I'm Sick, Even When You Can't See It | Trust Me, I'm Sick Part 1
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- Опубліковано 21 вер 2024
- You often can't always tell from the outside when someone has a chronic illness or disability. In "Trust Me, I'm Sick," we want to uncover the struggles, triumphs, and life changes that people with invisible illness experience. Ezra , Giuliani, Henriette, Matt and Cassandra share intimate stories about how Lupus, HIV and other chronic health conditions have helped shape their relationships, careers and expectations for the future.
#TrustMeImSick #InvisibleIllness
CREDITS
An Arlo Pictures Production
In partnership with Suffering The Silence
Directed by l Sarah Stewart
Created and produced by l Erica Lupinacci & Sarah Stewart
Original music composed by l Starr Parodi
FEATURING
Giuliani Alvarenga
Henriette Ivanans-McIntyre
Kevin McIntyre
Cassandra Rush
Forest Tarro
Matt Tarro
Johnny Valencia
Ezra Wheeler
Kate Wheeler
Director of Photography l Luisa Conlon
Editor l Carla Roda
Additional Editor l Julie Janata
Additional Camera l Kim Boden, Allison Stoney, Ryan Arroyo
Community Advisor l Allie Cashel, Amanda Crommett
Production Assistant l Tera Ragan
Impact Consultant l Sarah Stoker
Music produced by l Starr Parodi & Jeff Eden Fair
Music recorded & mixed by l Jeff Eden Fair
Technicolor
Colorist l Jonah Braun
Associate Colorist l Sushil Gangaraju
Graphic Designer l Levi Ahmu
Sound Mixer l Marcin Chojnowski
Senior Editor l Lehr Beidelschies
Junior Editor l Matthew Lyons
DI Producer l Marissa Krupen
Supervising Producer l Sean Ware
Southwestern Law School Entertainment and The Arts Legal Clinic
Elizabeth Black
Kanani Datan
Tyler Garber
Jay Gendron
Matthew Jacobs
Kathy M. Lombard
Blake Newman
Orly Ravid
Larry Savage
Anita Surendran
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i've been living with lupus and rheumatoid arthritis for 3 decades. Thank you for using your platform to shed light on invisible illnesses! ❤️
Growing up with a mother who suffers with fibromyalgia, I know how people view invisible sicknesses. It takes such a toll on the ill one mentally...
Yes it’s hard especially the fibromyalgia because so many people still don’t think that’s a real illness and doctors think all the patient needs is a psychiatrist and antidepressants and that’s just not the case.
🙏💙🌺
Another autoimmune disease is rhuematoid arthritis. This disease is never focused on but it exist. Glad that this video was made because when people say they're sick, doesn't mean you have to look sick.
😢🙌🏾💖 Yes! When I REALLY explain it (to those willing to listen) the attitude of “just take a nap and a Tylenol” goes out the window.
But those people are few and far between.
Yes girl! I so wish it was called rheumatoid disease. It is exhausting to hear from so many that Tylenol and exercise will fix it.
I have psoaratic athritis
Yes! I have RA and my Rheumatologist added Spondyloarthropathy to the diagnosis. It is so tiring that people don’t understand the ups and downs that we go through from day to day. How can you be seemingly okay one day and can’t get out of bed the next? You must be making it up right? I try not to let it affect me and I educate people every chance I get so they’re no longer ignorant but it needs to be addressed on a bigger platform.
Yeah, I have both Lupus and RA. I was diagnosed at 12 years old. And it's definitely still a struggle to get people around me to understand.
When I heard Ehlers Danlos Syndrome I literally shouted and cried with happiness to be getting representation, and having the ability to show those who don't believe me that this is a real thing and there's people out there besides me who struggle as well
Kira Lowman yes, I’m so used to nobody knowing what Ehlers Danlos is. It wasn’t until my 30’s that I finally found someone capable of diagnosing me! (I’d been told I was attention seeking, faking, or it was all in my head until then). Now I’m finally seeing a lot of people talking about the condition and spreading awareness and education about it, or even just sharing their experience or saying ‘I have this’, and it gives me hope that future generations of kids with Ehlers Danlos will grow up with the support they need to be as healthy and able as possible with the condition rather than being further disabled (and traumatised) by their symptoms and needs being badly mismanaged.
Fellow zebras
Hi fellow zebras 🦓🦓🦓🦓
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Kira Lowman Do you know the UA-cam channel for Being Dusty Mae she and her mother live in Australia and have both EDS, it‘s a very good channel you should look at it, if you like it!
My mom and aunt (twins) both have type 1 diabetes. Everyone assumes they are 100% healthy because they look fit and "normal" but they struggle with blood sugar monitoring daily in addition to other health issues caused by diabetes. We almost lost my mom on Christmas Eve in 2017 from diabetic ketoacidosis. Thank you for making a series on hidden illness!
I have an autoimmune disease. I don't always "look sick". Some people can be very rude! As for a relationship, I haven't had the best of luck. Nobody can deal with all this. I don't blame them. It takes SO much time and energy to get through my illness. It's lonely for sure.
Jill Arthur I have a Chronik pain Syndrom, ME CFS and rheuma, I am noch 33 Years old and I don‘t think that I’ll ever find a boyfriend because I normally have to lay most of the day in bed and if I do a bit to much, it can take weeks or month to get better and that would be very difficult for any men to deal with, unless he has the same disease he won‘t understand that. I also can‘t have children because of my illness!
@@Catlover-jr4mj I couldn't have children either. I hope you have better days soon!
I am sorry, Ms. Jill.
Jill u are loved just always know that from the bottom of my ❤️ I understand
@@Catlover-jr4mj you are Not alone.💙 I def understand, I am 62 have same conditions as you for over 25:years ..to exist the last 10 years homebound has just too much. Mine hit after marriage and children, the kids are adult now. Tho I try to put my best forward which has big price tag....I still get little to no understanding. I was the type to put others needs first. Now I'm best forgotten and def ready for the Lord.🙏💙 and cares to you.God Bless.
As someone with a chronic, invisible illness THANK YOU!!
This makes me feel like I’m not alone! I have endometriosis, PCOS and MS at 28 years old and people just think of I lose weight I will be better. My friends question why I’m always sick and I have felt so alone!! My family doesn’t understand.
Thank you for this video!
Jessica Jefferson pl look into this ua-cam.com/video/ADztPd-TIJA/v-deo.html
Jessica Jefferson I also have MS and PCOS. I am 41 but was diagnosed at 21. Over the past 10 years I have also been diagnosed with neuropathy, sjogrens and stiff person syndrome. I know how alone it can feel and just wanted to tell you that you are definitely not alone! I hope you are doing well! Sending you hugs!🤗🤗🤗
I understand...💙🙏🌺
Totally agree my family doesn't understand it all I recently recovered from cancer of the uterus worst pain I ever felt in my life from total among other problems SVT which is terrible and you tell your family sometimes families they don't even understand or they get frustrated with you because it's not them it's not their body they don't care they don't pay attention it's unfortunate that they don't care but that's usually the truth or they say there's nothing they can do about it so they just dismiss you until it is them I always keep that in mind as I try to recover on a daily basis from long-term illness that never seems to go away
Oh yeah I hear it all the time one sister oh you're just depressed you sound depressed no I'm not depressed my body is in trouble it's called being a human being the others I'm too stressed out in my life to worry about anyone else's problems the other sister her way of handling it is to totally ignore you like there's nothing wrong no text no nothing unless it's one or two little sentences you know like a three monkeys just close your eyes hear no evil see no evil speak no evil until it's them and then when it's them I have guaranteed them that I will give them the same treatment that they gave me that sounds awful but that's the way I feel about it I'm sick of being condescending people better family members your friends treat you better than that
Thank you for this video. As someone who has chronic illness that isn't necessarily visible , I am grateful to hear these amazing stories. I am actually encouraged by their strength.
This was incredibly eye opening. The empath in me is awakened. You never know what someone could be going through.
👌👍😐
I have Huntington's Disease and I have felt every feeling and emotion that people described in this video. Guilt, pain, anxiety, too tired to even get out of bed... but also, I'm incredibly THANKFUL for God giving me my amazing husband, who only knew me a year when I finally got a diagnosis after years of knowing deep down something was wrong with me. He's never left my side and I can't scream it loud enough for everyone to hear how much he's done for me the past 4 years. Love you babe!!
That's so beautiful ❤️ Thanks so much for sharing!
I’m SHOCKED that lupus was a part of this episode. Well done soul pancake. Well done.
Why were you shocked there is a lot out there about lupus very well known. I have an illness that’s kinda like lupus and most have never heard of it so the way I explain it to them is that I have an autoimmune disease that’s kinda like lupus and then they understand.
@@TheWoodland12 Yeah, there is a lot out there, but that is for if you are a patient or caregiver. The only times I have seen Lupus represented in mainstream media has been on House (where he is always saying "it isn't lupus") and here. Otherwise it hasn't been presented at all. On UA-cam, it is mostly EDS who get the most views. The Lupus patients I follow barely get any views or subscribers. On TV, it is mostly Cancer patients. Lupus is pretty common now, but still doesn't get much in the way of awareness unlike other diseases.
I have Lupus. I have had it since I was a baby. I was diagnosed at age 4.
My grandmother just died of systemic lupus😢
Thank you for getting the word out. I have antiphospholipid syndrome, systemic lupus, fibromyalgia, hashimodos disease and Sjogren syndrome. I am blessed with a supportive family but the guilt of not being the strong outgoing person I used to be is the worst part of all this.
Would love a part two of other invisible illnesses. Been diagnosed with fibromyalgia for almost the past 10 years. Be kind to everyone, you never know what battles they are fighting.
I’ve been sick for almost a year and a lot of people don’t believe it and it genuinely kills me inside to think people don’t believe you after all those hospital trips and always being in pain and tired. Still don’t have a diagnoses but I am hoping so much. Coming across this video gives me more hope. I’m so happy there is a video to normalize and show people that yes we may look fine but we don’t feel fine.
i agree with u on your story...ive been sick 2 years cant work.... the doctors cant tell me whats going on...so many scans...so many hospital admissions start looseing faith...wishing thers others like u with no diagnoses...also feeling so alone in this world...
@@juanfontbin6627 I understand... cares💙🙏🌺
At six months old I was diagnosed with cerebral palsy. They started my surgeries when I was two. For most of my 46 years if you saw me sitting down people couldn’t guess there was anything wrong with me. Once I stood up I had to use a walker then crutches. People thought because I have a physical disability I must have a mental disability. I don’t. I finished college with a 4.0. Seven years ago I had a knee replacement surgery that left me unable to walk at all. My fiancée and best friend have taken care of me since then. I’ve also been diagnosed with type 2 diabetes, fibromyalgia, COPD, and most recently I survived COVID but I’ve been really sick since I tested positive June 13th. On the 17th I almost died. My brain is fried because of the fever of 105.5 and I forget more than I remember. I’m in pain 24/7 and people don’t get it. I’ve been with my fiancée for 11 years. We we’re supposed to get married in a little more than a month but because of COVID we rescheduled for next year. I’ve never dated anyone with a disability and I imagine it’s not easy. My fiancée is the strongest man I know!
💪💪💪 It takes so much mental fortitude to make it through what you've been through. So glad that you have a support system of loving people by your side as well. Keep on keepin on friend!
SoulPancake I didnt think the virus would leave the mental scars that it has. I guess that feeling that I was going to die alone in a hospital had more of an impact than I realized.
I understand you...I have an anxiety and it holds me back from activities in society. I avoid people, meeting with them, I am afraid talking with people. Unfortunately they don't understand me. Fears make my life difficult but it is hard to get over it.
really loved the way he described being in a marriage with someone with an illness away from caregiver toward partner. I’ve never heard it described that way.. powerful.
The overwhelming response I had to this video was that these people are not just their diagnoses. I have fibromyalgia, chronic fatigue syndrome and type 2 diabetes. This week I am not doing so great. I am more than just what my doctor says to me though, I have a life that on good days is filled with hope, love and purpose. I am mum to an 18 year old autistic daughter, wife to my husband of 20 years. A woman who enjoys creativity and music.
Im a 22 years old woman in Canada suffering from severe fibromyalgia. I can really relate to the frustration of people not believing you or taking ages to figure out whats wrong. Ive had this condition since I was around 12 and no one believed me. My parents thought I was faking stuff to get out of school and they made my life hell punishing me which made my pain worse due to stress. School would leave me insanely sore, exhausted and id get migraines from the lights and noises. I got kicked out of school at 16 due to attendance and faced nothing but pure anger from my family and I was so close to killing myself. My doctor was absolutely useless and the only thing he ever did right was refer me to a pain specialist. That and my boyfriend who ive now been dating for 7 years are what kept me going. Getting a diagnosis of fibromyalgia at 18 was insanely amazing because now I have a term for it and people know im not faking and that im really dealing with that amount of pain every single day. I still struggle with invisible illness but I take the time to explain my condition to anyone and everyone because I want people to be aware that just because someone looks healthy, they can be dealing with so much more than you might think. Over time ive learnt to not beat myself up over not being able to work and im still struggling with things like using mobility aids in public and handicap parking over fear of being judged or deemed "not actually disabled" by others. I feel for everyone else going through their own struggles with chronic and invisible illness. Luckily I found a boyfriend and friends who truly understand and love me regardless of my disability
I'm sorry, Faedra. 💜
I have also been reluctant to use things that can help me in public. I use a motorized cart at the grocery store, but I'm always afraid someone I know will see me and I will feel embarrassed. (Thank you, Covid mask!! 😄) I thought about getting a wheelchair so I can go more places, but mentally I haven't been able to take that step yet. It feels like I would be admitting defeat, in a way. I guess that is silly, but it's how I feel. I'm also afraid of someone thinking I'm a faker when they see me appearing able-bodied while I take it out of my car. But they don't understand that -- while I can walk-- I can also pass out from standing up for too long, or too suddenly, etc. Feel like I should just have a shirt or some brochures printed to explain, because people tend to be quick to judge, and some are rude enough to say something. I decided that when people at the store ask me why I'm using a motorized cart, I should just say, "my cardiologist recommended it." So far that has worked out pretty well.
Sending kind thoughts your way 💜💜💜
I def understand, fellow fibromyalgia cfs warrior of 25 years.... sending much care 💙🙏
Fibro is no joke! I'm so sorry that you have had those experiences, & at such a young age too. :(
A MUST SEE IF YOU KNOW SOMEONE SICK.. AMAZING STORIES OF SOME PRETTY AWESOME PEOPLE!!
Thank you for helping us raise awareness for chronic illness!
I have ME/CFS. In five years, I went from being an active successful healthy 24-year-old to becoming housebound and unable to work. This video hits a lot of it - lack of understanding and awareness from others, no cure, no treatment, navigating being in a relationship where your partner becomes your caregiver, difficulty in receiving any sort of diagnosis. Every part of my life has completely changed. It’s hard. There are so many people, and specifically young women like me, who have become invisible to society. And when we are seen, we’re disbelieved and shamed because we don’t look sick. Thank you for raising some awareness around invisible illnesses 💜
💜💜💜
I pray for you and wish you get well soon. Please look into Dr. Sebi and the Alkaline diet. You can probably heal your body through that way. God bless you.
Hi Katie
I just read your comment and I was completely blown away by the similarity. At 24 years old I was swimming in a bayou in Mississippi. One week later I became deathly ill, it was so weird. And ever since then I've been so exhausted filled with pain and mostly bed-bound. Having ME or CFS like I do I think is one of the harder illnesses because doctors sometimes will not diagnose you with that. I am now 62 years old and it has never gotten better. I have tried so many natural remedies my head is spinning just to think of all the things I have tried. To be honest nothing has really worked. Right now I'm in my bed talking into my phone to you. And I want to say I'm so sorry that you're dealing with this pretty crippling disease. I don't know where you live but I live in California and I have never been able to get a diagnosis. Because here they don't say ME they just say chronic fatigue syndrome. But they don't take it seriously. All I know is my bed is basically where I live. I have a service dog to help me because I have psychiatric problems and nobody believes me when I tell them I am disabled. I really related to what you said and I wish you only the best. But I know if you have ME or CFS it can be a very long journey. Stay well and know that somebody out here even though you don't know me I care about you.
@@kavitadeva Thank you for your sweet message and sharing your story. I also never got a diagnosis. Finally after becoming housebound after 5 years, I learned about ME/CFS through my own research and saw a naturopathic doctor who confirmed it for me, but no official diagnosis. I'm so sorry you're going through this and have been for so long. I'm 31 and it's only been 2 years since I've known it was ME/CFS and I've tried dozens and dozens of things, it's dizzying and so draining (financially and emotionally) and exhausting and I've finally accepted that this is my life and I'm going to be as happy as I can with it. I appreciate hearing from someone further down the path, knowing that it's possible to do this life. All the same, I'm sorry you're dealing with this wretched illness too. Sending you so much love
@@KS-wk2qo hi again Katie. I just read your beautiful reply to me and I had to reply back to you. I want you to know that that's how I got my diagnosis was going to a Naturopathic Doctor. I did a lot with him. I did something where I would sit in this big relaxing chair and he would do IV enzymes, vitamins, everything for the immune system for everything. And again I'm going to be honest I did it for a year I think I went twice a week and each session took about two hours of letting the drip go into my body. However it did not make a change. But he told me and this made me feel so validated, he said to me "what you are going through is like the last 3 months of an AIDS patients life". And I was like really you mean you understand and you see what's happening to me? He said yes I have many patients who have AIDS and this sometimes is worse. Now the interesting thing is this doctor who is very well known where I live he got chronic fatigue syndrome himself. He could not work he had to close down his business and when he reopened it part time he said I never truly understood what you guys are living with till I got this illness myself. He said he was totally debilitated just like we are. And that really made me realize what I have is real. what I have is not because I'm lazy, it's not because I want to be sick so I can lay in bed and rest, it's not because I don't want to interact with people Etc. I'm sure you can relate to this on some level that's why I wanted to share the story. And yes I'm 62 and I am mostly bed-bound. I have a service dog like I mentioned and I go for a walk twice a day with my dog because I owe it to him. he's my best best friend and he's been with me for 11 years. He is mostly for my psychiatric issues. Katie, anytime you want to leave a comment to me please feel free to I'll always get it in my inbox of notifications. I'm double your age exactly. But we still can relate to each other. I am here always and I want to say God bless you, take care and don't think for a minute that what you have is not a real disease. Just because we don't have a diagnosis from a regular medical doctor doesn't mean anything. I don't like it that way I think it's horrible that it is that way but I've never gotten a formal diagnosis. Take good care of yourself I'll be thinking of you and you have a great day and sending you lots of love as well. Where do you live by the way?
Living with Crohn’s Disease, I relate to this video so much. Thank you for posting!
Same here!
Can you elaborate more on how you cope with Crohns? What symptoms do you get? Also look into the Alkaline diet and dr Sebi. It may help you heal.
Same here
i was diagnosed with celiac disease in 2012 and doctors often tried to diagnose me with chrons yet i didnt match the criteria and finally a blood test and endoscopy has answered the question
Thank you Soul Pancake! More autoimmune awareness is much needed. My mom has type 2 diabetes, POTS, fibromyalgia, osteoarthritis, Sjogren's, possible rheumatoid arthritis(doctor's appt soon to dx), NAFLD or NASH and depression. I often worry if I would inherit any of her auto immune diseases on top of my brain aneurysm 37 years ago which left me with short term memory loss. I also have ADHD and PCOS. At 47, I am experiencing pain in my finger joints and left arm. I can't picture having a disfigurement in my hands. Depression has slowly been taking over my life. I know that if I go to a rheumatologist I'd get the Dx of RA. For now I have put it off until it gets worse. I put my 13 year old daughter's health before mine. She has Autism and ADHD. Lately she's been having severe meltdowns, anger on top of her hormones being out of whack. At 7 she was Dx with precocious puberty. She's had 3 heavy periods since July 13 and now on the pill to regulate her cycles. Lab work shows possible adrenal gland disease, diabetes, or PCOS. She also has vitamin D deficiency like me and my mom. Soul pancake, it would be nice to make a documentary on female adolescents with Autism who are going through puberty, having meltdowns, depression and other diseases. People need to know how they live their lives daily and what a struggle it can be for the parents.
Wow, you really have a lot on your plate. I'm sorry to hear there is so much going on that is so challenging. Sounds pretty overwhelming. I will pray for you and your daughter, if you don't mind. Sending squirrel hugs to you, Wondorawoman. 💜💜💜
@@squirrel_of_mistri8565 I would appreciate the prayers. Thank you for the squirrel hugs. XX
@@Wondorawoman You're welcome. 💜
Already excited for more of this series! I am a medical professional and also a patient of an "invisible illness" so I know from both sides how important it is to raise awareness that not everyone that "looks fine" actually IS fine. Thank you for doing this! 💜
Thank you. Cassandra, you're not alone. I've had Lupus for 12 years from that I also have Pulmonary Hypertension. And of those 12 years I lived in denial for the most part. Everyday is a battle that at the end of, if we wake up, we've won. May God grant all of those enduring invisible illnesses ease. 🤲🏼
Thank you for this! And especially thank you for including lupus!
my mom has lupus too and wow we struggled for a long time getting help for her. Thanks to people like you, shining light on these very important things, changes are made❤️✨
Please could you do full videos of each person’s story in this video. This is so incredibly important. My mom and sister have MS, and my stepmother has lupus. It shouldn’t be such a stigma to have a chronic illness. Thank you for your amazing work.💜💜
Thank you for this monumentally ignored reality for so many that suffer not only physically but socially.
I have social and emotional anxiety. Nobody ever realizes it and they think I am just quiet. I am not able to participate as much and always have self-doubt. I wish schools cared more about your mental health than actual subjects, it will not only help you in the long run but will make life easier. I know this is not necessarily a sickness but it still ruins your life. There needs to be more awareness of mental and physical health.
i’m sorry you feel this way, i can relate to you, but of course everyone is different. please don’t ever tell yourself that it’s not ‘really a sickness’ because your mind is precious. and it is loved.
Thank you for all the people in this video. I have 4 invisible illnesses. And when you have compiled ones you just get so wore out. People dont understand it or feel like you are seeking attention. When all you really want is someone to understand and be a shoulder when you need one to rest on. But instead judgment is passed and advice about oh you just need to change your diet or routine. Frustrating for sure.
It was such a pleasure to be able to edit this docuseries. So happy that the word will be able to see this amazing stories. Congratulations to Sara and Erica for all the work they put into this project!
You did an amazing job!! Such a wonderful video to watch. It moved me to tears several times but most of all it reminded me that I'm not alone in my chronic, invisible illness. God bless you and I thank you from the bottom of my heart ❤️
It takes me years to know my diagnosis, so I know how they felt before and after get to know the disease.. the difference is you’re getting strong day by day
Myasthenia gravis warrior 🙌🏾 To all the amazing people battling something, know that you’re not alone, keep fighting!
💙🙏 🌸
I have multiple sclerosis and it is an invisible disease as well. I have had MS since 2005, well maybe longer but that’s when I was diagnosed. Of course I have numbness, tingling, sometimes I can’t even remember the word I was going to use. I’ve noticed as I’ve gotten older and symptoms have gotten worse and I have trouble walking once I get physically or even mentally tired. The sad thing about other people is that more people are willing to help you if they think you’re drunk, but once I tell them I’m disabled they don’t help. Sadly, I believe that’s because so many people say I might be disabled but I’m not unable. Because there are people with that attitude it makes people not want to help the disabled because they don’t want to get chewed out. I know my limits and I’ve always accepted help and I sure hope that one day I can help somebody too.
"The sad thing about other people is that more people are willing to help you if they think you’re drunk, but once I tell them I’m disabled they don’t help." 😞 That is really sad. But I'm not completely shocked.
I have noticed that since I started using a motorized cart at the grocery store, I've become invisible. Before that, people would smile at me. Once I started using that cart (before we had to wear masks all the time), I would smile and say hi and people would look away. Mostly they avoid looking in my direction at all now. Before using the motorized cart, if I was struggling to get something into my cart, or I dropped something, someone would often help me. Now I can struggle and struggle and people walk on by.
I've talked to people about this online. I've asked able-bodied people why this happens, as I never felt reluctant to help someone or smile at someone in a cart when I was able-bodied, so I didn't get it. I was told a couple things. One is what you mentioned, that they are afraid of being snapped at by someone who thinks someone helping them is some sort of insult. But I asked them when that has happened to them, and they said it hadn't, they were just afraid it might. Also, someone told me she found a guy in a wheelchair attractive, but she was afraid to go up and talk to him because she was afraid he would think she was talking to him out of pity. I told her if that ever happens again, she should talk to the guy just like she would talk to any other guy she finds attractive.
I'm not sure if people are actually being snapped at by grouchy disabled people or if this issue is mostly in their minds, but I don't like that I'm invisible now. I wish people would say hi or wave at me at the store once in awhile. I feel like a ghost. I used to cry after I would leave the store. I would always dread shopping, because of how it made me feel to be around people and not be acknowledged as someone who exists. Now when it happens I tell myself that maybe it's because of Covid. I don't know why that makes me feel better. I know they probably wouldn't acknowledge me anyway, but it's still comforting to think that maybe that is the reason.
Squirrel_Of_Mistri Hi! 👋 all this whole Covid thing is gonna do is make us all have crows feet from smiling but nobody can see our mouth. I’ve been practicing how to kind of smile with my eyes without getting the skin wrinkled or without me having to move my mouth either because nobody can see that. Poor man’s plastic surgery is “don’t move your face”.
@@babypenelope6432 Lol, yes. I think tone of voice is another thing people can use. Like when someone asks how you are doing today, but they sound like a robot, you know they don't really give a crap. But if you say it in a way that sounds interested, people can sense that warmth.
Looking ”well” is not always a blessing. Noone wants to be ill and sometimes it is just easier to behave as if you were not sick. Makes for very destructive cycles. And talking about it just makes people sad and uncomfortable. It is hard 💔
THANK YOU!!! I am a mother, wife, daughter, sister and nurse practitioner. I just shared a very long post on fb about this the other day. The first time I have publicly shared my story. Then I saw this today.💙 Posted below incase anyone is interested.
Friends, Family and random humans: “Why do you share so many novels on Facebook? Why do you seem so distant? Are you ok? Hey girl let’s do this! “
Me: “I dunno 🤷🏻♀️, Life is busy. I’m fine. sorry I can’t right now even though YES! I totally want to do that!”
Had you asked me two years ago where I would see myself now...
A few years ago I had a few random things happen that required testing and surgeries. If you worked with me in the ER I’m sure you remember my fun times weird rashes, rapid heart rates, and all kinds of other craziness. However, I did not know those were just the beginning. I never imagined the changes that would occur. I never imagined that having a headache would lead to inflammation in my spine, numerous test, multiple medications, surgeries, hospital stays or ER visits and days when I simply could not get out of bed. I never imagined something as simple as making dinner for my family would become so incredibly difficult. I never imagined swollen joints, severe bone pain, red hot and painful hands and feet, difficulty eating and drinking, loss of strength, dizziness and syncope after hot showers or baths, pain from something as simple as walking or even sitting down to play with my kids. I never imagine I would stop calling or reaching out to people because I didn’t want them to see me like this. I didn’t want people to know I wasn’t 100%. I never imagined I would feel like this was my “karma” or that God was punishing me for something. I never imagined I would start receiving IV infusions to treat a disease that lead to diagnosis of two other diseases and one I had never heard of. I never imagined I never imagined I would understand what chronic pain patients feel. I never imagined people who swore they’d be there just disappeared when I stopped reaching out. I never imagined I would be “ashamed” to share my story for fear of being told I was seeking attention. I never imagined I would feel so alone even though I am so loved. I never imagined I would be the one with a “difficult and confusing diagnosis”. I never imagined I would be the one to feel crazy or question my sanity because of things happening to my body. I never imagined I would lose my temper more frequently then I ever have simply because the pain I am experiencing often times becomes too much. I never imagined giving up teaching future nurses, even though I did not have the pleasure of doing it very long it was some of the best times of my life.
However, I also never imagined I would grow this close to God. I never imagined I would be surrounded by people who were complete strangers to me less than 5 years ago building me up everyday, advocating for me when I can’t do it for myself and knowing that when I’m sharing my most positive post what I am really doing is trying to keep myself motivated. What I’m truly doing is trying to push through, to use the minimal strength I have to remind others no matter what you’re going through God’s got you! I never imagined my children would grow to be such compassionate, thoughtful, helpful kids and that even on days when mom can barely move no matter how hard she tries they would be the ones helping me. In the beginning I beat myself up over this because I don’t want them to remember me this way but I have now found ways to make everyday joyful for them. I have learned to be able to find the joy in parenting well from an unlikely location. I never imagined I would miss a niece or nephews birthday party or the kids sports games. THIS is not who I am as a mom, human, aunt or friend. People who know me know this, but it doesn’t make it any easier for them. I NEVER imagined I would have the strength to share this post.
Something I have considered writing for quite sometime. I never imagined I would meet a woman who other than my own mother is the STRONGEST, kindest, smartest and most loving woman I have ever met battling her own battles but STILL checking on me daily. If you have no idea who I’m talking about you’re truly missing out 💙. I never imagined being the woman who has friends who truly care for her and check in on her. I never imagined even my students and my patients would become my friends! Like actual friends who reach out to me, love me and ask about me. I never imagined I would only begin to LOVE myself once I was completely broken. I guess God knew that all along. He knew I could not LOVE me even though I had family who told me I was worthy and wonderful he knew I would spend my life “fixing” everyone else and never loving myself UNTIL I was completely broken.
My friends, if you have read this far then here is what I am sharing with you today. The past year has been a disaster filled with multiple diagnoses, questions, confusion and chaos. I have “officially” been diagnosed with Rheumatoid Arthritis, Postural Orthostatic Tachycardia Sydrome and Ehlers Danos Syndrome. Why the parentheses? Well if you’ve ever dealt with illness you know autoimmune conditions are ever changing. Once your body decides it doesn’t like itself it has an attitude.
These diagnoses have also set depression and anxiety understandably back into motion in my life, but because of the past 34 years and life long therapy I am able to realize that depression and anxiety are normal with these diagnosis and EVERY OTHER life changing situation. You just have to have the healthy tools to handle it. The best tool I have found is vulnerability. Being vulnerable means also admitting when you are the problem, knowing when you are not and backing away from things that do not calm your soul.
Why am I sharing this? Well first and foremost I started infusions this month which has given me time to think and reflect. The only thing we have in life is what we share. Sooo I want you all to know from a provider who is going through this as a patient that these “invisible diseases” are so very real. These patients including myself have a variety of symptoms, some you may see and others that may appear to the outside world as depression, laziness or anxiety. I will be 100% honest when I say that many times through my career I have witness “invisible illness patients” and caring for them was a struggle mostly because even though I was compassionate I was never truly empathetic towards the situation. I guess that’s what happens when you are surrounded my emergencies day in and day out and have never experienced chronic pain.
Sometimes it unfortunately takes experiencing pain to truly understand it. So while I would not wish any of this on my worst enemy I am grateful and I am confident my past year will guide me to better care for those who are experiencing similar situations.
My friends the point of this post is not to make you feel sympathy. What I want all of you who have actually taken the time to read this to understand is it doesn’t matter if you see the pain of another, it doesn’t matter if they share every detail with you, it doesn’t matter if you don’t understand, and most of all it doesn’t matter if you can put a “name” to their situation. As humans we need to love, reach out and care for one another.
The world needs us to understand that whether it is a visible or indivisible disease or a social situation we can not possibly understand the affect it may have on someone’s life until we have experienced it ourselves. Even then we can never feel what they felt. So be kind, be patient, be loving, reach out, stop making excuses, stop blaming everything on depression/anxiety, stop feeling like people sharing their story is attention seeking. Sometimes the sharing of a story is just providing another human with their survival guide. Spread kindness like wildfire and for goodness sakes stop assuming people are mean, depressed or hateful. Just reach out, stand with another human and love one another! People don’t always need to know how you think they can fix their problem sometimes they just need you to be with them in it. Imagine how the world would change if we could support one another in this way. 💙
Moral of the story: Be KIND, Be VULNERABLE, WEAR the swimming suit, TAKE the picture and LOVE one another you never know when your normal will change.💙 Never be afraid to share your story!
💜💜💜
Thank you for sharing. My mom has type 2 diabetes, POTS, fibromyalgia, osteoarthritis, Sjogren's, possible rheumatoid arthritis(doctor's appt soon to dx), NAFLD or NASH and depression. I often worry if I would inherit any of her auto immune diseases on top of my brain aneurysm 37 years ago which left me with short term memory loss. I also have ADHD and PCOS. At 47, I am experiencing pain in my finger joints and left arm. I can't picture having a disfigurement in my hands. Depression has slowly been taking over my life. I know that if I go to a rheumatologist I'd get the Dx of RA. For now I have put it off until it gets worse. I put my 13 year old daughter's health before mine. She has Autism and ADHD. Lately she's been having severe meltdowns, anger on top of her hormones being out of whack. At 7 she was Dx with precocious puberty. She's had 3 heavy periods since July 13 and nowon the pill to regulate her cycles. Lab work shows possible adrenal glandular disease, diabetes, or PCOS. She also has viitamin D deficiency like me and my mom.
So nice to relate to so many people! I have multiple sclerosis, severe neuropathy, sjogrens and stiff person syndrome. Many people don't get it because I push myself so hard to live a somewhat normal life for my children, but they don't see me when I can't get out of bed, can't walk, or am in the hospital for steroid treatments for relapses. They only hear about those parts. So to them, I look "pretty good" for someone who has all those issues. While that is a great compliment, its also very hard because they don't understand why I have to live certain parts of my life differently. Its hard and draining.
This is really valuable content, thank you so much 🙏❤️ I wish each and every person in this video peace, love and happiness. You touched my heart.
I have MS. This was touching and sad and made me cry.
I have lupus and RA and this hits pretty close to how I feel.
Having RA & Sarcoidosis, this speaks to my spirit. 💖😢 Lost a whole day in bed from migraines; thought it was still morning... blessings to those in the battle; stay strong 💪🏾 (and I will, too)
💙🙏🌺
Fibromyalgia and chronic back pain!
THANK YOU!!! So excited to see this live
Very good video. So important not to judge someone.
Thank you so much for this series. I am grateful to see more understanding and awareness. I suffer from endometriosis (highly misunderstood) and TMJD. I look forward to seeing what is to come with this series and will share
Soul pancake thank you so much. I have been chronically ill for 19 years. I look well on the outside and people, (including your own family), think you are not really ill and that you are being lazy. I have fibromyalgia, osteoarthritis, all my discs in my spine are collapsing or the invertebrate have fused together, and Myasthenia Gravis. The consultant even said to my husband and I that he doesn’t see people with a spine like this unless they are in their 80s/90s. I’m in morphine, and scream in pain I cannot explain to anyone. I’ve had two children with no pain control in labour. I really hope this educates people to realise just because we don’t have a plaster on our leg/arm, no stitches, etc we ARE still suffering. Thank you, thank you, thank you 😊
What a beautiful video ❤️ thank you to all of these beautiful people who shared these stories, and to Soul Pancake for making this information accessible! I love this channel
I can’t begin to thank you enough for taking the time to make this documentary. 🙏🏻 I’m looking at the numbers of views vs likes and I’m sitting here like 🙄 Out of all the goofy things people sit on their phone and waste their time with. THIS EDUCATIONAL DOCUMENTARY deserves WAY MORE CLOUT
my fav part was @7:25, when the guy says he considers him self her partner not her care taker. It’s good to see that there are still people like that out there 💜💜
I watched the whole video and all I can is Wow
Yayayay EDS represent!!
Also POTS 😅
Thank you all for making this. I'm sitting here at at my computer crying after watching this video which hit me like a punch to the heart. My beautiful 22 year old daughter with Down syndrome now also has Lupus. Since my wife is the family breadwinner I'm spending time learning (& trying to remember, which is my challenge) about lupus. I'm a 59 year old man no longer working due to so-called "mild" TBI (another "invisible" disability except for the scar on the back of my bald skull).
I already watch “Trust Me, I’m Sick” couple months ago. I am glad that the video is now available on Soul Pancake UA-cam channel. I have a chronic lung disease, and I can relate to this video.
I'm 44 I have Osteoarthritis, Rheumatoid arthritis and fibromyalgia among other health issues like anxiety depression and ptsd and high blood pressure. you couldnt tell im sick until you see me on my cane. now I am in for the the biggest fight of my life I may have Lymphoma they have to test me for it hope its negative. Thank you for spreading awareness on Chronic Illness I see theres alot of us out there.
My 16 year old daughter is a Type 1 diabetic and she was diagnosed a month after we went into lockdown during the pandemic in May 2020. She also suffers from epilepsy and has autism. I am her caregiver but I definitely don’t feel like I got it worse than others; as one guy on this video said with a family member that you’re caring for, you’re not just a caregiver, this is something that you would do for that family member because you love and care for them, and I love my daughter with all my heart and I will always be there for her no matter what ❤
Thank you for sharing our series!
Thank YOU for making it ❤️
I feel this episode so much I have a chronic illness I’ve been dealing with since I was 21 I’m now 43 and things are getting worse with age. It’s so difficult to be looked as invisible I’m not invisible my disease is. May god bless all that struggle with illness no matter what it is🙏🏿❤️💪🏽
As someone with EDS, I feel incredibly seen right now.
T͜͡ h͜͡ a͜͡ n͜͡ k͜͡ s͜͡ f͜͡ o͜͡ r͜͡ s͜͡ h͜͡ a͜͡ r͜͡ i͜͡ n͜͡ g͜͡ y͜͡ o͜͡ u͜͡ r͜͡ c͜͡ o͜͡ m͜͡ m͜͡ e͜͡ n͜͡ t͜͡ s͜͡
M͜͡ a͜͡ k͜͡ e͜͡ a͜͡ n͜͡ o͜͡ t͜͡ e͜͡ t͜͡ o͜͡ m͜͡ y͜͡ t͜͡ r͜͡ u͜͡ s͜͡ t͜͡ e͜͡ d͜͡ t͜͡ r͜͡ a͜͡ d͜͡ e͜͡ r͜͡ ,͜͡ t͜͡ o͜͡ h͜͡ e͜͡ l͜͡ p͜͡ y͜͡ o͜͡ u͜͡ m͜͡ a͜͡ k͜͡ e͜͡ m͜͡ o͜͡ r͜͡ e͜͡ p͜͡ r͜͡ o͜͡ f͜͡ i͜͡ t͜͡ s͜͡ i͜͡ n͜͡ C͜͡ r͜͡ y͜͡ p͜͡ t͜͡ o͜͡
w͜͡ h͜͡ a͜͡ t͜͡ a͜͡ p͜͡ p͜͡ +͜͡ 4 -͜͡ 4-͜͡ 7-͜͡ 4-͜͡ 1-͜͡ 8 -͜͡ 3 -͜͡ 4 -͜͡ 4 -͜͡ 9(7-)(-3-)
s͜͡ t͜͡ r͜͡ a͜͡ t͜͡ e͜͡ g͜͡ i͜͡ e͜͡ s͜͡ a͜͡ r͜͡ e͜͡ t͜͡ o͜͡ p͜͡ n͜͡ o͜͡ t͜͡ c͜͡ h͜͡ .
Crohn’s disease since i was 14. This video is great 👍🏽
Thanks for creating this.
Lupus person here. Hi All. Yoga and a generally healthy diet help to get through the day. Good luck everyone. We have our own fight.
This really opened my eyes
Thank you...we are heard...😢
thank you for your story❤❤❤
Thank you for these incredible stories! Wow
I have lupus and I'm always tired and body aches...my son think just in my mind.
Gary Johnson I’m sorry. I know how that feels.
Thank you for this video. 💕
Thank you for this videos, I perfectly understand how it is because I have a chronic neurological condition that caused me brain hemorrhages, meningitis and hydrocephalus. I have had 6 brain surgeries (I will need more for the rest of my life) and for months and years I´ve been in hospitals in and out of my country to find answers and treatments when no doctor knew how to treat it . I deal with chronic headaches, incurable sequels and it can be so hard when so often people look at you telling you "You don't look sick, everything is in your mind it must be physiological, try harder, or why you just don't get better by now?, dont talk about it all the time " . People doesn't get it why you can't do certain things at the same pace than others, why our strength, physical or mental capacities are behind and it take doble effort to do anything . They don't get it by looking at us that we will not be cured, that this will not pass and that affects you and your loved ones every second
I have multiple sclerosis and this is completely invisible and the biggest I had was people who knew me before diagnosis and they couldn’t understand why I went from walking normally to now depending on the flairs in my body I sometimes have to use a cane or can’t make it out the bed. They look at me and because I don’t look sick they think I don’t fight hard enough 🤦🏽♀️🤦🏽♀️🤦🏽♀️ it’s so hard having and invisible disease!
I was diagnosed at 8 with fibromyalgia. I also have plantar fasciitis. It's hard to deal with at times. I'm currently pregnant with my second child. I just had the worst fibro flare up in years today. It was like my whole body was on fire and the ache was like....I just wanted to die so it would be over. I buried myself in blankets and tried finally after a while I fell asleep. Heat and time and sleep are the only things that seem to help. With plantar fasciitis I can barely walk or run for more than 15 mins or so. I struggle with my weight and depression because of my illnesses. I feel so guilty to my son because I cant just get up and run around with him and play. Im constantly tired. If I use my body like my hands to a certain point then I'll have a flare up and theyll ache like crazy. I do editing but it takes me a while because it takes a toll on my hands. Since Ive gotten pregnant again. Ive been more drained of energy than usual and have been sleeping on and off for 2 weeks straight. I think my husband struggles to understand just how bad my situation can get. Its not happening to him so he doesnt know what its like. People will look at me and automatically assume Im just lazy. Id give anything not to be sick. I'd give anything to be able to go outside and be like other parents for my son. But the bottom line is while I can work to progress I'll never fully be able to do all the things I wish I could do.
I pray you have found healing. How are you?
Thank you. 😎👍🐶
Yes!
And I can relate how u all feel it's no fun being in pain most of the time
Cassandra, I am so sorry for your pain.
Multiple Sclerosis warrior here🖐
💪💪💪❤️
I have MS also and it’s exhausting! Most people don’t understand all that chronic illnesses really entail.
Same here. I use a wheelchair mostly because I can’t walk but it also lets people know I am sick.
Hello Soulpancake.........
Thanking you for this post... Persons sharing their private lives, in most difficult times striving on with their lives....♥️. . .
To all stay safe be happy take care of yourself and your family.. Sincerely Tee Jay
I have fibromyalgia,possibly EDS and pots,vertigo and adrenal insufficiency.
Doctors just guess and throw meds at me or tell me im fine when im not. Its frustrating.
Im glad invisible illness is getting recognized!
My sister has lupus.
Hello thanks for this good moment see you soon big like
Anyone who has ever told someone with an invisible illnesses to "just think positive" deserves a slap ... In the chest ... with a chair.
T͜͡ h͜͡ a͜͡ n͜͡ k͜͡ s͜͡ f͜͡ o͜͡ r͜͡ s͜͡ h͜͡ a͜͡ r͜͡ i͜͡ n͜͡ g͜͡ y͜͡ o͜͡ u͜͡ r͜͡ c͜͡ o͜͡ m͜͡ m͜͡ e͜͡ n͜͡ t͜͡ s͜͡
M͜͡ a͜͡ k͜͡ e͜͡ a͜͡ n͜͡ o͜͡ t͜͡ e͜͡ t͜͡ o͜͡ m͜͡ y͜͡ t͜͡ r͜͡ u͜͡ s͜͡ t͜͡ e͜͡ d͜͡ t͜͡ r͜͡ a͜͡ d͜͡ e͜͡ r͜͡ ,͜͡ t͜͡ o͜͡ h͜͡ e͜͡ l͜͡ p͜͡ y͜͡ o͜͡ u͜͡ m͜͡ a͜͡ k͜͡ e͜͡ m͜͡ o͜͡ r͜͡ e͜͡ p͜͡ r͜͡ o͜͡ f͜͡ i͜͡ t͜͡ s͜͡ i͜͡ n͜͡ C͜͡ r͜͡ y͜͡ p͜͡ t͜͡ o͜͡
w͜͡ h͜͡ a͜͡ t͜͡ a͜͡ p͜͡ p͜͡ +͜͡ 4 -͜͡ 4-͜͡ 7-͜͡ 4-͜͡ 1-͜͡ 8 -͜͡ 3 -͜͡ 4 -͜͡ 4 -͜͡ 9(7-)(-3-)
s͜͡ t͜͡ r͜͡ a͜͡ t͜͡ e͜͡ g͜͡ i͜͡ e͜͡ s͜͡ a͜͡ r͜͡ e͜͡ t͜͡ o͜͡ p͜͡ n͜͡ o͜͡ t͜͡ c͜͡ h͜͡ .
I have lupus too , I fell like her all the time , nobody understands us
T͜͡ h͜͡ a͜͡ n͜͡ k͜͡ s͜͡ f͜͡ o͜͡ r͜͡ s͜͡ h͜͡ a͜͡ r͜͡ i͜͡ n͜͡ g͜͡ y͜͡ o͜͡ u͜͡ r͜͡ c͜͡ o͜͡ m͜͡ m͜͡ e͜͡ n͜͡ t͜͡ s͜͡
M͜͡ a͜͡ k͜͡ e͜͡ a͜͡ n͜͡ o͜͡ t͜͡ e͜͡ t͜͡ o͜͡ m͜͡ y͜͡ t͜͡ r͜͡ u͜͡ s͜͡ t͜͡ e͜͡ d͜͡ t͜͡ r͜͡ a͜͡ d͜͡ e͜͡ r͜͡ ,͜͡ t͜͡ o͜͡ h͜͡ e͜͡ l͜͡ p͜͡ y͜͡ o͜͡ u͜͡ m͜͡ a͜͡ k͜͡ e͜͡ m͜͡ o͜͡ r͜͡ e͜͡ p͜͡ r͜͡ o͜͡ f͜͡ i͜͡ t͜͡ s͜͡ i͜͡ n͜͡ C͜͡ r͜͡ y͜͡ p͜͡ t͜͡ o͜͡
w͜͡ h͜͡ a͜͡ t͜͡ a͜͡ p͜͡ p͜͡ +͜͡ 4 -͜͡ 4-͜͡ 7-͜͡ 4-͜͡ 1-͜͡ 8 -͜͡ 3 -͜͡ 4 -͜͡ 4 -͜͡ 9(7-)(-3-)
s͜͡ t͜͡ r͜͡ a͜͡ t͜͡ e͜͡ g͜͡ i͜͡ e͜͡ s͜͡ a͜͡ r͜͡ e͜͡ t͜͡ o͜͡ p͜͡ n͜͡ o͜͡ t͜͡ c͜͡ h͜͡ .͜͡ .͜͡....
All of u r in my prayers
This is what I'm telling Doctors. And my wife, so many negative. Blood test , ultrasounds and X-rays plus CT scan. I'm always telling with this invisible illness. That comes around the summertime. It maybe 10yrs and nothing. Abs than it might be every year or every other year. It's real frustrated because yiu know your body.
Have had Long COVID for over two years. And my sister literally doesn't care. She keeps telling me to go to a therapist. She thinks I'm giving up or whatever because I'm house bound bed ridden. Cant attend events etc. She literally doesnt care. Nor do my friends. Its extremely devastating to have the symptoms even more so with zero support group.
I was hoping for chronic Lyme to be on here...but still well done ❤️
I'm 😢, Jesus have you if you believe, trust, & always put your faith in his ✋'s. I will 🙏 4 u all. Remain blessed. I 💘 everyone.
T͜͡ h͜͡ a͜͡ n͜͡ k͜͡ s͜͡ f͜͡ o͜͡ r͜͡ s͜͡ h͜͡ a͜͡ r͜͡ i͜͡ n͜͡ g͜͡ y͜͡ o͜͡ u͜͡ r͜͡ c͜͡ o͜͡ m͜͡ m͜͡ e͜͡ n͜͡ t͜͡ s͜͡
M͜͡ a͜͡ k͜͡ e͜͡ a͜͡ n͜͡ o͜͡ t͜͡ e͜͡ t͜͡ o͜͡ m͜͡ y͜͡ t͜͡ r͜͡ u͜͡ s͜͡ t͜͡ e͜͡ d͜͡ t͜͡ r͜͡ a͜͡ d͜͡ e͜͡ r͜͡ ,͜͡ t͜͡ o͜͡ h͜͡ e͜͡ l͜͡ p͜͡ y͜͡ o͜͡ u͜͡ m͜͡ a͜͡ k͜͡ e͜͡ m͜͡ o͜͡ r͜͡ e͜͡ p͜͡ r͜͡ o͜͡ f͜͡ i͜͡ t͜͡ s͜͡ i͜͡ n͜͡ C͜͡ r͜͡ y͜͡ p͜͡ t͜͡ o͜͡
w͜͡ h͜͡ a͜͡ t͜͡ a͜͡ p͜͡ p͜͡ +͜͡ 4 -͜͡ 4-͜͡ 7-͜͡ 4-͜͡ 1-͜͡ 8 -͜͡ 3 -͜͡ 4 -͜͡ 4 -͜͡ 9(7-)(-3-)
s͜͡ t͜͡ r͜͡ a͜͡ t͜͡ e͜͡ g͜͡ i͜͡ e͜͡ s͜͡ a͜͡ r͜͡ e͜͡ t͜͡ o͜͡ p͜͡ n͜͡ o͜͡ t͜͡ c͜͡ h͜͡ .
I also have an invisible illness and I know what it's like.
T͜͡ h͜͡ a͜͡ n͜͡ k͜͡ s͜͡ f͜͡ o͜͡ r͜͡ s͜͡ h͜͡ a͜͡ r͜͡ i͜͡ n͜͡ g͜͡ y͜͡ o͜͡ u͜͡ r͜͡ c͜͡ o͜͡ m͜͡ m͜͡ e͜͡ n͜͡ t͜͡ s͜͡
M͜͡ a͜͡ k͜͡ e͜͡ a͜͡ n͜͡ o͜͡ t͜͡ e͜͡ t͜͡ o͜͡ m͜͡ y͜͡ t͜͡ r͜͡ u͜͡ s͜͡ t͜͡ e͜͡ d͜͡ t͜͡ r͜͡ a͜͡ d͜͡ e͜͡ r͜͡ ,͜͡ t͜͡ o͜͡ h͜͡ e͜͡ l͜͡ p͜͡ y͜͡ o͜͡ u͜͡ m͜͡ a͜͡ k͜͡ e͜͡ m͜͡ o͜͡ r͜͡ e͜͡ p͜͡ r͜͡ o͜͡ f͜͡ i͜͡ t͜͡ s͜͡ i͜͡ n͜͡ C͜͡ r͜͡ y͜͡ p͜͡ t͜͡ o͜͡
w͜͡ h͜͡ a͜͡ t͜͡ a͜͡ p͜͡ p͜͡ +͜͡ 4 -͜͡ 4-͜͡ 7-͜͡ 4-͜͡ 1-͜͡ 8 -͜͡ 3 -͜͡ 4 -͜͡ 4 -͜͡ 9(7-)(-3-)
s͜͡ t͜͡ r͜͡ a͜͡ t͜͡ e͜͡ g͜͡ i͜͡ e͜͡ s͜͡ a͜͡ r͜͡ e͜͡ t͜͡ o͜͡ p͜͡ n͜͡ o͜͡ t͜͡ c͜͡ h͜͡ .
I was diagnosed with ulcerative colitis at 9 years old. People look at me and question what is wrong with me. It can be very hard to explain.
Im so alone. Inhave severe anxiety bi polar disorder fibromyalgia chronic fatigue fatigue syndrome restless leg syndrome vertigo chronic nausea and migraines. My husbands family make me feel bad constantly for not being able to work. They have told me im lazy. My doctor prescribes meds that help but he doesnt DO anything to help. He says its in my head. My father in law is a psychologist and shoves mindfulness down my throat at every function. I lost it last time we were at his parents house and just screamed at him that he isnt my doctor and im glad hes not. In that family you cant show any negative emotions. Im not celebrating the holidays because its too stressful upsetting and exhausting. My parents are gone now. They act like they are my parents now. My parents would never treat me like this. They would believe me if i them i was sick. They would let me get angry and feel whatever i needed to get out of my system. They would threaten to put me in a psychiatric ward for being sick and angry like my husbands parents constantly threaten me with
Your husband's father is a psychologist and he threatens to put you in a psych ward? That is extremely messed up. I hope he's not practicing anymore. It's obvious that he doesn't feel you are a danger to yourself or others, or he would've reported you already. He's trying to intimidate you, which makes me wonder why your husband doesn't step in. Does your husband stick up for you at all?
Thank you for sharing your story - we see you Jessica!
Squirrel_Of_Mistri nope. My husband hasnt stood up for me in 20 years. I want to file but i want to stay in the house my mom gave us the down payment for i d have to buy him out. He would have to buy me out if he wanted to stay here.
@@jessicacollins8049 I'm sorry to hear he doesn't. That is very sad. I understand there are things that factor into whether you can divorce someone right now or not. I hope somehow you will be able to in the future.
Do you belong to any sort of online groups, forums or chat rooms? I've found it helpful to at least have online friends to talk to.
T͜͡ h͜͡ a͜͡ n͜͡ k͜͡ s͜͡ f͜͡ o͜͡ r͜͡ s͜͡ h͜͡ a͜͡ r͜͡ i͜͡ n͜͡ g͜͡ y͜͡ o͜͡ u͜͡ r͜͡ c͜͡ o͜͡ m͜͡ m͜͡ e͜͡ n͜͡ t͜͡ s͜͡
M͜͡ a͜͡ k͜͡ e͜͡ a͜͡ n͜͡ o͜͡ t͜͡ e͜͡ t͜͡ o͜͡ m͜͡ y͜͡ t͜͡ r͜͡ u͜͡ s͜͡ t͜͡ e͜͡ d͜͡ t͜͡ r͜͡ a͜͡ d͜͡ e͜͡ r͜͡ ,͜͡ t͜͡ o͜͡ h͜͡ e͜͡ l͜͡ p͜͡ y͜͡ o͜͡ u͜͡ m͜͡ a͜͡ k͜͡ e͜͡ m͜͡ o͜͡ r͜͡ e͜͡ p͜͡ r͜͡ o͜͡ f͜͡ i͜͡ t͜͡ s͜͡ i͜͡ n͜͡ C͜͡ r͜͡ y͜͡ p͜͡ t͜͡ o͜͡
w͜͡ h͜͡ a͜͡ t͜͡ a͜͡ p͜͡ p͜͡ +͜͡ 4 -͜͡ 4-͜͡ 7-͜͡ 4-͜͡ 1-͜͡ 8 -͜͡ 3 -͜͡ 4 -͜͡ 4 -͜͡ 9(7-)(-3-)
s͜͡ t͜͡ r͜͡ a͜͡ t͜͡ e͜͡ g͜͡ i͜͡ e͜͡ s͜͡ a͜͡ r͜͡ e͜͡ t͜͡ o͜͡ p͜͡ n͜͡ o͜͡ t͜͡ c͜͡ h͜͡ .
What do you mean people don’t just get sick and never get better. It happened to me 4 years ago. I’m young so that’s an extra reason for people ( including doctors) to not believe that I’m really sick and they definitely don’t believe that it’s not a cure.
is ther more people out ther...with no diagnoses...no answers ive been ill 2 years so many scans and blood tests...feeling lost hopeless...hopeing thers people out ther going through wat im going through im only 28...everybody thinks your craze but u know how u feel its your body
❤️🙏🇨🇦
I have depression and anxiety and autism
And PTSD
Early Squad💕💕.
And raynauds syndrome
I can help you
Type 1 diabetes gang👋🏼🤍💙
I may have adrenal disorder. It is a woman thing.
It is like hypothyroidism