Cashmere And Pain
Cashmere And Pain
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Switched from Humira to the 'biosimilar' Hyrimoz - my thoughts 6 months in
Hi everyone. I got switched from Humira to Hyrimoz, which is a biosilmilar. Here's what I think about the injection that makes the same promises
Переглядів: 13 478

Відео

Humira - 1 year and 3 months in.Humira - 1 year and 3 months in.
Humira - 1 year and 3 months in.
Переглядів 21 тис.7 років тому
I've been taking Humira for 1 year and 3 months. Find out what I've learned in that time. If you have any questions about humira please ask them... I will answer them all x
10 injections in to Humira and check out how I feel...10 injections in to Humira and check out how I feel...
10 injections in to Humira and check out how I feel...
Переглядів 6 тис.8 років тому
Ok, I've had 10 injections since October. These suckers have been a slow burner... but have they been worth it?? F k yes!
4th Humira injection4th Humira injection
4th Humira injection
Переглядів 1,9 тис.8 років тому
This is my 4th Humira injection. I've tried to film it up close for you to see it properly. If I'm honest I haven't seen any effects so far but I live in hope!
Humira 5 days after first jab. An HONEST reviewHumira 5 days after first jab. An HONEST review
Humira 5 days after first jab. An HONEST review
Переглядів 66 тис.8 років тому
Had my jab... and this is how it felt!!! X ❤️
Behcets sufferer with anxiety over first Humira doseBehcets sufferer with anxiety over first Humira dose
Behcets sufferer with anxiety over first Humira dose
Переглядів 1,1 тис.8 років тому
Hi, I'm a Behcets patient and I wanted to share my anxiety over my upcoming Humira injection. I'm no good with needles and I hate this disease so I need a place to vent it all. Here I talk about my anxiety and innit of background on Behcets. I've decided to keep chronicling my journey but in the most honest way I can. I hate the sugar-coating that people with autoimmune disease have to put up w...

КОМЕНТАРІ

  • @yankee6851
    @yankee6851 4 місяці тому

    My Fiancée had to switch from Humira to Hyrimoz as well. Shit ain’t the best word to use. It’s dogshit, absolute rubbish.

  • @gnothiseauton8684
    @gnothiseauton8684 4 місяці тому

    I didn’t get told anything about food. What can’t we eat? I’m day 3 Thank you

  • @bigscrounger
    @bigscrounger 4 місяці тому

    Thanks for the vid, helpful. I've just been started on a biosimilar - as apparently thats the current guidelines. Too early to tell if its working. Problem is - i dont have anything to compare with! And if there are issues, not sure if the specialist would put me onto Humira. Anyone else been started on a biosimilar without first having the actual one? Thanks

  • @bobbydejesus5987
    @bobbydejesus5987 4 місяці тому

    Oh no... Were you able to go back on Humira?

  • @bobbydejesus5987
    @bobbydejesus5987 4 місяці тому

    Thank you for this. I just started and this is the best testimonial so far. How is it going now?

  • @PamelaZKemper
    @PamelaZKemper 8 місяців тому

    Thank you for this video. I'm alone and scared to give myself my first injection and this really helps

  • @dagmastr12
    @dagmastr12 8 місяців тому

    I agree with your opening 100 percent..my miracle also

  • @Newp42
    @Newp42 8 місяців тому

    How are you doing in 24?

  • @patrickdennis5209
    @patrickdennis5209 8 місяців тому

    Just started Amjevita, Humira biosimilar. Your video gives me hope. Thank you!

  • @SarahB-u8m
    @SarahB-u8m 8 місяців тому

    Wondering how you’re doing now! Hope you’re in remission!

  • @ec1353
    @ec1353 8 місяців тому

    Hi Emma, are you ok?

  • @diannekelly3319
    @diannekelly3319 9 місяців тому

    Oh gosh you sound like me I am so scared of bad reactions

  • @heatherthompson3670
    @heatherthompson3670 9 місяців тому

    6yrs later! Are you still taking Humira? I’ve been offered it and it utterly scares me. X

    • @SalmanAwan464
      @SalmanAwan464 2 місяці тому

      I've been diagnosed with AS and it has been prescribed to me as well, but I am just too scared to take it. Did you take it?

    • @heatherthompson3670
      @heatherthompson3670 2 місяці тому

      @ no I haven’t taken any. Waiting for my next appt with the consultant in a couple of weeks to see if he can offer anything else.

    • @SalmanAwan464
      @SalmanAwan464 2 місяці тому

      @@heatherthompson3670 hope everything turns out well for you.

  • @southernlady5085
    @southernlady5085 9 місяців тому

    Thanks for video. I have AS (ankylosing spondylitis). Flaring right now. It’s totally out of control. And it has worn me out. It’s not ache anymore. Absolute pain all the time. I’m now homebound. Lumbar spine, is a mess: all herniated and fusion of L4 and 5. Also have all the side effects, awful psoriasis; IBD, 2 types, lucky me; uveitis, I mean the whole thing. Now in my late 60s, but things began in my 20s. I desperately want to enjoy a few yrs of retirement. I’ve had surgery after surgery and the disorder always returns with a vengeance to do more damage. I haven’t gone this route bc I thought I wasn’t eligible as I have latent TB from living in Orient as kid, but rheumatologist said he doesn’t believe that would be a problem. Insurance will only pay for Humira. I’m still worried about it all. Has anyone had side effects?

  • @savannachapman2487
    @savannachapman2487 10 місяців тому

    I’m 24, a dental hygienist, and was just diagnosed with RA 3 months ago. We caught it very early, thankfully. This is the absolute worst career to be in with this disease because of how heavily it relies on my hands working. It has completely destroyed me mentally especially being so young I feel like I have so much longer to have more and more damage vs if I was diagnosed at 50. I am able to push through the pain to work (because i really have no other choice). But my doctor has had me on Plaquenil for 2.5 months so far. In general I am doing a bit better with pain, but the joint pain is still spreading to other fingers and I do have bad flare ups every couple weeks. My rheumatologist is going to put me on Humira with Plaquenil in hopes that it gets me to a full remission. This video has helped me feel much more hopeful about it. I am actually excited to start Humira because if it does give me my life back, I will never take opening a bottle cap, curling my hair, putting my shoes on without pain for granted again. Thank you, and please wish me the best outcome with this. I am so glad it has helped so many people.

    • @savannachapman2487
      @savannachapman2487 10 місяців тому

      Just waiting to find out if insurance will cover it. It is $7,000 a month if not, which is completely unrealistic for me and 99% of the population. If it cannot be covered, unfortunately I will not be able to use it.

  • @jhors7777
    @jhors7777 10 місяців тому

    Thank you for posting this helpful video. Best wishes to you.

  • @Carlita119
    @Carlita119 Рік тому

    Hi thanks so much. Please can you still take heavy things with AS ?

  • @Josannesmall-
    @Josannesmall- Рік тому

    I just started that one. Here in Canada the government use to pay for Humira. But they switched those who was on Humira to Hyrimoz. If it doesn’t work I will not be able to switch back to Humira cause I can’t pay for Humira myself. So I’m hoping that this one will work.

  • @RodrigoMFSP
    @RodrigoMFSP Рік тому

    My health insurance recently change from Humira to Hyrimoz. The needle really hurts.

  • @yu-li-1
    @yu-li-1 Рік тому

    Thank you for sharing your experience. My uncles are retired physicians from different disciplines - oncology, cardiology and neurology. All were against generic drugs, now called biosimilar. The formula/ingredients are different. Generic/biosimilar means less than perfect.

  • @HMohr
    @HMohr Рік тому

    Im about to start my treatment with Hyrimoz after methotrexate started to impair my liver. I have psoriasis, psoriatic arthritis and mild peripheral neuropathy. Reading about Adalimumab I'm afraid of starting treatment. I have a 4-month daughter. Kids get all kind of flu, infections and so on. How is going to affect my health? Also, I read that anti-tnf biologics leave us prone to fungal infections. I really like to perform oral sex on my wife (and she likes it too, I hope you people don't feel uncomfortable as I share this). Will I have to put this practice on hold!? How imunobiologics has affected your sex life?

  • @jo-alon
    @jo-alon Рік тому

    Hyrimoz contains Citrate, which, for many patients, causes pain while injecting. Try switching to Humira or other biosimilars which are Citrate-free.

  • @lyricpoet9614
    @lyricpoet9614 Рік тому

    I just got my 2 first injections today. I have Hidradenite and Rheumatoid Artrites for many years. Humira is the treatment used for the 2 conditions so, I decided to give it a try. This first injections were done this morning an its past midnight and I have no side effects or pain at all. I just hope that will continue this way and that it helps me with my 2 conditions. I took Enbrel before and it did give side effects and I had to stop. We will see, in the future if will no be the case with Humira. I wish you the best and I am sorry for the side effects that you had.

  • @masterbasgym
    @masterbasgym Рік тому

    Thank you for sharing

  • @redspice55
    @redspice55 Рік тому

    Thank you for your video. My Rheumatologist just switched me over from Humira to Hulio, also a bio-similar. I haven't had my first injection yet. I went to an injection clinic for the past 4 or 5 years to get my Humira shots. So this new company, Hulio, has set me up with a different injection clinic. I have trouble injecting myself, it always leaks out the bottom, so I don't get the full dose, and I'm so nervous doing the shots. Now, with your confession, I'm nervous about this new drug, if it will hurt, if it will still keep the pain away, if it will have side effects that I never experienced with Humira. I'm 2 days late on my last injection, so hopefully this new company has me set up quickly cos I don't want any pain to start up. And yes, it's still an auto-injector pen but a different shape. I haven't got it yet. Here's hoping I have more success than you have experienced. So sorry. Humira works but it's sooooo darn expensive. Government drug plan pays for it, thank goodness. But it really stings. Hopefully the Hulio doesn't sting. And doesn't leave bruising. I get it in my stomach. Tried my leg once, and nope, it hurt too much.

  • @gailstevenson2893
    @gailstevenson2893 Рік тому

    Very long winded explaination

  • @Mika_and_Lola
    @Mika_and_Lola Рік тому

    Thanks so much for this video. I start on this soon and can't wait.

  • @safah1978
    @safah1978 2 роки тому

    I'm very scared of the side effects

  • @gammingzone6544
    @gammingzone6544 2 роки тому

    I was in USA. I was on Humira for 4 years. I came to UK in Feb. They can't give me any medicine till now. First I had to get appointment to GP. It took 1 month. Then Gastroenterologist appointment took 2 months. I had big flare ups. I had to go to A&E twice. Colonoscopy team wrote Urgent in report. But the doctors in UK does not seem to care. In this way It take total 5 months. Then doctors said you have to take TB medicine before starting the Humira again. So they gave TB medicines for more then 2 months now. Last week they said they will give me Adalimumab. The Nurse called me and told that she will give me Hyrimoz instead of Humira. They are taking so much money as national insurance. And they are not giving me my medicine.

  • @michaelklaassen9208
    @michaelklaassen9208 2 роки тому

    Did you get the meds on the NHS or PMI?

  • @proudman6651
    @proudman6651 2 роки тому

    Wondering if this nice lady is still doing good bcz the latest video she shared is dated 3 years ago.

  • @dinoradja2980
    @dinoradja2980 2 роки тому

    There is zero point to making a vid after one shot

  • @Beati3
    @Beati3 2 роки тому

    Bugger! Sorry to hear this. I Googled and saw the NHS did this on purpose to save money. I hope there was some proper patient advocacy done and you got your Humira back. Our PBS in Oz makes us jump through many hoops before we're allowed to start Humira, but I'd rather that than have them pinch pennies at the cost of our health. Hope you're doing better now.

  • @sarahjanequinn1882
    @sarahjanequinn1882 2 роки тому

    How many times a day do you usually have to inject or is everyone different?

    • @MasterKingSirPlease
      @MasterKingSirPlease 7 місяців тому

      A DAY?? Do not inject this every day it’s every 2 weeks for most people

  • @Rae_777
    @Rae_777 2 роки тому

    I’ve had a very similar experience. The only downside for me was gaining weight, but my doctor explained that the reason my metabolism changed was because I was hypermetabolic before Humira, due to the stress of pain and illness, and I know that’s true, so I can adapt to a more “natural” metabolism.

    • @camillebambi6449
      @camillebambi6449 2 роки тому

      How much weight gain did you experience from it? Were you losing weight before withhout trying?

    • @fishandchips1762
      @fishandchips1762 Рік тому

      Rachel are you still on it?

    • @Rae_777
      @Rae_777 Рік тому

      @@camillebambi6449 I gained about 30 pounds during the first 6 months, but then I went on Ozempic and they came back off easily. Prior to Humira, yes I would have periods of sudden weight loss, like 5 pounds in a week without trying; it was weird. So, I don’t think my metabolic responses to illness are really that normal- aka I think my metabolism overreacts to stress. On Humira, I have a lot less stress, so my metabolism slows down (relaxes) a lot, and probably too much. But, like I said, I think Ozempic has really stabilized my particular metabolic syndrome. 🙂

  • @maeveduff8932
    @maeveduff8932 2 роки тому

    Did you manage to get back on Humira? I have a different biosimilar called imraldi adalimumab and it's horrible.

  • @theman0015A
    @theman0015A 2 роки тому

    Im pretty scared to start this, i just got off stelara now im starting hadlima(biosimilar) for my crohns. The side effects are kindve alot but my crohns is at a point where i dont have a choice lol

  • @oliver3909
    @oliver3909 2 роки тому

    what happened since, please post or write something

  • @adityawylde8073
    @adityawylde8073 2 роки тому

    My sister is suffering from psoriatic arthritis...and is advised by the doctor to go for adalimumab.......

  • @karendwyer9899
    @karendwyer9899 2 роки тому

    Humira was horrible for me- 2 days after I took my shot I wanted to kill myself- every single time!! Every two weeks. Never again.

  • @EyesHaveMiles420
    @EyesHaveMiles420 2 роки тому

    You should have started a fake band, like the one in the commercial.

  • @nTudor
    @nTudor 3 роки тому

    how are you feeling now? are you still on this medication?

  • @stephaniereyst5196
    @stephaniereyst5196 3 роки тому

    I've just started it a few months ago, think I've had 5 doses now, I find it extremely painful! Not the injection part but about 30 seconds later I burn. It feels similar to a bee sting, and then I'm dizzy and nauseas for at least two days after.

  • @ciriacoalmodovar6108
    @ciriacoalmodovar6108 3 роки тому

    Español

  • @ciriacoalmodovar6108
    @ciriacoalmodovar6108 3 роки тому

    Español

  • @mafyothu89
    @mafyothu89 3 роки тому

    do somebody feel ill after switching to hyrimoz? im feeling realy sick in the mornings meaning dizyness and cold and nausea and cold sweating

  • @markreilly6611
    @markreilly6611 3 роки тому

    Thank you for sharing your story. I am sorry on what you are experiencing. I too was on Humira since 2012, just recently here in Canada all patients who are on Humira will need to switch over to a Biosimilar. The options we were given were Hulio, Hyrimoz, Amgevita, Hadlima and Idacio. For me I went with Hulio. So far so good, the injection is less painfull then Humira.

    • @noreenkhan3365
      @noreenkhan3365 5 місяців тому

      I just started my first injection of Hulio, and hope to god the outcome is as good as Humira. 🙏🏻

  • @MrAvant123
    @MrAvant123 3 роки тому

    I have just done no3 injection Adalimumab. I had a slight advantage over this lady as I had injected Methotrexate for a few years previously. I did find the injection slightly painful but the drug seems to be working well as this is the longest period for over 9 months when I didnt have to take steroids to stop the joint pain. Have had no real side effects so far other than possibly very slight tiredness...

  • @donmckinney4091
    @donmckinney4091 3 роки тому

    So as of today 6/21-How have you been? Any side effects!

  • @guillermoalonso8251
    @guillermoalonso8251 3 роки тому

    Hey, I am a medic starting adalimumab this week. You can tell the difference it's made between the 2016 video and this one, very hopeful. Just a tip, you can pasteurise eggs at home, 60 Celsius for 5 minutes (you'll need a cooking thermometer), then back to the fridge. You can poach them at a later stage then. But be careful with brie, untreated eggs, etc, etc. If you catch Listeriosis, Campylobacter or Salmonella you could become septic on these medicines.