Відео

Love this - you do a great job calmly describing the reality of BFS. It can be consuming and cause extremely high anxiety but as you clearly state, as inconvenient as it may be, it’s not going to kill you or harm you in any way. If we focus on that rather than the worst, it helps us accept and move on. Would love to understand why people get it? I suppose since it isn’t harmful, it’s low priority in terms of research but an understanding of it could help a lot of people mentally.

You do a great job explaining in a calm matter. I was just diagnosed with BFS and like many, I was freaking out. So much I couldn’t eat or think of anything else. I acknowledge it takes some time but as you effectively described, don’t think about it and it will minimize the effect or impact it has on your life. Sounds simple but it’s not for most of us but it is absolutely the right thing to do.

I developed a twitch in my upper right chest/pec area in June of 2024. I didn’t think much of it but I figured it best to see my doctor. Doctor said to take magnesium and b12. I followed doctor’s orders and all was fine until August 12 when my left tricep started going insane. The twitch moved from my tricep to my back under my shoulder blade. It hasn’t gone away since. It’s been twitching everyday. I AM LOSING MY MIND. I can find no peace. I have struggled with anxiety since my 20’s. I am almost 42. I have a strange sensation at my left pinky toe. I wouldn’t call it numbness but it’s just feels strange. I am hyper aware of it along with my twitches. I have an MRI scheduled for September 4th. My doctor referred me for an EMG. Both at my request for mental health. My EMG has yet to be scheduled. I am struggling to find resources for mental health help. I doubt it would work anyway. I keep waking up in fear at 1:30am. I am certain that I have ALS. My wife has been great. I am so scared that my time will be cut short with my wife and 9 year old son. I love them so much.

Thanks for the videos, Paul

Dearest friend. Greetings from Spain. I used to suffer this kind of fasciculations as far as I can remember. Sometimes I went to a neurologist that says to me I'm healthy and this twitches will came and go many times. I had them in very different parts of my body. I suffer hard anxiety since 6 months ago and now I have twitches in my left bicep for a week. I only feel them in the night. My anxiety grows even to difficult me breathing. Listen to you was very useful to understand that it shouldnt be my last days in earth. Sincerely yours, a huge hug.

Do you guys ever get aches or like shooting pains in your muscles? Sometimes it even feels like a bee sting or a faint stabbing. Super strange

I started twitching after the first Covid vaccine. Has anyone else had the same ? @bfs and anxiety support , did you get it ?

I am having difficulty concieving.. can BFS be a reason behind it??

My BFS started 3 years ago during the pandemic. I had excrutiating pain in my legs down to the bone. I've had full body spasms since then. My worst is when my diaphragm does it. Feels like getting punched in the solar plexes. Does anyone else have accompanying pain in the muscles, joints, ligaments, tendons, bones? Because I've had this pain on top of the fasiculations. Thanks

Die Zeit ist der Gegner. Wenn sie vergeht kann man auch damit leben oder es sogar besiegen.

You really are giving people a reason to live again with these videos, i come back to them when im down the rabbit hole and you alway calm me down even if its only momentarily, which now adays is tough. I wish you and your family good fortune sir

I feell this tiwitiching in feets arms ..legs abdomen inner brain

Side effects of COVID-19 Vecin

Thank you!!! I was just diagnosed with BFS a couple days ago. I’ve had twitching for about nine months now. After a strenuous hike the twitching went insane for a week, got somewhat better but the twitching is worse now than before the hike. A good friend of mine passed a year ago today from ALS, so I have been really spinning out with everything you have talked about in your videos. Just watching them this morning has helped me a lot. They gave me reassurance that my doctor couldn’t or didn’t. My doctor didn’t give me anything other than it’s BFS, I’m confident that it’s not ALS,MS or Parkinson’s you’ll be fine. Which helped but didn’t help at the same time. Anyway I didn’t want to make this too long but already have. So thank you so much for sharing your experience in detail; it has helped mentally watching and listening.

Thank you so much for this. These started for me after I got Covid. Started in calves and progressed to full body. I get them in my intestines and diaphragm and its like getting punched in the solar plexes. Theyve gotten so bad the last 4 years that my whole limb jerks from time to time. It is exhausting. Ive tried everything. I do get the internal vibrations in my head 11but nothing in the throat. I appreciate connecting with you on here. I get overwhelmed sometimes

Can this go away? Or is it something we are stuck with. Thanks

Had eye twitching left side,doc says its anxiety or stree,had botox.Recently had first time seizure.

Is it constant? I have these "twitches" but they are not really twitches, more like just a movement of the muscle/ feels like popcorn popping in my muscle, lasts like 1-5 seconds, its not like a normal twitch which I've had before. I also get a combo of just a pop, a wave movement of my muscle, a low vibration etc, not really a normal rhythmic twitch (which i get on my eye when I drink coffee), is this considered BFS?

Magnesium glycerinate has improved 70% of my twitching. It was recommended by my pcp after my neurologist said I have bfs.

Hi everyone, My name is Giacomo, and I’m an Italian international student in the USA. I want to share my story in hopes of encouraging someone to find some inner peace and to strengthen this community. I've been a football player for 22 years, and apart from the usual injuries, my health was always flawless. But about 10 months ago, I started having stomach problems which caused me a lot of anxiety. I thought something terrible was happening to me. Without American parents to support me, I had to pay a lot of money for insurance and had to carefully select my medical visits. This only added to my anxiety because I couldn’t seek as much reassurance as I wanted. I felt sick for a while until I went back to Italy for a gastroscopy and was given the all-clear. I still don’t know what caused the pain. Then, in March, I started having muscle twitches in my right forearm. They weren’t constant but pretty frequent. A neurologist said it was a lack of magnesium, but I knew my magnesium levels were fine. Now, for the past 14 days, I’ve had consistent twitches in my left elbow, and for the past 3 days, in my right wrist. These twitches drain a lot of my mental energy, and I wish they would stop so I could return to my normal life. Even in this hard moment, I believe my life is meant to be great and bright. I’m sure these symptoms are just related to my anxiety. It’s so hard to stay positive during these times, but every day we spend worrying is a day we waste while we are alive. As a UA-camr, I have to appear happy and great, but please know that everyone, in front and behind the camera, has their battles. We will all be great! See you in a few months or years when we can all laugh about this together! Stay strong, Giacomo

Hi everyone, My name is Giacomo, and I’m an Italian international student in the USA. I want to share my story in hopes of encouraging someone to find some inner peace and to strengthen this community. I've been a football player for 22 years, and apart from the usual injuries, my health was always flawless. But about 10 months ago, I started having stomach problems which caused me a lot of anxiety. I thought something terrible was happening to me. Without American parents to support me, I had to pay a lot of money for insurance and had to carefully select my medical visits. This only added to my anxiety because I couldn’t seek as much reassurance as I wanted. I felt sick for a while until I went back to Italy for a gastroscopy and was given the all-clear. I still don’t know what caused the pain. Then, in March, I started having muscle twitches in my right forearm. They weren’t constant but pretty frequent. A neurologist said it was a lack of magnesium, but I knew my magnesium levels were fine. Now, for the past 14 days, I’ve had consistent twitches in my left elbow, and for the past 3 days, in my right wrist. These twitches drain a lot of my mental energy, and I wish they would stop so I could return to my normal life. Even in this hard moment, I believe my life is meant to be great and bright. I’m sure these symptoms are just related to my anxiety. It’s so hard to stay positive during these times, but every day we spend worrying is a day we waste while we are alive. As a UA-camr, I have to appear happy and great, but please know that everyone, in front and behind the camera, has their battles. We will all be great! See you in a few months or years when we can all laugh about this together! Stay strong, Giacomo

Thanks for the video. I have twitches all over my body for months now and I am convinced that I have ALS. I am so afraid to go to the doctor. Today it‘s particularly bad. The only thing keeping me somewhat sane is the fact that I have no weakness yet. I am TERRIFIED

Can you feel the twitching in multiple locations at the same time?

I’m 17 and I started twitching January of this year, it started with small twitching in my calf’s then thighs and then just everywhere. My eyelids, hands,toes, chin, even more recently my inner ear 😭 it drives me CRAZY I still don’t know why this is happening I think it might be BFS since it’s been happening for almost 6 months now… nonstop everyday I actually got open heart surgery April 16 and I thought my twitching went away but it came back the next day 😭 this twitching is driving me crazy I’ve been trying everything to make it go away but nothing as been working… have you been taking medication for your twitching? (before I knew about my heart condition I had super bad anxiety attacks because of my palpitations and high heart rate and not knowing why it was happening (I had a hole in my heart lol) and that’s when I noticed my twitching starting so I think it was triggered by my anxiety with my heart..)

I have been twitching for 3v years now started in just calves now it's all over my body recently v moved to tongue

i love this guy! on point! thanks

Do you have any form of contact for a one to one ?

Har du svært ved at tale, når din tunge er sådan. Jeg har været bange for ALS i 3 måneder?

Har du svært ved at tale, når din tunge er sådan. Jeg har været bange for ALS i 3 måneder?

It is the fourth day and it happens to me every minute and in different places, once on the leg, once on the hand, and once on the face. I went in and searched on Google and read about ALs, and since that day I have been terrified

I am 57m. I am 37 months into twitching. It just continues to get more widespread and intense. No let up at all. Its hard to keep thinking that this is benign. I do realize over three years with no clinical weakness is good, I do have lots of muscle dents. I thank you for these reassuring videos and keeping us all sane. Can I ask how many twitches you estimate per day? Are they all over? Mine is head to toe. I am in the 1,000s per day.

Hi Paul, thank you for this. YES! Please start a podcast or other interactive group. I'm a podcaster myself and would love to listen in / interact / help out in any way I can. I was recently diagnosed with BFS, and it's been a terrifying roller-coaster of anxiety. After a 'normal' neurological exam, the doctors there said I've most likely just got BFS. Of course, they mentioned "the other disease" they were ruling out. And as you can imagine, I've spent the week since my appointment 'looking' for other symptoms. With the heightened anxiety (It's all so "chicken-or-the-egg," am I right?), I find myself overanalyzing the "symptom," which is very likely just a result of the anxiety.

I have twitches all over too for 3 months. I had a cancer diagnosis in January. It might be a paraneoplastic or autoimmune response. The symptom is maddening and makes me want to never leave bed. 😢

Must needed for me!!

Man. 😂. I literally have this. Got back from Sri Lanka on April. I have so many of these. Been in a&e got an mri and emg coming up. Totally freaking me out. Interesting we both had been in Asia.

How do you know it's BFS? I have experienced various twitching over the years (at least 7-8 years maybe more) on various places of body, had 3 EMGs (last one was 8 months ago), and multiple tests and neuro and other exams. And I am still scared AF when they appear. Because they are always different! They are always on different part of body, face, leg, arm, shoulder... they are sometimes just constant little flickers, sometimes aggressive hard kicks under skin, sometimes, they are very localized to spot, sometimes spread in one or more areas, sometimes they last a day, sometimes weeks, sometimes months, sometimes they are constant or just at rest... I don't know how to live with this thing anymore! It's like constantly being in fear "what if this time it's not benign?". I know this is irrational thinking but why do I have this thing? These twitches? It can't be normal.

Thank you for your videos. These past two months have bee an nightmare. Out of no where i started getting spasms pluse twitching all over. I went to the dr where they ran blood test along with an MRI. They came out clean. At this point of course I jumped to the worst but i still have to go to the neurologist. My dr believes its BFS i trust them but i cant get the worst out my head. Since starting anxiety meds the twitching calmed down. I still get it in my my legs and my hot spot seemd to be my right hand .

I’ve excruciating stiffness on my shoulder, I feel like my shoulder getting heavier & feel like someone put a heavy stone on my shoulders , ik I’ve health anxiety but sometimes I thought I’ve serious disease 🥺 it’s so painful i couldn’t concentrate my work 🥺 am I the only one who have this problem ??

Very helpful. Thank you 🙏

Do you get twitches in multiple spots at the same time

Can we have twitching in 2 muscle at a same time means in eyelid and any other muscle random like thigh thumb ete and not any other symptoms plz reply I'm in so stress

It’s been a while! This just came up as a recommended video and it’s taken me back! I started experiencing BFS symptoms in 2019, so nearly 5 years ago. Needless to say I’m still alive 😂 and actually better than just alive, I’m living a happy and fulfilling life! This video has just reminded me of the horrific anxiety I experienced when this all started and made me realise just how different life is now. I remember watching your videos seeking reassurance, and during those dark days they did just that! So thanks very much, you don’t have to do this so it’s really commendable that you do! FYI….Do I still have symptoms? Absolutely! Do I care? Not one bit! I just view this as an annoying quirk in my physiology now and am living life like I did before it all started, maybe even happier because I appreciate it all more now!

Hey, have your calves ever felt like tight or inflamed like you've just worked out?

Fellow NI guy here - got BFS symptoms in August 2020. Tested for ALS etc (negative- phew!) and it just got worse and worse. Finally my doctor prescribed Tegretol, an epilepsy treatment, and i take one tablet at night. The tablet greatly reduces severity as the twitches had become quite violent / mildly painful and disturbed my sleep. Mostly sleeping all night now and this has greatly helped my coping ability. My neurologist was worried about "medicalising" this condition, but i was needing some kind of intervention and this was the first treatment / therapy which made a difference.

Like your Video ! Im trying Gaba, Possibly SRI's, B1, magnesium, exercise, and the hardest, stop my anxiety to stop being a twitcher.

My problem is that the twitching itself stresses me out. I absolutely hate it. It completely ruins my mood. Everytime I twitch somewhere, I get anxious and hope that it only lasts for a couple of seconds. I'm not afraid of ms, als etc. I got all of that checked.

I'm in the first category. I got pretty much every neurological test done. I don't have MS, ALS, Parkinson, no deficiency, nothing. I just got these twitches and they are ANNOYING. They are completely random, don't get triggered by anything really and last as long as they want to. 1 second, 1 Minute, 1 hour, 1 day. I've never had any muscle twitching till late September of 2023 and I now I have it and I just don't unterstand why. They are not constant. I twitch every day though. It's most annoying around the eye region for me. I'm not afraid of any disease (I was in the beginning) now I'm just afraid of the twitching itself. Which really doesn't help.

Hello,are you feel all twitches or some of them are so light that you only see them,not feel?

I am from India and I had this muscle twitches since two years. It first happened on me on 12th March 2022 after two months of covid vaccine. I googled my symptoms and I thought i had read about ALS, MS. I cried whole night. I visited doctor next day with my father. The doctor said it's anxiety but I know that don't know the real cause of this disease. Twitching haapens when I was sleeping also. It bothererd me for six months. It was severe. My head pulsate and muscle twitches all over body. I could not able to sleep at night. Then after my symptoms improve and I noticed 90 percent of relief. But now since a week it bothers me again and I feel heaviness in my brain. Its not headache not pain, but something they i can't explain. It bothers me and distract me. I am taking B12 capsules now a days.

Definitely reassuring video. Had this for 10 years now. Neuro thinks anxiety and "hyperawareness" ..how can you not be aware when your twitches are literally everywhere. Ive not been anxious for 10 years but think triggered by a lot of anxiety. Ive tried EVERYTHING to stop twitching. Nothing works for me, other than distraction for a while..then..bam..here it is again..its always there whatever I do. Not even sure why Im writing this..reassurance I guess...