25th anniversary - A scleroderma story, Mindy Quiat

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  • Опубліковано 19 гру 2022
  • Mindy Quiat and her husband describe life with scleroderma, from the original diagnosis to moving forward.

КОМЕНТАРІ • 6

  • @ca.gopalsrathore242
    @ca.gopalsrathore242 Місяць тому

    Very inspiring story. I am also a Scleroderma Patient since 2018. I am doing well with my strong Will Power and mind control. Thank you so much. God bless you with healthy and long life. 🙏

  • @ritaperez6775
    @ritaperez6775 9 місяців тому

    💔 I was diagnosed with Scleroderma 35 years ago.

  • @MrNiirmal
    @MrNiirmal Рік тому

    Move to some warm countries i also suffered and i moved from north india to South India which is warm it helped me lot

  • @lillyrocks2011
    @lillyrocks2011 Рік тому +3

    Why still is nothing to stop the extra production of collagen?
    There's a lack of knowledge and research for this terrible disease.
    The rheumatologist I went first didn't diagnosed me correctly and misdiagnosed me with fibromyalgia 🤦🏽‍♀️
    I was years without diagnosis.
    And when you have others symptoms at least here in Mexico the doctors never investigate what is it or culprit for everything to the Scleroderma.
    There's a need of more research and hopefully medication to stop the collagen extra production.

    • @SclerodermaUS
      @SclerodermaUS  Рік тому

      Hi Lilly, please email questions to info@scleroderma.org and one of our staff members can provide more information. Thank you!

  • @diptishilwant9304
    @diptishilwant9304 11 місяців тому

    They are not taking this disease seriously..i hope there will be cure for this disease very soon