MGAthlete
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Myasthenia Gravis Speech: Part 2
Myasthenia Gravis and Graves Disease are two autoimmune diseases that I was diagnosed with in 2015. This is part 2 of the MG speech I did in 2016 explaining the disease and my symptoms (including diplopia, ptosis, difficulty talking, chewing and general muscle fatigue) as well as my plan for recovery.
Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland.
Part 1 was more a background and getting diagnosed. Part 2 is about why I did't choose certain treatments, what I am doing instead and where I plan to go in future.
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Переглядів: 2 809

Відео

Myasthenia Gravis Speech: Part I
Переглядів 3 тис.4 роки тому
Myasthenia Gravis and Graves Disease Talk. This is a MG speech I did in 2016 explaining the disease and my symptoms include ocular (diplopia, ptosis) and general (difficulty talking, chewing and general muscle fatigue.) Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymu...
Myasthenia Gravis Remission: My Story Summary
Переглядів 8 тис.4 роки тому
Myasthenia Gravis Remission is a dream for most MG patients. The symptoms of diplopia, ptosis and muscle fatigue go away in a remission which can be while still on medication or meds free. Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland. This stops the muscles...
Myasthenia Gravis Symptoms
Переглядів 33 тис.4 роки тому
Myasthenia Gravis Symptoms. My MG symptoms include diplopia, ptosis and muscle fatigue. Other names for symptoms: double vision and a droopy eyelid. Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland. This stops the muscles from contracting as they are not able t...
What is Myasthenia Gravis?
Переглядів 3,6 тис.4 роки тому
Myasthenia Gravis is a neuromuscular, chronic, autoimmune disease. What is Myasthenia Gravis? The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland. This stops the muscles from contracting as they are not able to receive nerve impulses. The symptoms of Myasthenia Gravis, called MG, are diplopia (double vision), ptosis (droop...
How I spent my Trust Fund
Переглядів 8064 роки тому
How did I spend the trust fund money that was donated? What did I invest that money in? The return on investing in health resulted in massive returns. Health problems can be very expensive. Finances are important along with a budget and a plan. This video explains those steps and how the fundraiser changed my life. I was fortunate enough to receive a lot of support when I was diagnosed with Mya...
Is it Possible to Recover from Myasthenia Gravis?
Переглядів 6 тис.4 роки тому
Myasthenia Gravis and Graves Disease (autoimmune disease) changed my life. They affect the immune system, thymus gland and thyroid. Is there a cure or only remission? How can I recover from MG and Graves Disease (hyperthyroidism)? Are these really chronic illnesses? I was diagnosed in 2015, I quickly looked for treatments that would help me. My muscles became very weak, I had a thymoma (enlarge...

КОМЕНТАРІ

  • @daveatauvich2826
    @daveatauvich2826 18 годин тому

    Mine has gone into remission after i was diagnosed 2 years prior. I don’t know why, and I have been told by my Dr. it might come back.

  • @chynab8485
    @chynab8485 8 днів тому

    With me just seeing this videos, has he been able to play football again?

  • @SandyBatten1962
    @SandyBatten1962 22 дні тому

    This is another autoimmune condition. Like all the other AI conditions mainstream Medicine pops the symptoms affecting a particular or group of organs into a silo and treats it as a stand alone disease. It’s not a disease. It’s process just like lupus and MS and RA and many others. I have several autoimmune conditions which isn’t unusual bc this is an other process that kicks off due to an overactive immune system. We can never get completely rid of the antibodies that have been created by our immune system to keep us safe from some perceived harm but it is within our power to be our own health detective, find and then avoid the triggers that flare the immune system into over reacting to environmental triggers. Great video. All the best

  • @HerreraCam
    @HerreraCam Місяць тому

    Thank you for sharing your journey.

  • @johnnguyen2782
    @johnnguyen2782 Місяць тому

    Thank you very much. It is a very informational video....Love it

  • @linhthuy9399
    @linhthuy9399 Місяць тому

    What you think about the virus?

  • @JeoJetsonmusic
    @JeoJetsonmusic Місяць тому

    Having a view that an autoimmune disease is self inflicted is kinda crazy. I’ve never seen any evidence to support such a strong claim

  • @rowdyduterte8476
    @rowdyduterte8476 Місяць тому

    Did you ever make a video on how you put yourself into remission?

  • @palmajavier
    @palmajavier 2 місяці тому

    I truly believe eating carnivore diet would put this disease in remission. If anyone has given it a try it would be good to hear about their experience.

    • @rodcon75025
      @rodcon75025 Місяць тому

      I’ve gone into remission twice over about 10 years due eating a keto diet. Anytime I feel it flaring up I drop carbs up the water and vitamin d and tan.

  • @sarahpalmer5122
    @sarahpalmer5122 2 місяці тому

    Thank you so much for creating this channel, Ross. I suddenly became very ill with MG at 27 years old with 2 young children. It was detrimental. I have the same convictions of you and have worked very hard to recover as naturally as possible. I rely heavily on mestinon fir function. I'm 3 years into MG and I'm slowly getting to where i want to be. Heavy metals and nutrition was huge piece for me. I'm also so thankful for the comment section in this video.. these testimonials are so much encouragement for me as someone who is praying and working towards recovery for sustainable health.

  • @ralphtkane1106
    @ralphtkane1106 2 місяці тому

    Excellent video. I have had MG for about 5 years, but its not a severe case and i have managed to work around it. The double vision sure makes driving a chore, though.

  • @BJ-bc7sl
    @BJ-bc7sl 2 місяці тому

    How did you get into remission?

    • @starcorpvncj
      @starcorpvncj Місяць тому

      It happens with some people only. Nothing can bring it on. MG is very varied among individuals.

  • @kissandraalfred6728
    @kissandraalfred6728 2 місяці тому

    Thanks for the info, it's only because a friend of mine was diagnosed with it this week I know about it. Thank you.

  • @DineshKumar-xj9wj
    @DineshKumar-xj9wj 2 місяці тому

    So nice to hear that it is possible, glad for you... I am trying all possible ways to but not finding any solution for my myasthenia gravis... Can you please share ehatbyou did or is advised for remission? Thanks a lot and more power to you.

  • @user-pu5ys9he1z
    @user-pu5ys9he1z 2 місяці тому

    Good

  • @hannahpate5162
    @hannahpate5162 2 місяці тому

    Anytime I go to the hospital they tell me they can't do any diagnosis... Even when I tell them my Dr believes I have kt

  • @karmenwagler6772
    @karmenwagler6772 3 місяці тому

    Hello and thank you for offering this resource!! My mom was diagnosed with MG about 2 years ago. Started with speech and swallowing issues then a crisis. No medications are helping. I appreciate what you are doing here!!!

  • @10221844
    @10221844 4 місяці тому

    I appreciate your testimony in battling MG. I have also been dealing with this issue since 2019. I have gone in and out of remission 3 times. Mine is aggresive general MG. I crashed once and almost met my maker. I am presently in remission. I agree with you in the need to change or modify your dietary lifestyle. In my case, I was initially prescribed Mestinone and Prednisone which have helped but they also carry lots of negative side effects. For me, cutting down sugar, salt and fatty foods has helped. I decreased my intake of Prednisone from 40 mg to 5 mg daily. From 14 daily pills of Mestinone to 9. My vision is quite normal now. In sum, MG is not the end. Life is precious and we must be willing to change our life style in order to enjoy more years.

  • @MrGary0628
    @MrGary0628 4 місяці тому

    Great video! this was streamed 4 years ago. I wonder how are you doing now? still in complete remission of MG? would be great to get an update and if you are still good and keeping the nutritional diet and supplements...

  • @andrewkonizeski7123
    @andrewkonizeski7123 4 місяці тому

    My understanding from Josephson is MG results from a manganese deficiency. Recovery has to happen macro and micro ways, vit e and manganese address MG micro, in more macro terms eliminating diets n increasing nutrients takes us all the way back. Dr. Josephson, Dr. Jerry Tennant, and Dr Shawn Baker have all brought me back. Thanks for the work you have done and willingness to share it💪

    • @MrGary0628
      @MrGary0628 4 місяці тому

      did @mgathelet reply? wonder how he is doing now...

  • @vladislavfeldman6562
    @vladislavfeldman6562 5 місяців тому

    When I got diagnosed about 6 years ago in 2017, because of slurred speech. I thought not really a big deal. Went on Mestinon Immediately. Than a couple of days of not being able to swallow or drink seemed more serious. Otherwise until 1921 seemed mild, apart from the constant slurring ( and unbecknown to me then the leg paralysis if seriously over strained, as in 8 flights of stairs for a morbidly obesese) Then in 1921 suddenly got feet leg and arm and palm swelling all simultaneous, thought it might be arthritis. found internal bleeding. Had an endoscopy, suffered a (mayathsenical) respiratory distress (ICU went from 5 people to 55 people after revival ). Got put on IVIG monthly bleeding cured.(5 month later had a bought of occular mayathsenia for about 3 hours) Unfortunately 7 month after had difficulty breathing, thought it was because my IVIG was due, 50 meters short of hospital emergency, got a nurse to wheel me in and had full mayathsenian crisis, with total respiratory failure. Spent 14 days in ICU and 7 days in obsevation, fast tracked to Chemo. Now with my last Chem dose, postponed twice due to covid and fever. My respiratory and upper body part appear to be in full-remission. Legs, knees waist ??? could be osteo, or overweight. Mobility at best 2 km/h

  • @thatcreativebeauty
    @thatcreativebeauty 5 місяців тому

    I have so many questions can you share how you were diagnosed and what were your symptoms exactly and what’s the difference between MG-CPEO because I was diagnosed with CPEO?

  • @jimscruggs5400
    @jimscruggs5400 6 місяців тому

    Yep I've been there,

  • @Findjapants
    @Findjapants 6 місяців тому

    Never heard your story but I’m super proud

  • @truthgambit911
    @truthgambit911 6 місяців тому

    Whenever I am facing a bad flare I come back and listen to all your golden thoughts.

  • @abkue4138
    @abkue4138 6 місяців тому

    Thank you for sharing. I’ve just started my journey with the intent of putting MG in remission. Your story encourages me to never stop making my daily wins in this fight to regain my health back.

    • @EmeliaGalangue
      @EmeliaGalangue 25 днів тому

      Thank you for sharing your story cause my son his diagnose m. G. Also. You can help me

  • @annabellamarston448
    @annabellamarston448 6 місяців тому

    Thanks for your input. I had symptoms after a Chikungunya virus episode in 2014. Started with intermittent diplopia , dizziness, speech slurring etc. Each time a different symptom would be first and strongest.so it took almost 3 years to get a diagnosis. It is stable now on pyridostigmine, but varies from day today and also throughout the day. At 85 it gets confused with the general aspects of aging. Choking is what fears me most and I no longer eat in front of others. ..it is not a pretty sight. It is vastly misunderstood by most doctors and several tell me they have only read of it and have never treated a patient who has been diagnosed with MS. Thanks for putting yourself out there.

    • @perhapsno261
      @perhapsno261 4 місяці тому

      oh yeah i have MG too recently diagnosed but was suffering from it a long time ago i also stopped eating infront of others and giving presentations due to slurred speech , MG made a introvert and i am grateful for it

  • @JoseSanchez-uj3ci
    @JoseSanchez-uj3ci 7 місяців тому

    Can you tell us how you overcome the symptoms. If you had some treatment. God bless you..

  • @user-we4ub9hh5e
    @user-we4ub9hh5e 8 місяців тому

    What book did you read? And what was your diet like to helped your remission

  • @artisanwest9730
    @artisanwest9730 8 місяців тому

    I hope you are still doing well. I had Ptosis in my left eye that would totally close. This led to my doctor, who didn't know what the problem was, deciding to give me prednisone starting at 50mg and tapering off. The ptosis went away after eight days. About a month after that I got the double vision which was very disturbing. I had the usual tests MRI of brain and neck, blood tests and was diagnosed with MG. An ophthalmologist recommended to not use prednisone and an emergency room doc gave me an Rx for another steroid which did nothing. My drivers license was about to expire, and I was driving with an eye patch. My primary care doc, who had never heard of MG but is now quite educated about it, put me back on prednisone and referred me to a neurologist. While I still get some instability when walking and fatigue, I am better with little to no eye symptoms. I got my license renewed too. I was also getting bad leg cramps, mostly at night. A 250mg magnesium tablet before bed got rid of that. Your video shows what most MG patients go through.

    • @TheRealist2024
      @TheRealist2024 7 місяців тому

      I have been diagnosed with MG but my symptoms happened in reverse to yours, double vision first then the eyelid drop on the left. Did Prednisone clear you're symptoms and have you stopped taking medication now? How are you feeling?

  • @wigertood1
    @wigertood1 8 місяців тому

    Thanks for this. I was diagnosed in January 2012, been struggling ever since. Managing as best as i can with meds but hard going. After all this time and discussion with my neurologist, I'm booked in for thymectomy in December. Expecting a long process but hoping for the best.

  • @sofiabanuelos4953
    @sofiabanuelos4953 8 місяців тому

    Hi good en vivo

  • @benardlusiine7273
    @benardlusiine7273 8 місяців тому

    I'm a MG victim and this is so positive for me thanks

  • @theoriginaldeadchick2132
    @theoriginaldeadchick2132 8 місяців тому

    positive video but it is worth saying not everyone gets to remission, and remission doesn't always last. I'm still trying to find an effective treatment, but hoping at some point to get at least someway back to normal life. Fingers crossed.

    • @theoriginaldeadchick2132
      @theoriginaldeadchick2132 8 місяців тому

      exactly this, just posted the same. I do get a feeling of hope, but what I worry about is having feelings like I'm not trying hard enough to control the fact my body is still making a lot of antibodies which I have no control over. One day hopefully however.

    • @truthgambit911
      @truthgambit911 4 місяці тому

      I have been doing meditation and yoga since my last crisis and I truly think it is helping. meditation with breathing exercises are especially helpful. This is a little crazy but a man named Joe Dispenza has meditations on youtube about how our mind can help us heal. As I started to listen to his I saw that there were many people with these kind of meditations. I feel better since I started doing these meditations. Again it sounds crazy but I think just the fact we relax our bodies intentionally helps us heal.

  • @paulasanz9600
    @paulasanz9600 8 місяців тому

    Very inspirational video Thank you very much This video deserves millions of views 🙏✨

  • @paulasanz9600
    @paulasanz9600 8 місяців тому

    Love the positivity ✨🙏💫❤️‍🩹thank you !!

  • @paulasanz9600
    @paulasanz9600 8 місяців тому

    You guys are amazing It gives me lots of hope Thank you 🙏 for this video !🙏✨❤️‍🩹 All of us will be MG free 🙏

  • @gigivega2233
    @gigivega2233 9 місяців тому

    Let me know youbarecreal. I'm very interested and scared because I do have mg

  • @amandaantonie
    @amandaantonie 9 місяців тому

    Obrigado pelo vídeo, meu esposo foi diagnosticado a meses atrás, primeira vez que encontro um vídeo completo.

  • @neilmcmanus3727
    @neilmcmanus3727 9 місяців тому

    I would like to ask: why are there no clinical trials using umbilical cord derived mesenchymal stem cells (uMSC) to treat myasthenia gravis ? I read and am told that MG is an autoimmune disease. There are many people going to Mexico to have treatments using uMSCs for their individual auto immune condition. Many clinics in Mexico, and Dr. Neil Riordan's Stem Cell Institute in Panama have listed protocols for treating myasthenia gravis. Why isn't the use of uMSCs being pursued ? Where are the clinical trials ?

  • @agxieduxie2640
    @agxieduxie2640 9 місяців тому

    I have, was diqgnosed 2017. I used to run and i hqve to stop. U r right it can be managed now i am back to my normal life. I am now 60, I do yoga it helps me alot and i feel great ❤

  • @jmwalkabouts
    @jmwalkabouts 9 місяців тому

    I believe MG is bit like how Hemmingway went bancrupt; First slowly then suddenly. I got first droopy eyelid 1.5 years ago. It went in to remission after some weeks. Now it came back with double vision and with my jaw feeling bit funny/tired. The other day i looked at some older photos though from 7-8 years ago and noted that the droopy eye was slightly smaller already back then. So it has probably been building up for a decade or more before it was really noticeable.

  • @sangeetaDtripathi
    @sangeetaDtripathi 10 місяців тому

    Oo

  • @__whoisnesa
    @__whoisnesa 10 місяців тому

    i think after 3 years and a lot of self isolation i know what i have... bc of your video im shooooookkkk

  • @Teenibash1969
    @Teenibash1969 10 місяців тому

    How long did it take for your eye to open up and return to normal? I was diagnosed July 2021 and just this week 21 July 23 my eye has returned to normal.

  • @anne-mariezack
    @anne-mariezack 11 місяців тому

    Is there any correlation between this & Dystonia that anyone knows about? 😊

  • @rizadayon5353
    @rizadayon5353 11 місяців тому

    Im so happy your okay now,i have mg too still my eyes is still dropping

  • @Tina-xc2pq
    @Tina-xc2pq Рік тому

    How are you after the vaxxine? I didn't take it. Was scared ....

  • @alanabernstein2081
    @alanabernstein2081 Рік тому

    My right eye is beginning to not focus and drift on it's own and weakness is my eyelid, last week the doctor told me she believes I have MG and I can't explain it I walk down the street half way and my left leg feels like I worked out with heavy weights, I can't hold a book in one hand for 5 min. I go for cat scan to see if I have another eyes disorder. I hope I don't have MG and the cat scan explains my eyes issues. I have thyroid disease and take levothyroxine for 5 years now. If any one has any ideas or things to look for let me know.

  • @albertasua8340
    @albertasua8340 Рік тому

    Please I need your help agent please