Відео

Lawn prawn?

How are you?!? You are look great.

I’m learning a lot

Thank you for putting these videos together!!!!

❤ so happy for ur improvement. Your story give me strengh. Tks Kevin

Thanks Kevin. God Bless

Thanks for keep sharing ❤

Tks Kevin for update. Really appreciate it

Tks for update. GBu❤

Thanks Kevin. Beautiful decoration ❤

My pray with you

😢 iam so sad to hear this. I will pray for you and for all people to be healthty

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Actually when i saw ur video It give me a lot of strength to face my Son dermatomyositis. Ur video full of humour. I can even laugh in this uncertainty disease. Tks ❤

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Hai. Iam Erni from Indonesia My son 10 years old got juvenille dermatomyositis..iam glad i found ur youtube..and ur update help me alot. Next time i will leave heart only just to let u know how i so thankfull with ur effort to keep updating ur myositis..God Bless u and ur family ❤

thank again for ur medication update

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Tks for sharing ur journey..i will watch alll of your video❤ God bless you ❤

Hai.i just subcribe ur channel..please keep update. Tks alot for sharing. Healthy always..

Glad to see you doing better.

This is great news. Keeping you and the family in our prayers. - love your fellow myositis friends on the other side of FL

Great news Kevin!

That's nice. Very good. I think you are doing well. All the best.

“Don’t forget to have a protein shake at the end of the therapy; it will help.”

You really are looking a lot improved. Add oil!

Hello, how are you now? This is Wayne from Dublin, Ireland. Diagnosed with statin induced HMGCR POSITIVE NECROTIZING MYOPATHY. Having proximal weakness on my extremities. Can't stand and walk. Limited range of motion on my arms. Has rashes to my chest and back. Started with Rituximab infusion last 15th and 30th September 2024. To have dose again on March 2025. Also to receive IV Ig again this week. Still here in a rehab hospital for prolonged physiotherapy. Happy for you that your condition subsided and now improved a lot. Praying that my weakness resolves so that I can at least stand up and walk again. God bless you always Bro.

Hi Sir, thank you & greatly appreciate the sharing your experiences. I'm just being diagnosed with netrotizing myopathy & my world turn upside down, praying for your healing too.

So sorry. You sound like my story, I’m very weak, I have polymyositis for 16 years. Sue

You’re looking healthy and happier. I pray for your continued healthy recovery!

Is it workinh good sir

Am living with myositis Ossificans

Hearts and prayers! Great to see your progress!

Good news!

LOL at the minecraft hunger.............................. but thanks for the update that you're doing better.

Glad you're doing better. When I was growing up, my parents would tell me to stop gaming cause I was wasting time. Now my kids are growing up and we're playing games to bond. Minecraft was fun when they're young. These days were playing Overcooked 2 and other face-paced co-op games.

I think you're dropping goldfish because you're distracted by your tian mi mi. I find it interesting that your food of choice throughout this episode is fish. I would have done the same as your son in that situation.

Thank you for sharing your journey to diagnosis, Kevin! Be well 🥰

Great update! I'm so glad to see things are improving!

Hi, your channel just popped up on my home page, I guess that’s what it’s called. I was originally diagnosed, back in 2002, with Polymyositis by a local dr but Mayo said IBM. Then NIH said PM and Dr Ottis at University of Pittsburgh said IBM and a skin biopsy showed DM. Now it’s thought I have all 3. I’ve done 8 study meds along with the usual IVIG, methotrexate and other useless meds. Prednisone for over 20 years now. I’m 57 now and in a wheelchair. I fell and shattered my femur 3 years ago and haven’t walked since. I can’t roll a wheelchair but I have a Jazzy air. I haven’t given up standing yet. I can stand in the pool. My hamstrings are strong enough but quads and hip flexors are a joke. Trying to follow a study done a few years ago that says I need to eat 1gm of protein per 1 kilo of body weight, vitamin D and testosterone where it should be and creatine 10gm per day. 100 gm of Protein is tough. Plus some exercise, of course. Supposedly this averaged a 38% increase in muscle strength 🤷🏼‍♂️. It’s worth a shot. I’ll keep watching, take care.

Kevin you're looking good man!

Thx for the update.

Just dropping a comment to say Hi and hope you had a chance to celebrate mother's day.

Been watching your videos, as I was jus given the news I have this thing. Thank you for all of them… they’re insightful and educational but also funny and refreshing. Surprised at the very very little content is out there about this, but I’m glad I found your channel 😊

May God heal you and grant you health. If you never mind tell me how old was you when you got myositis

Thank you for sharing. I wish you love and strength in your journey

Maybe you should consider some physio to get moving again, since you have this improvement. It helped me to accelerate my recovery. Some great resources online too!