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I get this and even someone snappping at me can give me a collapse or an after-seizure feeling in my eyes and nose. A mirage feeling i can't explain. I get headaches, slight temp, swollen gland feeling and the after- seizure feeling from social situations. Amatriptylene given to calm anxiety (and severe tri nerve pain which wasn't really believed) makes me have seizures even worse. I have really heavy period where i soak giant wee pad through fast. Luckily someone gives me the pads or id be in hospital where i should be. Doctor determined not to let me see a specialist because im over 50. Bled for 6 weeks given pills to stop it. Am in uk.

I just found your channel. I've been suffering from seziures since July 16, 2023. I figured out it is related to my period. I no longer get the usual pms symptoms like sore breast, or cramps or cravings. I get seizures, my speech gets slow i'm super tired and just unable to function. My neurologist hasn't diagnosed me with epilepsy or non epilepsy until I get an EEG done on my menstrual cycle. Its just hard to time it since my cycle is so unpredictable. Since i turned 35 everything went to hell. It's also hard theres not much about catamenial seziures on the internet or what they look like.

Seems like it's chronic fatigue rather than seizures. I know having a seizure can make one tired but, are you tired because you are having seizures all the time? And are your seizures triggered by hormonal changes? I think I've been having seizures at the end of my periods because I have Auras for like 3-4 days. It's a scary feeling. I can't go on contraceptives because it reduces the effects of my anti-seizure meds. Also Contraceptives don't block hormones so your body is still being affected by hormones 🤔

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Thank you for sharing your story and information. My teenage son has had absence seizures for years and I’m researching things in addition to regular meds.

Hope your honest description of your seizures will help other people who suffer with this complaint