Відео

Hope that u are cured from moro reflex

i wish you the best , you are a powerfull person , my mentor is Anthony Robbins , you will enjoy his videos and lectures ! have a fantastic day.

😘

Thank you! Your message found me today, a day were I’ve been pondering about exactly that. Have a wonderful week! ✨

Hugs

Do you know Jesus? are you saved? 15 Moreover, brethren, I declare unto you the gospel which I preached unto you, which also ye have received, and wherein ye stand; 2 By which also ye are saved, if ye keep in memory what I preached unto you, unless ye have believed in vain. 3 For I delivered unto you first of all that which I also received, how that Christ died for our sins according to the scriptures; 4 And that he was buried, and that he rose again the third day according to the scriptures: 1 Corinthians 15:1-4 Have a Nice day!

The fact that people would CP use three times as what energy to do every activity. I had my activity level measured and it was three times more than your average person. this is the same reason we get age related physical decline sooner than the average human being. If we have been walkers, our gate is not the most physiologically advantageous. This means the hips knees and calls and shoulders have worked harder and worn out quicker because we have used canes frames and fallen on things and walked in less than ideal circumstances. My generation got pushed to walk and walk on and while wheelchairs are not the Demon they were I still see parents with kids who have CP pushing and pushing for them to walk on. I think a kid will walk better and for longer and preserve their abilities using assistive devices, such as Cains walking frames and wheelchairs. I don’t know whether I will ever successfully get this concept through to the parents that contact me. I’m not saying that the kid will never achieve anything or to not push them at all. I just say, don’t make physical therapy your master, this is because in my part of the world when you age out of the paediatric sector you have no support I just end up in a chair anyway with nowhere to go for help. I would prefer people to preserve the abilities they have and focus on the abilities they will need rather than pursuing, some dream that external society has for them.

❤

I always say it is a bit like a computer crashing or the internet buffering. In my head . I think that is more for kids though.

I have cp and I have the reflex too. I recently scolded my leg when allowed bang went off that I wasn’t expecting. I have some pain in my joints that are now worn out from arthritis and I haven’t been able to walk for more than half my life now. However, I think surgeries are improving for younger people with CP so that they don’t get as much damage from things like scoliosis and hip dysplasia , also wheelchairs on so much more designed to preserve the best possible posture. Even though I have pain a lot now, I wouldn’t change some of the activities I did that wore out my joints because they gave me so many good memories. I only hope that people don’t see wheelchairs is such a bad thing these days. When I was a child 35 years ago it was considered the worst possible thing to let your child with CP go into a wheelchair. As a result of us kids kind of got worn out dragging ourselves around on various walking aids and so forth. I would like to see Better medical care worldwide and understanding for adults in general with CP. I never thought this in my fourth decade I would’ve lost so much function that I work sohard to gain.

Appreciate you putting this up. This helped me to confirm what I see in a family member, and now will be better able to speak with a doctor 😊

I always think it is good to have some friends with disabilities. It is good to have people I can talk to who are in the same kind of circumstances.

Thanks for this. I don’t have CP but have had an extreme startle reflex since a brain tumor apoplexy or from a csf leak, TBI I guess. Do you find your responses vary? Or is it very consistent? Again thanks for your vids, very helpful.❤

Happy New Year! Glad you're well.

Hi I also have Cerebral Palsy. How do you deal with pain and muscle spasms? Do you have any experience with CBD oil or Baclofen? How do you deal with daily routine are you independet person? What Type of Cerebral Palsy do you have?

I loved the hot summer weather when I was younger. I now have little energy during the hottest days. Contrary to what I had anticipated, at the end of May 2022, my muscles became tighter than before. My family and I are adjusting to newer symptoms as I age. I have lots of curiosity about how my organs are affected. My ability,as I age, to talk and sing is possible through professional assistance and continuous practice. My CP was diagnosed when I was 17 years old, and throughout childhood I had little help to understand all the complexities about my speech and very poor coordination. I am happy to now have the perspective of my journey with CP through several decades. I am glad that a close confidant directed me to see a neurologist several years ago. HUGS !!!

Im going to my first concert in June and I’m a wheelchair user my mum is my carer so she has to sit next to me but my two younger sisters are coming to and they are separated from us it’s bittersweet knowing we won’t get to enjoy the event together and it has been such a hassle too Ty for making this vid

Great video!! I just got mine today and I’m a paraplegic. Thanks and you gained a new sub!! I love this watch because they designed it with wheelchair users in mind.

Being able to do adult things with the least amount of help possible and trusting yourself is independence. How you’re capable of handling more situations when you’re older and getting more parental freedom. To be able to make your own plans.

My friend with CP loves crocs

I would love to watch you get healthier and how you workout at home in another video !

Thanks this video helped me a lot

Do you have hayperkplaxa can you gave me more information about that because my daughter has hyperekplexia

Thanks for posting this! My nephew (5 years old) has retained reflexes and it's been difficult for me to find resources on it.

Thank you so much for your review. I use a wheelchair and I found your review helpful :)

I am 37... If my wheelchair color does not make me say "This is me and this is my Awesome and I love my chair and the color represents who I am EVERYWHERE I go." I have to be in LOVE with the wheelchair. Other people don't have to. I have tried to go with a mellow blue color and it was my first chair that was NOT purple some how purple and guess what... I hated that mellow blue chair. I was trying to hide who I was as person. You be you fully.

I am so happy I came across your video. Thank you for sharing your experiences. I have several patients with retained reflexes and it is very difficult to find these "organic" snapshots!

This helped a lot I’m aswell a wheelchair user I’m getting my Apple Watch delivered on Friday

It would. be great if you can upload a video of how you Use the watch. You need to touch the side buttons? Or is everything on the watch a touchscreen experience?

I love this are you still active in this work?

Great explanation. You Rock

Hi from Canada too. Im Ben with ADHD. You are a strong angel. Hope to hear more vlogs.

Hey you should continue doing your videos! Just find you <3 Hope you're doing good!

Thanks! Very helpful.

I’ve heard the whole “computer” or “online” as blanket term for people with CP would be most comfortable working remotely... That being said where are these supposed jobs?? I have a family and people with CP including your and myself have heard this here or there before. What jobs and where???? I pray the other folks with CP are not as metal as me but I’m troubled by our lack of economic advancement

the only person u listen 2 is ur doctor

i didnt know u could pick XD

I have cerebral palsy too ! Thank you

how do I access it to turn this feature on

Just got the “5” Love it. I have Spina Bifida

I don't have full extension of my arms, so I use a power wheelchair. I do weight training to stay fit. Do you know if I could track other physical activity with the watch since I don't push my chair?Like my weight lifting, transfers from my chair and wheelchair push ups? Thank you.

I love your channel. ❤️

I have cerebral palsy also and I can't stand the heat and the cold weather

Thank you and best of luck on your fitness journey.

Awesome video!!!!!

Really great video👍🏻 I was looking everywhere to find some information about the wheelchair capability of the third generation, but I couldn’t find something. I know that the second Apple Watch had this feature, but I wasn’t sure, if it is also in this one. Wishing you all the best for your goals 🍀Katy

I am getting one I am also a wheelchair user

I’m pretty sure a lot of people out there with CP would take that pill, My Little girl is always saying “I wish I could run like them daddy”

Great video, I’m not to sure how it works here in Australia but I guess we will find out in time.

It’s an amazing idea from Apple 💚