Thanks for posting. Too many people suffer years with the Celtic Curse before they are diagnosed, even when their metabolic lab results indicate high iron. We have to do our own research and beg doctors for answers. There is information and societies in UK and Canadian, but people and doctors in the US need to know about this condition.
Omg, you sound like what I went thru. I was having so many physical problems. The drs kept telling me different things. And the heat was so odd and horrible. I just kept telling myself i was going thru menopause in my 40’s and it sucked with all my other problems. Finally a decent dr found HH. I had to go every week for phlebotomies for a while then every 2 wks. Only because my blood was too thick and had particles in it. It took a year to finally see my blood drain like a faucet. I was so happy. They told me the iron had been stored everywhere and thats why it was so thick. Scary ☹️I'm so thankful now and have been getting labs done a few days before phlebotomies they do monthly. A lot of damage done before that diagnosis. I've been mediterranean diet minus red meat for a couple years now. I used to use cast iron skillets but had to stop. I miss using them and especially some good steak 😞All the changes I’ve made have helped ease the heat and a lot of pain. Still suffer but I’m better than i was. At least I can function. I love cooking but it does take a lot! Tiring! But so worth it! Take good care of yourself! P.S. Great video! Keep up the good work!
Mamma, your story sounds so much like Shaun’s! I’m so glad they found the issue! The treatment sucks but it could be worse! At least now, we’re aware and can do the necessary! Glad to hear we’re not alone and hopefully this will help others going through this! Thank you for watching!
@@CaseyDever85 I'm just glad to hear from somebody here in the USA with similar stories! I have the gene from both parents. My oldest brother passed never knowing and same with my sister never knowing. ☹️ I'm sure they had it too. The blessed part is we know and can help ourselves. I'm sure your thankful Shaun found out otherwise he'd have gotten worse. God bless you guys! Great video and hope for more! America needs to wake up in more ways than one. Not just the Drs...😂
Thank you for posting. My husband was just recently diagnosed with HH. It took 10 years to get answers. The daily struggle is real. I look forward to your next video.
Thank you for sharing. I am so looking forward to the rest of your story. I wanted to do a video like this, but I don’t have the knowledge of how to post so I am sharing your video to get the message out. I suffered for 15 years till a new doctor finally sent me for testing. He literally saved my life and possibly my children and grandchildren as well. I felt like everybody looked at me as a hypochondriac or crazy. I knew something was wrong and just like you all my tests come back and was told “There’s nothing wrong with you.”
That’s the worst is not getting any answers and feeling like crap. At least we’ve discovered what we’re suffering from. I hope your symptoms are being alleviated by the phlebotomies
I am also in KY and on this same journey. I go to KY Blood Center in Middletown. Looks like you are traveling in my area. Have you found good medical providers there?
Thanks for posting. Too many people suffer years with the Celtic Curse before they are diagnosed, even when their metabolic lab results indicate high iron. We have to do our own research and beg doctors for answers. There is information and societies in UK and Canadian, but people and doctors in the US need to know about this condition.
You are 100% correct
Thank YOU for sharing this.
Thanks for listening
Omg, you sound like what I went thru. I was having so many physical problems. The drs kept telling me different things. And the heat was so odd and horrible. I just kept telling myself i was going thru menopause in my 40’s and it sucked with all my other problems. Finally a decent dr found HH. I had to go every week for phlebotomies for a while then every 2 wks. Only because my blood was too thick and had particles in it. It took a year to finally see my blood drain like a faucet. I was so happy. They told me the iron had been stored everywhere and thats why it was so thick. Scary ☹️I'm so thankful now and have been getting labs done a few days before phlebotomies they do monthly. A lot of damage done before that diagnosis. I've been mediterranean diet minus red meat for a couple years now. I used to use cast iron skillets but had to stop. I miss using them and especially some good steak 😞All the changes I’ve made have helped ease the heat and a lot of pain. Still suffer but I’m better than i was. At least I can function. I love cooking but it does take a lot! Tiring! But so worth it! Take good care of yourself!
P.S. Great video! Keep up the good work!
Mamma, your story sounds so much like Shaun’s! I’m so glad they found the issue! The treatment sucks but it could be worse! At least now, we’re aware and can do the necessary! Glad to hear we’re not alone and hopefully this will help others going through this! Thank you for watching!
@@CaseyDever85 I'm just glad to hear from somebody here in the USA with similar stories! I have the gene from both parents. My oldest brother passed never knowing and same with my sister never knowing. ☹️ I'm sure they had it too. The blessed part is we know and can help ourselves. I'm sure your thankful Shaun found out otherwise he'd have gotten worse. God bless you guys! Great video and hope for more! America needs to wake up in more ways than one. Not just the Drs...😂
Thank you for posting. My husband was just recently diagnosed with HH. It took 10 years to get answers. The daily struggle is real. I look forward to your next video.
Thank you for watching. I’m right there with him.
Thank you for sharing. I am so looking forward to the rest of your story. I wanted to do a video like this, but I don’t have the knowledge of how to post so I am sharing your video to get the message out. I suffered for 15 years till a new doctor finally sent me for testing. He literally saved my life and possibly my children and grandchildren as well. I felt like everybody looked at me as a hypochondriac or crazy. I knew something was wrong and just like you all my tests come back and was told “There’s nothing wrong with you.”
Thank you for watching and sharing the message. I hope it helped. Or, at least made you feel like you’re not alone…
Thank you for making this video. I’ve shared this with friends and family to try and explain what it’s like having this as you have put it so well 👍🏼
Thanks for sharing!!
Good video. I have this complaint as well
Thank you for sharing. There's so much to learn about this condition.
Sry for late response. You are very welcome. You are 100% correct.
Diagnosed in November 2023 ,5 venesections in . Chattanooga TN here .
It’s been 4-5 yrs for me. In Kentucky
That’s the worst is not getting any answers and feeling like crap. At least we’ve discovered what we’re suffering from. I hope your symptoms are being alleviated by the phlebotomies
Thank you ! It’s like you’re putting words to my life!
You are so welcome. I’m with you. I really hope the video is helping people.
Bad Body Aches are my worst symptoms
I can totally relate
Part 2 is now up for viewing for those of you waiting to see it. Thank you all…
ua-cam.com/video/RhzUtWVWVdI/v-deo.htmlsi=1m7LVEuzFlIIwoc2
I am also in KY and on this same journey. I go to KY Blood Center in Middletown. Looks like you are traveling in my area. Have you found good medical providers there?
That’s exactly where I go too.
ua-cam.com/video/RhzUtWVWVdI/v-deo.htmlsi=dLddd7XELH0jhRv3