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My Stroke Guide
United Kingdom
Приєднався 4 бер 2020
This channel has videos on the physical and mental effects of stroke, living well after stroke and the practical things to think about like finance, driving and adapting your home. Many also share their lived experiences of stroke as a survivor, carer or health professional.
Signing up to the Online Community
This video will show you how to sign up to the Stroke Association Online Community.
How to create an account:
1. Go to the Online Community's homepage and click “Sign up”
2. Choose a username you like; remember, it’s how people will see you here.
3. Provide a valid email and create a secure password.
4. Fill in any required details on the registration form.
5. Make sure to read and agree to the terms and conditions and privacy policy.
6. Look out for a verification email and click the link inside to activate your account.
7. Add a bit about yourself in your profile to help others get to know you.
And just like that, you're all set, start exploring, posting, and engaging with the community!
Please note: The Online Community is an open platform, which means your username and any discussions you post are publicly visible. We ask you to think carefully about the personal information you share to safeguard your privacy and identity.
How to create an account:
1. Go to the Online Community's homepage and click “Sign up”
2. Choose a username you like; remember, it’s how people will see you here.
3. Provide a valid email and create a secure password.
4. Fill in any required details on the registration form.
5. Make sure to read and agree to the terms and conditions and privacy policy.
6. Look out for a verification email and click the link inside to activate your account.
7. Add a bit about yourself in your profile to help others get to know you.
And just like that, you're all set, start exploring, posting, and engaging with the community!
Please note: The Online Community is an open platform, which means your username and any discussions you post are publicly visible. We ask you to think carefully about the personal information you share to safeguard your privacy and identity.
Переглядів: 140
Відео
Preparing vegetables with one hand
Переглядів 1,9 тис.Рік тому
In this video, Chris shows you how you how to cut and prepare vegetables with one hand using the guillotine method. You can find more information on our website: mystrokeguide.com/recipe-ideas/preparing-vegetables-with-one-hand Disclaimer You assume responsibility for your health and safety when following the guidance in our videos. We do not accept liability for any injury or illness. Ensure a...
How to make a tomato sauce
Переглядів 120Рік тому
In this video, Andrea makes a simple tomato sauce that you can use right away or freeze for later. It's a great option to have in your freezer when you don't feel like cooking but still want a hot meal. You can read the full cooking method and download an aphasia friendly version on our website: mystrokeguide.com/recipe-ideas/tomato-sauce Ingredients 1 small onion 2 cloves garlic 1 tin chopped ...
How to make Chris's curry sauce
Переглядів 175Рік тому
In this video, Chris shows you how to make and freeze a versatile sauce. You can then use this sauce to make curry, soup or (other suggestions from Chris). If you'd like to try making your own vegetable stock, you can find @diabetesuk's recipe here: www.diabetes.org.uk/guide-to-diabetes/enjoy-food/eating-with-diabetes/healthy-swaps/make-it-healthier-stock You can read the full cooking method an...
How to make vegetable and lentil soup
Переглядів 188Рік тому
This recipe for vegetable and lentil soup is quick and easy to make. It's also great for freezing. If you'd like to try making the vegetable stock we mention in the video, you can find @diabetesuk's recipe here: www.diabetes.org.uk/guide-to-diabetes/enjoy-food/eating-with-diabetes/healthy-swaps/make-it-healthier-stock You can read the full cooking method and download an aphasia-friendly version...
Tips for reducing food waste
Переглядів 106Рік тому
No one likes to waste food. In this video, Chris shows you how to reduce food waste by making the most of the leftover vegetables in your fridge. You can read more tips on our website: mystrokeguide.com/recipe-ideas/reducing-food-waste Disclaimer You assume responsibility for your health and safety when following the guidance in our videos. We do not accept liability for any injury or illness. ...
How to make Jollof rice
Переглядів 162Рік тому
A delicious West African dish that you can change and adapt to suit your tastes. In this video, we make a vegan-friendly version, but you can add chicken or prawns if you want. You can also make it as spicy (or not) as you like. You can read the full cooking method and download an aphasia friendly version on our website: mystrokeguide.com/recipe-ideas/jollof-rice If you'd like to try making the...
How to make Beef Stew in a slow cooker
Переглядів 230Рік тому
In this video, Andrea makes a beef stew in a slow cooker. You can also make this recipe on the hob if you prefer. You can read the full cooking method and download an aphasia friendly version on our website: mystrokeguide.com/recipe-ideas/beef-stew If you'd like to add some Air fryer roast potatoes like we do in the video, you can find the recipe here: mystrokeguide.com/recipe-ideas/beef-stew I...
How to make Roast Potatoes in an Air Fryer
Переглядів 303Рік тому
Roast potatoes in 20 minutes? In this video, Andrea shows us how to make roast potatoes in an air fryer using only a tablespoon and a half of oil, and NO salt. There are also some handy tips on chopping as well as coping with fatigue or other dexterity issues. You can read the full cooking method and download an aphasia friendly version on our website: mystrokeguide.com/recipe-ideas/roast-potat...
How to make an Apple, pear and sultana crumble
Переглядів 473Рік тому
Stroke survivor and chef Chris King from Chequers Kitchen is joined by Alex Lilja from the Stroke Association to demonstrate an easy-to-make an apple, pear and sultana crumble. As a stroke survivor and chef, Chris brings a wealth of knowledge and useful tips on how to prepare this delicious dessert when faced with the challenge of weakness on one side. You can find out more information about th...
Instant chatting on the forum
Переглядів 84Рік тому
The instant chat feature lets you talk to other members of the forum in real-time. Watch this video to learn more about how to use this feature. 00:00 Intro 00:31 Chat box controls 01:26 Channels and Personal chat 02:06 New message alert 03:04 Reply to message 03:50 Online presence 04:12 Start new chat 04:52 Join a Channel
How to create a new topic
Переглядів 277Рік тому
In this video, we walk you through how to create a new topic on the forum.
My Stroke Guide - Rupert's Story
Переглядів 2,1 тис.Рік тому
Stroke can change your life in an instant. And it can be hard to find people who understand. Rupert had a rare type of stroke when he was just 42. It happened as the UK was going into the second Covid lockdown. He felt isolated and couldn’t get the information he needed. Then he found the Online Community. In this video you can hear Rupert talk about the people he’s met on the forum, what they’...
My Stroke Guide: Bill's story
Переглядів 490Рік тому
Find out how Bill benefits from using My Stroke Guide. Sign up or Log in to our Online Community here - forum.mystrokeguide.com/ www.stroke.org.uk/finding-support/my-stroke-guide/bills-story
Claire's story
Переглядів 972Рік тому
Claire suffered a stroke and wanted to find out what had happened to her. She found My Stroke Guide, an online resource that helped her regain some of the independence she had lost. In this video, Claire speaks about how My Stroke Guide benefitted her after she suffered a stroke. Sign up or Log in here - mystrokeguide.com/ www.stroke.org.uk/finding-support/my-stroke-guide/claires-story
How to amend your profile on the My Stroke Guide forum
Переглядів 702 роки тому
How to amend your profile on the My Stroke Guide forum
What to do if you forgot your password
Переглядів 2,3 тис.2 роки тому
What to do if you forgot your password
How to request a new password (after you've logged in)
Переглядів 1022 роки тому
How to request a new password (after you've logged in)
How to send a direct or private message
Переглядів 582 роки тому
How to send a direct or private message
How to change your profile picture on the My Stroke Guide forum
Переглядів 1272 роки тому
How to change your profile picture on the My Stroke Guide forum
23:05
Why isny there a pill you can take
Insurance is so important. My husband’s is paying for his for now because he was working but social security also can help you too from what I heard. God bless us all. My husband isn’t home yet but wants to be home but needs more time to be able to use the restroom on his own, dress and bathe. I have a 15 month old that needs me plus two older teenagers in sports etc.
My partner has extreme mood swings and can be triggered by the slightest thing. Her health isn't that great as she's got high blood pressure. Her mood swings come across as narcissistic and it's very hard to live with her like this. I don't want to believe she's acting like this out of choice. I'm thinking has she had a silent mini stroke or something. She's had a couple of random black outs. The worst one was when she was getting out the bath. All she can recall is getting up out the bath then waking up in the fetal position on the bathroom floor. She even broke her spine doing that. She won't admit there is anything wrong with her moods. She generally blames me for her behaviour.
your so very very wrong
Liver cirrhosis causes this too.
I had a stroke around two months ago. Between the panic attacks and the mood swings, it’s the lack of sleep that gets to me. I’m almost always apologetic about something to my wife, and I cry constantly. It’s a mess for me.
I get headaches all the time after my stroke. Taking a Tylenol usually makes it go away
How do I read a Beethoven Sonata while playing the piano?
I have Dysarthria and great difficulty being understood.
My husband wants to leave me
Please help us many just want to dope us up hoping we’ll go away
I had an ischemic occipital lobe stroke almost 2 years ago. Trying to describe what cortical blindness is to people is really hard. I describe it, sort of like looking at things underwater or even kinda like if you stare at some thing for so long that your eyes start to blur. Videos like this really help my family understand better
I have had a stroke too, I’m fixing to lose my house because of it. It’s not a behavior issue when there’s a real reason to be worried and pissed off because of it.
I use Motus Nova @MotusNova to help my stroke wrist stay flexible and to help me increase my strength in my wrist. It's been very helpful to me. I Haven't really seen anything else out there like it
How do you help someone that's depressed???? I'm really trying to understand. My cousin has family around her, i moved to help her. How do you get a depressed person to help us to help her ????
CHROME BROWSER please.
Im a stroke patient and experiencing anxiety
Great work thank you very much for your good work.
How about an eye therapist to do regular exercises and try to gain blood flow to the optic nerve?
I’m always hungry after my stroke
Thanks for a very useful video, at least I know I'm not going mad " well, not too mad !! " , I know that a lot of things that I do, don't make sense to most people but it makes sense to me. I write the lists of medications I take every day, but I make sure that I've written down the list for the next day before ticking them off, because in my bonkers logic, it means I will be alive to tick the meds off , I know it's crazy. But it seems to help, untill the day when I'm not there to tick off the list, I suppose by then it won't matter!!! . PEACE AND LOVE TO EVERYONE ❤❤.
Magyar erdekelne😢😢😢
I've had two strokes. Been through this again and again. Everything has moved. I have to find another way to live. I love and collect music and going back to that helps me. God bless everyone in this video ❤😂
Thank you My new life after my stroke, I'm calming down . Lost friends, family but i still have my wife.. Thank you baby
I relate so much with on my preparation for speech thinking ahead and a breath of preparation
Just over three months ago i experienced problems with right eye, it began with not having control of my eye as it felt it was going cross eyed then seeing double vision i couldn't control the eye to go back to normal having to shut my eyes for seconds up to minute or so till it went away, though unfortunately after this happend i started to see everything wavy horizontally & vertically, also everything seem to have light yellow film tint as also seeing shutter white flashes with flickering pin dots the left part of my right eye, i also experience now far sightedness & at night things as trees whatever having dark shaddows everything looking further away which i can not see words in a book less i shine a bright flashlight on the words, if this isnt enough looking thru both eyes it looks like i am having a magnifying glass effect like 3D HD look very strang effect its a distortion thats causing me to see like this, i went to an optimaligist after testing he said he finds my right eye has retina edima a lesion to the eye which refered me out to a retina specialist which i am in no way wanting to go thru another eye test exam the first one was horrific therefore where it is today i have all these issues yet with the right eye thank goodness i have normal good vision in the left eye & only half sight in right eye with all the problems it has, i been trying to adapt to this all its not easy, i am convinced i had stroke of the eye iam just keeping positive holding on to my faith that one day will be able to see normal again.
See i have dyspraxia i always wondered why i struggle to get words out at times,i didnt know that it affected speech till this week
ua-cam.com/video/PK7GBFWHXOc/v-deo.htmlfeature=shared
Pulmonary embolism is in your lungs not your heart.
My wife of 3o years recently informed me that she wasn't going to take care of me after my stroke! I didn't need much ,,i was able to use the. Bathroom on my own with the use of walker...i was told i would make a recovery of 95%. I just needed to come home. Now I'm staying with my daughter for now...i my view the wife is the most self absorbed cold blooded person i never saw coming...what a blow!
I’m sorry to hear that. My husband just suffered a stroke 3 weeks ago. When this hits a spouse it either exposes the marriage or makes it stronger. Consider this your chance to leave her because she is revealing her true self. If God forbid something was to happen to her she would probably expect you to care for her so, now the ball in your court. Make the best decision for your future.
I have a family member that had a stroke. He suffers from this comdition, However it is really extreme. Also hos overall behavior is totally different...he doesnt appear to be mentally coherent at all...i wonder y that is...he appears to have repressed cognitively...
Great video. Thank you.
Very informative
Glad it was helpful!
Me yego el la chira de sel sin pila y sin cable lo tiró ala basura
Thanks
THANKS YOU GOODNESS 🌟 DAPHNE COTTON ALWAYS 💜
Love the ingredients, had stroke, need great recipes. ❤
We hope you enjoy the recipes and get what you need from them.
Call an ambulance i think im having a strodndjdnxkms xjmd xj
Thank you for reaching out to us. I'm really sorry to hear that you're experiencing something concerning. However, it's essential that you take this seriously and prioritise your health and safety. If you believe you might be having a stroke or are experiencing any symptoms that worry you, we strongly recommend that you don't delay seeking medical assistance. Time is of the essence when it comes to strokes, and getting prompt medical attention can make a significant difference in your outcome. Please call 999 or your local emergency services immediately. Let them know your symptoms and that you suspect a stroke. They are trained to handle situations like this and will provide you with the necessary assistance and guidance. Your well-being is the top priority, and we hope you get the medical help you need as soon as possible.
😊
Hello I had a mini stroke in July do your taste buds return my stroke was in July 2022 and I'm still trying to get my taste for food to come back .
👍
THANKS YOU GOODNESS 🌟 DAPHNE COTTON ALWAYS 💜
Dear Hannah, Could I please include your idea to use a picture to prompt dilogue better among clients at Norquest college in Edmonton, Alberta Canada in a group assignment we are doing in the Recreational Therapy Aissistant diploma program right now ? We could use a picture to help get clients started in trying to come up with a word during a round table group improv activity which might be fun for elderly clients to do in which each client is instructed to come up with any words at all from only 1 word to a 3 word phrase about what might have happened before the picture was taken in time? If we use the picture prompt we will cite this video as a source for our assignment. Sincerely, Frances Bernard
My husband is dr Jewel mr Hyde. So frustrating. Is nice one minute and mean the next.
Thank you
I cant remwmber the names of out pets or nything
How are u now please tell me please
How are you all so comtent to live with it when i am so afraid and upset
You know now?
I have the same
does ice help at all