God loved you that’s why you came and seen this video before ruined your nose, never do nose surgery, I did 5 weeks ago in Turkey ruined my nose with one nostril big and one small and very bad angle from left nostril to the tip. Please don’t do that, And also did on me radio frequency turbinate 😢I didn’t know about that I lost my peace my happiness my everything 😢😢😢
GOOD! I have ENS & didn't have the heart to watch it. I hope my story shows that you can try to heal & thrive. I speak out at every show & I am glad so much progress has happened in the last 4-6 years. I am so glad people are aware & speaking out.
When I complained of air hunger during a follow-up appointment, my doctor got really defensive and suggested that I had underlying psychiatric issues. Our medical system is beyond broken and corrupt, and it's on all of us to change it. RIP
@@sandyvirlo7797 . Il n'y AUCUNE bonne procédure à faire par chirurgie ni par chimie! Il y a des solutions NATURELLES mais ne vous faites jamais toucher l'intérieur de votre nez!
@@TerrenLiberte I have had actually my treatments worked on, but it didn’t actually work. I’m supposed to have it done again in my nasal septum realigned because it’s off. But now that I know about this nasal syndrome, empty nose syndrome, I just don’t know if I want that now. Are use a decongestant and maybe I’ll just continue on with that. I’m 64 and I don’t need anything more bad happening to me before I die.
This is me. I suffer from severe ENS after having what was described as a routine surgery, a septoplasty and turbinate reduction/resection in March 2020. I suffer every minute of every day since then in a never ending cycle of horrific nasal dryness and complete loss of functionality of my nose. My nasal mucous lining was cut and cauterized. As a result, my nose does not warm the air, it does not humidity the air. It does not filter the air. The air I breathe is cold, dry and painful. I cannot sleep. My body jolts awake every few hours. I am trapped in a nightmare that never ends and my surgeon dismissed my complaints, saying “Everything looks fine.” It is almost one year later with no improvement. This horrific, surgery has destroyed my quality of life in every way. Empty Nose Syndrome is real. Do not allow anyone you love to get a Turbinate Reduction. Thank you for sharing your story. I am sorry for your loss.
Do you fast? I was learning from one guy who has it that he eats one time a day and sometimes skips to two days. He also takes a bit of raw garlic. He said this has helped him tremendously. He said the tubernates are damaged and that restricting eating, especailly processed foods has helped keep the inflammation down. Just sharing.
Please don't give up it usually takes a year for it to settle down. What procedure did these stupid doctor have on your Turbinates? These suckers should not use any heat in nose. It is the heat that is destroying Mucosal Sensory Nerves.
@@sandeepgarcha4980 Hello sir I have a question. I cant find the previous reply you have written to my reply. My question is, do you have to let the doctor know what method you want your turbinates to be reduced with(cauterization, SMR, etc.) on the day of the procedure or do you have to let them know before hand? Because in my case, my ENT did not go over which specific procedure he will use for my septoplasty/turbinate reduction. All I know from reading the procedure schedueling form is that both procedures are outpatient.
I am so sorry this happened to your family. In this day and age, (2023) it is widely known, by physicians, that this is a procedure that is best avoided, if at all possible. For *them* to virtually guarantee your mother that there would be no side effects, is [to me] unconscionable; Then to disregard them, when they arose. Your message will help countless others, and thus, some good will come of your mother's passing. Thank you so much for posting it.
Medical gaslighting at it's worst. Sadly many who have had surgical turbinate Injury/Ens are shunned away by brainwashed ENTs who thinks toying with essential organs is scientifically sound. Attorney firms and legislators should be more aware of what's going on as these cases will continue to increase. Patients who have no idea how complex turbinates are to the human body are the main targets.(General population has no clue what turbinates even are). What's worse is that these surgeries do not address the root problem and can have long term devastating injuries that cannot be reversed. They are even marketing these dangerous procedures to children. How sick these monsters are. All in the name of "health care" and keeping ENTs busy doing unecessary non essential procedures for the sake of $$$.
Barbara, thanks a lot for being ENS journalist and give these stories to public. It's a pressure and pain when relatives tell about it...But all the people should know that, about AR, about ENS. My prayers for Dory, R.I.P
Is this the Twilight Zone? This story sounds just like what happened to me. I almost took my own life 5-6 months after surgery. I went out and cut grass with a push lawnmower to exhaust myself. I spent many weeks in mental hospitals, taking antidepressants and antianxiety meds. I went from doctor to doctor trying to find a resolution to the empty nose symptoms. It's so demeaning to be labeled a 'head case when the ENT has ruined your life. I had the surgery in 1994 at the age of 38. It ruined me. I went on disability for depression and couldn't work or concentrate. I will be 65 in January. I can't believe I'm still alive. It's a terrible condition to live with. I can understand completely why Dory took her life. God rest her soul.
I'm a 22 year old male, been dealing with this for almost a year now. Feels like I can never breathe. Hard to sleep. Every doctor told me it was a mental issue, but there's nothing wrong with me psychologically. I just want someone to help me breathe.
Same it's so sad I just started having 2 weeks ago and it's too hard already I can't believe I have to live to live the rest of the life like this I'm 20 year
@@blankspace7161 Getting an ENT appointment scheduled to see exactly why I can't feel any air on inhalation causing a suffocating feeling 24/7. Going to see if they give me any treatment options or if I have to do a follow-up with them and I'll let you guys know.
Most of us were fed the same lie...everything looks good, it is you, you have anxiety and/or depression. See a psychiatrist. It is YOU. When is this going to stop??
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
@@davidn.2555 I'm not a doctor so I can't advice you what to do, but if you have inflammation you need to find the root of the problem. You need to see a good allergist and stop all dairy, gluten and any foods that might trigger inflammation. If you use sprays they have a rebound effect making congestion worse.
Never. Medical people/institutes are complete narcissists and gaslight you and society. They are doing the same with condition called Morgellons disease. They call the people delusional.
Today I read an article in Huffington post by a guest writer regarding ENT syndrome. I now know what has been plaguing me for the last ten years since I stupidly had the surgery. This is me. everything described is happening to me. An unending nightmare. A surgery that made me a slave to it. The dryness, the eye irritation, the dehydration, the gasping for air, the sinus full feeling, the forever nose infection, the dizziness, the lack of sleep, the constant feeling of fight or flee, the high stress and anxiety. Been to other ENT and told its all me, go see a psychiatrist there's nothing wrong here. Considered suing the surgeon but all ENT band together to deny they did anything wrong. I now sleep with my head elevated. having known I would've left it alone content to use nasal spray once in a while.
This was almost my fate as well. I lost the ability to sleep. Dryness pain and suffocation set in and worsened to the point where after 4 years of battling all of the same ignorance by the medical field I too was considering suicide. I went from an avid hiker to barely being able to walk up a flight of stairs without being out of breath. I too had to learn about Empty Nose Syndrome myself by finding it online. I went to multiple ENT doctors, I went for multiple sleep studies, I even went to the emergency room after I collapsed after trying to take a nap in 2012. I couldn't even stand up. Sleeping was not sleep as most people know it. It is a BEATING. Your own nervous system wears you down until your muscles are wasting away. My muscles felt like they were not even there or worse... like they were being attacked and eaten by something. There was no rest from ENS. The ignorance and hubris displayed by doctors in this field is horrid. There is NO protection for you as a patient. There are no limitations for these surgeries. They can do whatever they want to you. They perform extra procedures not disclosed and also different named procedures than what you agree to. It is common. They DO NOT UNDERSTAND THEIR OWN CRAFT! If they did there wouldn't be 3000 people on the facebook support page and several thousand others in other online groups with untold thousands of others struggling un-diagnosed. They don't know where your nerves are. Their schools teach 15 different ways to destroy turbinates but nothing about either rebuilding them or their function in autonomic breathing (while you sleep) They are mystified by instances of failure though there have been many! Studies have fully documented nasal sensation and feedback from the nose to the brain as driving breathing by deepening the inhale. Without this you sleep the sleep of the dead. Very shallow breaths that don't go anywhere. Your brain is in fight or flight mode not rest mode.E.N.T. doctors have no standards, their studies are conflicting and their organizations provide ZERO leadership. Any people that are left in the world who trust doctors, DON"T. Don't be ignorant. You probably think there is some large organization that oversees things and you are safe right? WRONG!! NO ONE GIVES A SHIT!!!! Not the American Medical Association, Not the American Board of Otolaryngology, Not the American Acadamy of Otolaryngology, not the ARS or American Rhinological Society. When you look into this, NOT ONE OF THEM claims any responsibility for setting any standards or rules. The A.M.A. is a lobbying group for...... DOCTORS! You can file a complaint but they have no power to pursue ANYTHING. They refer you to the A.B.O. who says "We just give tests", They refer you to the American Academy of Otolaryngology who says "We just write journal articles and suggestions". The A.R.S. says "We are just an educational Society..... well fucking great that is, but NO ONE IS IN CHARGE!!! This is a failure of education as their schools suck too. These guys have DECADES of shitty conflicting science and no standards for measuring much of any NON subjective data in their turbinate reduction studies on even the 3 basic functions of the nose such as humidification, warming, and filtering. No studies on sleep or cardio pulmonary function. Their turbinate reduction studies have basically been experimenting on humans. They cut stuff off, then they ask you if you can breathe more air through your nose. That is the extent of their science. Decades of these studies are non conclusive and conflicting. DO NOT TRUST THESE DOCTORS! This is an elective surgery. Try looking into food allergies such as wheat or dairy foods etc. Look into environmental allergies because once you get this It is 24-7 for the rest of your life! I work in Engineering and have done computer modeling so I did my own aerodynamics study after reading some that I found. My results matched their results. I published everything that I know about this surgically caused disease here: emptynosesyndromeaerodynamics.com/
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out. What should I do instead of surgery? I've tried almost everything
you gotta watch corbett report how big oil conquered the world... eventually it talks about how big oil took over the medical field and even re wrote the medical school textbooks. they made it all about drugs. it's a sad world we know live in. it's really truly sad and i am sorry for you and i pray for you.
Thanks i was thinking of getting baloon sinuplasty but not anymore fuck id rather deal with sinusitis. Do you know if the same could happen with polyps removal? I dont think so as i had them removed in 2010 and I didn’t experience any bad side effects or anything and they grow back anyway lol id rather just use nasal sprays or deal with congestion than doing these expensive ass surgery i got quoted like 5k for that baloon sinuplasty lmao
These Doctors and surgeons egos are the worse! They believe that they are never wrong! God understands your mothers suffering even if none of these in compassionate doctors didn’t. May she Rest In Peace!
So tragic. I can relate to every word. Every day is so hard. Depression is a secondary effect. The only people who know about ENS are the sufferers. We need the world to know. Media needs to let the world know instead of making "mountains out of molehills" in other issues.
have congestion start in january,thinking am only sick,using decongestant,maybe 20 days,then go to doctor,on scaner i have sinus infection,but no headche,no other simptoms obly bloked nose,when in that time i using antibiotic its good but after stop same,then i keep using decongestant and go to 2,3 doctors,and last say i have vasomotor rinitis, who give me some therapy and tell me i need stop decongestant,but i dont use therapy,then in august when i need using decongestant on 3 hour,i feel so terible i go to private doctor,hw tell me alregic rinitis,he give me dymista spray, and some pils,and its bether,when sleep one side is bloked(doc say its normal),if other is good i can sleep,but its good because dymista spray,if not use some day i cant sleep,and need use nasal drip in one side 2,3 days and again is bether,and this doctor say i have alergic rinitis,and tell me to use 6 monts dymista(now i finish 2),its ok but i scare when finish i need again back to fuking decongestant, idk what i have and what is problem of congestion.On skin test am alergic on mites(but i have this when im child and dont have problem),and + new little on ambrosia and some grass.I by new bed,no carpet dont go to much outside.Dont know what is problem and have to much suicide mind and lose hope,but afret all video i dont do surgery.
Hello guys, I hope you pay attention to my comment and manage to share it or make it viral if possible, if it works for you as it was in my case, it completely changed my life in a positive way, forgive my English I am using a translator, to summarize I am a boy of 25 years of Venezuela, at 10 years of age I fractured the septum of my nose and it remained that way until approximately at age 18 I had surgery only on the septum, (I remember that before the operation my nose was dry, I did not have the tip of the greasy nose) = with this I want to tell you that the fat and oils of most things make your nose clog and not only the nose but also most of the mucous membranes of the human body with this I mean yes For example, you make yourself a moisturizing lotion on your skin, you are more prone to things sticking to you or, as in my case, you get more easily, at that time when I had a fractured nose, I breathed well even though I breathed more through a hole io than the other but due to the deviation of the septum but as I told you I had no fat in my nose and therefore the nostrils were moist (hydrated) and that helped me breathe well despite my fracture. Well, after I had surgery on the septum, when I was 18 years old, about 15 days later I had a dermatitis on the tip of my nose and I noticed how it turned red but I did not go to a dermatologist but instead I consulted the pharmacy for a medicine that I I would recommend for dermatitis because at that time and now in my country it was very expensive to consult a doctor with a dematologist in general apart from the medicines and I just what I had was not enough good in general I bought the medicine called betamethasone that I applied it to my nose and it removed the itching and the reddish color of the dermatitis but it was only for a certain time, well guys, as time went by I stopped using it and tiny scabs began to appear on the tip of my nose and spots black like excessive fat that was when my whole nightmare started from this point my nose and not only my nose but my hair my eyes my ears I could not see or hear well and they were extremely fatty, well and as time went by the lower turbinates of my nose swelled to the point of completely obstructing both nostrils and at 24 years old I had a diode laser operation that reduced my ears more on one side than the other and after the operation I had an immediate improvement but after a month they grew back and lasted until I reached a point that I breathed every day through my mouth and not because of my nose and I had serious problems memorizing resting affected my quality of life so much that it distanced me from everyone, my family and my friends, I had a completely miserable life, my brain was not oxygenated and I began to have blurred vision I did not listen well I forgot everything in short a total nightmare until one day I provided an ene pill that contains sodium bicarbonate and acetaminophen because I had stomach acid and had that good in what After I took one of those pills, I felt an immediate relief in my breathing and then I began to investigate why this happened and basically I found that bicarbonate is used for scabies or scabies, (it should be noted that he said that he treated it more it eliminated it ) then I found out that because of the dermatitis that I had on the tip of my nose it was not dermatitis itself but it was scabies or scabies and at that moment I bought a medicine that is the one that completely changed my life and I think that My opinion is the definitive cure for both covid 19 and the empty nose syndrome that is ivermectin since in what I took the first dose that were two pills of 6 mg = 12 mg every 5 or 8 days, I immediately felt that my nostrils were moistened at first as my nose was super stuffy I felt pain in the part where my lateral turbinate was reduced but then as the days passed I felt an incredible relief and by that I mean everything is say that my ears were uncovered, my vision improved, my memory improved, my breathing improved enormously and with respect to covid, the people who have more fat either because of scabies because it not only cures that disease there are others like it the posh and other parasites that are normally easily contagious and invisible, that is to say that if you do not do a thorough examination on your body you cannot know if you have it that means that anyone can have that and perhaps not in the nose but in the body or in the throat and it makes it difficult to breathe because of the fat, by this I mean that ivermectin as it eliminates the parasites and bacteria that produce that fat that makes your respiratory tract They cover or do not work correctly, in conclusion my life changed, gentlemen, today I take my 3rd dose of ivermectin and the improvement intensifies I hope everyone tries this medicine and any questions or clarifications I await your comments and doubts I will also indicate if they do not have the possibility of consulting a doctor as in my case how they can take it correctly I hope they try this medication and it changes their lives completely as my regards.
probably shouldn’t say this here but my turbinates absolutely hate me at night. i looked into why i was stuffy and found the turbinates. i was curious to see how the body reacts without them, and i came across ENS, so i think i’ll just leave them alone. edit: i just have messed up blood vessels in my nose
Same . I have this nasty gunk that keeps coming out of my right now every day and can't breathe. Could be allergies and/or an infection and polyps though. Either way it's annoying
Yes. The anti-anxiety meds paradoxically made it worse. I went through the same thing. It's a struggle everyday. ENS is terrible, it puts you in a strange, miserable, debilitating dark place. Pray for her family and all who still suffer.
I believe that it was the meds that led my son to take his life. There are black box warnings on them that they can increase suicidal ideation in young people.
Yes, and old alike. Went through severe benzodiazopine withdrawal. NEVER so suicidal, depressed and filled with anxiety. Add that to ENS,,,, it's a disaster. Sorry to hear about your son. Scott correct?
the problem is anti anxiety meds cause nasal dryness any meds that cause nasal dryness will make a persons breathing worse if they have ens never take any meds that cause dryness example dry mouth keep the heat in your apt as low as possible heat in teh apt will make your breathing worse also use 2 warm mist humidifiers at the same time keep them away from your computers and tvs moving to south florida were there is alot of humidity will help most people with ens
I think I've been doing this for going on 17 years and never knew why. I just always preferred being alone. So I can spend all day rinsing my nose, eating weird foods, doing weird yoga poses in my bed trying to stretch my head and neck and release the tensions that my nose causes me. ENT seem to dismiss me like I'm a "princess and the pea" situation. I am NOT. I go through so much that nobody will EVER know. ringing ears. constant tightness in my head. Well this lockdown has given me the chance to really focus on this and go to the ENT. I've gone for 3 visits and it's always just kind of routine prescriptions like "try flonase." Like I've done everything already so I suggested surgery. The ENT says I could do a turbinate reduction and rhinoplasty. Well now all these videos are keeping me up and it seems that messing with the turbinates is just bad news!
Interesting that she developed ENS after her nose had been cauterized. They must have burned into her turbinates somehow when they did the procedure. I’ve suffered with ENS for 7 years after what was supposed to be to fix my deviated septum but instead they cut out all of my turbinates out for no reason which I didn’t find that out until 5 months after my butchered surgery by going to another ENT and he found everything. Prayers being sent for the family of this poor victim . This is beyond devastating and heartbreaking to say the least. 🙏💔
@@Marinemom-ss8cf i didn't find out the truth till months later to, by having ct scan done, that my turbinates were cut...he lied the whole time. i suffered more damage then that also.😢 There are things being studied to help, like stem cells, prp injections and implants. Sinus surgery stole our life🙈
We have to change our view of medicine. I wish it was just ENT's wrecking lives, but this is a problem with all Western medicine. Our system is all about money, it is not about making people better.
@@davidn.2555 How odd. I got the exact same comment from someone under a different name recently. How many accounts do you have? Jesus, how desperate are you for something to be going on in your life.
@@davidn.2555 Yeah? Then why did you direct the comment at me? You could have just posted it on the video. You didn't. You put it under my comment. You think people are stupid? If you were really scared of the surgery, THAT would have been your initial comment. But you didn't even mention it til someone called you out.
you gotta watch this video RIGHT NOW it's on UA-cam. look up corbett report how big oil conquered the world. it talks about at the end how the big oil tycoons became so rich that they put their heads together and started taking over ALL industries including agriculture AND medicine. medical school is so screwed up and removed from the old history of how many cures and wisdom we have.
I'm so sorry for the loss of your mom and what happened to her. Thank you for sharing and saving others from this. You say that she got "nasal cauterization." What was the actual procedure? Septoplasty, turbinate reduction or both? Thank you.
When you say she had her, "nose cauterized", I assume you mean she had her turbinates cauterized. I did, too. The surgery was unsuccessful (I had two subsequent blade surgeries), but I did avoid ENS. Had I see this video beforehand, I never would have had the cauterization. If you have turbinate reduction surgery, do not let the ENT completely remove the inferior turbinate. And ask him (he should know) to conserve as much of the mucosa, which warms and humidifies incoming air, as possible.
There’s nothing wrong with seeing an ENT. My ENT is amazing and didn’t suggest surgery or expensive meds for my breathing problems. Just don’t ever ever get any type of surgery especially turbinate removal or reduction those cause ENS.
My heart breaks for you. Please understand that we were put in a situation where we have contemplated ending it all, for some on a daily basis. It is a struggle. May she rest in peace and I hope one day we get the justice we deserve.
I am glad I found your channel and that interview u did on that talk show "Today now" its called I believe.My mind was full on surgery mode till I found out about ENS.Now I have changed my mind. I hope you are still alive and have found relief from your ENS after four years of no content on this channel.How are you now after having that tissue regeneration help with that Indian doctor? Please tell us through a video or in this comments section about this. For now I am going to change my diet and look into allergy treatments.
Going to try to sue. But attorneys refuse to take these kind of cases 95% of the time. They are extremely hard to win. Doctors are so well-protected. It’s just terrible.
I've heard of people killing their ENT doctors and I thought it was weird until I did research and found out about this. I wish everyone knew about ENT. I've been telling lots more people.
You’ve heard of people that got this procedure and killed their doctor as a result of ENS? If so, good for them. The doctor deserves it for ruining lives.
I found out about ENS after my septoplasty turbinate reduction and polyp removal surgery Thankfully I’m breathing and sleeping 1000x better. I’m sorry for the people suffering from this But for me it’s been a life changing procedure Good luck everyone
@@ClassyNasty hey! So far it’s been great I have allergies so I need to do a sinus rinse twice a day and take allergies meds But it’s been wonderful. Before I couldn’t breath through my nose at all I was a chronic mouth breather lol Now I sometimes just sit and enjoy breathing’ I sent my ENT a thank you letter for Christmas. Good luck if you end up getting this
I went to my surgeon today, I asked him how much of my tissue he removed. To which he replied he did not remove any but shrunk my turbinates with Radiofrequency which is the kindest (technically that’s reducing the tissue but okay) and he also outfractured them. (Didn’t know that. Hell no.)🤦🏻♀️ Lexa here on youtube had hers only outfractured and ended up with ENS. He dismissed my suggestion about my blood vessels or nerves being damaged and said it is normal to damage them while operating. Yeah sure but everyone heals differently and I asked him why then my nose is drying. Of course he couldn’t give me any explanation. He then proceeded to suggested to reduce my left turbinate even more and fix my septum, because the air flow in my left nostril is fucked up and it could also have an effect on the drying but he can’t promise because I will be angry at him. We’ll my primary problem is the drying and it’s affects. He totally dismissed what I told him about feeling dizzy and headaches, that can not be caused by my nose. 🤦🏻♀️ He was super defensive and that’s what angers me way more. I told him I am just trying to figure out what the problem is. And he replied we‘re on the same page then. He then proceeded to put spray in my nose against swelling even though it was not congested at this time. It made the resistance worse and air felt cold, gave my dizzyness and blurry vision. When I told him my nose and sinuses was infected last week and I cured it with garlic and tea he looked at my sinuses with ultrasonic to tell me they‘re free, yeah say what, now there fine again. 🤦🏻♀️ It‘s only when my mucosa dries out and is infected that I struggle hard with breathing. He also told me out of the blue: you‘re prone to infections. No I‘m not, I never had any sinus infections prior. Wtf. No wonder my lymph nodes are swollen when I mouth breathe at night. Thanks for nothing.
I have the same issue with drying Sara. After the surgery it started, and once it dries, it gets inflamed and the. Issues with suffocation. Using xclear and nozaid helps me a little to manage the symptoms. I have however, despite everyone’s advice started to use Avamys spray, 1 spray a day to each nostril.. it does not dry me, but helps to keep the inflamation in check, I got my life back a little. But I always avoid heating, dry environment, etc, the drying bit will never go away, unless maybe stem cells injections could help, that that is not guaranteed and super expensive
@@slavasokol6270 I keep my heating low, and I use an air humidifier in my home. Eating nutritious, keep away from smoke dust etc, drink tea, eat something spicy even or move my body. But my somptoms fluctuate a lot. I would love to get stem cell injections but it's better than when I wrote that comment. Did you get turbinate reduction? Do you know how much tissue you lost? (For me symptoms started about 6 month after surgery) Let me know if you manage to get injections and if it benefits you.
Sara, thanks for sharing. My symptoms were there right after septoplasty where part of my middle turbinates have been chopped, do not know exactly how much of it was removed. Also use humidifier, purifiers and avoid loads of things, don’t tolerate heating, smoke, chemical scents, etc, when the weather is dry (humidity goes below 40%) it’s no good, being in open space office is also an issue and i get dry and inflamed too easily and then it’s hell for around 10 days. With the spray it is easier. Are you part of the Facebook ens group?( ens awareness)? Might be easier to communicate there. For now I am not going to do stem cells, waiting for more feedback and dont have spare 12-15k to spare atm.
@@slavasokol6270 yes, I notice when it‘s a rainy day I feel so much better. Also I struggle with air condition (once had a few hour shared car ride in hot summer and oh god it was so bad after that) and at my work there has to be air condition in the warehouse etc. I‘m not on facebook anymore, but will consider joining groups.
This is real I've been suffering with ens for the past year and honestly I can't take it anymore is so horrible I feel like I'm suffocating all the time . I've been to ent and they keep saying that everything is normal . They actually suggested turbinate reduction but I just think that will make even worse my condition . I've had 2 times sinus surgery and it's just made it worse . I feel total discomfort in my nose constantly 😪 can't sleeep or concentrate on anything . I'm doing evey single day sinus rinse but it doesn't help at all . Don't know what else to try . Anyone who has this please reply on this comment 🙏
Theres no ens if you didnt have surgery. Ens comes only after turbinate surgery or nasal surgery but most of them time its because of turbinate. If you didnt hit your turbinates with something wich again is not really possible you experience similar symptoms but no way its ENS
I have bad congestion from overusing nasal spray. I barely get sleep like 1-4 hours of sleep on bad days due to panic attacks and anxiety of not being able to breathe through a nostril. At least my condition is curable with time. I can totally sympathize with those that have ENS i can imagine it being much worse and much more scary to sleep and breathe in general I’m so sorry yall are suffering. Turbinate removal/reduction should absolutely be illegal.
How are things going currently? Which specialist did you see? Have you found any relief? I’ve been dealing with ENS for 2 months and not sure if life will be worth living like this.
@@sandyvirlo7797 well my understanding was that it would be radio frequency but when I requested my medical records from the doctor I didn’t see anything about radio frequency and it sounds like they hacked away with scissors 😣
@@xSenorFrogx bro how you doing? Im experiencing ens for 2 weeks and it's too much I'm 20 years old and even me I don't know how will I continue my life like this. It's better to die if I have to live like this for the rest of my life
I had a horrific ear problem that was not visible to the five ENTs that saw me. Long story short, it was a nerve issue that a neurologist diagnosed. Most "unseen" issues are nerve related. Just shocking that most doctors can't figure this out. Disgraceful.
What is happening to us is criminal. It’s nothing less than assault and battery while the innocent victims it’s performed on remain asleep while it is done. I aim to make my perpetrators pay.
@Vads T I can only speak for the U.K. when I say that it’s very difficult to get a lawyer to handle these cases as they do not consider the compensation awarded will be worth it for them.
@@21Q-h7h If someone has had part of their body removed, your “logical” response is to ask them to read some moronic book. Go tout your rubbish elsewhere.
This is truly tragic and I weep and pray for your Mom. What the ENT's don't realize is the important physiologic function the nose has in processing every molecule of air we breathe in with every breath we take throughout our life. "Fixing" nasal airflow is an oxymoron when you ignore physiology. Part of every comprehensive evaluation should be an analysis of cellular level physiology to see if the nasal cells are normal and have not atrophied to the point of non-functional. This condition can happen for a variety of reasons. Highly recommend the book....BREATH by James Nestor.
How about if you lose sense of smell in one nostril and can feel a piece of the internal architecture obstructing that nostril because of a hit to the nose? How do you fix that?
How terrible!!! I had multiple nasal cauterisations as a child. I remember a substance being sprayed in my nostrils then a sparkler being inserted. The reaction when both substances came into contact was to burn and smoulder. Extremely unpleasant. I also had a cauterisation when I was 19. So sorry to hear of the suffering caused by ENS. 😔😔😔
I had my turbinates resected in 2012, just at the age of 20. I clearly remember my doctor's words who claimed the ITs have no function. I wish I did my own research but I just trusted a professional. World is cruel.
What's the other option? My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out. What should I do instead of surgery? I've tried almost everything
@@davidn.2555 Your doctor is IGNORANT as are about half of these clowns. As for you...try a food elimination diet. Your tissue swells for a reason. Common allergies are wheat or dairy foods. Eliminate one for 3 to 4 weeks and do a GOOD job of it. If that wasn't it try the other one. If not that environmental allergies like mold or other thing could be it. Doctors who try to pin this on physiological issues are ignorant assholes and should not be doctors. If they can't understand nerve pain...dryness...headachend suffocation etc can come from damaging the nose then they are either REALLY DUMB OR REALLY CORRUPT AND CONFLICTED.
@@ensaerodynamics8615 Thanks man. I've drastically cut sugars as well I'm going to totally stop wheat and diary and check the progress. If you have any other new discoveries please reply me here. Thanks alot
If all surgeons who have done this lost their jobs for their negligence?? Wouldn't that be wonderful? Too bad doktors are protected to the extent they are. I've been butchered and there's nothing I can do.
I was injured on the job hit to the nose. Gave me deviated nasal septum. Both sides of my nose when I see the ENT specialist told me that I need surgery and to fix the bone in my nose. I might need a doanter bone, I am terrifying. I feel so sorry for that lady 😢
A year ago I had a turbinate reduction surgery and I was left with a lot of nerve pain. I have been prescribed tegretol but have not taken it yet. Someone has tried? If you have any recommendations, I'd appreciate it.
Anyway, I had the operation in 2019,the doctor said that the operation was successful However, in the first days of the operation, I couldn't sleep because my throat was drooping, no examination was made for 7 days even though I called the doctor's assistant, 7. When I went the next day, the plaster was removed and a spray was given for the sagging in my throat. Even though I only informed that the hole in the septum would be closed, the doctor had already filed my already small nasal bone, lifted the tip of the nose and expanded my nose to the sides, making it almost like a black nose. The main problems appeared on the 14th day when the tampons in my nose were removed, my breathing changed strangely, I was constantly short of breath because I could not feel my breathing, I was trying to breathe deeply, this caused me to be busy with my breathing and not be able to focus on anything else during the day, My sleep at night was also often interrupted, when I told the doctor about this situation, I opened your nose like a cave and he said you need to be able to breathe very well. I came back from Istanbul and started to continue my work, but there was still abnormality in my breathing, my nose hurt while breathing, I started to breathe through my mouth constantly during the day, I had no solution for the night, I would fall asleep at night, I would wake up with panic and heart palpitations, this situation always happened. It was repeated at least 10 times a night, my under-eyes collapsed, my body began to weaken, I was sluggish and tired every day, I couldn't focus on my work, my social life was over, I was forced to come and go between work and home, I spent the rest of my time trying to sleep, I didn't even have to clean my house. Moreover, because I was constantly sleepless, I started to lose my health day by day, my heart could not stand the sleep apnea I experienced at night, it became tired, now I had constant heart palpitations and I was on my way to heart failure. 3 years after the last surgery, in 2022, when I was examined by an ENT professor and told my complaints, he looked inside my nose with an endoscopic camera and your 2 lower turbinates were completely removed, the hole in the septum was reopened over time, you can't feel your breathing because the turbinates have been removed, and there is also a feeling of pressure because the inside of your nose is very wide. It does not form, so when you fall asleep, you wake up in panic because the brain cannot feel that you are breathing. Moreover, there is no cure for it, just as a severed finger cannot regenerate, so do the turbinates. He said to use a nasal humidifier, but the room did not work. And when I was a person who loves life and tries to stand up in all circumstances, I even thought of committing suicide, I don't know how many times I will end up, think about it, you can't feel that you are breathing and this is a situation that repeats every second. I am only 30 years old, but I collapsed for 10 years. I have a heart disease. When I searched foreign sites for empty nose syndrome, I saw cases of suicide and even cases of heart attack. All I can say now is this: How is medical education given in Turkey, how can the doctor who operated on me, knowing that I will have empty nose syndrome, can take all my nasal passages completely, we entrust our lives to these doctors! I wish I had never had that pituitary surgery and hadn't fallen into this situation. I have no right to such doctors, they ruined my life. Of course, there are good doctors, but I have always had bad ones. No matter how much I rebel, this life will pass like this, this is my test in life, I have no choice but to be patient. I hope that a cure will be found as soon as possible for those who have ENS syndrome like me and myself.
All these "solutions " come from western Europe and usa generally. They are the main butchers and their medical organisations are nothing butcriminals trying to get more clients for their chemicals
The ent surgeon killed dory.the ent surgeon reduced dories turbinates and caused her horrific ens.dory would still be alive now .listen i know what im talking about i have suffered with ens for 10 years.the damage has already been done.
So ive been having this deviated septum since highschool, but starting 24th january 2020, i started to experience symptoms related to ENS even without surgery and my diaphragm jolts whenever i tried to sleep. Can anyone tell me what is going on with my nose?
That's not ens I can tell you. I had deviated septum and when I sleep I was always breathing with mouth and I was suffering alot and I will gas out doing little chores but after experiencing ens I rather have those symptoms then ens
you cant trust ent surgeons they dont always tell you the risks of surgery on nose. mine didnt. and i got EMPTY nose syndrome and pain. then ent drs ignore and pretend its in my head and never help me
ENS/turbinate injury is very real and far from psychological. Well respected Dr.s within the field of Ent have already blown the whistle on the true dangers of turbinate surgery procedures. It is a common fallacy spread by those in the field who continue to fool the public that altering an essential organ can diminish chronic stuffiness or inflammation. One of the biggest contradictions is that patients are screened thoroughly before a surgery (Both for physical and mental aptitude). What occurs is when a patient has a bad outcome and mislead about the safety and efficiency, these very "Dr.s" who patients put their trust in have no back up plan to reverse the damages. They do not want to be held liable for any wrong doing. This is not the first or last time medical professionals who perform and market overly routine procedures have caused harm, then use the "psychological disorder" card.
I have obstructive sleep apnea & have never kept my cpap mask on due to mouth breathing because of enlarged turbinates. Any suggestions on alternatives to turbinate reductions? Having untreated sleep apnea creates that lack of energy and exhaustion that happens for ENS sufferers. So I fully empathize that part. I never feel rested, but I can breathe & don’t have all the other things to deal with that those with ENS have. I’m working on losing weight, do avoid things like gluten & dairy most of the time, & am now on an allergy routine of Claritin in morning, Singulair before dinner, & 1 Benadryl right around or right after dinner. Benadryl makes me groggy next day, so even if it’s helping me breathe at night to help the OSA that I have, I am not rested or aware enough to know if I have any improvement from that routine.
Barbara how are you doing? Could you update on the stem cell and PRP therapy. I'm from Pakistan and researched you on internet. I need help myself regarding ENS.
@@tashadavis2999 i decided against it. I didnt even have a problem with it... my doc just recommended it after i told him i was having ear problems... so I canceled because that wasnt even for my initial symptoms.
Survivor of ENS & S.... I can't even say it... the algo don't like it. I got my surgery slightly before her & summer of 2019 attempted. I have my court date tomorrow in this 4 year long battle for SSDI. Although still sick, I've gone on to do amazing things... I am a musician & performer... I wear a mask & wear breathing devices under it... At every show & every song just about I talk about this... In my last song "GASLIGHT" I rage out on the doctor that did this. It's a Trap/Metal track in the last few years so many treatment advances and awareness have happened... NO DOCTOR Today could get away with denying this ... some may still try. I'm so Happy to see Cancelled Surgeries below. If this is happening.. something is wrong and ofc the doctor will say this isn't the case.. This is how they get insurance money. They operate & want to be done with you. Thank you for doing such a beautiful job spreading the word. As long as I'm still alive i will.
You do not have ENS, you never even had turbinate surgery. You had a rhinoplasty and experience certain symptoms due to narrow nasal valves. Not every issue after nose surgery is ENS.
There's a lot of syndromes out there that nobody's ever heard of.this syndrome seems terrible to live with. May she rest in peace with our Lord and Savior Jesus Christ.
Sounds like tons of doctors I’ve been sick 14 years and they blame mental Sounds so much like me Throwing meds at me Sleep issues Dryness So sorry for your loss 🙏🏻
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out. What should I do instead of surgery? I've tried almost everything
I'm scheduled to get my septoplasty and turbinate reduction soon. I'm in a very precarious position as I have tried everything in the book with regards to lifestyle such as adjusting diet, exercise, sleep, and stress management, not including the nasal sprays I used for months, but got zero relief from. After hearing about the risk of developing ENS, I really don't know what else to do to fix my chronic nasal obstruction. Any suggestions?
Can we get ENS while inhaling directly into an active boiling water, in which the fire is still on? Which gives this sharp feeling in the upper part of the nostril due to the heat
Steam inhalation will not cause ENS. If you’re getting a sharp feeling in your nose from steam inhalation you are probably way too close to the steam. ENS is only caused by surgeries where the turbinates are messed with.
Not necessarily.there can be other factors apart from nose surgery.stop cleaning your nose,blowing your nose or picking your nose.also pls stop steam inhalation.
What do you guys think about this covid PCR test because it involves the tubernates and the upper respiratory system. They are in there just digging and pocking away. Very strange...
It's cotton on a stick. Hows that gonna harm your nerves? It's just to collect slime which could contain the virus. Not to harm your nerves, it'd have to be sharp to do that.
@@acca1170 I was learning about tubernate damage from sinus surgery and I remember reading that even just slight trauma from different tools (cotton swabs being one) can harm them. I wish I had the reference. If I come across it, I'll definitely be sure to post. Thanks.
@@ashleywilliams4149 A cottonswab doesn't pierce the skin though (nerves being under the skin). So unless the procedure draws blood from the amount of force I don't think you have to worry.
@@acca1170 I understand where you're coming from. You have to do what you feel comfortable doing. After learning about ENS, I'm not doing it. But best of luck.
@mikeodee the problem is anti anxiety meds cause nasal dryness any meds that cause nasal dryness will make a persons breathing worse if they have ens never take any meds that cause dryness example dry mouth keep the heat in your apt as low as possible heat in teh apt will make your breathing worse also use 2 warm mist humidifiers at the same time keep them away from your computers and tvs moving to south florida were there is alot of humidity will help most people with ens
I have ENS. To be fair, these drugs could have pushed her over the edge. Antidepressants and anti-anxiety medications can help push people over the edge. I honestly don't think I'm going to make it either.
@@sandywhat2429 oh no, I’m sorry to hear that. These doctors are really out here to just milk the insurance companies. I’m so frustrated with the system. I’m sorry to hear that doctors have caused more issues for you. I thought ENS was bad enough. I’m sorry that you have other iatrogenic conditions. Stay strong and if you ever need someone to talk to or anything I’m all ears👂🏻 I know I wish I had people to reach out to that could actually understand what I’m going through.
There should be more awareness about empty nose syndrome, maybe if it was a well-known syndrome, I wouldn't have come to this with surgery, I don't understand how a disease that seriously reduces the quality of life does not come to the fore.
Happens with even the most seasoned surgeons. Many in support groups have shared their testimonies from all backgrounds. Those that need to be sorry are those in ear nose and throat who continue to sell these unscientific procedures to patients who have no idea how complex the turbinates are and how important they are to the human body.
Please reply.....i never had surgery on mY nose in my life ...last year December month i have strong flu my trubunate swelling doctor prescribed me nasal spray i only use this spary one week and i lost my air sensation...i am scared what happen with me please reply...i consult with a ent doctor she says my lest nose turbinate swelling and right nose dry mucous i tried everything but i not got any relief what should I do for dry mucous....please reply😭
Bro don't take surgery, and try not to take too much nasal spray the more you take the more u become dependent on them and if u stop the block nose is more. So I'll just say give it time. I did surgery and I regret every moment so I'm saying don't take the risk it's not worth it
@@blankspace7161 bro i stop nasal spary from one month ....but i don't any relief I don't know what's happen with me....i am from India i met with a doctor ens specialist he says my mucous is dried and he says therapy of stemcells
@@akshaythakur9702 that toh I don't know I reduced my turbinates and now I hve ens every min is a stuggle. If ur turbinates are not touched then it s fine I think. I'm frm india too which state r u frm?
I cancelled my surgery thank you for saving my life
God loved you that’s why you came and seen this video before ruined your nose, never do nose surgery,
I did 5 weeks ago in Turkey ruined my nose with one nostril big and one small and very bad angle from left nostril to the tip.
Please don’t do that,
And also did on me radio frequency turbinate 😢I didn’t know about that I lost my peace my happiness my everything 😢😢😢
I was gonna get surgery but then found out about this. Her story may have save my life. Her story and life did not go in vain.
GOOD! I have ENS & didn't have the heart to watch it. I hope my story shows that you can try to heal & thrive. I speak out at every show & I am glad so much progress has happened in the last 4-6 years.
I am so glad people are aware & speaking out.
When I complained of air hunger during a follow-up appointment, my doctor got really defensive and suggested that I had underlying psychiatric issues. Our medical system is beyond broken and corrupt, and it's on all of us to change it. RIP
What procedure did u have done on ur turbinates?
very common, actually to be expected
What a shitty doctor. I hope you switched.
@@sandyvirlo7797 . Il n'y AUCUNE bonne procédure à faire par chirurgie ni par chimie!
Il y a des solutions NATURELLES mais ne vous faites jamais toucher l'intérieur de votre nez!
@@TerrenLiberte I have had actually my treatments worked on, but it didn’t actually work. I’m supposed to have it done again in my nasal septum realigned because it’s off. But now that I know about this nasal syndrome, empty nose syndrome, I just don’t know if I want that now.
Are use a decongestant and maybe I’ll just continue on with that. I’m 64 and I don’t need anything more bad happening to me before I die.
This is me. I suffer from severe ENS after having what was described as a routine surgery, a septoplasty and turbinate reduction/resection in March 2020. I suffer every minute of every day since then in a never ending cycle of horrific nasal dryness and complete loss of functionality of my nose. My nasal mucous lining was cut and cauterized. As a result, my nose does not warm the air, it does not humidity the air. It does not filter the air. The air I breathe is cold, dry and painful. I cannot sleep. My body jolts awake every few hours. I am trapped in a nightmare that never ends and my surgeon dismissed my complaints, saying “Everything looks fine.” It is almost one year later with no improvement. This horrific, surgery has destroyed my quality of life in every way. Empty Nose Syndrome is real. Do not allow anyone you love to get a Turbinate Reduction. Thank you for sharing your story. I am sorry for your loss.
Hello how are u now? What said your doctor to you about this?
Do you fast? I was learning from one guy who has it that he eats one time a day and sometimes skips to two days. He also takes a bit of raw garlic. He said this has helped him tremendously. He said the tubernates are damaged and that restricting eating, especailly processed foods has helped keep the inflammation down. Just sharing.
Have you contacted Dr. Das in Columbus, Ohio? Their advanced sinus center is one of the only places correcting ENS
Please don't give up it usually takes a year for it to settle down. What procedure did these stupid doctor have on your Turbinates? These suckers should not use any heat in nose. It is the heat that is destroying Mucosal Sensory Nerves.
@@sandeepgarcha4980 Hello sir I have a question. I cant find the previous reply you have written to my reply. My question is, do you have to let the doctor know what method you want your turbinates to be reduced with(cauterization, SMR, etc.) on the day of the procedure or do you have to let them know before hand? Because in my case, my ENT did not go over which specific procedure he will use for my septoplasty/turbinate reduction. All I know from reading the procedure schedueling form is that both procedures are outpatient.
Thank you for sharing your story. You saved a lot of people from making the same mistake. God bless your mothers memory. She did not die in vain
I am so sorry this happened to your family. In this day and age, (2023) it is widely known, by physicians, that this is a procedure that is best avoided, if at all possible. For *them* to virtually guarantee your mother that there would be no side effects, is [to me] unconscionable; Then to disregard them, when they arose. Your message will help countless others, and thus, some good will come of your mother's passing. Thank you so much for posting it.
I just found out about ENS. Its absolutely tragic and horrific. The way Dory was treated is absolutely unacceptable
Medical gaslighting at it's worst. Sadly many who have had surgical turbinate Injury/Ens are shunned away by brainwashed ENTs who thinks toying with essential organs is scientifically sound. Attorney firms and legislators should be more aware of what's going on as these cases will continue to increase. Patients who have no idea how complex turbinates are to the human body are the main targets.(General population has no clue what turbinates even are). What's worse is that these surgeries do not address the root problem and can have long term devastating injuries that cannot be reversed. They are even marketing these dangerous procedures to children. How sick these monsters are. All in the name of "health care" and keeping ENTs busy doing unecessary non essential procedures for the sake of $$$.
@@dougferguson2563 facts
They wanted to do this to me for chronic sinusitis glad I found this community and never had it done.
I am crying literally.... So sorry for u and ur family
Barbara, thanks a lot for being ENS journalist and give these stories to public. It's a pressure and pain when relatives tell about it...But all the people should know that, about AR, about ENS. My prayers for Dory, R.I.P
Is this the Twilight Zone? This story sounds just like what happened to me. I almost took my own life 5-6 months after surgery. I went out and cut grass with a push lawnmower to exhaust myself. I spent many weeks in mental hospitals, taking antidepressants and antianxiety meds. I went from doctor to doctor trying to find a resolution to the empty nose symptoms. It's so demeaning to be labeled a 'head case when the ENT has ruined your life. I had the surgery in 1994 at the age of 38. It ruined me. I went on disability for depression and couldn't work or concentrate. I will be 65 in January. I can't
believe I'm still alive. It's a terrible condition to live with. I can understand completely why Dory took her life. God rest her soul.
Are you Recover from ENS
@@Souravsp09 NO. I'VE JUST LEARNED TO COPE WITH IT WITH PSYCH MEDS AND DISTRACTION.
@@johndeal4381 happy to hear about it..you are true fighter..🙂
@Dañico Salvador Deviated septum. I had inferior turbinates removed.
Imposters trying to pretend to have Ens playing the phychiatric card. Too pathetic.
I'm a 22 year old male, been dealing with this for almost a year now. Feels like I can never breathe. Hard to sleep. Every doctor told me it was a mental issue, but there's nothing wrong with me psychologically. I just want someone to help me breathe.
Same it's so sad I just started having 2 weeks ago and it's too hard already I can't believe I have to live to live the rest of the life like this I'm 20 year
@@blankspace7161 Getting an ENT appointment scheduled to see exactly why I can't feel any air on inhalation causing a suffocating feeling 24/7. Going to see if they give me any treatment options or if I have to do a follow-up with them and I'll let you guys know.
@@rez5 bro have you done surgery or not what happen with you
@@blankspace7161 bro whatsapp happen withyou same
@@rez5 how did it go?? I'm scheduled to meet my ent tomorrow, I'll see what she has to say because she was the one who did the surgery.
I have this and no one is taking me seriously. Losing hope in life
How are you feeling? Did your symptoms get better with time and after the initial healing phase?
I had injections to bulk up my turbinates that helped but doesn’t last long.
Hypnotism ?
@@ButterMyWafflez How is it going today? What was your symptoms? Do you have any link or how to find that procedure?
Re-title this as: (Turbinate surgery. Ear nose and Throat. )Others who do not know of this will be able to discover and see it.
Most of us were fed the same lie...everything looks good, it is you, you have anxiety and/or depression. See a psychiatrist. It is YOU. When is this going to stop??
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
@@davidn.2555
Don't believe him. Trust me. They are washing their hands from the damage they are causing
@@piamcdowell1 what do I do to shrink my turbinates without surgery? I've tried almost everything from sprays to humidifier to sinus rinse
@@davidn.2555 I'm not a doctor so I can't advice you what to do, but if you have inflammation you need to find the root of the problem. You need to see a good allergist and stop all dairy, gluten and any foods that might trigger inflammation. If you use sprays they have a rebound effect making congestion worse.
Never. Medical people/institutes are complete narcissists and gaslight you and society. They are doing the same with condition called Morgellons disease. They call the people delusional.
Today I read an article in Huffington post by a guest writer regarding ENT syndrome. I now know what has been plaguing me for the last ten years since I stupidly had the surgery. This is me. everything described is happening to me. An unending nightmare. A surgery that made me a slave to it. The dryness, the eye irritation, the dehydration, the gasping for air, the sinus full feeling, the forever nose infection, the dizziness, the lack of sleep, the constant feeling of fight or flee, the high stress and anxiety. Been to other ENT and told its all me, go see a psychiatrist there's nothing wrong here. Considered suing the surgeon but all ENT band together to deny they did anything wrong. I now sleep with my head elevated. having known I would've left it alone content to use nasal spray once in a while.
This was almost my fate as well. I lost the ability to sleep. Dryness pain and suffocation set in and worsened to the point where after 4 years of battling all of the same ignorance by the medical field I too was considering suicide. I went from an avid hiker to barely being able to walk up a flight of stairs without being out of breath. I too had to learn about Empty Nose Syndrome myself by finding it online. I went to multiple ENT doctors, I went for multiple sleep studies, I even went to the emergency room after I collapsed after trying to take a nap in 2012. I couldn't even stand up. Sleeping was not sleep as most people know it. It is a BEATING. Your own nervous system wears you down until your muscles are wasting away. My muscles felt like they were not even there or worse... like they were being attacked and eaten by something. There was no rest from ENS. The ignorance and hubris displayed by doctors in this field is horrid. There is NO protection for you as a patient. There are no limitations for these surgeries. They can do whatever they want to you. They perform extra procedures not disclosed and also different named procedures than what you agree to. It is common. They DO NOT UNDERSTAND THEIR OWN CRAFT! If they did there wouldn't be 3000 people on the facebook support page and several thousand others in other online groups with untold thousands of others struggling un-diagnosed. They don't know where your nerves are. Their schools teach 15 different ways to destroy turbinates but nothing about either rebuilding them or their function in autonomic breathing (while you sleep) They are mystified by instances of failure though there have been many! Studies have fully documented nasal sensation and feedback from the nose to the brain as driving breathing by deepening the inhale. Without this you sleep the sleep of the dead. Very shallow breaths that don't go anywhere. Your brain is in fight or flight mode not rest mode.E.N.T. doctors have no standards, their studies are conflicting and their organizations provide ZERO leadership. Any people that are left in the world who trust doctors, DON"T. Don't be ignorant. You probably think there is some large organization that oversees things and you are safe right? WRONG!! NO ONE GIVES A SHIT!!!! Not the American Medical Association, Not the American Board of Otolaryngology, Not the American Acadamy of Otolaryngology, not the ARS or American Rhinological Society. When you look into this, NOT ONE OF THEM claims any responsibility for setting any standards or rules. The A.M.A. is a lobbying group for...... DOCTORS! You can file a complaint but they have no power to pursue ANYTHING. They refer you to the A.B.O. who says "We just give tests", They refer you to the American Academy of Otolaryngology who says "We just write journal articles and suggestions". The A.R.S. says "We are just an educational Society..... well fucking great that is, but NO ONE IS IN CHARGE!!! This is a failure of education as their schools suck too. These guys have DECADES of shitty conflicting science and no standards for measuring much of any NON subjective data in their turbinate reduction studies on even the 3 basic functions of the nose such as humidification, warming, and filtering. No studies on sleep or cardio pulmonary function. Their turbinate reduction studies have basically been experimenting on humans. They cut stuff off, then they ask you if you can breathe more air through your nose. That is the extent of their science. Decades of these studies are non conclusive and conflicting. DO NOT TRUST THESE DOCTORS! This is an elective surgery. Try looking into food allergies such as wheat or dairy foods etc. Look into environmental allergies because once you get this It is 24-7 for the rest of your life! I work in Engineering and have done computer modeling so I did my own aerodynamics study after reading some that I found. My results matched their results. I published everything that I know about this surgically caused disease here: emptynosesyndromeaerodynamics.com/
www.abc.net.au/news/health/2016-07-22/empty-nose-syndrome-when-routine-nasal-surgery-goes-wrong/7652696
Did you get the whole turbinates removed?
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
What should I do instead of surgery? I've tried almost everything
you gotta watch corbett report how big oil conquered the world... eventually it talks about how big oil took over the medical field and even re wrote the medical school textbooks. they made it all about drugs. it's a sad world we know live in. it's really truly sad and i am sorry for you and i pray for you.
Peter, thank you for your website.
Thanks i was thinking of getting baloon sinuplasty but not anymore fuck id rather deal with sinusitis. Do you know if the same could happen with polyps removal? I dont think so as i had them removed in 2010 and I didn’t experience any bad side effects or anything and they grow back anyway lol id rather just use nasal sprays or deal with congestion than doing these expensive ass surgery i got quoted like 5k for that baloon sinuplasty lmao
These Doctors and surgeons egos are the worse! They believe that they are never wrong! God understands your mothers suffering even if none of these in compassionate doctors didn’t. May she Rest In Peace!
So tragic. I can relate to every word. Every day is so hard. Depression is a secondary effect. The only people who know about ENS are the sufferers. We need the world to know. Media needs to let the world know instead of making "mountains out of molehills" in other issues.
have congestion start in january,thinking am only sick,using decongestant,maybe 20 days,then go to doctor,on scaner i have sinus infection,but no headche,no other simptoms obly bloked nose,when in that time i using antibiotic its good but after stop same,then i keep using decongestant and go to 2,3 doctors,and last say i have vasomotor rinitis, who give me some therapy and tell me i need stop decongestant,but i dont use therapy,then in august when i need using decongestant on 3 hour,i feel so terible i go to private doctor,hw tell me alregic rinitis,he give me dymista spray, and some pils,and its bether,when sleep one side is bloked(doc say its normal),if other is good i can sleep,but its good because dymista spray,if not use some day i cant sleep,and need use nasal drip in one side 2,3 days and again is bether,and this doctor say i have alergic rinitis,and tell me to use 6 monts dymista(now i finish 2),its ok but i scare when finish i need again back to fuking decongestant, idk what i have and what is problem of congestion.On skin test am alergic on mites(but i have this when im child and dont have problem),and + new little on ambrosia and some grass.I by new bed,no carpet dont go to much outside.Dont know what is problem and have to much suicide mind and lose hope,but afret all video i dont do surgery.
Hello guys, I hope you pay attention to my comment and manage to share it or make it viral if possible, if it works for you as it was in my case, it completely changed my life in a positive way, forgive my English I am using a translator, to summarize I am a boy of 25 years of Venezuela, at 10 years of age I fractured the septum of my nose and it remained that way until approximately at age 18 I had surgery only on the septum, (I remember that before the operation my nose was dry, I did not have the tip of the greasy nose) = with this I want to tell you that the fat and oils of most things make your nose clog and not only the nose but also most of the mucous membranes of the human body with this I mean yes For example, you make yourself a moisturizing lotion on your skin, you are more prone to things sticking to you or, as in my case, you get more easily, at that time when I had a fractured nose, I breathed well even though I breathed more through a hole io than the other but due to the deviation of the septum but as I told you I had no fat in my nose and therefore the nostrils were moist (hydrated) and that helped me breathe well despite my fracture. Well, after I had surgery on the septum, when I was 18 years old, about 15 days later I had a dermatitis on the tip of my nose and I noticed how it turned red but I did not go to a dermatologist but instead I consulted the pharmacy for a medicine that I I would recommend for dermatitis because at that time and now in my country it was very expensive to consult a doctor with a dematologist in general apart from the medicines and I just what I had was not enough good in general I bought the medicine called betamethasone that I applied it to my nose and it removed the itching and the reddish color of the dermatitis but it was only for a certain time, well guys, as time went by I stopped using it and tiny scabs began to appear on the tip of my nose and spots black like excessive fat that was when my whole nightmare started from this point my nose and not only my nose but my hair my eyes my ears I could not see or hear well and they were extremely fatty, well and as time went by the lower turbinates of my nose swelled to the point of completely obstructing both nostrils and at 24 years old I had a diode laser operation that reduced my ears more on one side than the other and after the operation I had an immediate improvement but after a month they grew back and lasted until I reached a point that I breathed every day through my mouth and not because of my nose and I had serious problems memorizing resting affected my quality of life so much that it distanced me from everyone, my family and my friends, I had a completely miserable life, my brain was not oxygenated and I began to have blurred vision I did not listen well I forgot everything in short a total nightmare until one day I provided an ene pill that contains sodium bicarbonate and acetaminophen because I had stomach acid and had that good in what After I took one of those pills, I felt an immediate relief in my breathing and then I began to investigate why this happened and basically I found that bicarbonate is used for scabies or scabies, (it should be noted that he said that he treated it more it eliminated it ) then I found out that because of the dermatitis that I had on the tip of my nose it was not dermatitis itself but it was scabies or scabies and at that moment I bought a medicine that is the one that completely changed my life and I think that My opinion is the definitive cure for both covid 19 and the empty nose syndrome that is ivermectin
since in what I took the first dose that were two pills of 6 mg = 12 mg every 5 or 8 days, I immediately felt that my nostrils were moistened at first as my nose was super stuffy I felt pain in the part where my lateral turbinate was reduced but then as the days passed I felt an incredible relief and by that I mean everything is say that my ears were uncovered, my vision improved, my memory improved, my breathing improved enormously and with respect to covid, the people who have more fat either because of scabies because it not only cures that disease there are others like it the posh and other parasites that are normally easily contagious and invisible, that is to say that if you do not do a thorough examination on your body you cannot know if you have it that means that anyone can have that and perhaps not in the nose but in the body or in the throat and it makes it difficult to breathe because of the fat, by this I mean that ivermectin as it eliminates the parasites and bacteria that produce that fat that makes your respiratory tract They cover or do not work correctly, in conclusion my life changed, gentlemen, today I take my 3rd dose of ivermectin and the improvement intensifies I hope everyone tries this medicine and any questions or clarifications I await your comments and doubts I will also indicate if they do not have the possibility of consulting a doctor as in my case how they can take it correctly I hope they try this medication and it changes their lives completely as my regards.
@@Paralelepipedo19 What's your email address?
@@davidn.2555 brayansosa18@gmail.com
@@Paralelepipedo19 Thanks. Expect my mail
I am so sorry for your loss. I am so sorry the healthcare system has failed you and your family
Healthcare systeem fuc….n in Belgium also!!!!
probably shouldn’t say this here but my turbinates absolutely hate me at night. i looked into why i was stuffy and found the turbinates. i was curious to see how the body reacts without them, and i came across ENS, so i think i’ll just leave them alone.
edit: i just have messed up blood vessels in my nose
Same . I have this nasty gunk that keeps coming out of my right now every day and can't breathe. Could be allergies and/or an infection and polyps though. Either way it's annoying
Yes. The anti-anxiety meds paradoxically made it worse. I went through the same thing. It's a struggle everyday. ENS is terrible, it puts you in a strange, miserable, debilitating dark place. Pray for her family and all who still suffer.
I believe that it was the meds that led my son to take his life. There are black box warnings on them that they can increase suicidal ideation in young people.
Yes, and old alike. Went through severe benzodiazopine withdrawal. NEVER so suicidal, depressed and filled with anxiety. Add that to ENS,,,, it's a disaster. Sorry to hear about your son. Scott correct?
the problem is anti anxiety meds cause nasal dryness any meds that cause nasal dryness will make a persons breathing worse if they have ens never take any meds that cause dryness example dry mouth keep the heat in your apt as low as possible heat in teh apt will make your breathing worse also use 2 warm mist humidifiers at the same time keep them away from your computers and tvs moving to south florida were there is alot of humidity will help most people with ens
OMG my son isolated himself as well. Didn't want us to know how bad it was.
I think I've been doing this for going on 17 years and never knew why. I just always preferred being alone. So I can spend all day rinsing my nose, eating weird foods, doing weird yoga poses in my bed trying to stretch my head and neck and release the tensions that my nose causes me. ENT seem to dismiss me like I'm a "princess and the pea" situation. I am NOT. I go through so much that nobody will EVER know. ringing ears. constant tightness in my head. Well this lockdown has given me the chance to really focus on this and go to the ENT. I've gone for 3 visits and it's always just kind of routine prescriptions like "try flonase." Like I've done everything already so I suggested surgery. The ENT says I could do a turbinate reduction and rhinoplasty. Well now all these videos are keeping me up and it seems that messing with the turbinates is just bad news!
@@Paralelepipedo19 Thanks for sharing.
Interesting that she developed ENS after her nose had been cauterized. They must have burned into her turbinates somehow when they did the procedure. I’ve suffered with ENS for 7 years after what was supposed to be to fix my deviated septum but instead they cut out all of my turbinates out for no reason which I didn’t find that out until 5 months after my butchered surgery by going to another ENT and he found everything. Prayers being sent for the family of this poor victim . This is beyond devastating and heartbreaking to say the least. 🙏💔
have you found any help?
joy d unfortunately none at all 😭
@@Marinemom-ss8cf i didn't find out the truth till months later to, by having ct scan done, that my turbinates were cut...he lied the whole time.
i suffered more damage then that also.😢
There are things being studied to help, like stem cells, prp injections and implants.
Sinus surgery stole our life🙈
@@Marinemom-ss8cf hey i hope you are doing well can you tell me what are the symptoms you are having
@@rishabhgautam9 can you give your email
so sorry for your loss...from a fellow sufferer 😢
oh. nooooo is it that bad : / sorry ..
How many hours are you sleeping at night?
We have to change our view of medicine. I wish it was just ENT's wrecking lives, but this is a problem with all Western medicine. Our system is all about money, it is not about making people better.
@@davidn.2555 How odd. I got the exact same comment from someone under a different name recently. How many accounts do you have? Jesus, how desperate are you for something to be going on in your life.
@@davidn.2555 Yeah? Then why did you direct the comment at me? You could have just posted it on the video. You didn't. You put it under my comment. You think people are stupid? If you were really scared of the surgery, THAT would have been your initial comment. But you didn't even mention it til someone called you out.
@@mikes.4863 check my direct comment on this page. I'm sorry my reply was incomplete.
@@davidn.2555 Well, now I dont see a comment at all.
you gotta watch this video RIGHT NOW it's on UA-cam. look up corbett report how big oil conquered the world. it talks about at the end how the big oil tycoons became so rich that they put their heads together and started taking over ALL industries including agriculture AND medicine. medical school is so screwed up and removed from the old history of how many cures and wisdom we have.
I'm so sorry for the loss of your mom and what happened to her. Thank you for sharing and saving others from this. You say that she got "nasal cauterization." What was the actual procedure? Septoplasty, turbinate reduction or both? Thank you.
Tragic. My condolences to the family.
When you say she had her, "nose cauterized", I assume you mean she had her turbinates cauterized. I did, too. The surgery was unsuccessful (I had two subsequent blade surgeries), but I did avoid ENS. Had I see this video beforehand, I never would have had the cauterization.
If you have turbinate reduction surgery, do not let the ENT completely remove the inferior turbinate. And ask him (he should know) to conserve as much of the mucosa, which warms and humidifies incoming air, as possible.
I’m very sorry for your loss. ENS is a terrible iatrogenic condition.
How are you doing ?
have had congestion problems my whole life and was going to see an ENT, not now. no way. this poor women went through hell.
Change your diet. Remove dairies from diet. Do an IGG Elisa method blod test and remove the substances from your diet
How many hours are you sleeping at night?
There’s nothing wrong with seeing an ENT. My ENT is amazing and didn’t suggest surgery or expensive meds for my breathing problems.
Just don’t ever ever get any type of surgery especially turbinate removal or reduction those cause ENS.
My heart breaks for you. Please understand that we were put in a situation where we have contemplated ending it all, for some on a daily basis. It is a struggle. May she rest in peace and I hope one day we get the justice we deserve.
How are you doing ?
I am glad I found your channel and that interview u did on that talk show "Today now" its called I believe.My mind was full on surgery mode till I found out about ENS.Now I have changed my mind. I hope you are still alive and have found relief from your ENS after four years of no content on this channel.How are you now after having that tissue regeneration help with that Indian doctor? Please tell us through a video or in this comments section about this. For now I am going to change my diet and look into allergy treatments.
Such a terrible thing. I suffer from ENS along with many others. Very sorry for you and your family.
John Ferguson yes I had septoplasty/turbinate reduction In April 2019 it ruined my life. Severe nerve damage inside the nose and scarring
@@marklewis9061 I am so sorry. Are you sueing?
Going to try to sue. But attorneys refuse to take these kind of cases 95% of the time. They are extremely hard to win. Doctors are so well-protected. It’s just terrible.
S. Ann no
What can people do to help with the symptoms and manage by in life?
I've heard of people killing their ENT doctors and I thought it was weird until I did research and found out about this. I wish everyone knew about ENT. I've been telling lots more people.
You’ve heard of people that got this procedure and killed their doctor as a result of ENS? If so, good for them. The doctor deserves it for ruining lives.
I found out about ENS after my septoplasty turbinate reduction and polyp removal surgery
Thankfully I’m breathing and sleeping 1000x better.
I’m sorry for the people suffering from this
But for me it’s been a life changing procedure
Good luck everyone
One of thousands?
What surgery method did your surgeon use
Any Updates?
@@ClassyNasty hey! So far it’s been great I have allergies so I need to do a sinus rinse twice a day and take allergies meds
But it’s been wonderful. Before I couldn’t breath through my nose at all I was a chronic mouth breather lol
Now I sometimes just sit and enjoy breathing’
I sent my ENT a thank you letter for Christmas.
Good luck if you end up getting this
@@anthonyaddario4653 Hi Did you have any dryness in your nose? I still have dryness and its been 5.5 mos post op
sorry for the loss
I went to my surgeon today, I asked him how much of my tissue he removed. To which he replied he did not remove any but shrunk my turbinates with Radiofrequency which is the kindest (technically that’s reducing the tissue but okay) and he also outfractured them. (Didn’t know that. Hell no.)🤦🏻♀️
Lexa here on youtube had hers only outfractured and ended up with ENS. He dismissed my suggestion about my blood vessels or nerves being damaged and said it is normal to damage them while operating. Yeah sure but everyone heals differently and I asked him why then my nose is drying.
Of course he couldn’t give me any explanation. He then proceeded to suggested to reduce my left turbinate even more and fix my septum, because the air flow in my left nostril is fucked up and it could also have an effect on the drying but he can’t promise because I will be angry at him. We’ll my primary problem is the drying and it’s affects. He totally dismissed what I told him about feeling dizzy and headaches, that can not be caused by my nose. 🤦🏻♀️ He was super defensive and that’s what angers me way more. I told him I am just trying to figure out what the problem is. And he replied we‘re on the same page then.
He then proceeded to put spray in my nose against swelling even though it was not congested at this time.
It made the resistance worse and air felt cold, gave my dizzyness and blurry vision.
When I told him my nose and sinuses was infected last week and I cured it with garlic and tea he looked at my sinuses with ultrasonic to tell me they‘re free, yeah say what, now there fine again. 🤦🏻♀️ It‘s only when my mucosa dries out and is infected that I struggle hard with breathing.
He also told me out of the blue: you‘re prone to infections.
No I‘m not, I never had any sinus infections prior. Wtf.
No wonder my lymph nodes are swollen when I mouth breathe at night. Thanks for nothing.
Dizziness can be caused by ear and nose issues. It's all interelated. This doctor sounds like an ahole who doesn't give a sh*t.
I have the same issue with drying Sara. After the surgery it started, and once it dries, it gets inflamed and the. Issues with suffocation. Using xclear and nozaid helps me a little to manage the symptoms. I have however, despite everyone’s advice started to use Avamys spray, 1 spray a day to each nostril.. it does not dry me, but helps to keep the inflamation in check, I got my life back a little. But I always avoid heating, dry environment, etc, the drying bit will never go away, unless maybe stem cells injections could help, that that is not guaranteed and super expensive
@@slavasokol6270 I keep my heating low, and I use an air humidifier in my home.
Eating nutritious, keep away from smoke dust etc, drink tea, eat something spicy even or move my body. But my somptoms fluctuate a lot. I would love to get stem cell injections but it's better than when I wrote that comment.
Did you get turbinate reduction? Do you know how much tissue you lost? (For me symptoms started about 6 month after surgery) Let me know if you manage to get injections and if it benefits you.
Sara, thanks for sharing. My symptoms were there right after septoplasty where part of my middle turbinates have been chopped, do not know exactly how much of it was removed. Also use humidifier, purifiers and avoid loads of things, don’t tolerate heating, smoke, chemical scents, etc, when the weather is dry (humidity goes below 40%) it’s no good, being in open space office is also an issue and i get dry and inflamed too easily and then it’s hell for around 10 days. With the spray it is easier. Are you part of the Facebook ens group?( ens awareness)? Might be easier to communicate there. For now I am not going to do stem cells, waiting for more feedback and dont have spare 12-15k to spare atm.
@@slavasokol6270 yes, I notice when it‘s a rainy day I feel so much better.
Also I struggle with air condition (once had a few hour shared car ride in hot summer and oh god it was so bad after that) and at my work there has to be air condition in the warehouse etc.
I‘m not on facebook anymore, but will consider joining groups.
That’s so heartbreaking 😢
What is the name of a surgeon who cauterized Doloretta Lodge's turbinates on December 28, 2018?
She was beautiful. So sorry.
ENS has ruined my life
Hypnotism?
Mine, too!
I sympathise with your loss
Beautiful to be gone but Gods gain.
sorry for the family
This is real I've been suffering with ens for the past year and honestly I can't take it anymore is so horrible I feel like I'm suffocating all the time . I've been to ent and they keep saying that everything is normal . They actually suggested turbinate reduction but I just think that will make even worse my condition . I've had 2 times sinus surgery and it's just made it worse . I feel total discomfort in my nose constantly 😪 can't sleeep or concentrate on anything . I'm doing evey single day sinus rinse but it doesn't help at all . Don't know what else to try . Anyone who has this please reply on this comment 🙏
Did this happen on its own? Or a side effect of surgery?
Theres no ens if you didnt have surgery. Ens comes only after turbinate surgery or nasal surgery but most of them time its because of turbinate. If you didnt hit your turbinates with something wich again is not really possible you experience similar symptoms but no way its ENS
As patients with empty nose syndrome we are expecting to have better cures
Thank you for sharing with us. Sincere condolences 😞🙏
May your Beautiful Mother be at Peace in the Lord's arms.
This story is so sad. From the comments below it seems that a number of patients having the reduction are suffering after the procedure.
I have bad congestion from overusing nasal spray. I barely get sleep like 1-4 hours of sleep on bad days due to panic attacks and anxiety of not being able to breathe through a nostril. At least my condition is curable with time.
I can totally sympathize with those that have ENS i can imagine it being much worse and much more scary to sleep and breathe in general I’m so sorry yall are suffering. Turbinate removal/reduction should absolutely be illegal.
I got the same surgery of turbinate reduction and in pain daily. An empty nose syndrome specialist helped a little, however I am in grief myself.
What procedure did he used on your turbinates?
How are things going currently? Which specialist did you see? Have you found any relief? I’ve been dealing with ENS for 2 months and not sure if life will be worth living like this.
@@xSenorFrogx Did you have Radiofrequency or Cautery to reduce you turbinates?
@@sandyvirlo7797 well my understanding was that it would be radio frequency but when I requested my medical records from the doctor I didn’t see anything about radio frequency and it sounds like they hacked away with scissors 😣
@@xSenorFrogx bro how you doing? Im experiencing ens for 2 weeks and it's too much I'm 20 years old and even me I don't know how will I continue my life like this. It's better to die if I have to live like this for the rest of my life
I had a horrific ear problem that was not visible to the five ENTs that saw me. Long story short, it was a nerve issue that a neurologist diagnosed. Most "unseen" issues are nerve related. Just shocking that most doctors can't figure this out. Disgraceful.
@weikang cai That is terrifying!
@@fgfg633 I think I’ve got nerve damage in my left nostril after polyp surgery.
Most doctors are greedy jew assholes that dont give two shits about health or people.
@@oscarriley465May I ask what are ur symptoms?
I HAVE ENS,MY LIFE IS DESTROYED.NOONE UNDERSTAND ME AND I'M DESPERATE.
We do.. We understand you..
What did u have done
natrual honey with water spray the nose
How are you ?
I’m here. I’ll talk with you be there for you give me your number
Doctors should find a treatment for ENS. That's very horrible thing.
They need to stop these procedures. That would solve everything.
They have to acknowledge the condition exists first. All over the world they dont believe in ens wich is bad
What is happening to us is criminal. It’s nothing less than assault and battery while the innocent victims it’s performed on remain asleep while it is done. I aim to make my perpetrators pay.
@Vads T I can only speak for the U.K. when I say that it’s very difficult to get a lawyer to handle these cases as they do not consider the compensation awarded will be worth it for them.
@@21Q-h7h If someone has had part of their body removed, your “logical” response is to ask them to read some moronic book. Go tout your rubbish elsewhere.
Deep condolences to doloretta and her family may her soul rest in peace
This is truly tragic and I weep and pray for your Mom.
What the ENT's don't realize is the important physiologic function the nose has in processing every molecule of air we breathe in with every breath we take throughout our life. "Fixing" nasal airflow is an oxymoron when you ignore physiology. Part of every comprehensive evaluation should be an analysis of cellular level physiology to see if the nasal cells are normal and have not atrophied to the point of non-functional. This condition can happen for a variety of reasons. Highly recommend the book....BREATH by James Nestor.
How about if you lose sense of smell in one nostril and can feel a piece of the internal architecture obstructing that nostril because of a hit to the nose? How do you fix that?
@@kazman_6899time will heal since our body is so complex but having surgery and going wrong theres no fix. Also quit smoking and other irritants
How terrible!!! I had multiple nasal cauterisations as a child. I remember a substance being sprayed in my nostrils then a sparkler being inserted. The reaction when both substances came into contact was to burn and smoulder. Extremely unpleasant. I also had a cauterisation when I was 19. So sorry to hear of the suffering caused by ENS. 😔😔😔
I am really sorry. I am also a patient with empty nose syndrome.
🙏
Are you able to work at all?
I had my turbinates resected in 2012, just at the age of 20. I clearly remember my doctor's words who claimed the ITs have no function. I wish I did my own research but I just trusted a professional. World is cruel.
How are you doing ?
@@kaya2939 thankfully better, with implants. :)
May I ask what type of implants ? And where did you get the procedure done ?
@@kaya2939 dm
@@reka9201 how can I dm you ?
Empty nose syndrome - leere nase syndrome
Is really a real thing , as a suffer i hope everyone get Relief
Pray to god
these surgeries must stop
What's the other option?
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
What should I do instead of surgery? I've tried almost everything
@@davidn.2555 Your doctor is IGNORANT as are about half of these clowns. As for you...try a food elimination diet. Your tissue swells for a reason. Common allergies are wheat or dairy foods. Eliminate one for 3 to 4 weeks and do a GOOD job of it. If that wasn't it try the other one. If not that environmental allergies like mold or other thing could be it. Doctors who try to pin this on physiological issues are ignorant assholes and should not be doctors. If they can't understand nerve pain...dryness...headachend suffocation etc can come from damaging the nose then they are either REALLY DUMB OR REALLY CORRUPT AND CONFLICTED.
@@ensaerodynamics8615 Thanks man. I've drastically cut sugars as well
I'm going to totally stop wheat and diary and check the progress. If you have any other new discoveries please reply me here. Thanks alot
@@davidn.2555 hey bro if any of your diet plan works plz also inform me cz my nose is also tightly blocked 24/7 .
@@davidn.2555 Try homeopathy medicine
Surgeons will do this then deny ENS to save their asses. I have ENS in my left nostril from surgery
If all surgeons who have done this lost their jobs for their negligence?? Wouldn't that be wonderful? Too bad doktors are protected to the extent they are. I've been butchered and there's nothing I can do.
Realy sorry for your mother, emptynose syndrome is a nightmare, my cauterisation ruined my life. It's a mondial big lie.
Just like their vaxxines
I was injured on the job hit to the nose. Gave me deviated nasal septum. Both sides of my nose when I see the ENT specialist told me that I need surgery and to fix the bone in my nose. I might need a doanter bone, I am terrifying. I feel so sorry for that lady 😢
Barbara how are you doing ? Any updates on the treatments by DR Das ?
He stopped treating new ens patients
A year ago I had a turbinate reduction surgery and I was left with a lot of nerve pain. I have been prescribed tegretol but have not taken it yet. Someone has tried? If you have any recommendations, I'd appreciate it.
God bless you, our systems are broken. In heathcare you need compassion and there is not a lot.
All about the $$$.
Anyway, I had the operation in 2019,the doctor said that the operation was successful However, in the first days of the operation, I couldn't sleep because my throat was drooping, no examination was made for 7 days even though I called the doctor's assistant, 7. When I went the next day, the plaster was removed and a spray was given for the sagging in my throat. Even though I only informed that the hole in the septum would be closed, the doctor had already filed my already small nasal bone, lifted the tip of the nose and expanded my nose to the sides, making it almost like a black nose.
The main problems appeared on the 14th day when the tampons in my nose were removed, my breathing changed strangely, I was constantly short of breath because I could not feel my breathing, I was trying to breathe deeply, this caused me to be busy with my breathing and not be able to focus on anything else during the day, My sleep at night was also often interrupted, when I told the doctor about this situation, I opened your nose like a cave and he said you need to be able to breathe very well.
I came back from Istanbul and started to continue my work, but there was still abnormality in my breathing, my nose hurt while breathing, I started to breathe through my mouth constantly during the day, I had no solution for the night, I would fall asleep at night, I would wake up with panic and heart palpitations, this situation always happened. It was repeated at least 10 times a night, my under-eyes collapsed, my body began to weaken, I was sluggish and tired every day, I couldn't focus on my work, my social life was over, I was forced to come and go between work and home, I spent the rest of my time trying to sleep, I didn't even have to clean my house.
Moreover, because I was constantly sleepless, I started to lose my health day by day, my heart could not stand the sleep apnea I experienced at night, it became tired, now I had constant heart palpitations and I was on my way to heart failure.
3 years after the last surgery, in 2022, when I was examined by an ENT professor and told my complaints, he looked inside my nose with an endoscopic camera and your 2 lower turbinates were completely removed, the hole in the septum was reopened over time, you can't feel your breathing because the turbinates have been removed, and there is also a feeling of pressure because the inside of your nose is very wide. It does not form, so when you fall asleep, you wake up in panic because the brain cannot feel that you are breathing. Moreover, there is no cure for it, just as a severed finger cannot regenerate, so do the turbinates. He said to use a nasal humidifier, but the room did not work.
And when I was a person who loves life and tries to stand up in all circumstances, I even thought of committing suicide, I don't know how many times I will end up, think about it, you can't feel that you are breathing and this is a situation that repeats every second. I am only 30 years old, but I collapsed for 10 years. I have a heart disease. When I searched foreign sites for empty nose syndrome, I saw cases of suicide and even cases of heart attack.
All I can say now is this: How is medical education given in Turkey, how can the doctor who operated on me, knowing that I will have empty nose syndrome, can take all my nasal passages completely, we entrust our lives to these doctors! I wish I had never had that pituitary surgery and hadn't fallen into this situation. I have no right to such doctors, they ruined my life. Of course, there are good doctors, but I have always had bad ones.
No matter how much I rebel, this life will pass like this, this is my test in life, I have no choice but to be patient.
I hope that a cure will be found as soon as possible for those who have ENS syndrome like me and myself.
All these "solutions " come from western Europe and usa generally. They are the main butchers and their medical organisations are nothing butcriminals trying to get more clients for their chemicals
Are you working now?
The ent surgeon killed dory.the ent surgeon reduced dories turbinates and caused her horrific ens.dory would still be alive now .listen i know what im talking about i have suffered with ens for 10 years.the damage has already been done.
🙏
So ive been having this deviated septum since highschool, but starting 24th january 2020, i started to experience symptoms related to ENS even without surgery and my diaphragm jolts whenever i tried to sleep. Can anyone tell me what is going on with my nose?
@@sandeepgarcha4980 like i said, i never had any surgery
That's not ens I can tell you. I had deviated septum and when I sleep I was always breathing with mouth and I was suffering alot and I will gas out doing little chores but after experiencing ens I rather have those symptoms then ens
@@sir7305 hows you now brother
@@akshaythakur9702 im still having a hard time breathing and no surgery yet
@@sir7305 bro same i never had surgery but lost my air sensation
you cant trust ent surgeons they dont always tell you the risks of surgery on nose. mine didnt. and i got EMPTY nose syndrome and pain.
then ent drs ignore and pretend its in my head and never help me
ENS/turbinate injury is very real and far from psychological. Well respected Dr.s within the field of Ent have already blown the whistle on the true dangers of turbinate surgery procedures. It is a common fallacy spread by those in the field who continue to fool the public that altering an essential organ can diminish chronic stuffiness or inflammation.
One of the biggest contradictions is that patients are screened thoroughly before a surgery (Both for physical and mental aptitude).
What occurs is when a patient has a bad outcome and mislead about the safety and efficiency, these very "Dr.s" who patients put their trust in have no back up plan to reverse the damages. They do not want to be held liable for any wrong doing.
This is not the first or last time medical professionals who perform and market overly routine procedures have caused harm, then use the "psychological disorder" card.
I have obstructive sleep apnea & have never kept my cpap mask on due to mouth breathing because of enlarged turbinates. Any suggestions on alternatives to turbinate reductions? Having untreated sleep apnea creates that lack of energy and exhaustion that happens for ENS sufferers. So I fully empathize that part. I never feel rested, but I can breathe & don’t have all the other things to deal with that those with ENS have. I’m working on losing weight, do avoid things like gluten & dairy most of the time, & am now on an allergy routine of Claritin in morning, Singulair before dinner, & 1 Benadryl right around or right after dinner. Benadryl makes me groggy next day, so even if it’s helping me breathe at night to help the OSA that I have, I am not rested or aware enough to know if I have any improvement from that routine.
Bimaxillary advencement (MMA). With a maxillo-facial surgeon.
urine therapy and dry fasting
Barbara how are you doing? Could you update on the stem cell and PRP therapy. I'm from Pakistan and researched you on internet. I need help myself regarding ENS.
What was the cauterization for? For deviated septum?
wow im supposed to get mine this dec 28... second guessing that now
Did you ever get it done? If so, how did it go?
I’m not doing it now. This sounds terrible then a stuffy nose and ear
@@tashadavis2999 i decided against it. I didnt even have a problem with it... my doc just recommended it after i told him i was having ear problems... so I canceled because that wasnt even for my initial symptoms.
Survivor of ENS & S.... I can't even say it... the algo don't like it.
I got my surgery slightly before her & summer of 2019 attempted.
I have my court date tomorrow in this 4 year long battle for SSDI.
Although still sick, I've gone on to do amazing things... I am a musician & performer...
I wear a mask & wear breathing devices under it...
At every show & every song just about I talk about this...
In my last song "GASLIGHT" I rage out on the doctor that did this. It's a Trap/Metal track
in the last few years so many treatment advances and awareness have happened... NO DOCTOR Today could get away with denying this ... some may still try.
I'm so Happy to see Cancelled Surgeries below.
If this is happening.. something is wrong and ofc the doctor will say this isn't the case..
This is how they get insurance money. They operate & want to be done with you.
Thank you for doing such a beautiful job spreading the word.
As long as I'm still alive i will.
You do not have ENS, you never even had turbinate surgery. You had a rhinoplasty and experience certain symptoms due to narrow nasal valves. Not every issue after nose surgery is ENS.
I heard this is very serious?? like I heard ENS is very bad... sorry for you loss
Does balloon sinuplasty cause ENS?
There's a lot of syndromes out there that nobody's ever heard of.this syndrome seems terrible to live with. May she rest in peace with our Lord and Savior Jesus Christ.
Sounds like tons of doctors
I’ve been sick 14 years and they blame mental
Sounds so much like me
Throwing meds at me
Sleep issues
Dryness
So sorry for your loss 🙏🏻
My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
What should I do instead of surgery? I've tried almost everything
Don't do it
@@rkn160 What should I do?
@@davidn.2555 which turbinate is hypertrophied, middle or inferior???
@@rkn160 Inferior. It's so bad in the CT scan
@@davidn.2555 Little reduction does not cause much problem.is your septum deviated?
I'm scheduled to get my septoplasty and turbinate reduction soon. I'm in a very precarious position as I have tried everything in the book with regards to lifestyle such as adjusting diet, exercise, sleep, and stress management, not including the nasal sprays I used for months, but got zero relief from. After hearing about the risk of developing ENS, I really don't know what else to do to fix my chronic nasal obstruction. Any suggestions?
Try eliminating dairy, sugar and wheat from your diet one at a time, also try cutting out spicy foods
@@Lander76 I have tried all that and nothing has worked
Did you get the surgery?
I have the same issues as you BUT I rather live with them then ENS. Take care!
Did you get the surgery? If so, how did it go
Can we get ENS while inhaling directly into an active boiling water, in which the fire is still on? Which gives this sharp feeling in the upper part of the nostril due to the heat
@Bak Chu i see
Doubt it
Steam inhalation will not cause ENS. If you’re getting a sharp feeling in your nose from steam inhalation you are probably way too close to the steam. ENS is only caused by surgeries where the turbinates are messed with.
@@sir7305 how you now bro
Not necessarily.there can be other factors apart from nose surgery.stop cleaning your nose,blowing your nose or picking your nose.also pls stop steam inhalation.
What do you guys think about this covid PCR test because it involves the tubernates and the upper respiratory system. They are in there just digging and pocking away. Very strange...
It's cotton on a stick. Hows that gonna harm your nerves? It's just to collect slime which could contain the virus. Not to harm your nerves, it'd have to be sharp to do that.
@@acca1170 I was learning about tubernate damage from sinus surgery and I remember reading that even just slight trauma from different tools (cotton swabs being one) can harm them. I wish I had the reference. If I come across it, I'll definitely be sure to post. Thanks.
@@ashleywilliams4149 A cottonswab doesn't pierce the skin though (nerves being under the skin). So unless the procedure draws blood from the amount of force I don't think you have to worry.
@@acca1170 I understand where you're coming from. You have to do what you feel comfortable doing. After learning about ENS, I'm not doing it. But best of luck.
Pcr tests are a scam
Mayo Clinic was the only clinic that could diagnose this and treat for me.
How did you have it treated?
Mayo Clinic in MN ?
Mayo Clinic does not treat ENS.
How did they treat you?
@@davidn.2555 Mayo clinic treats ENS with mayonnaise.
Feel sorry about it.
@mikeodee
the problem is anti anxiety meds cause nasal dryness any meds that cause nasal dryness will make a persons breathing worse if they have ens never take any meds that cause dryness example dry mouth keep the heat in your apt as low as possible heat in teh apt will make your breathing worse also use 2 warm mist humidifiers at the same time keep them away from your computers and tvs moving to south florida were there is alot of humidity will help most people with ens
Completely wrong. This is a surgically caused illness to a respiratory organ. Trolls be everywhere these days trying to stifle Ens truth.
I have ENS. To be fair, these drugs could have pushed her over the edge. Antidepressants and anti-anxiety medications can help push people over the edge.
I honestly don't think I'm going to make it either.
I hope you’re hanging in there. I’m going thru this as well. Have you been able to find any solutions that help?
@@xSenorFrogx no I've got more pressing iatrogenic problems to deal with
@@sandywhat2429 oh no, I’m sorry to hear that. These doctors are really out here to just milk the insurance companies. I’m so frustrated with the system. I’m sorry to hear that doctors have caused more issues for you. I thought ENS was bad enough. I’m sorry that you have other iatrogenic conditions. Stay strong and if you ever need someone to talk to or anything I’m all ears👂🏻 I know I wish I had people to reach out to that could actually understand what I’m going through.
There should be more awareness about empty nose syndrome, maybe if it was a well-known syndrome, I wouldn't have come to this with surgery,
I don't understand how a disease that seriously reduces the quality of life does not come to the fore.
Is the air hunger related to the loss of one’s ability to breathe through thy nose correctly?
I have the same problem and I do not know or I want to live when this situation!
Где вы сделали операцию и какая операция у вас была ?
@@shokhrukhdzhalolov5428 операция была в Бельгии. Конхотоми . Я несколько месяцев назад вставила имплантант. Не помогает
@@svetlana4759 мне очень жаль слышать про это вот я сделал операцию в сша ну стало чуть лучше чем было
@@shokhrukhdzhalolov5428 a у вас тоже боли были или есть и слабость в ногах? Вам делали из ребра имплантант? Я буду просить вторую операцию
@@svetlana4759 нет у меня ничего такого не было
one small instrument is there to help with it,to be put in both nostril,with it less amount of air comes to your nostril...and it helps
So sorry she didn't have a decent surgeon and decent, effective follow-up diagnosis/care.
Are there any left? Look what is happening with side effects form vax and they don't want to admit it. Same lack of care
Happens with even the most seasoned surgeons. Many in support groups have shared their testimonies from all backgrounds. Those that need to be sorry are those in ear nose and throat who continue to sell these unscientific procedures to patients who have no idea how complex the turbinates are and how important they are to the human body.
If anyone is suffering from ENS,pls stop blowing your nose and use lanisoh nipple cream with Q tip inside nostrils.hope this helps someone..
Tried lanolin cream and did not help. Could have been just my experience.
All ENT offices need to be treating ENS! There ought to be a rhineologist in every ENT office who treats ENS.
Please reply.....i never had surgery on mY nose in my life ...last year December month i have strong flu my trubunate swelling doctor prescribed me nasal spray i only use this spary one week and i lost my air sensation...i am scared what happen with me please reply...i consult with a ent doctor she says my lest nose turbinate swelling and right nose dry mucous i tried everything but i not got any relief what should I do for dry mucous....please reply😭
Spammer
Bro don't take surgery, and try not to take too much nasal spray the more you take the more u become dependent on them and if u stop the block nose is more. So I'll just say give it time. I did surgery and I regret every moment so I'm saying don't take the risk it's not worth it
@@KhalKhtri bro it's four month i use nasal spary one week use and lost my air sensation doctor says i have dried mucous
@@blankspace7161 bro i stop nasal spary from one month ....but i don't any relief I don't know what's happen with me....i am from India i met with a doctor ens specialist he says my mucous is dried and he says therapy of stemcells
@@akshaythakur9702 that toh I don't know I reduced my turbinates and now I hve ens every min is a stuggle. If ur turbinates are not touched then it s fine I think. I'm frm india too which state r u frm?
I agree!
Her mother was beautiful.
no reason for the nurse to say that or talk at all.