What I Eat In a Week - After My Ileostomy Reversal | 7-Day Food Diary
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- Опубліковано 13 лип 2022
- As a stage 3 rectal cancer survivor and former ostomate, I get questions all the time about what I eat to avoid spending half of my life on the toilet. It's hard to say there's one magic thing I do, so follow me for a week to see what I eat and what I take to attempt to keep my bowels from ruling my life.
Recipes from my video:
Green Smoothie - mayoga.com/easy-green-smoothie/
Thai Pineapple Fried Rice - cookieandkate.com/thai-pineap...
Moroccan Harira - www.vegetariantimes.com/recip...
Chickpea Tikka Masala - www.watchwhatueat.com/healthy...
Chickpea Tacos - www.vegetariantimes.com/recip...
Dal Makhani - www.cookwithmanali.com/dal-ma...
✅Click on this link to subscribe so you can hear more about what to expect after a cancer diagnosis: / @survivorjelena
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😟Newly diagnosed and want to learn what it’s really like to go through treatment from a patient’s perspective? Check out my playlist What to Expect During Colorectal Cancer Treatment - • What To Expect During ...
My most popular videos
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😷My Colorectal Cancer Symptoms: • My Colorectal Cancer S...
💩My Ileostomy Reversal Experience: • My Ileostomy Reversal ...
💉Getting a Port Placed for Chemotherapy: • Getting a Port Placed ...
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I had the same cancer and treatment like you had, Jelena, that was from mid 2018 till januari 2019, when my stoma was removed. I had problems with bowelmovements and tried much different ingredients to try to solve the problem. Still I was never sure when I was gonna have to go to the toilet and that really puts a strain on your life. But since 5 months now, I started with intermitted fasting, I only eat between 12 o'clock at noon and 8 o'clock evening. I start every day at 12 o'clock with a banana and after 1 hour I start to get a meal. It doesn't matter what I eat now, I have no problems anymore with my stools being loose, it is always perfect smooth, once a day and sometimes once in 2 days. I never take immodium or metamucil. I only take vitamine D, C and B12, calcium, magnesium and callogen. I hope somebody will try this intermitting fasting too and share their experience how that goes for them. On top of that I lost 5 kilos, alltough I only weigh 55 kilos now, with my lenght of 1.65 m. wich is a perfect BMI.
I’m glad you’ve found something that works for you!
Your so strong ❤im a 22 year old man and i dont have the strenght to go through all that like you
You most certainly do. If you are on this journey or need help, there are some awesome groups out there. I am a caregiver. But one thing is for sure. A cancer diagnosis will show you what you're made of. You will find courage you didn't know you had. And strength when you feel like it's too much. Your support system is huge. This video is awesome and she is truly amazing for opening herself up to share her journey and help others.
You are such a bright and warm soul. I love your energy and enthusiam. Very strong spirit, and mind! And you have quite the story! Thanks for the share. Sending loveeee! And lighttt!
I appreciate your videos so much. I just had my ileostomy reversal surgery last week Tuesday, August 15. I’m hoping that I don’t have too much going to the bathroom although I am kind of off to the races with going 4 to 5 times a day. I’m glad I listened and heard my husband install a bidet toilet seat, I purchased some adult diapers, and I have some Imodium. We are survivors, and therefore we will thrive! Keep making this wonderful concert. I appreciate you.
Thank you for sharing your journey these videos helped me so much along the way
Happy to help! I hope you’re doing ok 💙
Thanks Jelena for sharing all your awesome videos and all the helpful information. I'm about to have my ileostomy reversed next week and really appreciate all the information you have shared. I hope your doing awesome. Thanks
I hope your reversal went ok and you're back home and adjusting to life without a bag again. 💙
Very informative. I’m lucky if I have a one bowel movement day per month. I’ve found I can’t tolerate any food with active cultures in it (yogurt). I was told to take Metamucil before bed if I’m having loose stools and in the morning if I’m constipated. I’m never constipated. I average 4 to 5 BM’s per day. I hope to reduce that. It’s been a little over a year since my ileostomy was reversed. I still have stressful moments when I’m out and about. Thanks for your video!
I’m obviously tired reading this because I at first thought you meant that you only pass 1 BM a month 😅😱 I was frightened for you! Then I realized what you actually meant, and that’s basically where I was for a long time. Do you add just a minimal amount of water to the Metamucil? Then don’t drink much for the next hour to make sure you don’t dilute the powder. Keep experimenting and hopefully you’ll find a magic solution that helps you, at least temporarily. 🤞🏼💙
I just found your channel today and subscribed !! Liked this video a lot !! I noticed that you only took Imodium when you felt the need. I had my reversal like 3 months ago and my doctor has me taking it before meals to slow down the digestion. Is that a common technique ??
Thanks for the vid. So long as I add my proteins in there it should be a good plan to stick to; where do you get your proteins from?
Congratulations 👏! You have been hired as my personal chef 👩🍳. 😶
Thank you 😋
Thanks for the good information! My biggest problem a year after my reversal is gas. I've found myself going to the toilet fairly often and it's normally just gas, although the feeling is gas+bm. I've pretty much cut out dairy, beans, and other gas producing foods, but I'm still having issues. I've tried gasx and other products, with not a lot of success. I'm planning on using metamucil on a daily basis. Do you have any suggestions about what may have worked for you regarding this?
Thank you for such awesome and open videos. I am 5 months post reversal and would love to take my kid to a theme park soon, but I am worried about the bathroom issues. I take immodium once a day or every few days, but still seem to have either purges (3-6 times a day) or somewhat thicker stools that still happen 3 times or more a day. Should I just wait more months before even trying or do you think adding Metamucil and taking more immodium would get me through the vacation?
It doesn’t hurt to experiment with a mix of metamucil and Imodium. Especially if it means getting you closer to feeling comfortable doing something fun.
All of that food looks delicious 🤤
Thank you 😋
so in an average week you have about 1-3 bowel movements daily, while 2 being the average it seems. thats amazing. when I had UC I would have to go maybe up to 20 times a day sometimes and this makes me hopeful for my reversal. I hope I get this result, I dont want to get my hopes too high though, I have heard about 6-8 times a day too. and how do you deal with accidents? do they occasionaly happen ?
Thank you Jelena, have you tried homemade Greek yogurt?, also 30-50g of walnuts per day are really beneficial for digest health.
I’ve never made Greek yogurt. Also, I’ve never heard about walnuts helping with your digestive health 🤔 Do you eat them daily?
@@SurvivorJelena homemade Greek yogurt is very easy to make & much healthier than store bought yogurt I will forward you more information how to make it, I've incorporated 30-50g of walnuts into my daily diet its made a huge difference and I believe it bulks up stool naturally & promotes digestive health, and also they are a great source of protein vitamins & minerals & healthy fats
When did your bowel movement’s start to regulate? I’m 5 days post surgery and I’m SUFFERING. I watched your video on your recovery but I just need some sort of light at the end of the tunnel. I feel like at the point I’m at I pretty much practice intermittent fasting to prevent diarrhea and I’ve gotten down to like 10-12 movements a day but I’m always hungry so I miss food. But I feel like the reason I don’t eat isn’t because I am not hungry but because I’m scared to poop.
They started to regulate a little when I ate a low-residue diet, but I got much better control after I went to my 2 week follow up appointment and my surgeon gave me the ok to take meds to regulate my bowels. I know saying “hang in there” isn’t much comfort when your butt is on fire and you can’t stop pooping, but unfortunately that’s about all you can do for a bit.
Do you feel you tolerate those smoothies well with the raw veggies and what not? Also like the beans do you think that impacted the days you went to the batheroom more? Do you eat meat?
I tolerated the veggies better in smoothie form than raw. The beans can be triggering sometimes.
Hello jelena,I just wanna ask if you avoid sugary foods and drinks while on chemo.. i have stage 3 colorectal cancer..and I'm on chemo now,done with surgery and I have ileostomy
No, I didn’t, but I didn’t eat them often. Warm apple juice was one of the few things I could drink for the first few days of chemo during the cold sensitivity. You don’t have to completely avoid sugar during treatment.
I was diagnosed with rectal cancer and have had the ileostomy for 6 weeks and will be leak tested. I would like to ask you if after the anastomosis and having the ileostomy you present any discomfort in the rectum? I am a little nervous. I hope you see my message and answer me thank you
I didn’t really notice much discomfort while I had the ileostomy, but I did get a feeling occasionally that I needed to pass a bowel movement and would pass a little mucus. There was quite a bit of urgency feelings right after the reversal, but that calmed down after a few weeks.
@@SurvivorJelena Thank you very much for your answer, it is very helpful for me, that is how I feel, let's hope my exam is fine so that I can have my ileostomy reversed soon. your videos are very helpful
Have you thought of doing vegetarian keto a bit more often? And you could add in sardines and chicken here and there. -- I just think doing the fatty veg/non-veg keto might stabilize your stool more.
Constipation is normal after reversal surgery?
I was told recently that my end Ileostomy reversal will be within the next few months. Because of my Parastomal hernia and having to reattach both ends of bowel again its more complicated. From how I understand it for loop ileostomys its a simple matter of stitching the openings and placing back inside. Where as end they have to locate the large bowel and create a new opening?(Wouldn't it be sealed prior to end ileostomy creation?) to attach the small bowel too. There's also more of a risk of anastomotic leak. I think I also lost some of my Caecum too so I don't have the valve thingy that regulates stuff going in and out of both bowels. Which is fine with me I don't care. I'm just happy I have hope after a little over 13 months lol.
That’s interesting. I’d definitely talk with the surgeon about how exactly they’ll do the procedure so you’ll know more about how it’ll be done, and what to watch out for afterward to make sure there aren’t any leaks.
@@SurvivorJelena Hi Jelena. I think it all just comes down to luck right? From what I understand after bowel surgery the bowels become inactive for a short time and if there's an anastomotic leak id become unwell after a few days. I'm not too worried about complications as I've always taken the view that what will be will be. I'm just looking forward to the stoma chapter of my life to be over and to see what life brings next lol. Its going to be so weird when the operation happens to wake up not seeing a stoma bag. Im sure it was the same for you?
Yes, it was very weird waking up with no bag, and exciting!
@@SurvivorJelena I hope your recovery is going well and that you're doing good. I'm not looking forward to throwing up when I wake up. I always do for some reason and with abdominal staples again it'll be painful. I recall after the initial ileostomy surgery it snapped me to it anyway lol
Ouch, that sounds like a rude awakening from surgery! Is it from nausea? If so, there’s a patch you can ask about that they can put in you behind your ear to help alleviate it.
What kind of blender is that ??thanks
It's a Cuisinart
There are a lot of excellent food processors out there. My does up to 7 cups, shred, chop, blend and slice. It's a KitcheAid.
Hey I have a question, I'm 16 and noticed red line on my stool and want to goo see the doctor. Did you call your local clinic for appointment or did you call your hospital? I don't even know the difference between the two, and don't know which one I should go too, and google says go see your doctor but I don't have one
I wouldn’t go to the hospital unless it’s an urgent or life-threatening thing. Find a local doctor that you can see for annual check ups, or try a nearby urgent care if the wait to see a doc is months and you’re concerned.
@@SurvivorJelena ok thank you a lot. That's all I needed to know
I went to urgent care told them I had blood in stool they referred me for a colonoscopy.. you need to ask around both sides of your family and see if there was anyone with cancer because it's easier to get a colonoscopy if there's a history of cancer for insurance to pay for it. You need to tell your parents.
Heeeey its been a while😷
Hope your well you looj good the hair is still AWESOME!!!
I dont have good news...
Give me a week ill try to tell you whats going on.
Thanks, Brandon.
Oh no, not bad news 😢 Talk when you’re ready. 💙
@@SurvivorJelena ok I found out in May that the chemo I was getting wasn't working . I had a scan in May that showed some lymph nodes were swollen so I had a pet scan that showed activity in the area where My osteomy was. This is also where the cancer cells were found in January...
So on June 29th I surgery that found more cancer in my abdomen wall 😳
My oncologist was thinking I'm chemo resistant due to cancer growth during chemo so he referred me to university of South Alabama to see what else was available.
The the doctor there said that he doesn't think I'm chemo resistant he just doesn't think that the drugs I got this year were very good choice he said the drugs I got last year the full Fox 5 suppress the cancer kept them from growing so he recommends I get 6 rounds of full Fox 5 and then a another drug called avastin* .
After that he recommends a heated chemo surgery.
He said they have had very good success with colon cancer that has spread to the abdominal wall with the HIPEC SURGERY.
I hope your well.💙
Hai jelena am from India, when my hubby stoma was removed he had problems with bowl from August31 2020, still he was facing problem ,he go to the toilet 10-15 times u have any solution please give me reply
What consistency is his stool? Liquid? You should try Imodium to help slow down his bowel movements and bulk up his stool. It may help to also note what foods are aggravating his symptoms. Before I had my Ileostomy I was going a LOT because I have severe Crohns Disease. This was complicated by foods making it fluidly too meaning I felt the need to go more often. But if I ate foods that were easily on my bowels during flares it made me go less.
I agree with Matthew, start by taking some Imodium to slow things down, then try to see if there are certain foods that make him go more than others. Taking something that bulks the stools like Metamucil or psyllium husk can help too.
@@SurvivorJelena I have issues with cooked chicken for example. For whatever reason I can't digest certain foods and I think with the way the bowels work if they can't properly absorb fluid because there's chunks of food in the way? the consistency would be fluidy. I also have issues with potato chips and several other types of food including sweetcorn. I cut those out prior to surgery and didn't have a huge amount of issues beyond the usual Crohns disease flares. Food choices do make a huge difference to quality of life. I would suggest he creates a journal to see what does and doesn't work. There's a good chance they could identify the problematic foods and focus on the ones which work.
1 week post op reversal I drink protein drinks and it helps bulk my stool
Interesting about HRT. I'm male so I don't know much about needing to take HRT during menopause. The only exposure to HRT for menopausal women I came across was that a.) it was cited as a reason that my mother died of breast cancer in 2012 and b.) my wife doesn't take HRT while being in her late 50s and in menopause. -- I have to shrug my shoulders on that, but I thought that women don't do HRT anymore.
When you’re at a normal menopausal age you don’t need to take HRT because your hormones naturally decrease at that age. I won’t take them anymore once I hit that age.
My dad had his surgery in the month of April and since then he was living with a stroma bag. He underwent the reversal surgery on 6th December and since then he is having problems with stool.The stool won't come out, tried so many things. He has not eaten in 3 days since the stomach is always full of gas and the stool won't come out through anus... Please enlighten me on this.
Has he passed any stool since he had his reversal? He may have a blockage or his colon may not have completely woken up post-surgery. He should reach out to his doctor for help.
@@SurvivorJelena yes he did 2 days after reversal and since then he is unable to pass..
Can we eat spicy food too ?? 🤔🤔
You can try and see how your body handles it.
@@SurvivorJelena can there be a blockage chance after ilostomy reversal 🤔
Yes, there could be, but the chances are lower
Do you fast all??water fasting??
No, I’ve never tried fasting…other than when I have to go in for a colonoscopy 🥴
@@SurvivorJelena oh look into it ..even intermittent fasting is good
hi jelena .. how are you .. I made the illeo reversal from 3 weeks, my output near to be normal, .... but I feel so weak .. hmm .. there is disturbance in the number of times entering the bathroom .. unfortunately, the doctor forgot to remove the stent after the first surgery from Oct 2021, it made bid
kidney stones on my left kidney .. I may remove it after 2 months during that time I have to drink stones solvents ..
May God be with us always .... and no return back of that disease ..
Ouch! I’m glad you found out what was causing the issues.
@@SurvivorJelena Thanks a lot, God send you to me to rebuild the hopes in my life ... the ages between his hands .. and we think the cancer mean the end .. but in fact it is the start
Vitamin D is supposed to always be taken with a fatty meal for absorption
, That's correct , and also together with calcium and vitamine K2, then you get the best absorbsion for all the supplements
I would put the probability that the cancer will come back based on what is presented in the video.
When I look at your food it makes me want to go to the bathroom and I didn't have an ostomy. No offend what I mean by that, that maybe it contain too much of fruits, fiber and too much of various plants food causing indigestive problems to many people. 🙂
good eating but after this i guess you do some brisk walking ! at least once in a while ! walking it's great for the colon health !
I go running more than I go for a walk, but I’ve also added in bike riding and strength-training. I try to be active 5 days a week. 😅
Are you vegan ?
No, just vegetarian. I eat eggs and dairy.
jUST 1 week after the reversal, and I am ready to really hurt this freaking doctor!!!!! Hate what has been done to me!!!! I am 71 and this is terrible! First I told the doctor under no circumstances was I to end up with a bag!!!! HA,HA!!!! Wake up from the surgery and what is there, YES A FREAKING BAG HANGING ON MY SIDE!!!!!!! If it were legal to hunt this doctor I would, but we know that its not legal so lets drop that!!!!!!! I am not a criminal!!!!! But if they change the law, he has a problem!!!!!! LOL I have absolutely no Idea what the hell you are eating and the concoction you drink in the morning is NOT eating!!!! At 71, on a farm in very rural Missouri, I know MEAT AND POTATOS!!!!!!!! So my diet is all screwed up and I have no idea what to do, and I feel that the doctor has done little to help!!! I will somehow survive, maybe but my mental attitude is very low! I really hate this! I don't eat as nothing wants to stay in! Might as well sit on the toilet and eat and save what comes out for the next meal! Because nothing stays!!!!!!!!!!!!!!!!!!!!!!!!!! Very frustrated person!!!