Swing For A Cause: Every Link Matters Golf Tournament for KBG Syndrome

Welcome to the Fairways of Canton, where community spirit meets charitable giving! Join us in this special ‪@TheAmericanDreamTV‬ episode as ‪@jennifer_bohrer_realtor_ADTV‬ dives into the heartwarming and impactful "Every Link Matters" Charity Golf Tournament. This event is not just a golf tournament; it's a beacon of hope for families affected by KBG syndrome.
In this video, we bring you the highlights of the Every Link Matters Charity Golf Tournament, an annual event that raises funds and awareness for KBG syndrome. Co-founders Darin Hunter and Mary Hunter share their personal journey, starting the nonprofit after their daughter was diagnosed with KBG syndrome in 2019. This video is packed with inspiring stories, community support, and the joyous atmosphere of the tournament.
1. Event Overview:
Set at the picturesque Fairways of Canton, this charity golf tournament is a major event in Cherokee County, GA, selling out months in advance.
Hosted by Jennifer Bour, who captures the essence of the event and its significance.
2. Meet the Founders:
Hunter and Mary Hunter founded Every Link Matters after their daughter's KBG syndrome diagnosis, aiming to support other families facing similar challenges.
Their mission is to raise awareness and provide financial assistance for medical equipment and treatments.
3. Understanding KBG Syndrome:
Mary Hunter explains KBG syndrome, a rare genetic disorder involving the 16th chromosome, and its impact on affected individuals.
The charity focuses on educating doctors and helping families get the support they need.
4. Community and Sponsorship:
The event sees tremendous community involvement, with local businesses and individuals showing up to support the cause.
Andy Hartman from Hartman Law, the title sponsor, shares his reasons for supporting the event and the Hunters' inspiring story.
5. Goals and Aspirations:
Every Link Matters aims to increase KBG syndrome awareness so that future diagnoses can be met with immediate and effective medical responses.
The charity seeks to become a major funding source for families in need, ensuring no child goes without necessary medical support.
The annual charity golf tournament is a pivotal event for raising funds and awareness for KBG syndrome.
Every Link Matters was founded to support families struggling with the high costs of managing rare diseases.
Community involvement and sponsorship are crucial for the success of the event and the charity’s mission.
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