxI402gSU6bdxaxQne7O.html 3. Information on MPA on our website www.vasculitisfoundation.org/education/vasculitis-types/microscopic-polyangiitis/ 4. MPA clinical practice/treatment guidelines www.vasculitisfoundation.org/anca-associated-vasculitis-gpa-mpa-egpa-guidelines/ You can view the plain language versions of these guidelines here www.vasculitisfoundation.org/wp-content/uploads/2024/09/GPAMPA-recommendations.pdf
I am suffering so much from Urticaria Vasculitis… haven’t been in remission since 2021 when I first got it with the Covid virus. I’ve been on Dapsone since February and it still doesn’t go into remission… Too bad you did not go at all into depth with this type and just passed through it so quickly 🙁
I have urticarial vasculitis as well. Don't lose hope. Maybe talk to your doctor about another medication. It took me a few years until the hives stopped.
We are so sorry to hear that you have not been able to be in remission since 2021. We do have a video specifically on urticarial vasculitis that gives much more in-depth coverage. Here is the link to that video ua-cam.com/video/5W7sg2zAbUE/v-deo.html. We also have a playlist with other videos that may be helpful for people with urticarial vasculitis. Here's the link to that playlist ua-cam.com/play/PLr6Bwau6uSmst1HSW5Eiun21spVYRsFn5.html Our website has additional information on urticarial vasculitis www.vasculitisfoundation.org/education/vasculitis-types/urticarial-vasculitis/ Explore our website to learn more about our virtual support groups, in-person conferences, and other helpful resources. If you have questions, don't hesitate to contact us.
Thank you so much for the detail explanations. I was diagnosed in 2019 and didn’t educate myself properly, I had a relapse in 2023 and am determined to understand Vasculitis MPA as much as possible. This was a huge help in my quest
We are so glad this was helpful. Relapses unfortunately happen to many vasculitis patients-even when they are doing everything "right." I wanted to share some other resources you may find helpful as you work to better educate yourself about your MPA diagnosis.
1. Vasculitis Foundation Virtual Support Groups: We offer weekly and monthly virtual support group meetings where you can connect with and learn from other people who are living with vasculitis www.vasculitisfoundation.org/living-well/find-support/
2. Video playlist of all of our MPA related videos ua-cam.com/play/PLr6Bwau6uSmvxKxI402gSU6bdxaxQne7O.html
3. Information on MPA on our website www.vasculitisfoundation.org/education/vasculitis-types/microscopic-polyangiitis/
4. MPA clinical practice/treatment guidelines www.vasculitisfoundation.org/anca-associated-vasculitis-gpa-mpa-egpa-guidelines/ You can view the plain language versions of these guidelines here www.vasculitisfoundation.org/wp-content/uploads/2024/09/GPAMPA-recommendations.pdf
I am suffering so much from Urticaria Vasculitis… haven’t been in remission since 2021 when I first got it with the Covid virus. I’ve been on Dapsone since February and it still doesn’t go into remission… Too bad you did not go at all into depth with this type and just passed through it so quickly 🙁
I have urticarial vasculitis as well. Don't lose hope. Maybe talk to your doctor about another medication. It took me a few years until the hives stopped.
We are so sorry to hear that you have not been able to be in remission since 2021. We do have a video specifically on urticarial vasculitis that gives much more in-depth coverage. Here is the link to that video ua-cam.com/video/5W7sg2zAbUE/v-deo.html.
We also have a playlist with other videos that may be helpful for people with urticarial vasculitis. Here's the link to that playlist ua-cam.com/play/PLr6Bwau6uSmst1HSW5Eiun21spVYRsFn5.html
Our website has additional information on urticarial vasculitis www.vasculitisfoundation.org/education/vasculitis-types/urticarial-vasculitis/
Explore our website to learn more about our virtual support groups, in-person conferences, and other helpful resources. If you have questions, don't hesitate to contact us.