I am a nurse in the US, I feel your frustration with pain meds. Put the call light on early, that way they are aware. It’s probably the midnight shift, so short of staff, less nurses and support staff. What a good sister you are. I am sure the nurses appreciate all you are doing. Hospice will be better for pain management. Hospice is amazing. I am so sorry you are dealing with all of this 🙏❤️✝️
Will they do a fentanyl patch? The patch will help with long term pain and the 2 hour meds could be breakthrough relief . Even if the lower the 2 hour dose. Your sister should not be in any pain at this time of her life, even if she does not want IV medications. There is always a plan. God bless you all !
It's none of those things doctors and nurses have become pharmaceutical terrorists and don't provide appropriate pain medications because they over prescribed 10 years ago
I know you aren't looking for praise but my goodness Emma, you've got to be the world's most wonderful sister. The love, care, compassion and devotion you continue to show your precious Sooz is nothing short of incredible. Hospital life is physically HARD and on top of this, you have the emotional and psychological pain you are carrying around, so please take care of yourself. I'm so sorry for all you are going through. You and sweet Sooz are in my thoughts and prayers. Please feel the hugs I'm sending from across the pond.
At this stage, Sooz should consider hospice. Better pain management, quieter and you can stay with her 24/7/ She is not going to get the pain management requred in a hospital. You deserve every single bit of praise that comes your way, Emma. Your love and dedication, and your ability to stay calm and give updates even though your heart is breaking is absolutely amazing. Give Sooz my love and tell her I am thinking about her.
Emma, I have been in your shoes. This is difficult. You must take good care of you too. As a retired nurse it’s sad to see how the hospital care has changed. Hospice is a completely different environment. My mom just passed away and the care she received was incredible. Keeping you in my thoughts and prayers. One minute, one step at a time. Soon is so lucky to have you.
Emma, I know how heartbreaking your reality is these days. Thank you for always sharing the good and bad and still maintaining Suzi's dignity. You will never know how many people you have helped by showing these sometimes difficult videos. My thoughts are always with you. Please take care of yourself as you take care of your sister.❤
Hello Emma, I lost my own identical twin sister in 2018 to a rare form of cancer in a similar location. We were in our early 40s.You and Sooz interacting remind me so much of myself and my twin. The twin bond is so very special. Thinking of you. Hold her very tight.x
It is tough. So, so tough for Sooz but almost equally for you Emma. I can't tell you how much better it will be in hospice care. There is such tremendous pressure on staff in hospitals now and they have so many different tasks to complete, where in hospice care the staff will be dedicated to making Sooz as comfortable as she can be for her last little while here. But meantime she is so lucky to have you as her personal nurse. It's also really so common for people to die alone. Death and dying is usually a messy painful business and not a bit as the movies would have us believe. It may be a mistake on her part not to accept a syringe driver, and whilst of course it's Sooz's choice, maybe at least giving it a try might work out better for her, as meds are the one thing a helper can't hurry along when staff are stretched. And having pain under control is so essential. My own niece has just died of what I'd describe as neglect in hospital recently and I'm not blaming staff, but the politicians who have allowed this disgraceful state of affairs to arise. Make sure you do look after your own basic care Emma. You are the person closest to Sooz and as such, of course she's looking to depend on you. The best way of making it through is to be sure you sleep and eat, whenever you can. Thinking of you all.
What a lovely informative message. I don't know a lot abouts this but I think hospice care is the way to go for all those concerned. I don't think Sooz won't die alone, I can't see Emma having that. Xxxxx
I think that a psychiatrist n driver frightened my husband because he thought they put something in it that would make him lose consciousness . Sooz is obviously able to speak and make her own decisions and Emma won’t take any chances with her beloved sisters care. It’s not for anyone to make these comments about what is right and wrong, it’s harsh to be honest to a woman that is losing her twin x Heartbreaking x
The hospice will be so much better. They have more time to care for the patients in my recent experience. I have nothing but praise for Holme Towers in Cardiff. All the staff are caring,beautiful people who supported us too, through a very difficult time. Sending you the biggest hug Emma xxx
I feel every ounce of your pain. I too was part of my sisters care as she was preparing to leave this world and into her eternal home. There are just no words to explain how heartbreaking this time was for my family and I. My sister was only 53 years old when she left us. We miss her every single moment of every single day. God bless you and your family.
I have been watching a UA-cam channel called Hospice Nurse Julie, it is very helpful in letting people know what to expect, she explains everything very well. I can’t explain how very sorry I am for you and Suzie, I will keep praying for all of you. Love you always. ❤
I shared care for my mother with my 2 sisters. It was still difficult, but being able to spend a day at home & sleep in my own bed was a life-saver! Please make some time for yourself. I know that you want to be with her all the time, but your physical and mental health will suffer, and that is no good for anyone. If it helps to know that others have been through similar situations, I can say that most of your experiences ring true to me. I especially hated moving Mom around to clean her, as there was really no way to do so without causing her pain. On a positive note, even years later I look back on most of that time and actually feel a sense of happiness for the privilege of being there to offer her care and comfort. Hospice is definitely a huge help!
Keeping you all in my prayers. Went through this with my Dad. Instead of 2 years, he went in 3 months. The time in the hospital was awful for him. Watching it, you feel helpless. The nurses are angels. Usually short staffed. So glad you can stay with her so you’re there when she wakes up. Hugs to all of you. Thanks for the updates.
Emma I'm so sorry, Sooz my prayers are with you!! Times like this is very hard!! I'm praying for Sooz journey to be a peaceful and as pain free as possible! ❤❤ Thank you Emma for keeping us updated!!
If everyone had a sister like you and sooz,' em, the world would be a better place. Lots of love, hugs, and prayers em.❤❤❤❤❤❤❤ please look after yourself too em. I've been where you are with my late husband and burned out. Lots of big hugs for both you and sooz.
Bless you dear Emma. Thanks for your bravery - you are now eyes and ears caring for Sooz in hospital and that will be a great comfort and reassurance to her as it has always been. Just to hear your voice and feel your hand will remind her she is never alone. You will never be alone, we are holding you and Ash and Jason, Terry, your Mum - all of you - we have you wrapped in our arms poppet. Please drink and nibble when you can and take some breaths outside as much as possible. Love Jackie xx
I am praying that you can find an option that will bring Sooz round the clock pain relief, that broke my heart for her. She is going through enough, pain should not be an option. I love you so much Em and of course Sooz...I know how hard this is right now, make sure to rest when you can. Thank you for the update, hearing Sooz's voice was wonderful, I just wish it was under better circumstances. Praying for all of you.
My husband is terminally ill...he went into the hospital on Dec 25 - Jan 8,2024... and he went into a relapse, and on Jan 11,2024.....hes not dying right now but hes really sick covid19, double pneumonia... chf , copd, AAA.. LUNG, kidney and liver failure...emergency hypertension .... the list goes on and on and on.....he has always promised me that he would tell me when he was ready...and i really believe he would.... hes been my best friend partner for over 25 years... I could use as many prayers as possible and ill pray for all of you May god bless you and protect your sister shes very vulnerable...God will make sire she has a beautiful afterlife....i know i know its hard to think about...but just think of the day we all get to be with our Lord singing his praises..we will be home for eternity no more illness...no more fear...pain...or even discomfort...God will be with us all good luck my friend
No words to make anything better, just hang on in there Emma. You can only do so much, and once Sooz is back under hospice care it will make things so much easier, and Sooz's pain will be controlled xxx
Emma, I hope I’m not speaking out of turn. When my MIL was end of life, I watched some UA-cam videos by Hospice Nurse Julie, her videos really helped to make Margaret’s transition from life much less scary and helped to prepare me for what was to come. Please let me know if there’s anything I can do to help you and your family. Big love to you all and I sincerely hope Sooz is more comfortable and gets her pain relief sorted out. You are all in my prayers daily xx
Hospice Nurse Julie's videos are so well done and so helpful. She also is such a lovely person and answers any questions. Although it's scary and such a horrible thought about losing a loved one, if there is time to prepare oneself about what you can expect, it will be a help when the time comes. I have also watched loved ones passing, the first time was when my mother in law passed. I had no idea and it was scary not knowing what is normal. It's such a sad subject to talk about. So sorry to read of your loss 😢 Love to you ❤
I agree, her videos really did help me understand what was going on and provided reassurance that Margaret wasn’t suffering and everything that was happening was normal.
A little more help for you, Emma, just to keep you going. You are an absolutely amazing sister and daughter. Thank you so much for having the strength to provide us all with updates on Sooz, when you're going through the depths of Hell yourself, whilst having to stay strong for Sooz, and having to sort your own life out around all the chaos. You are amazing, Emma. I'm sending tons more love in a big quilt, from Sheffield to you and Sooz. Harriet Lundt. 💛🧡💛🧡
Unfortunately the only thing that can be done for your sister is to keep her pain free. I am sure she is comforted knowing you are there. Remember though you can’t do it all. Hospice is hard to accept but it is sometimes necessary. Sending hugs from New York ❤️🙏❤️
So so sorry, awful to see you so distressed, horrible situation. Glad that Sooz is a bit better, sending lots of love to you both. Always in my thoughts.❤❤
I am once again struck by your immense strength. You are a stellar human being. Huge hugs to you and yours. God holds you in the palm of His hand. Always
Dearest Emma, thank you for taking the time to update your community on how Sooz is. I really hope you and Soozy feel that blanket of gentle hugs ❤❤ Much love to all your family ❤ Emma and Sooz's troops are right behind you both ❤❤
Emma you are a beautiful lady so caring. We are all here for you to get you through this sad time. I do hope you get free parking as it's so dear to park at hospitals. You got to look after yourself too eat drink and try get some sleep. You are a lovely sister to poor sooz. Hope they can get her pain under control. Your UA-cam family are there with you . Big hugs Emma and hug to sooz too. Xx
It’s such a paradox because we want them to live to be here with us but we also want the pain to go away and their suffering to end. Praying for you and your family through these difficult days ahead. May God shower you all with much peace and comfort. 🙏❤️
Aww, Emma, that was a very hard watch. I cried 😢 it brought back memories of my 6 weeks stay in hospital. I could not do anything for myself at that point after my spinal operation. Poor Sooz, she is very lucky to have you by her side. ❤️ Please do not stress over clients and bills. Trust me, everyone is so understanding when it comes to cancer. Clients will totally understand, and Ash has got the children at home to look after to ❤❤ I prey. Sooz gets in the hospice sooner rather than later. She will have a bed there and she can go home at weekends. Sooz would be better keeping her bed in the hospice. Trust me, it's a much nicer and sweet place than the cold under staffed hospital. It was that bad 8 years ago when I was in. You feel the staff dread your buzzer sounded as you are made to feel a burden from tired staff. This should not be the case. Sooz will have 24/7 loving care in the hospice. 45 minutes wait for a lady at the end of life. I know that's upsetting Emma, but this is what Sooz is at. In the hospice, they let her have a bath. Anything she wants, she will ge 5 star treatment, and you will have a bedroom with a shower. Honestly, it's a different world in the hospice. Still very sad. The nurses are there for the family to. Surrounded by love and hugs, the staff will cook for you in the cafe area. I know this because I spent 2 weeks in a hospice with my dad before he passed. I can't emphasise it enough. I understand its Sooz decision, just reasurre her she can go home at weekends and come go back on a Monday. You can leave and go home knowing Sooz is receiving the best care 24/7. Sending lots of love, Emma, and hugs 🫂 to you all xxxx ❤❤❤
Hospice care is fabulous. The nurses are able to concentrate on the care and comfort of the patient and loved ones. They have a different approach and it is so much better for all of you. Pain relief is prompt and they only want the patient and family to be as stress free as possible. Big hugs. I am sure you are such a comfort for Sooz.
Ask the security team about car parking for exceptional circumstances. They are usually good and can give you better rates etc when you are with very, very poorly family. Cx
Emma, thank you so much for giving us this post. It was music to my ears to hear Sooz's voice. You are an angel to stay there with her so she receives the care she needs. We love you so very much. Please take care of yourself. I know from personal experience that being the caregiver can take a lot out of you both mentally and physically. Sending much love and prayer.
i hope they get hospice sorted for her as quick as possible so they can help her manage the pain better, my heart is heavy for all of you, sending much love ❤
Hi Emma, I applaud your bravery, care and support you showed your sister all while suffering your own ill health bless you. Sooze was so lucky to have you during her last moments on this earth. My heart goes out to you, and all of you who are going through similar circumstances.
Hi Emma and Sooz, I pray that the hospice referral comes asap for beautiful Sooz, my husband had a few weeks at the end of life, and it was the best thing that could have happened the relief for me was beyond belief. They had such love and compassion that the poor staff is hospitals have not got the time to give the care needed and I know that is through no fault of the wonderful NHS staff x I was with my husband all the time but when I did have to go home I knew he was in the best ever care, You and Sooz will get a sense of peace when she gets her place within end of life care. I’m praying for you all for some peace for you all and a hospice room for Sooz xxx To be honest my biggest fear is to pass away in a normal hospital after seeing a hospice x
There is no pain in the as painful as watching a loved one suffer so much...knowing all you can do is love them and pray..my heart is with you along with my prayers❤
I am so sorry this is happening. This would be absolutely terrifying and overwhelming for you. I am praying for your family and most definitely for Sooz. We are here with you and for you, every step of the way. I wish I could do more for you. You're an absolute angel Emma, your efforts have been truly amazing. Sooz is so lucky to have a sister like you. Sending love, comfort and support to you and your family. Hope Sooz is comfortable, I hope her pain eases. Thank you for the update. 💞💞💞
We will never let you go through this alone. We are all with you and Sooz in spirit and are wrapping our arms around you. You are a wonderful advocate for Sooz but please take a little time to look after yourself. Sending you all much love. 💕💕
Emma. I’m sorry. Hear of this news. I’m dealing with my sister who has cancer two. Second sibling. Sending hugs and prayers for Sooz, your mum and you.
It’s very tough to see your twin sis in that position. I’m so sorry Emma. I hope they can get Sooz s pain in controlled. All my prayers to all of you 🙏🏼🙏🏼🙏🏼 love and hugs 💝🤗🤗🤗
Emma it feels different this time when you are driving there as hope for a cure is not there beside you. You are afraid. Thank Ash for supporting you. Thank yourself for supporting your sister. This is the your most vulnerable time. And your video reveals how compassionate you are. Xo
My girl was much better in the hospice she had all the care she needed,I know it’s hard but I hated the hospitals and was relieved to visit her in hospice although it’s very hard ,you must look after yourself for both you and sooz ,my prayers and thoughts are with you every day take care xx
I know exactly what you've going through. My younger sister had stage 4 bowel cancer. She was diagnosed in October 2022.and she didn't last a year she died on October 23rd.2023.We as a family looked after her at home for 7 weeks until the end.Its truly a heartbreaking situation for anyone to do.Sending love to you all.x❤
I am still here. Thinking about you guys all the time. Being in hospital is hard having to wait for medication etc when at home you can get it straight away. Hopefully the hospice will be better for you both. Lots and lots of love and lots and lots of hugs too❤❤❤❤❤❤❤❤❤❤❤
Sending a massive hug i know how hard it is being an only child losing both my parents to this dreadful disease 5 yrs apart keep your chin up beautiful big hugs and prayers too sooz xxx ❤🙏❤️🙏xxx
Can I just say how amazing you are, I looked after my mum nana and grandad though cancer it's so hard, I send my love to you and sooz your both beautiful sisters xx
One moment at a time my dear. Don't even think 2 minutes ahead just live in the moment with you Sister. And NEVER apologize to us for a thing. Prayers for peace for you both. Much Love xxx
Thanks so much for the update Emma, I appreciate your efforts especially when you look so incredibly tired. Hospital is the best place for her, if she had stayed battling along at home with not only a terminal disease but an infection too the outcome wouldve been extremely bad, The medical staff have done a great job with blood transfusion, antis & stents, she will soon be feeling better than she has in a while. I'm not sure why she is resisting a syringe driver, they are designed to deliver continual around the clock doses of analgesia, she would be much more comfortable with that option. I'm a nurse & there's often delays in getting analgesia due to double checking which means 2 nurses have to be free which is not always the case in a busy hospital. There's also the option of having a PCA which is patient controlled analgesia, she has a little gadget in her hand & presses it & analgesia is delivered with no delay. Sending you, Sooz & all your family love & hugs from Australia. ❤
I understand why she might want to resist the syringe driver, when my sweet mum was dying she lost consciousness as soon as they attached it, before that she had been able to talk to us and listen to us. We were not told that this could happen. She looked very peaceful but it was so upsetting that she had been talking to us and smiling minutes before. She was unconscious, but looked very peaceful for her final days which gives me some comfort. It’s so so hard, my heart goes out to Sooz and Emma 💔
Emma, the only comfort I can offer is to say I'll still be here, and will still comment, and let you know I feel for you from the bottom of my heart. You're all in my thoughts and prayers. I'm so glad Sooz has you there with her, but please take care of you too, you can't care for others if you end up sick yourself. Hospice care is a totally different environment, I hope that comes through as soon as possible. We are here for you 💔💕✨
You’re all going through such a hard time. Please keep your own strength up Emma. You’re Sooz’s guardian angel. My heart is with both of you. Praying that you keep strong for Sooz. I want to wrap my arms around you when you cry sweet lady. Take deep breaths and calm yourself as best you can. Hugs❤🙏💕💐
There are no words😢except I'm so so sorry, my ❤goes out to you, Sooz, Ash,Jason & your parents. You are so brave for Sooz, you should be proud of yourself. You are doing an amazing job just being there! Sending 🫂🩷🙏🇦🇨💜🦋
You are in my prayers tonight, I just lost my mum on 16th December so now arranging and have to attend her funeral Jan 24th. I didn’t get to say goodbye to her as it was sudden too. I can only offer you words of comfort. It’s been a bit easier for me finding channel on UA-cam to keep my mind busy this last two weeks. I didn’t celebrate Xmas. I’m estranged from family so it’s been tough having to speak to some of them. My sister especially. I would say make as many memories as u can with your sister over the next few weeks as even sad ones will be remembered. Sending love your way. I feel broken today. It’s so hard to watch a loved one suffer and you feel so helpless. Sending some prayers for comfort for u all during this time. Your sisters message is being heard as I found you today and I am glad to have met you. ❤
How is Jason holding up , it must be a nightmare for him if he has to work. Once soon gets to the hospice hopefully you’ll be able to get some time off knowing that she will be attended to. Give Sooz all my love and tell her the fairies from my house will visit when she needs them xxxxxx
Emma I wished you and Sooz didn't haft to go through this! I'm so sorry! Please know we're praying for both of you, and if you need anything, please tell us, let us be here for you !💜💜💜
Hi Emma ❤ How incredibly painful and sad to see the realities of hospital stays. It's heartbreaking when you have no one there to advocate for you. I am so glad that Sooz has you right by her side, you are an angel ❤ You are always right there by her side, giving her exactly what she needs. I hope Sooz can get into hospice shortly, that setting will be much calmer I imagine ❤ Anything at all that you need we are here, I wish I could lessen the pain for you all 😔 Try to remember to eat a little & have something to drink, keep your energy levels up as much as you can. You are most welcome re pillow, it must have been so exhausting sitting in that chair, so I am really pleased they got you a bed sorted lovely. Have you got your eye drops sorted? Prayers and love 🙏 🫂 I am right here, as we all are xxxx
Hospice is a great choice. Many people wait until it is too late to go on hospice. Hospice is fantastic and they will manage her pain and care so you can just be her sister. ❤
@@mEE1434eva really?! That’s ridiculous. How would anyone know how long you have?! And what about comfort! Where is this? I haven’t heard of anything like that here in Australia! I have cancer so that scares me.
Well I only found that out after the death. But my jaw dropped. Idk what would have happened?! Or what it may be based on but just happy we didn't get to that point! Now I know. Prayers for you!
@@mEE1434eva it still could happen to you or another family member. Sorry for your loss. Hope things change where you live before anyone else goes through that! Thank you! ❤️
What a cruel, cruel world. Why oh why would something like this happen to beautiful people like Emma, Sooz and all their family ? Absolutely heartbreaking 💔 😢. My ❤️ goes out to you all, it really does my lovelies. Sending 💕 and 🫂 Bless you xx
Don’t hesitate to be a nuisance I’m a nurse sometimes we genuinely get busy and things slip your mind but general tardiness and laziness and gossiping at the desk isn’t acceptable hopefully you will get to hospice pain relief quickly
My heart goes out for you, Sooz and your family. I know your heart is breaking, but you are taken such good care of Sooz. We did that with our mom. It's so hard. Sending love and prayers. ❤️😥
Hospice care will be FAR better and ease your mind a lot....they are much more able to give one on one care & of course keep pain medication coming as & when needed. Hospice is also much less hectic & noisy Emma....a better environment for you all. Sending you love & hugs, your doing a truly amazing job...stay safe & well...much love from Scotland xx
I’m so very sorry. I’m a nurse in the US. I left hospital after 18 years. Admins piled too many patients on us and we can’t give people the care and attention they need. It’s heartbreaking.
Unfortunately there will likely be many more scares and sleepless nights along Soozs journey. This stage is usually filled with ebbs and flows. Thankfully Hospice is generally a God send! They control pain bring comfort and don't force anything on anyone, not Sooz you or any of the family. They offer support for her and the family. I don't think you will regret choosing Hospice. It will take a huge burden off you and just allow you to focus on love and making memories! Please try to remember to sleep to eat healthy and get outside even if it's only 15 mins just to breath! Sooz would tell you the very same thing and you know it ❤❤❤ As always there's somone in NJ thinking of you and sending you all love ❤️
Emma you have a God given gift to be able to care for Sooz as you do. I believe once Sooz gets settled into hospice she will be so much more comfortable and more one on one care. Comfort is the subject for the day from now on. I know you will be by her side. Please take care of yourself love. You are such an angel of mercy for Sooz. Much love and prayers! Ash is a real prince. You would do it for him in a second and he knows that. Such love. What a blessing in the middle of this storm. Don’t tell God about your storm, tell the storm about your God! ❤️❤️❤️🙏🙏
Oh dear Emma I so sorry for Sooz. Bless her. You are one amazing sister. I bet she's so proud of you. Your doing all you can for her. It's heartbreaking.😢 Im Sending prayers love and hugs. Bless you both and all your family. Cheryl ❤️ ❤️ ❤️ ❤️
We are all here for you, Emma😊 you are just amazing with Sooz. You are such a beautiful person inside and out🥰 all this is just so so unfair😢 love you and Sooz lots❤❤ and sending lots of love to all your family and friends❤🥰🫂🫶xxxx
Years ago no one suffered in pain . It’s a shame that sick people have to suffer because of those who abused it. The government needs to stop this absurdity and give people their pain medicine. 😢
I’m so sorry you are all going though this, the memories of my dad, my brother and my mum going through cancer and hospital are still fresh in my memory, as are the financial worries, petrol, hospital parking etc, stay strong, but look after yourself too, that is really important because when you are running on adrenaline you don’t really realise how exhausted and run down you are getting. You are a wonderful sister, please take care of you too.
I’m so sorry all medical staff don’t rush to help whereas others really care and understand what a difference a prompt and lovely nurse, doctor, staff member can make in someone’s pain and for a loved one.❤❤❤🙏🏼🙏🏼🙏🏼🙏🏼
They need to port in so she can get continuous pain relief and then they can top up with extra pain meds as needed. I lost my best friend to cancer and I was able to stay with her most nights. And you need to advocate for your sister I remember I told one nurse she needed more pain meds and she said she would need to get the dr up so after 1/2 hr I went back out and asked where the dr was she said oh he will be in later is he said it’s not an emergency I told her it was and she needed to get him here now so she did and he gave the pain meds thankfully she was moved to hospice a day later and those nurses were fantastic if I said she needed anything they would get it straight away. I’m so sorry your having to go through this
Keep yourself hydrated and try to eat something, even if it’s not the best for you. You HAVE to keep yourself well. I was lucky to have my dad to tag team when my mother was on hospice so we could get naps in , eat, give meds, clean her up, empty her catheter…..Hospice will be more attentive to her needs and you can feel more in control of yourself and Sooz. I know it was an emergency that put her in the hospital, and she may have more of those. God, I pray so hard for the both of you. I love you so much! 🙏🏻💞🕊🕯🫂
Awww Emma sweetheart your truely the most devoted sister ❤ we are all here holding your hands and sweeping sooz up with all our loving arms ❤ We feel you Emma ❤ i nursed my Dad from January 2020 till he past in August of 2020 ❤ its a hard journey and takes alot out of you ❤ your an absolute diamond sweetheart 💖 thank you for sharing your your beautiful twin Sooz with us we all love you both so very much 💜💖 sending so much love strength and prayers darlin we are all here holding your your hands tight ❤ we love you so much from your Aussie family ❤ across the pond as we all feel like family ❤ many many hugs to you Emma Sooz and family ❤💖🌻🌻🌻🐨🦘💜💖😘
I am so sorry that both you and Sooz are going through this,and now with the latest update, I'm lifting prayers for strength,peace and healing for you both, sending love and hugs xx
I am so sorry! My 32 year old sister is battling ovarian cancer for the 2nd time and it’s taking her life now and as a sister it’s hard to stand by and watch it’s so hard. You feel so helpless and you really touched my soul I pray for peacefulness and no suffering
Emma im so sorry love and prayers for you Ash Jason mum Sooz never got the right care she deserved you are such a comfort to Sooz being there beside her you are one special sister big hug ❤❤❤xxx
Thinking of you every minute and praying for pain relief for Sooz and sleep and strength for you. So sweet of Terry to be there when she went in. It's hard for men to deal with-illness. I speak from my own experience with my brothers. Hope you both can feel how loved you are to us all. Emma, you continue to amaze us with your composure and strength that you don't think you have. Your help with Sooz, while protecting her privacy is so compassionate and loving. Sending endless love, hugs and prayers over the ocean to you. So wishing I could be there to give you a giant hug. Thank you for sharing with us. Love you always. ❤🐾🐾🐇🐇 🕊
Ah Emma my heart goes out to you both I lost my husband to cancer I feel your pain, just rest when Sooz is sleeping and I hope you both get the care of the hospice very soon. ❤
Yes I've followed a few terminal patients & they praise Hospice care so much. They're all about the comfort & pain relief of the patient. Many times they are the true Angel's of Mercy.
The reality of our NHS , the nurses are wonderful but SO overworked , it breaks my heart . I just don’t know what to say anymore Emma , so I’ll just say another bloody useless I’m sorry , so so sorry . My heart breaks for both of you , bless you , my love always 🫂🫶🏻🫶🏻💐
I’m sick for what you girls are going through. I miss my dear twin so much and I know what you are facing. This is beyond horrible. Hang on second to second. You are on my mind all the time.
Bless your heart, I’m sending my love, hugs and prayers to you, what an amazing sister you are, I pray you feel the love of God and his warm arms of comfort wrapped around you both, love from Indiana across the pond♥️🙏🏼♥️🥰♥️❣️❣️
My heart breaks for you both😢 It is a difficult journey by far.. Rest assure Em That Hospice Is the best place for Sooz,She will get around the clock care. We are all by your side ❤Thank you for coming on and sharing Sooz Updates
I am a nurse in the US, I feel your frustration with pain meds. Put the call light on early, that way they are aware. It’s probably the midnight shift, so short of staff, less nurses and support staff. What a good sister you are. I am sure the nurses appreciate all you are doing. Hospice will be better for pain management. Hospice is amazing. I am so sorry you are dealing with all of this 🙏❤️✝️
Will they do a fentanyl patch? The patch will help with long term pain and the 2 hour meds could be breakthrough relief . Even if the lower the 2 hour dose. Your sister should not be in any pain at this time of her life, even if she does not want IV medications. There is always a plan. God bless you all !
It's none of those things doctors and nurses have become pharmaceutical terrorists and don't provide appropriate pain medications because they over prescribed 10 years ago
+1 better in hospice!
Hospice is such a help, and they are there to talk to, too. It's a big burden you're carrying ❤
I know you aren't looking for praise but my goodness Emma, you've got to be the world's most wonderful sister. The love, care, compassion and devotion you continue to show your precious Sooz is nothing short of incredible. Hospital life is physically HARD and on top of this, you have the emotional and psychological pain you are carrying around, so please take care of yourself. I'm so sorry for all you are going through. You and sweet Sooz are in my thoughts and prayers. Please feel the hugs I'm sending from across the pond.
At this stage, Sooz should consider hospice. Better pain management, quieter and you can stay with her 24/7/ She is not going to get the pain management requred in a hospital. You deserve every single bit of praise that comes your way, Emma. Your love and dedication, and your ability to stay calm and give updates even though your heart is breaking is absolutely amazing. Give Sooz my love and tell her I am thinking about her.
They are waiting for hospice. She said so at the start x
Emma, I have been in your shoes. This is difficult. You must take good care of you too. As a retired nurse it’s sad to see how the hospital care has changed. Hospice is a completely different environment. My mom just passed away and the care she received was incredible. Keeping you in my thoughts and prayers. One minute, one step at a time. Soon is so lucky to have you.
Emma, I know how heartbreaking your reality is these days. Thank you for always sharing the good and bad and still maintaining Suzi's dignity. You will never know how many people you have helped by showing these sometimes difficult videos. My thoughts are always with you. Please take care of yourself as you take care of your sister.❤
Hello Emma, I lost my own identical twin sister in 2018 to a rare form of cancer in a similar location. We were in our early 40s.You and Sooz interacting remind me so much of myself and my twin. The twin bond is so very special. Thinking of you. Hold her very tight.x
Oh Karen 💔🥺 I'm so sorry x
Have you had any help afterwards? I've heard of twinless twin syndrome and help groups xxx
I'm only 17 and have an identical twin, I could never imagine being separated from my other half, I'm so sorry that happened to you and your family 💔
It is tough. So, so tough for Sooz but almost equally for you Emma. I can't tell you how much better it will be in hospice care. There is such tremendous pressure on staff in hospitals now and they have so many different tasks to complete, where in hospice care the staff will be dedicated to making Sooz as comfortable as she can be for her last little while here. But meantime she is so lucky to have you as her personal nurse. It's also really so common for people to die alone. Death and dying is usually a messy painful business and not a bit as the movies would have us believe. It may be a mistake on her part not to accept a syringe driver, and whilst of course it's Sooz's choice, maybe at least giving it a try might work out better for her, as meds are the one thing a helper can't hurry along when staff are stretched. And having pain under control is so essential. My own niece has just died of what I'd describe as neglect in hospital recently and I'm not blaming staff, but the politicians who have allowed this disgraceful state of affairs to arise. Make sure you do look after your own basic care Emma. You are the person closest to Sooz and as such, of course she's looking to depend on you. The best way of making it through is to be sure you sleep and eat, whenever you can. Thinking of you all.
Well said❤
You’ve said everything that I can’t even put into words, thank you. ❤
Emma and Sooz I feel your pain, hugs to you both and family and friends, love and prayers ❤❤❤❤❤
What a lovely informative message. I don't know a lot abouts this but I think hospice care is the way to go for all those concerned. I don't think Sooz won't die alone, I can't see Emma having that. Xxxxx
I think that a psychiatrist n driver frightened my husband because he thought they put something in it that would make him lose consciousness . Sooz is obviously able to speak and make her own decisions and Emma won’t take any chances with her beloved sisters care.
It’s not for anyone to make these comments about what is right and wrong, it’s harsh to be honest to a woman that is losing her twin x
Heartbreaking x
The hospice will be so much better. They have more time to care for the patients in my recent experience. I have nothing but praise for Holme Towers in Cardiff. All the staff are caring,beautiful people who supported us too, through a very difficult time. Sending you the biggest hug Emma xxx
I feel every ounce of your pain. I too was part of my sisters care as she was preparing to leave this world and into her eternal home. There are just no words to explain how heartbreaking this time was for my family and I. My sister was only 53 years old when she left us. We miss her every single moment of every single day. God bless you and your family.
I have been watching a UA-cam channel called Hospice Nurse Julie, it is very helpful in letting people know what to expect, she explains everything very well. I can’t explain how very sorry I am for you and Suzie, I will keep praying for all of you. Love you always. ❤
Nurse Julie is an amazing lady
She is so amazing, helping others understand what happens.
I shared care for my mother with my 2 sisters. It was still difficult, but being able to spend a day at home & sleep in my own bed was a life-saver! Please make some time for yourself. I know that you want to be with her all the time, but your physical and mental health will suffer, and that is no good for anyone. If it helps to know that others have been through similar situations, I can say that most of your experiences ring true to me. I especially hated moving Mom around to clean her, as there was really no way to do so without causing her pain. On a positive note, even years later I look back on most of that time and actually feel a sense of happiness for the privilege of being there to offer her care and comfort. Hospice is definitely a huge help!
Keeping you all in my prayers. Went through this with my Dad. Instead of 2 years, he went in 3 months. The time in the hospital was awful for him. Watching it, you feel helpless. The nurses are angels. Usually short staffed. So glad you can stay with her so you’re there when she wakes up. Hugs to all of you. Thanks for the updates.
😞💔🫂
It’s so sorry to hear this news Your love for your sister is truly unconditional!! Take care of yourself also!!
Ah bless you Emma , your doing a fantastic job looking after Sooz, we are all here for you, sending you both hugs and love, xxx
Amen!!!
Emma I'm so sorry, Sooz my prayers are with you!! Times like this is very hard!! I'm praying for Sooz journey to be a peaceful and as pain free as possible! ❤❤ Thank you Emma for keeping us updated!!
If everyone had a sister like you and sooz,' em, the world would be a better place. Lots of love, hugs, and prayers em.❤❤❤❤❤❤❤ please look after yourself too em. I've been where you are with my late husband and burned out. Lots of big hugs for both you and sooz.
Bless you dear Emma. Thanks for your bravery - you are now eyes and ears caring for Sooz in hospital and that will be a great comfort and reassurance to her as it has always been. Just to hear your voice and feel your hand will remind her she is never alone. You will never be alone, we are holding you and Ash and Jason, Terry, your Mum - all of you - we have you wrapped in our arms poppet. Please drink and nibble when you can and take some breaths outside as much as possible. Love Jackie xx
I am praying that you can find an option that will bring Sooz round the clock pain relief, that broke my heart for her. She is going through enough, pain should not be an option. I love you so much Em and of course Sooz...I know how hard this is right now, make sure to rest when you can. Thank you for the update, hearing Sooz's voice was wonderful, I just wish it was under better circumstances. Praying for all of you.
My husband is terminally ill...he went into the hospital on Dec 25 - Jan 8,2024... and he went into a relapse, and on Jan 11,2024.....hes not dying right now but hes really sick covid19, double pneumonia... chf , copd, AAA.. LUNG, kidney and liver failure...emergency hypertension .... the list goes on and on and on.....he has always promised me that he would tell me when he was ready...and i really believe he would.... hes been my best friend partner for over 25 years...
I could use as many prayers as possible and ill pray for all of you
May god bless you and protect your sister shes very vulnerable...God will make sire she has a beautiful afterlife....i know i know its hard to think about...but just think of the day we all get to be with our Lord singing his praises..we will be home for eternity no more illness...no more fear...pain...or even discomfort...God will be with us all good luck my friend
I'm holding your hand sweetheart xxxxx
No words to make anything better, just hang on in there Emma. You can only do so much, and once Sooz is back under hospice care it will make things so much easier, and Sooz's pain will be controlled xxx
Emma you are such a beautiful soul , so sorry about soozi, feel hopeless when watching , wish there was more I could do 😢 all my love to you both x❤
Emma, I hope I’m not speaking out of turn. When my MIL was end of life, I watched some UA-cam videos by Hospice Nurse Julie, her videos really helped to make Margaret’s transition from life much less scary and helped to prepare me for what was to come. Please let me know if there’s anything I can do to help you and your family. Big love to you all and I sincerely hope Sooz is more comfortable and gets her pain relief sorted out. You are all in my prayers daily xx
Hospice Nurse Julie's videos are so well done and so helpful. She also is such a lovely person and answers any questions. Although it's scary and such a horrible thought about losing a loved one, if there is time to prepare oneself about what you can expect, it will be a help when the time comes. I have also watched loved ones passing, the first time was when my mother in law passed. I had no idea and it was scary not knowing what is normal. It's such a sad subject to talk about. So sorry to read of your loss 😢 Love to you ❤
@@charlotterockel-kennedy8913 I agree - her videos are so informative and helpful, and make everything much less scary xx
I agree, her videos really did help me understand what was going on and provided reassurance that Margaret wasn’t suffering and everything that was happening was normal.
Yes her videos helped me immensely. She is a very kind and compassionate nurse.
Julie is wonderful.
A little more help for you, Emma, just to keep you going.
You are an absolutely amazing sister and daughter.
Thank you so much for having the strength to provide us all with updates on Sooz, when you're going through the depths of Hell yourself, whilst having to stay strong for Sooz, and having to sort your own life out around all the chaos.
You are amazing, Emma.
I'm sending tons more love in a big quilt, from Sheffield to you and Sooz.
Harriet Lundt. 💛🧡💛🧡
Thank you so much Harriet x 💖 it's 5.40am and we've been up and down all night, but we'll be off to the hospice today 💜💜💜
Unfortunately the only thing that can be done for your sister is to keep her pain free. I am sure she is comforted knowing you are there. Remember though you can’t do it all. Hospice is hard to accept but it is sometimes necessary. Sending hugs from New York ❤️🙏❤️
So so sorry, awful to see you so distressed, horrible situation. Glad that Sooz is a bit better, sending lots of love to you both. Always in my thoughts.❤❤
I am once again struck by your immense strength. You are a stellar human being. Huge hugs to you and yours. God holds you in the palm of His hand. Always
Dearest Emma, thank you for taking the time to update your community on how Sooz is.
I really hope you and Soozy feel that blanket of gentle hugs ❤❤
Much love to all your family ❤
Emma and Sooz's troops are right behind you both ❤❤
Sending so much love. I hope this helps.
How lovely of you ❤xxx
Thank you so much sweetheart 💗 xxx
You are beautiful ❤
Do you need to pay for care nowadays in the UK???
My late husband chose hospice at home, until 3 days before he passed he went in to our local hospice. Life is so cruel. Sending you my love ❤
You're an amazing sister, I'm so sorry that both of you have to go through this. Cancer sucks. 😩
Emma you are a beautiful lady so caring. We are all here for you to get you through this sad time. I do hope you get free parking as it's so dear to park at hospitals. You got to look after yourself too eat drink and try get some sleep. You are a lovely sister to poor sooz. Hope they can get her pain under control. Your UA-cam family are there with you . Big hugs Emma and hug to sooz too. Xx
It’s such a paradox because we want them to live to be here with us but we also want the pain to go away and their suffering to end. Praying for you and your family through these difficult days ahead. May God shower you all with much peace and comfort. 🙏❤️
Aww, Emma, that was a very hard watch. I cried 😢 it brought back memories of my 6 weeks stay in hospital. I could not do anything for myself at that point after my spinal operation. Poor Sooz, she is very lucky to have you by her side. ❤️ Please do not stress over clients and bills. Trust me, everyone is so understanding when it comes to cancer. Clients will totally understand, and Ash has got the children at home to look after to ❤❤
I prey. Sooz gets in the hospice sooner rather than later. She will have a bed there and she can go home at weekends. Sooz would be better keeping her bed in the hospice. Trust me, it's a much nicer and sweet place than the cold under staffed hospital.
It was that bad 8 years ago when I was in. You feel the staff dread your buzzer sounded as you are made to feel a burden from tired staff. This should not be the case.
Sooz will have 24/7 loving care in the hospice.
45 minutes wait for a lady at the end of life. I know that's upsetting Emma, but this is what Sooz is at. In the hospice, they let her have a bath. Anything she wants, she will ge 5 star treatment, and you will have a bedroom with a shower. Honestly, it's a different world in the hospice. Still very sad. The nurses are there for the family to. Surrounded by love and hugs, the staff will cook for you in the cafe area. I know this because I spent 2 weeks in a hospice with my dad before he passed. I can't emphasise it enough. I understand its Sooz decision, just reasurre her she can go home at weekends and come go back on a Monday. You can leave and go home knowing Sooz is receiving the best care 24/7.
Sending lots of love, Emma, and hugs 🫂 to you all xxxx
❤❤❤
It's the beat thing right now x looking at tomorrow morning 🙏💖💖💖💖💖💖💖💖
Hospice care is fabulous. The nurses are able to concentrate on the care and comfort of the patient and loved ones. They have a different approach and it is so much better for all of you. Pain relief is prompt and they only want the patient and family to be as stress free as possible. Big hugs. I am sure you are such a comfort for Sooz.
Ask the security team about car parking for exceptional circumstances. They are usually good and can give you better rates etc when you are with very, very poorly family. Cx
Emma, thank you so much for giving us this post. It was music to my ears to hear Sooz's voice. You are an angel to stay there with her so she receives the care she needs. We love you so very much. Please take care of yourself. I know from personal experience that being the caregiver can take a lot out of you both mentally and physically. Sending much love and prayer.
Bless your tender heart. It's so clear how deep your love is. Sending love from America. ❤
i hope they get hospice sorted for her as quick as possible so they can help her manage the pain better, my heart is heavy for all of you, sending much love ❤
Hi Emma, I applaud your bravery, care and support you showed your sister all while suffering your own ill health bless you. Sooze was so lucky to have you during her last moments on this earth. My heart goes out to you, and all of you who are going through similar circumstances.
Hi Emma and Sooz, I pray that the hospice referral comes asap for beautiful Sooz, my husband had a few weeks at the end of life, and it was the best thing that could have happened the relief for me was beyond belief. They had such love and compassion that the poor staff is hospitals have not got the time to give the care needed and I know that is through no fault of the wonderful NHS staff x
I was with my husband all the time but when I did have to go home I knew he was in the best ever care,
You and Sooz will get a sense of peace when she gets her place within end of life care.
I’m praying for you all for some peace for you all and a hospice room for Sooz xxx
To be honest my biggest fear is to pass away in a normal hospital after seeing a hospice x
Hi darling x tomorrow morning they're moving her 🙏💞💞💞
There is no pain in the as painful as watching a loved one suffer so much...knowing all you can do is love them and pray..my heart is with you along with my prayers❤
I am so sorry this is happening. This would be absolutely terrifying and overwhelming for you. I am praying for your family and most definitely for Sooz. We are here with you and for you, every step of the way. I wish I could do more for you. You're an absolute angel Emma, your efforts have been truly amazing. Sooz is so lucky to have a sister like you. Sending love, comfort and support to you and your family. Hope Sooz is comfortable, I hope her pain eases. Thank you for the update. 💞💞💞
We will never let you go through this alone. We are all with you and Sooz in spirit and are wrapping our arms around you. You are a wonderful advocate for Sooz but please take a little time to look after yourself. Sending you all much love. 💕💕
Prayers, Love, Comfort, and Hugs to You Emma, Sooz, and the Whole Family. We love you all.❤️🤗🌹🙏🙏🙏🙏🙏🙏
Emma. I’m sorry. Hear of this news. I’m dealing with my sister who has cancer two. Second sibling. Sending hugs and prayers for Sooz, your mum and you.
You're all in my prayers 🙏. I'm glad Hospice will be taking over, they will make sure her meds & needs are taken care of ❤️.
Things will be so much better when hospice is involved ..my heart goes out to you both..no more waiting then for Sooz and her guardian angel , you xxx
It’s very tough to see your twin sis in that position. I’m so sorry Emma. I hope they can get Sooz s pain in controlled. All my prayers to all of you 🙏🏼🙏🏼🙏🏼 love and hugs 💝🤗🤗🤗
Emma it feels different this time when you are driving there as hope for a cure is not there beside you. You are afraid. Thank Ash for supporting you. Thank yourself for supporting your sister. This is the your most vulnerable time. And your video reveals how compassionate you are. Xo
My girl was much better in the hospice she had all the care she needed,I know it’s hard but I hated the hospitals and was relieved to visit her in hospice although it’s very hard ,you must look after yourself for both you and sooz ,my prayers and thoughts are with you every day take care xx
I know exactly what you've going through. My younger sister had stage 4 bowel cancer. She was diagnosed in October 2022.and she didn't last a year she died on October 23rd.2023.We as a family looked after her at home for 7 weeks until the end.Its truly a heartbreaking situation for anyone to do.Sending love to you all.x❤
May God bless you
Oh Judith 😔💔🙏💛💛🫂❤️❤️❤️
I am still here. Thinking about you guys all the time. Being in hospital is hard having to wait for medication etc when at home you can get it straight away. Hopefully the hospice will be better for you both. Lots and lots of love and lots and lots of hugs too❤❤❤❤❤❤❤❤❤❤❤
I hope she get to hospice soon. They will be on top of pain and making her comfortable
Sending a massive hug i know how hard it is being an only child losing both my parents to this dreadful disease 5 yrs apart keep your chin up beautiful big hugs and prayers too sooz xxx ❤🙏❤️🙏xxx
Aww thank you for the update. My heart goes out to you. I pray for her comfort these next months.
You are an angel Emma You are staying so strong for Sooz It must be such a comfort for her having you there with her! Xx
Can I just say how amazing you are, I looked after my mum nana and grandad though cancer it's so hard, I send my love to you and sooz your both beautiful sisters xx
One moment at a time my dear. Don't even think 2 minutes ahead just live in the moment with you Sister. And NEVER apologize to us for a thing. Prayers for peace for you both.
Much Love xxx
Such a sad time , I hope Sooz is comfortable , strength to you Emma and ure family , big hug ❤
Thanks so much for the update Emma, I appreciate your efforts especially when you look so incredibly tired. Hospital is the best place for her, if she had stayed battling along at home with not only a terminal disease but an infection too the outcome wouldve been extremely bad, The medical staff have done a great job with blood transfusion, antis & stents, she will soon be feeling better than she has in a while. I'm not sure why she is resisting a syringe driver, they are designed to deliver continual around the clock doses of analgesia, she would be much more comfortable with that option. I'm a nurse & there's often delays in getting analgesia due to double checking which means 2 nurses have to be free which is not always the case in a busy hospital. There's also the option of having a PCA which is patient controlled analgesia, she has a little gadget in her hand & presses it & analgesia is delivered with no delay. Sending you, Sooz & all your family love & hugs from Australia. ❤
I think it's because she knows she will get sleepier and sleepier x
I understand why she might want to resist the syringe driver, when my sweet mum was dying she lost consciousness as soon as they attached it, before that she had been able to talk to us and listen to us. We were not told that this could happen. She looked very peaceful but it was so upsetting that she had been talking to us and smiling minutes before. She was unconscious, but looked very peaceful for her final days which gives me some comfort. It’s so so hard, my heart goes out to Sooz and Emma 💔
Emma, the only comfort I can offer is to say I'll still be here, and will still comment, and let you know I feel for you from the bottom of my heart. You're all in my thoughts and prayers. I'm so glad Sooz has you there with her, but please take care of you too, you can't care for others if you end up sick yourself. Hospice care is a totally different environment, I hope that comes through as soon as possible. We are here for you 💔💕✨
❤️❤️❤️❤️❤️🫂
You’re all going through such a hard time. Please keep your own strength up Emma. You’re Sooz’s guardian angel. My heart is with both of you. Praying that you keep strong for Sooz. I want to wrap my arms around you when you cry sweet lady. Take deep breaths and calm yourself as best you can. Hugs❤🙏💕💐
I feel you xxxx
There are no words😢except I'm so so sorry, my ❤goes out to you, Sooz, Ash,Jason & your parents. You are so brave for Sooz, you should be proud of yourself. You are doing an amazing job just being there! Sending 🫂🩷🙏🇦🇨💜🦋
Love Hugs and Prayers to Sooz xxxx Keep strong Emma With love to you all xxxx🙏❤
You are in my prayers tonight, I just lost my mum on 16th December so now arranging and have to attend her funeral Jan 24th. I didn’t get to say goodbye to her as it was sudden too. I can only offer you words of comfort. It’s been a bit easier for me finding channel on UA-cam to keep my mind busy this last two weeks. I didn’t celebrate Xmas. I’m estranged from family so it’s been tough having to speak to some of them. My sister especially. I would say make as many memories as u can with your sister over the next few weeks as even sad ones will be remembered. Sending love your way. I feel broken today. It’s so hard to watch a loved one suffer and you feel so helpless. Sending some prayers for comfort for u all during this time. Your sisters message is being heard as I found you today and I am glad to have met you. ❤
I'm so sorry sweetheart xxxx
I'm with you x my heart is with yours xxxx
@@TheDogPooPro here if u ever need a chat too. Sending love to you all
How is Jason holding up , it must be a nightmare for him if he has to work. Once soon gets to the hospice hopefully you’ll be able to get some time off knowing that she will be attended to. Give Sooz all my love and tell her the fairies from my house will visit when she needs them xxxxxx
He's not doing great 💔😢
@@TheDogPooPro Poor guy , he must be so broken .
Emma I wished you and Sooz didn't haft to go through this! I'm so sorry! Please know we're praying for both of you, and if you need anything, please tell us, let us be here for you !💜💜💜
Hi Emma ❤ How incredibly painful and sad to see the realities of hospital stays. It's heartbreaking when you have no one there to advocate for you. I am so glad that Sooz has you right by her side, you are an angel ❤ You are always right there by her side, giving her exactly what she needs. I hope Sooz can get into hospice shortly, that setting will be much calmer I imagine ❤ Anything at all that you need we are here, I wish I could lessen the pain for you all 😔 Try to remember to eat a little & have something to drink, keep your energy levels up as much as you can. You are most welcome re pillow, it must have been so exhausting sitting in that chair, so I am really pleased they got you a bed sorted lovely. Have you got your eye drops sorted? Prayers and love 🙏 🫂 I am right here, as we all are xxxx
Yeah found my eye drops in my bag 🙌💞💞
@@TheDogPooPro That's good to hear 😊 🙏 🫂 Glad you've got them xxx
Hospice is a great choice. Many people wait until it is too late to go on hospice. Hospice is fantastic and they will manage her pain and care so you can just be her sister. ❤
Sometimes health insurance only allows you 20 days in hospice!
@@mEE1434eva really?! That’s ridiculous. How would anyone know how long you have?! And what about comfort! Where is this? I haven’t heard of anything like that here in Australia! I have cancer so that scares me.
Well I only found that out after the death. But my jaw dropped. Idk what would have happened?! Or what it may be based on but just happy we didn't get to that point! Now I know. Prayers for you!
@@mEE1434eva it still could happen to you or another family member. Sorry for your loss. Hope things change where you live before anyone else goes through that! Thank you! ❤️
What a cruel, cruel world. Why oh why would something like this happen to beautiful people like Emma, Sooz and all their family ? Absolutely heartbreaking 💔 😢. My ❤️ goes out to you all, it really does my lovelies. Sending 💕 and 🫂 Bless you xx
It’s a world run by Satan 😢
Don’t hesitate to be a nuisance I’m a nurse sometimes we genuinely get busy and things slip your mind but general tardiness and laziness and gossiping at the desk isn’t acceptable hopefully you will get to hospice pain relief quickly
My heart goes out for you, Sooz and your family. I know your heart is breaking, but you are taken such good care of Sooz. We did that with our mom. It's so hard. Sending love and prayers. ❤️😥
Hospice care will be FAR better and ease your mind a lot....they are much more able to give one on one care & of course keep pain medication coming as & when needed. Hospice is also much less hectic & noisy Emma....a better environment for you all. Sending you love & hugs, your doing a truly amazing job...stay safe & well...much love from Scotland xx
I’m so very sorry. I’m a nurse in the US. I left hospital after 18 years. Admins piled too many patients on us and we can’t give people the care and attention they need. It’s heartbreaking.
Unfortunately there will likely be many more scares and sleepless nights along Soozs journey. This stage is usually filled with ebbs and flows. Thankfully Hospice is generally a God send! They control pain bring comfort and don't force anything on anyone, not Sooz you or any of the family. They offer support for her and the family. I don't think you will regret choosing Hospice. It will take a huge burden off you and just allow you to focus on love and making memories! Please try to remember to sleep to eat healthy and get outside even if it's only 15 mins just to breath! Sooz would tell you the very same thing and you know it ❤❤❤ As always there's somone in NJ thinking of you and sending you all love ❤️
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Emma you have a God given gift to be able to care for Sooz as you do. I believe once Sooz gets settled into hospice she will be so much more comfortable and more one on one care. Comfort is the subject for the day from now on. I know you will be by her side. Please take care of yourself love. You are such an angel of mercy for Sooz. Much love and prayers! Ash is a real prince. You would do it for him in a second and he knows that. Such love. What a blessing in the middle of this storm. Don’t tell God about your storm, tell the storm about your God! ❤️❤️❤️🙏🙏
God bless you both. I’m so sorry you and your loved ones are going through this. Sending prayers 🙏🏻
Oh dear Emma I so sorry for Sooz. Bless her. You are one amazing sister. I bet she's so proud of you. Your doing all you can for her. It's heartbreaking.😢 Im Sending prayers love and hugs. Bless you both and all your family. Cheryl ❤️ ❤️ ❤️ ❤️
We are all here for you, Emma😊 you are just amazing with Sooz. You are such a beautiful person inside and out🥰 all this is just so so unfair😢 love you and Sooz lots❤❤ and sending lots of love to all your family and friends❤🥰🫂🫶xxxx
Years ago no one suffered in pain . It’s a shame that sick people have to suffer because of those who abused it. The government needs to stop this absurdity and give people their pain medicine. 😢
I’m so sorry you are all going though this, the memories of my dad, my brother and my mum going through cancer and hospital are still fresh in my memory, as are the financial worries, petrol, hospital parking etc, stay strong, but look after yourself too, that is really important because when you are running on adrenaline you don’t really realise how exhausted and run down you are getting. You are a wonderful sister, please take care of you too.
I'm so sorry you've had to go through all that with your whole family 😫💔🫂💜💜💜💜💜
Sending love xx
I’m so sorry all medical staff don’t rush to help whereas others really care and understand what a difference a prompt and lovely nurse, doctor, staff member can make in someone’s pain and for a loved one.❤❤❤🙏🏼🙏🏼🙏🏼🙏🏼
They need to port in so she can get continuous pain relief and then they can top up with extra pain meds as needed. I lost my best friend to cancer and I was able to stay with her most nights. And you need to advocate for your sister I remember I told one nurse she needed more pain meds and she said she would need to get the dr up so after 1/2 hr I went back out and asked where the dr was she said oh he will be in later is he said it’s not an emergency I told her it was and she needed to get him here now so she did and he gave the pain meds thankfully she was moved to hospice a day later and those nurses were fantastic if I said she needed anything they would get it straight away. I’m so sorry your having to go through this
Keep yourself hydrated and try to eat something, even if it’s not the best for you. You HAVE to keep yourself well. I was lucky to have my dad to tag team when my mother was on hospice so we could get naps in , eat, give meds, clean her up, empty her catheter…..Hospice will be more attentive to her needs and you can feel more in control of yourself and Sooz.
I know it was an emergency that put her in the hospital, and she may have more of those.
God, I pray so hard for the both of you. I love you so much! 🙏🏻💞🕊🕯🫂
Awww Emma sweetheart your truely the most devoted sister ❤ we are all here holding your hands and sweeping sooz up with all our loving arms ❤
We feel you Emma ❤ i nursed my Dad from January 2020 till he past in August of 2020 ❤ its a hard journey and takes alot out of you ❤ your an absolute diamond sweetheart 💖 thank you for sharing your your beautiful twin Sooz with us we all love you both so very much 💜💖 sending so much love strength and prayers darlin we are all here holding your your hands tight ❤ we love you so much from your Aussie family ❤ across the pond as we all feel like family ❤ many many hugs to you Emma Sooz and family ❤💖🌻🌻🌻🐨🦘💜💖😘
I am so sorry that both you and Sooz are going through this,and now with the latest update, I'm lifting prayers for strength,peace and healing for you both, sending love and hugs xx
I am so sorry! My 32 year old sister is battling ovarian cancer for the 2nd time and it’s taking her life now and as a sister it’s hard to stand by and watch it’s so hard. You feel so helpless and you really touched my soul I pray for peacefulness and no suffering
So sorry for you too 😢 😞 your dear sis 💔😥xxxxx
Emma im so sorry love and prayers for you Ash Jason mum Sooz never got the right care she deserved you are such a comfort to Sooz being there beside her you are one special sister big hug ❤❤❤xxx
Emma we just love you and Sooz so much. You are the most kind caring loving beautiful sister. My thoughts and prayers are with you. ❤️❤️❤️❤️❤️❤️
Thinking of you every minute and praying for pain relief for Sooz and sleep and strength for you. So sweet of Terry to be there when she went in. It's hard for men to deal with-illness. I speak from my own experience with my brothers.
Hope you both can feel how loved you are to us all. Emma, you continue to amaze us with your composure and strength that you don't think you have. Your help with Sooz, while protecting her privacy is so compassionate and loving.
Sending endless love, hugs and prayers over the ocean to you. So wishing I could be there to give you a giant hug. Thank you for sharing with us. Love you always. ❤🐾🐾🐇🐇 🕊
Ah Emma my heart goes out to you both I lost my husband to cancer I feel your pain, just rest when Sooz is sleeping and I hope you both get the care of the hospice very soon. ❤
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Omg I’m so sorry!! Please try to take care of yourself as well! You’re in my prayers and Sooz 🩷twin love 💕 God will get you through this 🙏🏽
Yes I've followed a few terminal patients & they praise Hospice care so much. They're all about the comfort & pain relief of the patient. Many times they are the true Angel's of Mercy.
The reality of our NHS , the nurses are wonderful but SO overworked , it breaks my heart . I just don’t know what to say anymore Emma , so I’ll just say another bloody useless I’m sorry , so so sorry . My heart breaks for both of you , bless you , my love always 🫂🫶🏻🫶🏻💐
Bless your beautiful hearts, Emma and beautiful Sooz ❤❤ I'm sending you both enormous cuddles, so much love, strength, peace and comfort always xxxx❤❤
Still praying, thinking of you all! Hope you're looking after yourself too,Emma! Thank God Sooz has you ! Love always ,🙏🙏👩❤️💋👩👩❤️💋👩
I’m sick for what you girls are going through. I miss my dear twin so much and I know what you are facing. This is beyond horrible. Hang on second to second. You are on my mind all the time.
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Emma, one in a billion. You keep doing so much more than almost anyone else could do. Harrowing situation but thank god you are there for her xx
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Bless your heart, I’m sending my love, hugs and prayers to you, what an amazing sister you are, I pray you feel the love of God and his warm arms of comfort wrapped around you both, love from Indiana across the pond♥️🙏🏼♥️🥰♥️❣️❣️
Love you,Emma! 😢❤
We love you and the kids Sammi xxxxx thank you ❤️
My heart breaks for you both😢 It is a difficult journey by far.. Rest assure Em That Hospice Is the best place for Sooz,She will get around the clock care. We are all by your side ❤Thank you for coming on and sharing Sooz Updates