Fighting the good fight against ALS

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  • Опубліковано 12 лис 2024

КОМЕНТАРІ • 79

  • @JiminPalmSprings
    @JiminPalmSprings 11 місяців тому +41

    Makes you think about not complaining so much about what’s going on in your own lives when this family is dealing with this… Really inspirational

    • @bobsturgis4674
      @bobsturgis4674 11 місяців тому +1

      I agree with you very much.Also has i have thought for sometime now.When you think you are having a bad day.Go turn on the news,i will bet someone else is having it worse then you.

    • @RobdeKlerk-qg6lc
      @RobdeKlerk-qg6lc 9 місяців тому

      Is lhermitte sign present in als

    • @brianreardon7700
      @brianreardon7700 Місяць тому

      Very true

  • @schawnettarobinson8584
    @schawnettarobinson8584 11 місяців тому +9

    He is surviving longer because he has real and genuine support. I’m so happy for him. May God continue to bless him and his beautiful family.

  • @romstar
    @romstar 11 місяців тому +22

    To have a wife like Brian does in Sandra ❤😢makes you believe that there are angels 💖 among us! Everything about her is beautiful 😍

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      Encounter Ministries UA-cam channel. Mark Hemans

  • @tfrauenhofer1309
    @tfrauenhofer1309 11 місяців тому +15

    I had a friend who suffered with ALS for almost 20 years before she passed. She fought the good fight up to the end. I wish Brian a long life with his family, and that he can keep fighting the good fight!

  • @hankmike3283
    @hankmike3283 11 місяців тому +15

    He is a blessed man to be loved lile he is by his wife.

  • @Scott-pe6te
    @Scott-pe6te 11 місяців тому +7

    Both Brian's and Chris' stories are inspiring. In fact, we need a new word for inspiring after watching this. There are so many diseases that not only rob people of their lives but steal their dignity as well during prolonged suffering. ALS is an especially cruel one. I had a close family member pass away from ALS several years ago. I know firsthand what this terrible affliction can do.
    Science inevitably will beat ALS. I remain optimistic of this after watching this touching video.

  • @rose03cruz
    @rose03cruz 11 місяців тому +16

    Thank you Brian and Sandra and all who have worked for those with ALS. My mother passed away from ALS in 1979.

  • @captainnima
    @captainnima 11 місяців тому +5

    What a man and frankly what a wife and woman. Amazing couple.

  • @lprice5583
    @lprice5583 11 місяців тому +15

    I love CBS Sunday Morning! Thank you for all of the great stories.

  • @ADRgman
    @ADRgman 11 місяців тому +14

    I lost my 4th grade teacher to ALS and it must have been hard for her family to see her like that.

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 11 місяців тому

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

  • @lukodaian
    @lukodaian 9 місяців тому +3

    Many thanks to his wife ❤

  • @angellosmalefakis1321
    @angellosmalefakis1321 11 місяців тому +2

    Wow! This is beyond words the dedication of family for their right for medicine and care. Wow! Words are not enough here.

  • @c.golden8280
    @c.golden8280 5 місяців тому

    I’m grateful to Brian and Sandra for cofounding Synapticure. I was diagnosed with Parkinson’s and am now benefiting from their work.

  • @addiemclain1183
    @addiemclain1183 11 місяців тому +7

    What a great story!! This is my fight song!!

  • @libertyann439
    @libertyann439 11 місяців тому +16

    What a sad, cruel disease. Addy Barkin just recently died from ALS after being an activist for years in. Washington.

    • @jolness1
      @jolness1 11 місяців тому

      I saw that. Tragic, he fought so hard and that legacy lives on

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@jolness1 Encounter Ministries UA-cam channel. Mark Hemans

  • @davefarr4596
    @davefarr4596 11 місяців тому +11

    I lost my grandma my mother my aunt and my little sister to ALS. I’m no stranger to this heart breaking disease.

    • @Elena-kc3vw
      @Elena-kc3vw 11 місяців тому +1

      So terribly sorry for such losses. ❤

    • @schawnettarobinson8584
      @schawnettarobinson8584 11 місяців тому

      I’m so sorry: May God continue to continue and keep you. I hope you have a good and stable support system.

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@schawnettarobinson8584 Encounter Ministries UA-cam channel. Mark Hemans++

  • @dianabarrick4663
    @dianabarrick4663 11 місяців тому +6

    May God bless you and keep you and your family ❤

  • @adelaferreira4575
    @adelaferreira4575 11 місяців тому +3

    Wow ,we should stop complaining about the little things that happens to us ,my deep respect for both of them ,wonderful couple,horrible disease ,brave people ,many blessings !

  • @lucindaarmstrong1162
    @lucindaarmstrong1162 11 місяців тому +11

    My husband’s doctor refused to come to our house to see him when he could no longer safely leave our house. He was connected to so many machines, it was impossible. ALS took him but I still resent the medical profession that cited rules about security.

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      Encounter Ministries UA-cam channel. Mark Hemans

    • @Asherman27
      @Asherman27 11 місяців тому

      I can totally understand this. I’m so so sorry this has happened to you and your husband.

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@Asherman27 Encounter Ministries UA-cam channel. Mark Hemans**

  • @kb8990
    @kb8990 11 місяців тому +2

    God bless these people.

  • @alexandraperle6260
    @alexandraperle6260 Місяць тому

    What a remarkable couple.

  • @carolsopinski4549
    @carolsopinski4549 11 місяців тому +1

    God bless him and his family❤

  • @67marlins
    @67marlins 11 місяців тому

    The wife is an angel.....

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 11 місяців тому

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

  • @user-sx4si6jv9x
    @user-sx4si6jv9x 11 місяців тому +1

    My beloved aunt passed from this truly awful disease. Patients should absolutely have the right to opt for unapproved medications.

  • @susankamaka745
    @susankamaka745 11 місяців тому +1

    My brother-in-law was diagnosed with ALS in 2019. He passed away in 2021. His illness progressed very quickly. He never complained. I was so fortunate to stay with him and my sister for the last year and a half of his life, and witness how he handled his life with such grace. ❤️. Your dedication to helping and pushing for the medication so desperately needed is truly selfless and inspiring. Thank you, thank you, thank you. 🤗❤️

  • @yvonnecooper5004
    @yvonnecooper5004 11 місяців тому

    Research is so important. Proper care expensive. Glad there have been advances during his journey and I hope they continue. Give the torch to someone else for awhile and enjoy your family.

  • @panchamama
    @panchamama 11 місяців тому

    You are amazing...sending all my love ❤

  • @wdh47211
    @wdh47211 11 місяців тому +8

    My brother died from ALS....misdiagnosed over and over again....then finally it was too late and he lost his quality of life and died from it. Horrible death. Basically, just waste away and lose your speech and abilities to function.

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      Encounter Ministries UA-cam channel. Mark Hemans

  • @cherylmillard2067
    @cherylmillard2067 11 місяців тому +7

    Dogs can get a canine version of ALS called degenerative myelopathy, the same mutated genes are involved, it can also be inherited along familial lines.

  • @caeserhuitron9967
    @caeserhuitron9967 11 місяців тому

    A beautiful story❤

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 11 місяців тому

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

  • @chrischristoferson1191
    @chrischristoferson1191 11 місяців тому +1

    I cannot imagine being so young being so disabled.

  • @mattwatson-h5t
    @mattwatson-h5t 11 місяців тому +2

    Sorry Mr.Henry Louis Gehrig. The Iron Horse is officially.... forgotten 😢

  • @Spring-26
    @Spring-26 11 місяців тому

    God bless and hill him❤️💯🙏

  • @jeris33
    @jeris33 11 місяців тому +1

    He could get his voice back with I Will Always Be Me.

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      Encounter Ministries UA-cam channel. Mark Hemans++

  • @yvonnecooper5004
    @yvonnecooper5004 11 місяців тому

    I wish a person néeding a quality caregiver could apply for a grant to cover the cost. Access is a real problem.

  • @ryancampbell5039
    @ryancampbell5039 11 місяців тому +3

    My god, what a horrible disease. Makes me angry that people are robbed of time.

  • @lbbean6544
    @lbbean6544 11 місяців тому +4

    I personally know people who are currently in the process of reversing their ALS symptoms and they are not ‘hanging their hat’ on the hope that 1 ‘miracle drug’ is going to cure them.

    • @Asherman27
      @Asherman27 11 місяців тому

      Yes!!!!! Love this. My mom is doing the same. The medical community has let so many down with alternative ways to help research and treat this horrible disease.

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@Asherman27 Encounter Ministries UA-cam channel. Mark Hemans++

    • @motorevving9529
      @motorevving9529 7 місяців тому

      How to reverse als symptoms? Can you help me?

    • @kfj232
      @kfj232 23 дні тому

      Please please tell me how to reverse this! Please. I have a disabled son to take care of please I beg you.

  • @ludovicoc7046
    @ludovicoc7046 11 місяців тому +2

    Thanks for not referring to ALS as "Lou Gehrig's Disease, " even though I see it in the episode notes. Now that there is a medically accurate term--ALS, it's time to retire his namesake moniker because several generations have no idea who Lou Gehrig was, and he should be remembered for his exploits on the baseball diamond instead of having the bad luck to have come down with a disease that would be named after him.

  • @JMD7379
    @JMD7379 9 місяців тому

    My cousin just died last week from ALS. She got the covid vaccine and then started showing strange symptoms and thought that was the cause. It took her within 2 years. Horrible disease.

  • @Theantichryst
    @Theantichryst 9 місяців тому +1

  • @INTERSTELLAR1111
    @INTERSTELLAR1111 4 місяці тому

    DRUGS DON'T HELP !!!!!!!!!!!!!!!!

  • @007peeper1
    @007peeper1 11 місяців тому +4

    ALS is a horrible disease. My best friend just passed away. What is the cause of ALS? Maybe if we find the cause, toxins in our food, utensils, air. ?

    • @Asherman27
      @Asherman27 11 місяців тому +3

      100% this. It’s not just a “genetics” thing. They need to do MORE to help the ALS community. My mom fights everyday with this disease and she won’t give up

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@Asherman27 Encounter Ministries UA-cam channel. Mark Hemans++

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 11 місяців тому

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@DavidLesterStraight-lb1ps Encounter Ministries UA-cam channel. Mark Hemans++

  • @soniaalvarado5372
    @soniaalvarado5372 11 місяців тому +1

    There is a cure, we just haven’t uncovered it yet.

    • @DavidLesterStraight-lb1ps
      @DavidLesterStraight-lb1ps 11 місяців тому

      Here it comes!!
      A lot has been happening recently, I hope you are aware of the sudden GCR?

    • @ronniebattle1310
      @ronniebattle1310 11 місяців тому

      @@DavidLesterStraight-lb1ps Encounter Ministries UA-cam channel. Mark Hemans++

  • @janetjohnson7279
    @janetjohnson7279 11 місяців тому +3

    ✨✨ First!! ✨✨

  • @carolcalton4720
    @carolcalton4720 11 місяців тому +1

    I have lost three loved ones to this horrible cruel disease with another one dealing with it now.