DNRS for POTS & CFS | Story & Honest Update
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- Опубліковано 10 вер 2024
- DNRS for POTS & CFS | Story & Honest Update
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I was trying to say that fibromyalgia is NEUROLOGICAL, so it IS a physical condition, but it’s caused by the brain & originates in the brain!
Thanks for your honesty Georgina, it didn't help me either. There can be a lot of unpleasantness online directed at anyone who says DNRS didn't work, an attitude that "it must be your fault for not thinking positively enough" etc so it is nice to hear a clear physical explanation.
ld bryan you’re welcome! And it’s good to hear from you and your experiences, but I’m sorry it didn’t work out for you either. A lot of people had asked me about it and I didn’t just want to give a flat out ‘no’ when people asked if it had helped me, as I do think it can be a helpful system, but it’s also important for people to realise it’s limitations and why it helps some people and some conditions but not others. And I have definitely received a lot of that sort of comments before too, as well as people being angry at me for saying I didn’t think it would help their genetic disorder (when they had asked about it) for example, so just have to try to brush those things off
2:59 I understand it perfectly, which should at least tell you something.
You're better at explaining this than you think. Well done!
Bert Visscher thats good to know! Thanks Bert! :)
thank you very much. I have POTS and EDS.... And now I understand that POTS is cause by my genetic variations.
You’re welcome!
Same as lightning process , very culty, and about money.
I have to go on a ‘pain management’ programme in January.
It’s not compulsory, but if I don’t go I’ll be kicked off the pain management team at the hospital.
Last time I went on a course they kept trying to teach us weird exercises, like ‘imagine your pain is a white light, now imagine it changing colour and getting darker as you feel your pain reducing’ - I’m not saying it doesn’t work, but it’s hard to take it serious while laid on a yoga mat and my knee popped out backwards and it took all the focus I could spare not to scream my head off...
...and why, why, why, do you have to keep giving a number to your pain?
Numbers are to count things like bananas and squares of chocolate - pain is lots of different things, like the stabbing a dagger into your joints feeling, the crushing your bones together feeling, electric type shocking when your bones rub together feeling, a searing burning, a twisting a knife blade sensation, a pulling your muscles off your bones cramping feeling, a feeling like your head is about to explode tight band feeling, or feeling like your legs or arms are being ripped off, or a deep inside aching feeling where you can’t reach to rub it, a throbbing and being able to sense your pulse making pain waves feeling, or a I can’t breathe even my eyelashes are hurting feeling, none of which are able to be ‘counted’ between 1 and 10!
(...and the joy when you pop a joint back in and it changes from feeling like your legs are being torn off to just a deep ache instead!)
(Sorry, pain-somnia getting to me at 4am and I’ve taken all the meds I’m allowed to!!!)
billieblue Sheepie I hope the course in January is better than the ones you’ve been to before! And everything you said is so true! Especially how you described the feeling when I joint goes back in, that’s EXACTLY how it is for me too!
Yes right with you. mine is like a hook under tendons and its pulling tendons out and up. LIke rats chewing on my bones. like being cut with a glass but it never ending. Those courses are great for some but for those of us in near constant chronic pain, we are like the escimos with 100 words for snow. When ur in agony near 24/7 there are way more ways to describe it eh.
Billie's Craft Room so true! And I learnt about the eskimos with the words for snow at uni aha
I’d never heard of this DNRS before this video and now I know what to do. Thanks Georgina xxxxx
Penelope Polins née Meyer xxxx
That makes a lot of sense thanks for letting us know! Also your hair is so beautiful!
Fiona M a lot of people have been asking me about it for a long time, so thought I would just answer it in a video :) And thank you so much!
Super useful! Thanks. I have HSD, FM and CPTSD and my therapist is encouraging me to do DNRS. You’ve confirmed what I’ve been saying to her which is that it may help with the FM AND CPTSD but is unlikely to have an impact on the HSD other than maybe coping with the symptoms a bit better. I still may well do it but I’m glad to be managing expectations!
Nancy Mendoza you’re welcome! Sounds like you already have a pretty good understanding of it- I think you’re exactly right with your expectations!
I have a problem with the cost! It’s not accessible for everyone.
Agreed
You explained it beautifully!
Thank you, I hope it helped!
Thank you so much for this
You’re welcome!
Super interesting, thanks for sharing! 🙂
Kayla Cote 😊
Forgive me posting twice but if anyone wants the book called Understanding Hypermobile Ehlers Danlos syndrome and Hypermobility spectrum discord its from Redcliff house and this is THE book www.redcliffhousepublications.co.uk/product-page/understanding-hypermobile-ehlers-danlos-syndrome-hypermobility-spectrum-disord Its fantasic as it goes into the tests for the various things, the symptoms and co morbidities. Its quite a medical based book but when u read through it and can go yes I have that and that and that its such a relief. At least now I have a physical book I can show a medic, written in words they will get and respect, so they have less amunition to fobb me off. And lets be honest here, hands up how often do the pros just huff sigh roll eyes n want u out the door and NOT to help u?
Thank you! I'll have a look :)
Thank you! I have hEDS too and I was thinking it wouldn't work on that bcuz itself genetic. I am considering DNRS for my gluten and food sensitivities.
Sarah U you’re welcome! Hope you have positive results for your food sensitivities if you do try it!
look up epigenetics and Bruce Lipton, you can change your genes and DNA
@@sillysallyalli I can cure my Ehlers Danlers Syndrome with the method of Bruce Lipton?
Hi Georgina, thank you for this.
You are right, when I'm listening to you, I know that you really know what you are talking about.
I wish you best health for the future, enjoy your life the best you can.
Greetings from Germany.
Kazaam88 you’re welcome! And thank you!
NOt sure who told you all this . but the mind and body are connected. You can heal your body with healing your mind. WHat made your body can heal your body..I'm not saying dnrs is it but many people have healed through just meditation and other modalities
My condition is genetic in the same was as something like Down syndrome or dwarfism, so would you say Down syndrome and dwarfism also can be healed through just meditation and other modalities?
i suggest reading bruce lipton about epigenetics@@GeorginasJourney
Thanks!
I think what Lydia is trying to say is yes you’re correct in your condition is genetic. But pots is a syndrome, just like fibro, cfs, chemical sensitivities. Genetics get turned on through trauma. So you most likely developed pots from surgery, accident, pregnancy, puberty. Any kind of trauma really. Genetics can also be turned off but regulating your nervous system. 4-7-8 breathing, meditation, brain retraining. It takes time, focus and practice. Just like learning a new language. It’s frustrating when you don’t see results but ppl usually give up after 6 months with no progress. Now Down syndrome is different, missing a chromosome is not the same.
Interesting topic and good information to know!
Tate Thompson thanks! Are there any videos in particular you’d like me to do/do more of?
@@GeorginasJourney How about a video of yourself with your hobbies, things you enjoy, life, things that maybe you're able to do now versus before. Another idea would be maybe say like ten questions you should ask or present to your doctor concerning symptoms, illness and what tests to ask for. Here in the US doctors push everything off "ah it's the weather, eh it's just diet, ah it's just in your head" so being prepared I think might help more people.
Tate Thompson those are some great ideas! I have one that’s very similar to that for POTS already, so did you mean for other illnesses or for chronic illnesses in general?
@@GeorginasJourney ah I see. Mhmm, maybe for chronic illness in general then along with POTS. I know when I see doctors, I draw a blank in my mind and forget to ask everything haha.
Tate Thompson write a few notes of your main points before you go in! Best advice I’ve ever been given for that!
What is POTS?
A condition called Postural Orthostatic Tachycardia Syndrome, where your heartrate goes too high from postural changes such as sitting up or standing (it’s different from the normal lightheaded-ness people can get from standing up too fast, as it happens every time, no matter how slowly the person stands or sits up)
ehlers-danlos?
i wrote that before you said it while I was watching.
Benjamin Teitelbaum yes! :)
Hi Gerorgina!! Thank you for sharing your thoughts on DRNS!! I also have EDS and several genetic chronic illness and I agree with you that if the illnesses originate in the body, or have pathogenetic causes, such as lyme disease or mycotoxin disease (mold illness) that DRNS won't be of much help.
Claire Izabel Hi Claire, thanks for watching! Oh yeah, I forgot to talk about things like Lyme disease and mould toxicity, but that’s another great point!
I've seen a lot of people with mold illness and Lyme respond to limbic retraining. I know not everyone may respond, but I just wanted to throw that out there that it is possible. Like all treatments, it doesn't work for everyone. I hope in the future we will have a way of predicting who will respond to it.
@@GeorginasJourney Hi from Germany. Does DNRS works for Lyme?
Claire: It's not so simple and EITHER lyme/mold/etc OR limbic system (which DNRS treats) . Lots of people start out getting sick from lyme, mold, etc and that kicks their limbic system into hypersensitivity, which then loops into emotional responses etc. and starts sending false messages. So for people who started with real sickness but have grown sensitive to more and more things, often puzzlingly, sick where you were never sick before, etc, there is a very good chance that a major factor is the limbic system and that DNRS will help correct course. I'm a mold illness guy and DNRS has been HUGE for me.
@@Judasmac Hi from Germany 🤗 That's very intersting. I am bedridden cause of lyme since over 4 years now. I am very desperate and helpless. Don't know how to treat at the Moment. My Body is very sensitive and does Not tolerate antibiotics Long Term. Do you think DNRS can Help me!???
Curious what your hrv is
Average is around 20, but it varies from 13-30
Im still pretty new to this, im wondering what it means that when i stand or sit its between 15--20 but when i lay its around 50ms most of time @@GeorginasJourney
@@Thelittleclipstore I’m new to it too haha, but that typically means your body is working more efficiently when you’re lying down, as higher numbers are better
You might consider high dose vitamin C for helping with collagen generation
Enebro Research thank you!
@@GeorginasJourney You are welcome. Please, let me know if it makes a difference
@@juanluengo3198high dose vitamin c gave me really bad stomach cramps so didn’t work for me sadly