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Hope for HIE
United States
Приєднався 14 лис 2014
Hope for HIE is the premier worldwide organization dedicated to improving the quality of life for children and families impacted by Hypoxic Ischemic Encephalopathy through Awareness, Advocacy, Education, Research & Support.
Since organizing as an official 501c3 charity in 2013, Hope for HIE works tirelessly to ensure no family faces HIE alone, now connecting and supporting over 10,000 families worldwide through comprehensive support programs and services, free to any HIE family including social work, child life, and peer support.
Since organizing as an official 501c3 charity in 2013, Hope for HIE works tirelessly to ensure no family faces HIE alone, now connecting and supporting over 10,000 families worldwide through comprehensive support programs and services, free to any HIE family including social work, child life, and peer support.
Hope for HIE 2024: Wrapped
It's been an incredible year of growth for Hope for HIE -- the premiere global patient advocacy and support organization for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy.
We've expanded the pillars in our mission statement to be more reflective of who we are and what we do -- Awareness, Advocacy, Education, Research and Support.
Thank you to everyone who makes this work possible, and to the more than 10,000 families that receive support programs and services through us, you are why we do what we do. Your strength, resilience, kindness, and tenacity inspire us every day.
We've expanded the pillars in our mission statement to be more reflective of who we are and what we do -- Awareness, Advocacy, Education, Research and Support.
Thank you to everyone who makes this work possible, and to the more than 10,000 families that receive support programs and services through us, you are why we do what we do. Your strength, resilience, kindness, and tenacity inspire us every day.
Переглядів: 428
Відео
Hope for HIE 2024: Wrapped
Переглядів 93Місяць тому
2024 has been an INCREDIBLE year of growth supporting and connecting over 10,000 families worldwide from 100 countries, celebrating 10 years as an organization. This work is made possible by our global community coming together to ensure no family faces HIE alone and advance awareness, advocacy, education, research and support. Let's continue doing this great work together with our vision to de...
NSR Research Update: Q&A with Dr. Lemmon & Natalie Field
Переглядів 1692 місяці тому
NSR Research Update: Q&A with Dr. Lemmon & Natalie Field
Q&A with Gina Abraham, MS - Hope's Clinical Research Program Manager
Переглядів 2042 місяці тому
Q&A with Gina Abraham, MS - Hope's Clinical Research Program Manager
Research Recap: Child Neurology Society Conference
Переглядів 992 місяці тому
Research Recap: Child Neurology Society Conference
Understanding Disability and Educational Rights in the US in under 10 minutes
Переглядів 682 місяці тому
Understanding Disability and Educational Rights in the US in under 10 minutes
HIE Dads: HIE Peer Perspective Series
Переглядів 2382 місяці тому
HIE Dads: HIE Peer Perspective Series
HIE & Genetics: Q&A with Dr Steven Lazar and Dr Christian Parobek
Переглядів 1412 місяці тому
HIE & Genetics: Q&A with Dr Steven Lazar and Dr Christian Parobek
Child Life Q&A: Fostering Peer Relationships
Переглядів 1132 місяці тому
Child Life Q&A: Fostering Peer Relationships
Navigating AAC: HIE Peer Perspective Series
Переглядів 2253 місяці тому
Navigating AAC: HIE Peer Perspective Series
Public health interventions that have saved baby brains
Переглядів 503 місяці тому
Public health interventions that have saved baby brains
What is HIE - Hypoxic Ischemic Encephalopathy?
Переглядів 9073 місяці тому
What is HIE - Hypoxic Ischemic Encephalopathy?
The state of NICU advocacy for HIE & Full Term Families
Переглядів 2023 місяці тому
The state of NICU advocacy for HIE & Full Term Families
New research for HIE funded - congratulations Dr Anani at VUMC!
Переглядів 343 місяці тому
New research for HIE funded - congratulations Dr Anani at VUMC!
Child Life Q&A: Why Sibling Support Matters with Annie Taylor, CCLS, and Annie Gunning, CCLS
Переглядів 703 місяці тому
Child Life Q&A: Why Sibling Support Matters with Annie Taylor, CCLS, and Annie Gunning, CCLS
Navigating Mild Outcomes: HIE Peer Perspective Series
Переглядів 2663 місяці тому
Navigating Mild Outcomes: HIE Peer Perspective Series
Navigating More Severe Outcomes: HIE Peer Perspective Series
Переглядів 1534 місяці тому
Navigating More Severe Outcomes: HIE Peer Perspective Series
Long Term Cognitive Impacts: Q&A with Dr. Melisa Carrasco McCaul
Переглядів 1994 місяці тому
Long Term Cognitive Impacts: Q&A with Dr. Melisa Carrasco McCaul
Exploring Ethics in Neonatal Clinical Trials: Q&A with Dr. Robert "Skip" Nelson, M.D. Ph.D.
Переглядів 815 місяців тому
Exploring Ethics in Neonatal Clinical Trials: Q&A with Dr. Robert "Skip" Nelson, M.D. Ph.D.
Child Life Q&A: Feeling Connected through Grief
Переглядів 565 місяців тому
Child Life Q&A: Feeling Connected through Grief
Navigating Moderate Outcomes: HIE Peer Perspective Series
Переглядів 1225 місяців тому
Navigating Moderate Outcomes: HIE Peer Perspective Series
Become a Peer Support Mentor: Q&A with Haley Thomas, LMSW
Переглядів 266 місяців тому
Become a Peer Support Mentor: Q&A with Haley Thomas, LMSW
Hip surveillance with cerebral palsy and HIE
Переглядів 1106 місяців тому
Hip surveillance with cerebral palsy and HIE
Epilepsy Diagnosis in Childhood after HIE
Переглядів 696 місяців тому
Epilepsy Diagnosis in Childhood after HIE