Maggie Buckley

In this episode we’re going to talk to Maggie Buckley, a long-time member of the community who was diagnosed with hypermobile EDS when she was a child. Recently, a genetic test revealed she has the gene mutation for Loeys-Dietz type 5.
If you want to know what an okapi is, check out this info here. (www.britannica...)
Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org (thevedsmovement...) , loeysdietz.org (loeysdietz.org) , and marfan.org (marfan.org) .
If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit
calendly.com/d...
Links to resources, events, and research opportunities:
VEDS Collaborative Research Study: Email [e-mail] (mailto:[e-mail])
Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:
marfan.org/cal...
Join a Walk for Victory:
marfan.org/walk/
Help and Resource Center
marfan.org/ask
loeysdietz.org...
thevedsmovemen...
Support
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Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
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