Відео

Hi, I’m dealing with post polio, Thyroid, IBS, Lipedema but I’m being treated as if my body is not one. They send you to one specialist and they don’t talk with each other. I have doing a carnivore diet that seems best for me. The Lipedema is also on the bottom half of my stomach. I excerise!!

When should you get a new press. I have had mine for 3 years

Yes

I have a question does anyone's leg's turn red. Because on the front of my legs they have turned red and both of my legs hurt really bad and to me it looks like some type of blood clot

Wish there wasn't background music for this interview

Food intolerance is autoimmune issue. I have food intolerances. So far the only thing I can consume is beef once daily and 1 quart of goat milk. I ate chicken and bloated and gained weight.. legs are painful.

We need more Doctor to educate us abut lipodema

I have to use the dish washing gloves for my thigh high to get them on . .it does work for me.

I’m a newbie. Utoob not honoring my request for all notifications. I missed the live, enjoying the round table so much. PROBLEM-the chat is not available thus there are no links. Any chance those fabulous life lines can’t be pinned to the comments for late comers. I’m so benefitted by all of you. Much appreciation.

Hello my name is Esther and I would like to join the round table tonight at 8:00 p.m. today is July 17 2024❤ 4:30

Research your allergy testing because they are not all the same.

I was finally losing weight on an elimination diet. I've been allergic to dairy since my 20's, so i cut all animal products and grains. All the swelling and cellulite disappeared. 3 years have gone by, and I'm back to the animal products and grains. The cellulite and swelling have returned along with the pain. It's time to go back to the elimination diet.

For me it has been a sense of shame for most of my life. My older brother was tall and relatively lean and expressed his disgust for ‘fat girls’, I think projecting his hatred for me onto them. So I got that message loud and clear. And then negative comments I got from my father, uncle, grandmother usually about my legs. I probably have only ever been at stage one but have had it in my arms and legs. I was lean on top with next to no boobs so felt I was this mishmash of non matching body parts. I didn’t fit the fat arms big boobs, small bum & slim legs pattern. Or the skinny arms, small boobs bigger legs pattern. My brother had ‘blocked sinuses’ as a teen and the doctor prescribed him a steroidal sinus spray. My mother assumed I had this issue as well and got it prescribed for me as well and so I would use this steroid sinus spray, for no reason not realising how it was negatively affecting my hormones. I think that’s why I didn’t have proper breast development. I have even had multiple comments - usually by women commenting on how small chested I am which I find really offensive. Am in my 50s and even recently a friend made a comment about it. I now think I likely have a type of EDS along with various other issues and this probably explains my long narrow feet and long fingers and toes - yet another source of criticism and comment from others and sense of being out of proportion. So disguising parts of my body via clothing has been a dominant feature for most of my life. It lead to me overspending on clothes and shoes to the point it was an addiction. I would buy a lot of clothes but could never get the proportions right unless I spent hours and hours trying different combinations on. I would constantly be late to school and later to work because I couldn’t get my clothing looking or feeling right. I have bought multiple swimming outfits over the years ‘in case’ some spontaneous trip to go to the beach or pool came up that I couldn’t get out of. Which it hardly ever does. I used to dread going to the beach as I just couldn’t figure out how to look good. I hate photos and opted out of a family holiday at the beach because the thought of having to figure out what to wear every day was too much. That is the same thing for every summer holiday I go on. Partly because of that (plus other issues like food allergies) my family hardly ever goes on holiday. For me its not just the not looking toned, proportions not right but I’ve also had issues with varicose veins, broken capillaries on my calves which also add to the problem of even wearing a knee length skirt. I now basically live in oversized tops, leggings or skinny jeans which act as a type of compression garment. I dislike wearing anything loose fitting now as I have got used to the compression and even the thought of wearing dresses to funerals and weddings fills me with a sense of dread that most people just cannot understand. I knew this obsession wasn’t normal which added to the sense of shame always pretending I wasn’t trying to hide everything as much as I was. Its quite a relief to know I wasn’t just being paranoid about all my issues over the years and there were reasons behind it all. Sad that I felt so bad for so long though, spent so much time & money on clothes & shoes and had to put up with so many judgmental peoples comments as well.

You have put many different pieces together for me. I learned so much from listening to this interview. I am also thinking magnesium deficiency plays a part in these sensitivities. Animal foods are low in magnesium. Greens have lots of magnesium. I believe lack of magnesium creates allergies and sensitivities. So grateful for the many insights you shared. I have wheat allergy and some people suggest dairy protein similar to the wheat protein that it creates antibodies and allergy to wheat. I will see a heart doctor that specializes in lipidema for the first time in two days. This added information will be so helpful.

Thank you so much!

Thank you so much. I’m new to this board and beautiful community. I’m 73, do not have a Dx of lipedema. I have Lipedema. I’ve cope so well so many years by myself. Now because of the hard work done by the different groups and their willingness to build a science based collective community I’m thriving. Each conservative treatment I’m learning abt is a new tool. And the improvement in my body…..peace. My body is experiencing some peace. Astonishing. Again thank you.

I have gotten so far behind on watching these monthly videos. I am so sorry I missed this one, this is right up my alley! I got rid of toxic ingredients in my home years ago - food, cleaning products, beauty products, etc. I highly recommend that everyone get them out of your house. Thank you for making others aware!

Always great sessions w/ great info. This one was especially “Wow!” for me. Will definitely rewatch. Thank you!

I think most/many people say IgE response is "allergy" and lgG is "intolerance or sensitivity. I have long had food allergy/sensitivity/intolerance problems. Much allergy testing of all kinds over the years. I have very few IgE responses, a few IgA, but lgG is off the charts. I avoid as much as possible but also take allergy shots for airborne inhalants which cannot be avoided.

Why do you keep using the term "ladies"....my brother has a terrible time with this disease and l think he is put off by the thought that this is something specific to women's problems.

Just told my P.T. to order the lymphapress for the reason, it's easier to use, very important

Thank you for this content, best info i found in ages

I'm a Lymphatic Detoxification Therapist, Nutritional Therapist and Optimal Blood Chemistry Analyst in the Mpls MN area. I've been working with lipidema & lymphadema since 2002. There ARE blood tests to determine food sensitivities that are quite reliable to easily tell you what foods NOT to eat! There ARE Professional Nutritional supplements that assist the body to breakdown the stagnant lymph and debris in these pockets, so the lymphatic system can remove them from the body. I have also used a medical device to assist lymphatic drainage that is 5-8 times faster than manual, lymphatic massage. The medical device is something that I couldn't live with out! It's been a miracle for me, personally as well as for my clients. Once you get the entire lymphatic system cleared with our protocol, the results are AMAZING with no surgery!! It is, however, a deep commitment and everyone responds personally to their own path from circumstances and abilities. I'm so happy to find these groups on UA-cam and this medical issue being brought to light!👍❤ THERE IS HOPE!

I’m not supposed to eat food. I tried almost everything fasting for days cutting calories, working out until I would get nausea. Three years ago I was so frustrated I took food out of my diet and just drank golden milk. Thats turmeric, ginger, pepper and canned coconut milk. within three months I lost fifty pounds. I didn’t know anything about lipedema until a few weeks ago. I gained all the weight back of course, but I started back and the legs are going down already.

I am researching the link between allergies and my lipodema. I always have been very slim, but still have lipodema tissue. Since about 15 days I know I am allergic to sls (found in toothpaste, dermatological products and cleaning products). I then switched to a natural toothpaste and I watched the following things occur: my acne is gone, my lip eczema is gone, I no longer snore, my astma is gone, I am suddenly loosing weight, I no longer wake up tired, and my lipodema seems to decrease, no longer have pain and swelling in my arms and legs, my appetite is gone (I was stress eating because I felt uncomfortable throughout the day). Now I am starting to wonder if this allergy has anything to do with my lipodema…. I feel like there is no research about these two topics relating to each other. So what if….. 🥹

Says this is not recognized as a disease so not covered by health insurances. Seems to be primarily common among women which could hormonal involvement. For this reason I stay away from All animal products except free range and organic. Many times animals are fed foods that encourage fast growth of animals to get them to the market faster meaning $$$$$, I’d also stay away from factory raised meat/chicken, we just don’t know enough yet.

thank you for sharing!

This!!! All of this! I feel seen.

I have always been thin, I have had these issues and pain with it since my second pregnancy. It has progressed so bad over the years I can barely walk. After standing for longer than 15 minutes my legs will swell to atleast double in size. I can gain 15 pounds in my legs over night. I’m getting in my arms now. My drs do nothing to help me and it’s extremely frustrating. The pain can be unbearable

Yeah just go find that doctor when there's not around you kind of hard to do

This has helped me so much and I'm so greatful to you both

I have had painful lumps on the outside of both thighs for years. Now I experience terrible pain from blood pressure cuffs and have located painful nodules in my upper arms. I saw an article about pain from BP cuffs and they mentioned Lipedema. I think I may have it and will talk to my doctor.

👋👋 Chicago

I have been ignored, given appetite suppression and fat shamed...according to them, I'm just obese and surely a liar about my calorie restriction.

Thank you so much for this presentation 🌺. I have fibromyalgia and arthritis and now my legs‼️😡. I am not overweight and do well on the keto diet. And fasting. No deadly nightshades. I will now look into food tolerances of which I have many.

Hello Everyone! Just found your channel and I have an appointment. So, I have to run but Thank you for all the ideas/help. Will catch everyone next month. Have had Lymphedema since birth but didn't realize until I delivered my daughter. Unfortunately, I wasn't diagnosed until I was 50. I'm 62 now. Please bear with me I've had a few mini strokes. I'm stage 3.🕊️Kim from California 🫶

Please put Bre's social media contact information this comment thread and description Thanks

It’s true I just got mine and I lost 3 pounds in a day I just used it for the first time yesterday I’m also down about an inch and a half in my legs

Agree not shame , embarrassing. I have huge thighs and now I have it in my arms as well. So i usually camouflage this area as well. I love swimming so it’s such an effort to get into the water if others are around.

OMGOODNESS! This is my story! EDS, nightshades, gluten allergy, etc. Lots of food intolerances. Answers! Finally!

I’m new here, and I have had really good luck eating the carnivore diet, and had wonderful loss of inflammation, was a dress size 18, and after 7 weeks was able to fit into a size 12 dress! To dwell on where I don’t hurt, hmmm, I am in the process of elimination of foods and trying to figure out what causes inflammation for me, I’m inflamed today, however there is always one place that is happy and doesn’t hurt it’s my smile 😊 smiling is always a good thing!

Elimination diet is the best way to find out sensitivities. Popular tests are notoriously bad, showing false sensitivity

Last year, I trained for (in Houston, TX) and walked the NYC marathon. I noticed my body, particularly my legs, getting bigger(!) than they already were and I couldn't understand what was going on. Earlier this year, I learned about lipedema and I've been on the journey to diagnosis ever since (yes, I have food-and-hand-sparing lipedema) and I'm going to start lymphatic therapy next month to hopefully help arrest progression. I am grateful my body actually survived an entire marathon and that it continues to serve me. I'm grateful for this group and so many other resources from citizen-warriors that are out there to provide hope. This seems like a devastating, hopeless condition (and there are many clueless doctors) and seeing so many women thriving is priceless.

Such a great panel!! And per usual, the best chat squad!!

No one believed me when I said I gained weight every time I ate a salad!

I can't find the Facebook page. Help please

This really drives home the Mayra, 'do what works for you' What a great aha moment, I've had diets that did work for me in the past. I've been carnivore for a few years and have sensitivities still.

I have never worn a pair of boots or had a pair of jeans. Lipedema/lymphedema has been my life since a young girl

Is Lipedema an autoimmune disorder?

I agree with Cheryl in everything. I diagnosed myself with lipedema since no doctor knows about it. For me starches like potatoes (yes, same as her I used to gain 6 pounds during the night when I had a boiled potato for diner, nobody believed me) but also wheat, less intense with rice, yuca, plantain, basically carbs are not friendly to me.. I'm 64 now and I was starving myself for decades... I found keto and I did it for four years and it did nothing for me on the contrary during that period I gained weight and cellulite like crazy I got to the conclusion that some no starchy vegetables are for me like poison like broccoli, cauliflower, peppers, tomatoes, etc. you know the ones you eat when "eating healthy" and I had been eating healthy for the last 40 years of my life.. who knew.. so now I have been in the carnivore diet animal based only for 18 months, I have lost 25 pounds but I have had a lot of progress and my body has been reshaping very nicely... I used to use different devices vibrational plates, massagers, etc. but I got tired of them because you use them for an hour a day or so and nature is working against you for those 23 hours left it's like weeding the garden you will never win, never. Please women around the world if you find this video go carnivore you will not regret it.. The fact that this is an issue for women only makes me sure that hormonal issues are a big part of this illness too.