Відео

I recomended a natural juice and habits to an exgirlfriend,she has lupus,and after she started doing all that,she became so much better,and I found that solution in youtube,but in spanish because we are from Mexico,i will let you the "recepie" and I really hope that help everybody here,it is just a natural green juice two times a day,daily with a juice extractor: 2 celeries 1 cucumber Spinach Kale Small piece of ginger Half of green apple And for the last,is earth conection,it means,walk without shoes and sox in natural earth,or natural sand (beach),have a direct contact with nature. I will try also to put here the links of that,for the videos and probably can help you all with this horrible desease

This is so helpful, thank you. I live in AR and in Oct I was referred to a rheumatologist due to a positive ANA. I can’t get into see one until the end of August and I have to drive about 50 miles to him because there is only 2 in the city I live in. It’s so frustrating.

LOL YOU LOOK KIND OF DRUNK TO ME😂

I knew it was too good to be true.

The taste is bad. Also it made me feel stressed out.

Thank you for the test. I guessed it is like that. It’s like any new modern company, there are people thinking about a product, do something and mix stuff together and sell it.

Thank you

hi! thanks for your posts. i was diagnosed with SLE one month ago and put on HCQ 200mg once daily. my ESR 108, CRP 20 so dr started prednisone. followup yesterday stopped prednisone and ordered Saphnelo infusion. I am sure this approval process will take time-or denial is firm. i sm not finding you on Facebook…?

any updates? my dr ordered this. waiting to see if approved

Thank you soooooo much

I was diagnosed by my PCP with atypical sle last week after seeing several specialists that all said lupus but my ana was negative so no one would diagnose me. I had an unexplained renal infarction at 33 years old and fast forward a year, one heart surgery to close a hole, two nephrologists because the scarring has spread to both kidneys now, a hematologist, i finally have a diagnosis and on hydroxychloroquine and see a rheumatologist on 10/30. I had to have a baseline EKG done for the meds and it showed I have had a heart attack that no one knew about when all the ekg's up until this point have been normal.... it is SO MUCH! Thank you for this!

Thank you!! I almost bought it!!

Thank you. You’re a Nice Lady teaching us . I am trying to find out if I have lupus . Thanks for sharing .

Thank you for doing this review. Very helpful.

Thank you for saving me money. I was going to consider it.

I’ve been fighting to get a diagnosis I have protein in my urine high levels in my pancreas I feel fatigue all the time, brain fog, migraines, joint pain, swollen joints and hives on my body. My doctor tested me Ana came back 1:40 positive she tells me everything is negative and now referring me to a GI doctor. I’m so tired of feeling this way.

I don’t love this either. The taste and after taste is terrible. The L-Theanine also gives me a headache.

I fear this is what's going on with me. I already have an autoimmune disease, psoriasis but I KNOW something else is going on aside from possible perimenopause. Ive had so much fatigue, joint and especially muscle issues. I just said to my husband a couple of months ago it feels like my muscle is wasting away. It goes in spurts, I now realize are more likely flares and is ALWAYS terrible during the summer when I'm outside in the sun a ton doing yardwork. This year I started breaking out in an itchy rash on my arms, chest and back when out in the sun. I wake up ALL the time to painfully swollen hands and have such a hard time sleeping because my legs hurt so much. I can't lay on any seems of clothing as it hurts my legs so much. Just in the last year Ive hac issues with ac joint in my left shoulder and now have issues with both the joints and muscles in my right shoulder and tore my right bicep in May and its still giving me issues. I was a huge athlete my entire life and had a TON of muscle, i shouldn't be experiencing this many issues in my early 40s. It's so frustrating!

Thank you for your honesty

This video was so helpful. I’m just finding out that this is what is happening to me. I resonate so much. Thank you

Thanks for this. I have so many of the symptoms and now CKD and they "don't know" what is causing it. I am ANA negative but I have complement deficiencies. No diagnosis yet.

Thank you for the honesty, thorough review, and getting right to the point!

Thank you for the video, it really helped me get my first injection in last night, however as far as the burning sensation it wasn't too bad for me but it could be worse for others. Thank you again :)

Thanks for the honest review. I ALMOST bought some.

Thank you for your honest review! Really appreciate it :)

Thank you!

Leflunomide made me so sick, uncontrollable diarrhoea, I had to stop taking it

there is a big blood test call AVISE. have de do that one

i kept pushing and pushing until neuromuscular dr said “it’s ALS”!!😮5 weeks kater after more tests she said not ALS. it was at that point i decided since i dodged a death sentence that i dont care anymore what it is-it’s not ALS! i’m going to live best i can and be happy

Great info! I’m ANA positive (1:80), low C3 & c4, tons of symptoms and the rheumatologist says fibromyalgia 🤷🏻‍♀️ I don’t know where to go from here 🥹

Wellbutrin is a terrific medicine and I'm glad it's helping you. Hope you can get your meds figured out and your recovering from surgery, and complications, is going as smoothly as possible🤞 Rinvoq did nothing for me either so now on CellCept and praying it starts working soon. The Benlysta effect (not working as well after cycling off/on a few times) is a known problem and also happens with other biologic meds for other diseases like RA. Some people have better results with the infusion vs SQ injection. Worth it to discuss it at least. In solidarity!

Horrible diarrhoea every single day, and unpredictable when it would hit, quite literally couldn’t go anywhere, terrible stomach pain

Hi Sharri....Can i have your facebook id and need your help for my wife diagnosed with SLE lupus to connect with you..Thanks

Just did two days on this and the nerve pain and muscle pain was so bad I could barely move yesterday.

I just wanted to say thank you so much for making this video. I will say it has taken me 6 years. 5 years of over and over of being kicked back because of a negative ANA test although all my symptoms were screaming Lupus. I literally just saw a rheumatologist for the first time this week and he understands and is going to run more labs but regardless of what they say is going to treat with lupus meds. I cried so much. I have lost my life for the last several years. Literally, I have lost myself. My rheumatologist is leaving this practice in a few months. What if the new one doesn’t believe in seronegative? I’m freaking out.

I just got the diagnosis of seronegative today and the doctor wants to do a bunch more tests but he said regardless of the tests he is going to treatment as I have all the symptoms. This has taken 6 years to get into rheum. I cried like a baby during the visit as I finally made it in to see them. Bad news is he is leaving in 2 months so my case will be turned over. So new chapter, I’m a bit scared.

🖕Rinvoq. I'll never get a drug that they advertise on TV. Never. Damn SOB pharmaceutical companies.

My symptoms started in 2010 and I have been to so many other doctors dismissing me and telling me it wasn't their problem. I was diagnosed with Hashimoto's, but my symptoms have ramped up and the medication isn't doing anything. Hoping to get a referralto a rheumatologist in August. But my biggest concern is what you said about the Medications causing cancer. I have the Chek2 gene and that increases my risk for certain cancers. Are there any "safe" meds to take?

I usually don’t comment on things but your story resonated with me so much. I’m currently 25 and have been a “medical mystery” since I was 12. Just recently did I finally get a pcp who listened to me and put in a referral for a rheumatologist, however after having to contact them MYSELF because they didn’t contact me, I found out that the provider there said that my high inflammatory markers and joint pain were not enough to be seen there so they closed the referral. Thankfully my pcp is just as upset as I am and she’s working to get me another referral for a different facility. My ANA is also negative but I have almost every symptom for Lupus or an autoimmune disease and I can’t let go without an answer. Thank you so much for sharing your story, it made me feel heard 💕

Did you lose your hair on Cell Cept?

I just saw this video now cause was looking for answers, I have lupus and severe rheumatoid arthritis, gi and colon rectal problems I need a colostomy bag, I was born sick I now have over 10 different conditions n the auto immune meds kill my stomach which is already horrible, I'm allergic to steroids n bout 11 other meds I do not have much options n I'm on lifelong disability . All I know is suergery,hospitals ivs,is, being sick my entire life. Now I gotta get a mass removed from my throat to biopsy for cancer on top of the lupus n 10 other conditions. I didn't want to suffer anymore ,I'm 36 n I've had over 10 surgeries. Really losing hope with these idiot doctors, they wondered y I had a positive test for lupus n besides the RA I had alot of inflammation everywere in my body, but like I said I'm allergic to steriod I don't got options like other people. N no money to travel for better Healthcare. Thank u so much for sharing ur story, I used to feel alone like no one cared not even to call or text if I was ok it's just me n my rescue dog . Much love and support, I hope ur not having flare ups right now. My family doctor said it right she said my body is taking a beating. So I understand how frustrating these conditions r n how they disable u. Thank u again for sharing ur story with us ❤❤❤

Omg watching your videos I don’t feel so alone 😢

So you use coal tar shampoo and selsum blue shampoo at the same time?

You still on it?

Thank you!it helps me a lot

I was diagnosed in 1996 with lupus over the course of the years, all I've been told to take antidepressants. I'm not a depressed person. I'm very up most of the time. Even when things are bad I'll still find something to laugh about.. The problem is if you're not depressed, you're not clinically depressed , antidepressants can really screw you up. I've tried a number of them and they've all been disasters. Amitriptyline 6 months walking in my sleep. Couldn't think couldn't reason. Not to mention that they turn off your control buttons. I truly believe a lot of doctors are drugging lupus patients with antidepressants just to shut us. They don't have to listen to us. But that's just my opinion.

This is me! ANA is negative, but I have majority of the symptoms! I tested positive about 8yrs ago, but since then I’ve been testing negative. It’s almost not a day that goes by that I’m not in PAIN!😢 I also have days and especially nights where I itch non stop. I’ll get a rash on my hand every blue moon, but I get thrush on my tongue often. It’s so much pain….😢 I have spikes ever so many months where my legs and arms inflate more than normal, and I spike fevers up to 105. It last anywhere from 24 to 72 hours. 😭 They say “O it’s fibromyalgia!”My CSR and ESR are off the charts!

I think apart from ANA there is another antibody test for Lupus such as anti dsdna. If the Dr. is rheumatologist they know what tests should be administered.

I have a positive RNP and positive C4 & C3 and my Dr has never said anything. Also, positive SS-B and positive RA factor PLUS STIFF PERSON SYNDROME. I’m also from upstate New York and moved south. I switched drs but I’m waiting to see if I can be seen sooner than November! Thank you for the info. I worked for drs for years and know medical terms so I sent the new doctor a message. I see all my doctors at the same clinic. If this doctor doesn’t get me in sooner.. I’m going to involve ALL my doctors and go to the top and complain. I can go to another group. Sorry for your diagnosis.

Did you ride a bike extensively or any type of repetitive exercise machine as the Elliptical?