- 8
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TEDMED Day CUMC
Приєднався 8 лют 2013
"Fear and shame-based approaches in HIV treatment and prevention..." Jeremiah Johnson, MPH
In this talk, Jeremiah Johnson brings into question the role of fear and shame in the prevention and treatment of HIV. Through his personal journey with HIV, Johnson explains the stigma surrounding the disease and how he successfully changed, through advocacy, the Peace Corp's policy enabling HIV positive people to serve. Johnson teaches us that health campaigns should be designed using positive messaging, instead of fear, to promote safe behavior and to conquer the epidemic.
Jeremiah Johnson is a recent graduate of the Department of Sociomedical Sciences at the Mailman School of Public Health. His primary interest is in the effects of HIV-related stigma on people living with HIV and those most at risk for transmission. Diagnosed with HIV in 2008, Jeremiah has experienced consequences from stigma and discrimination firsthand. Serving as a Peace Corps Volunteer at the time of his diagnosis, the Peace Corps dismissed Jeremiah when he tested positive. With the help of the American Civil Liberties Union, he later changed Peace Corps' policy to allow positive volunteers to continue their service. Since then, Jeremiah has continued to raise awareness around issues and policies that contribute to the spread of HIV and negatively impact the lives of those living with the virus. For two years, he worked as a case manager and prevention specialist at the Northern Colorado AIDS Project. There, he learned that there is still much work to be done to improve the quality of life for all people living with HIV. Most recently, Jeremiah completed his practicum at the Joint United Nations Programme on HIV/AIDS where he worked on a nationwide study to quantify and describe HIV-related stigma and discrimination in the US.
Jeremiah Johnson is a recent graduate of the Department of Sociomedical Sciences at the Mailman School of Public Health. His primary interest is in the effects of HIV-related stigma on people living with HIV and those most at risk for transmission. Diagnosed with HIV in 2008, Jeremiah has experienced consequences from stigma and discrimination firsthand. Serving as a Peace Corps Volunteer at the time of his diagnosis, the Peace Corps dismissed Jeremiah when he tested positive. With the help of the American Civil Liberties Union, he later changed Peace Corps' policy to allow positive volunteers to continue their service. Since then, Jeremiah has continued to raise awareness around issues and policies that contribute to the spread of HIV and negatively impact the lives of those living with the virus. For two years, he worked as a case manager and prevention specialist at the Northern Colorado AIDS Project. There, he learned that there is still much work to be done to improve the quality of life for all people living with HIV. Most recently, Jeremiah completed his practicum at the Joint United Nations Programme on HIV/AIDS where he worked on a nationwide study to quantify and describe HIV-related stigma and discrimination in the US.
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Відео
"Is GATTACA soon to become a reality?" Wendy Chung, MD, PhD.
Переглядів 6 тис.11 років тому
Should newborn screening for genetic disorders be expanded to include whole genome sequencing? In this talk, Wendy Chung, Director of the Clinical Genetics Program at Columbia University, argues that whole genome sequencing could be invaluable for disorders that are treatable, preventable, and where early diagnosis matters. She cautions against inequitable access to sequencing, and she advises ...
"What can medicine learn from the Buddha?" Craig D Blinderman, MD, MA.
Переглядів 3 тис.11 років тому
How can the principles of Buddhism affect our practice of medicine? Craig Blinderman, Director of the Adult Palliative Medicine Service at Columbia University Medical Center, believes that the practice of contemplative care can help alleviate patient suffering. Dr. Blinderman explains how the core principles of Buddhism being self-aware, listening to others, and being present in the moment coul...
"Why is language so hard for autistic children?" Joy Hirsch, PhD.
Переглядів 86 тис.11 років тому
Little is known about how the brains of autistic children differ from those of other children. In this talk, Joy Hirsch, Professor of Psychiatry and Neurobiology at Yale School of Medicine, describes groundbreaking research showing that children with autism have deficiencies in their ability to understand language. She posits that this difference in language processing may be one of the first b...
"Can 5th graders teach their parents about stroke?..." Olajide Williams, MD, MS
Переглядів 82111 років тому
Dr. Olajide Williams outlines his innovative technique at teaching kids how to easily recognize signs of stroke, using video games, rap music featuring Doug E. Fresh, and interactive live shows. Dr. Olajide Williams graduated from the University of Lagos Medical School in Nigeria and the Mailman School of Public Health at Columbia University. He completed his residency training in Neurology at ...
"Did mass incarceration cause the HIV/AIDS epidemic in the US?" Robert Fullilove, EdD MS.
Переглядів 3,3 тис.11 років тому
What do the War on Drugs, mass incarceration and the HIV epidemic among black Americans have in common? Robert Fullilove, Associate Dean for Minority and Community Affairs at the Columbia University Mailman School of Public Health, says "everything." Dr. Fullilove explains how mass incarceration has in many ways destroyed the ability of the black community to resist the many challenges posed by...
"... Does context matter in an era of personalized medicine?" Sandro Galea, MD, DrPH.
Переглядів 2,3 тис.11 років тому
Dr. Sandro Galea emphasizes the importance of context in biomedicine. He discusses the need to differentiate between what drives a population and what predicts an individual outcome. He utilizes Mario Balotelli, the Framingham study, and a study comparing fast food, activity level, and genetic predisposition to demonstrate this critical idea. Dr. Galea is a physician and an epidemiologist. He i...
"Will a machine be my new doctor?" Herbert Chase, MD, MA
Переглядів 1,9 тис.11 років тому
How will machines alter medical practice and medical education? Dr. Herbert Chase, Professor of Clinical Medicine (in Biomedical Informatics) at Columbia University College of Physicians and Surgeons discusses surviving the information glut presented to medical professionals. Dr. Chase believes that machines are necessary to make us smarter, reduce error and improve efficiency, but that humans ...
Raising s child is like raising a rose garden. Onl if you do lots of things correctly in the correct sequence, will the garden grow beautiful. Any error and the roses will die outvor look ill. 1. By three months old, you need to get your baby accustomed to lying on the cot/pushchair and communicate with you without being held. 2. By four months, the first solid food ( pureed vegetables, no sugar!) freshly nade, should replace one of breepastfeeds. 3. By 5 months, the second meal of solids ( porridge or cottageccheese with egg yolk) shouuld replacecanother breastfeeding meal. 4. By 6 months, 3 meals a pre solids and 2 meals are breast. 7. By 7 months, the baby is comfortable playing on his own on the floor, eating vatiety of tastes and is not given a bottoe for water any mire, only cup or spoon drinking. 8. By 8 months, the baby should be a floor inhabitant of your household, crawling, reaching, learning the word STOP, NO. 9. By 9 months, 1 breast meal is left and three solids, with meat, purees go, replaced by normal pieces-like food. The baby must sleep through the night. This is achieved by filling meal before bed. 10. By 12 months, the toddler eats with the family at a table in a high chair, eats exactly the same as everybody else, just without hot sauses, and already has havits of obedience: does not take anything from the table until asking by kesture or voice and given permission. I HAVE YET To meet even one mum of autistic child who did this during the first year. None of them did that! Their roses are spoilt before giving the first leaves!
A prime example of circular logic. Language is hard for autistic childrem because only children for whom language is difficult are labeled autustic!
My now 13 yr old NEVER was unable to express himself DESPITE being non-verbal until at 7yrs old he CLEARLY AND PERFECTLY SPOKE to me " Momma, I no longer want to sign. I want to speak, can I start talking instead of signing". Naturally I almost fell to the floor because 7 YEARS he was FLUENTLY using ASL to tell me about his deep inner world. The Deaf world guided my son to his power. NOT the hearing/ speaking, NOT the audiologist, NOT the Speech therapist, NOT the doctors, NOT the nutritionists. PLEASE stop sleeping on the Deaf population they can get your kid understood THEN you can reason with him/her and help them fix their struggles. If anyone wants to ask my son questions I will gladly ask him and report back his answers.
Do you think selective mutism had anything to do with why he was silent for so long and then suddenly decided to speak? Thank you for being open to questions!
@winterroses2020 His isn't selective. Through fluency in ASL he was able to tell me the words processed in his thoughts but got stuck just behind his jaw. Where his toung stops being mostly esophagus. Sure enough 4 years later after we had been practicing toung movements and becoming comfortable with his tongue touching the roof of his mouth he was comfortable producing vocal words. They have full on perfect vocabulary in their thoughts. It's just trapped ans they don't want to fail us so the are apprehensive. They aren't choosing to speak sometimes and not others. Nervousness seems to control that muscle. It seems to temporarily paralyze it when the world becomes too much.
@@michellef520 Great answer! Thank you so much!
@@winterroses2020 eh? Great answer? Did I pass a test?
@@michellef520 it was meant as a compliment and gratitude because it was an ah-ha moment for me. I’m not sure why you took it as an insult.
Im here to understand my own autism
This seems more like a result of bad early socialization than a direct symptom considering it processed music normally. Something else must be causing language to be an unrewarding skill
mother.
Language is developed late enough that this doesnt make sense as a causal mechanism, especially if this part of the brain works normally for other inputs. There was a video on add/adhd that was suggesting it was "caused" by not "learning" to stop and process information however it seems more likely that natural dopamine deficiency (too many reuptake receptors) is the cause of that as opposed to high level learned processes being core to a genetic disability
Language comes first but speaking is what is difficult. Teach your kid ASL which IS NOT English therefore easier.
@@michellef520 actually i have autism myself. My point was that the thing people care about enough to label as a symptom can easily result from something much more fundamental. Its kind of like suggesting that a blind person would be able to read paper and ink books if only someone had taught them
@@michellef520 and my point about adhd was that a lack of interest can be confused with or result in a lack of proficiency as the skills that tend to be lacking are just relatively boring to initially develop with very delayed payoffs
My son had a severe speech delay as a child, today you would never know ❤
I have heard many people on the internet share stories similar to yours. I am hoping and praying that my five year old will one day be able to express himself well. We have gotten him in an IEP and are doing speech therapy and occupational therapy as well. He really doesn’t say much more other loosely repeating children’s songs and sometimes mocking my wife and I.
Did you use ASL until he started speaking? Mine literally started speaking using college level words.
Are they autistic or it was just a speech delay?
Q: Why is language difficult for children with autism? A: 12:45
Language is not difficult, it's how people use it. YOU don;t say what you mean, or mean what you say. You don;t keep to the rules of language. You use vanities a very large amount I like suspect, clearly spoken elegant language use. Not ostentatious, but elegant in the sense that it;s all meaningful and not filler. of the time. Plus, much of the time you spend talking is pointless.
Because autistic children are defective. That’s why.
How does Pineal gland and pituitary gland plays role in developing or affecting in speech regardless of having atypical and typical austism? Thanks for the processing specifically the north and south nodes ^_^
Broken brains and treatment? What a dinosaur.
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we dont need research,, we need exact or accurate treatment for them...
How do you come up with such strategies without research first?
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? How many moms took an antibiotic before giving birth because of a vaginal bacteria being present? The lack of these natural germs is thought by some researchers to keep the brain from a natural brain synapses trimming. Just curious! Thanks!
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Hi.. thanks for the awsome information! How can I have access to the articles that were published? I have a son who is on soectrume and I want to be an educated mom to better handle the situation. Tanx.
Slides please
TED talks are renowned for lack of good camera skills
What a waste of time, said nothing helpful
There is an intermediate area of the brain that looks different, several areas look the same. May lead to treatment some day, or maybe not.
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Normal??? Why not use it if it is true
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Where are the slides???
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bs
And every person on the spectrum is also unique from other on the specctrum.so u can not generalized the things on the every person with autism.
Not a single person in this world is same to other person.every one is unique.so plzzzzzzzzz accept the autism as a uniqueness of personality.and enjoy life.
I wish you had gone more in depth about the encoding deficiency in Wernicke’s area!
She said that there is no under-connectivity. Seems there's sufficient research to show that there is.
source?
@@cnw3903 Notice this talk was about 8 years ago, so much more has been discovered since then. This video is extremely brief, where she mentioned MRI Scans, one of the tasks done is seeing the difference between how the brain responds to their special interest in comparison to social cues. When autistic children saw an image of their interest there was great activation in multiple brain regions including those involving language. If they saw a social cue, things didn't activate very well. It was vice versa with nonautistic people, nonautistic brains were more activated by social cues than their interest. It's been seen when you allow an autistic person to have a one way conversation about their interest with you, they have greater vocabulary, are more enthusiastic, make more eye contact, stimming reduces, anxiety reduces. Some schools have integrated their interests into the lesson. A child interested in space was given a book about space to read as homework instead, as a result, they found within 2 months she progressed in reading by 18 months and had more language. There's more linked than what's mentioned in this video. Autistic brain have less dopamine, dopamine is required for learning, attention and memory. Their special interest produces dopamine giving them the dopamine required to learn. Ask yourself, did you find it easier to remember and learn about the things you like? Do you pay more attention to the things you like? I can safely assume yes, that's because you're dopamine levels rise when you do what you're interested in, so your learning, attention and memory all rise.
Ive heard research quoted that there can be fewer connections, fewer global but more local, or fewer local but more global (i think) so it could just be that if you average those out average for the group is normal even though you measured 3 groups with outlier scores
If you talked to us we could tell you. Your language was set up for neurotypicals. So when an autistic person hears your language we are on a train track and your language is like driving down a curvy road. So we don't like the way you think or talk, we would do it differently...hence all these communication problems. But we overcame that, usually we have problems with words, not the language itself. Because if we spoke how we wanted to you would be horrified how matter of fact we are lol. But we are all at different spectrums.
Hi I feel you are correct. My son is 6 and I can tell he has a lot to say but its is the articulation of words. He is on the spectrum and speaks can read, learned sight words but the one on one conversation is the issue. Did you experience this? If so how did you correct it or work on it? I really would love to know.
@@ylondascroggins1237 Hey, Thanks for the comment! Yes, I did experience this growing up! I still have trouble with words when I'm trying to express something. I had no idea I had this, I thought I was just slow because I got put into a different classroom for tests, etc, honestly, I was bored and lacked communication skills:-). What part is he struggling with, with one on ones? I had issues relating with others mostly which most people take for granted when communicating because it's "given" that I should know, these little things. Mainly facial expressions and relating to the other person. The best thing I found was an emotion wheel chart, and practice really. If you can engage him with the community it would help the most, know that's hard with covid:-(.
@@Cruelidea69 so I'm just going to be plain and simple. He does great learning, memory is good but just think I'm ask him baby how was your day...some days he says good. Other days he may repeat how was your day mommy? If he is upset I may ask tell me what's wrong.. you can tell my baby is processing but the words don't come freely so he just says I dunno. Then I press it until I see he can't find the words. I have took initiative at age 3 got him into ABA therapy and speech and OT. He has progressed exceptionally well. They are impressed. Just want a conversation and I feel it's coming but if there are other therapies we should seek im open. Thanks so much for responding. I care so much about his life and needs
My son is autism,he has adificul in speaking fluently,he can save number and quran ,and also now all street in my country and district,how can ihelp him to improve him self😭
Same. When did ur son start talking?
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It is not that children with ASD have difficulty with language receptive processing rather they have difficulty in earlier right brain subcortical emotional (afffective) co-regulated isocial-emotional reciprocity nteractions. As the child's HPA axis (our stress response system which dynamically connects into the autonomic nervous system, parasympathetic ventral vagus calm or conversely fight, flight or freeze) the auditory/prosodic processing of others' language communication is either more or less smoothly registered and regulated or in a state of physiological hypervigilance, dysregulated. It is NOT that wernicke's area is blocking coding of language reception(i.e., coding deficiences) but rather these so-called, deficient coding mechanisms (are much more fluid) and become much more effiicient and smoothly operational as the synaptic connections begin to re-wired much more effeciiently with respect to increase interoceptive feelings by the child of "internal relational safety" (reduced hypervigilance, manifested in terms of either overarousal or underarousal). This is why we now understand that many of the same areas of auditory atttunment or disatttunment; flat affective facial/visual connection or animated straiated facial visual, auditory/prosodic connectedness (again we are talking about the ventral vagus), we see very similar if not identical patterns (areas of brain affected) with those who suffer from moderate to severe complex PTSD. One is due to constitutional etiologies (ASD) the otehr due to emotional-trauma both areas are identically affected to more or less extents.
Sensory overload causes pain which activates threat detection and management patterns. Threat detection and management patterns inhibit affective empathy. Affective empathy is the building block for social learning before analytical theory of mind. Don’t tell him/her to calm down. The connection to PTSD is real. People with PTSD have difficulty with social interaction, become withdrawn and isolated. Autism and our faulty disability model cause the early manifestations of PTSD in developing children and shut down social systems, trapping the individual in an early stage of development, repeating pain management strategies in loops, locking the prefrontal cortex. Until we understand that we need need to construct an entirely different culture/environment for these children to flourish we will continue to see tragic outcomes which further reinforce false perceptions of innate deficits. Autism as a trait distinct from intellectual disability does not inhibit language learning. It is the interaction between autism and the earliest environmental conditions which produce language delay. That’s difficult for parents to hear because it does reaffirm some responsibility, but it’s the truth. What we think of as a more sensory friendly environment is only a slightly less traumatizing environment. There is a kind of environment waiting to be discovered in which normative minds are impaired and autistic ones are hyper functional. The focus should be on adapting parts of our culture rather than adapting autistic minds to fit the culture we already have. I see so many videos of frustrated parents on the verge of emotional detachment, videotaping their low functioning children as they are in serious distress. All while bright light is shining through uncovered windows, while intense colors are all over decorations across the house. Babies with ASD can’t speak for themselves, so they are traumatized horribly before they even have a chance to ask for help. Early detection and radical environmental modification is the future.
Always treatment and not prevention. Money money money
Autism is not a disease; the only prevention therefore is murder. If autistics were allowed to be who they are, instead of being forced to endure the discomfort and exhaustion of pretending to be just like however the people around us are, there would be less burnout, meltdowns, etc. and we'd be just as productive and healthy as neurotypicals. We'd just go about it a bit differently, in a way that works for us. Like left-handed people being allowed to be lefties, instead of being forced into the unnatural-for-them use of their right hand because of some absurd superstition that left-handedness is "of the devil". *smh*
I love my autistic grandson. In Georgia it is considered a mental disease and Aba and other expensive therapies and businesses have grown around this one in fifty boys who have it are not covered by insurance. Every avenue should be looked into to having healthy children. It is true once a child goes into or is born with autism we should support and love them but their life would be better if it had not happened so instead of money and treatments like the 1960’s March of Dimes let’s put effort into prevention. And for autistic people who have answered I’m for your best life. Much love.
Aren’t you interested in the cause of autism? I am 67 and autism has increased. Why?
Autism has "increased" because it was always there and just now being identified (and still largely misunderstood) by the neurotypical majoity. Autism is genetic. It's simply a difference in brain wiring. It's like having two computers with different operating systems; they'll both run whatever programs you want, but their build -- the different components and amount-of, etc. -- means each will run some types of program better than others. They're both still computers. Just wired different. Maybe one has a better graphics card, but the other has more RAM and happens to be in an area with a faster internet-connection. Where one shines, the other is weak, and vice versa. Still, again, both are good computers, but maybe one is being made to run a program it's not designed for. <-- That's how being a-typical (autistic) feels like being, to me.
What if every one child in fifty had cancer? Would you want to know why? Would you say it’s just because the tests are better and it was always there. My grandson has autism love him but wish other children could be spared this condition.
She was correct when she said "Act". An act written by the pharmaceutical industry. She just needs to sit down and go back to her nonsense science.
There are no pharmaceuticals to treat autism.
We are not broken, we are different. Nothing is "broken in the brain".
stop being politically correct.
@@vice2versa But, we’re not. I don’t need to be PC when talking about MY Autism.
@@happypiano4810 your autism is not the same as another autistic person, so you can only speak for yourself due to the variation
@@kuzianmak8480 Am I not speaking for myself here?
@@happypiano4810 I was referring to the 'We' in the 1st part of your sentence. For quite a good number of autistics it can be quite debilitating, and they have to rely heavily on others throughout life
Just your average..you are very lucky you can speak..my son 18 yrs old is a non verbal.autistic..I.hope someday he can speak.. my dream..even speak a liitle..i will.be very happy if that happen..very difficult parenting autistic child.. God bles.u!!! And Thanks for sharing for the informative..video.. .
Did he learn to read ? If yes then how ? Please share .
Young children cannot go in an MRI scanner! So no, you can't diagnose them looking at the so called Wernicke's area.
Why not?
Sure they can. Maybe it would be a problem if they are claustrophobic, but children can certainly go into an MRI
Do you know anything about ABA? Clearly not, it is the only research based approach to supporting individuals with autism and has had wide spread positive impacts. Many children that came to the ABA school I worked in previously had very slow progress before using the intervention.
@@DrBuzz0 practically they can, if they stay still, yes. But given the sensitivity to neuronal noise, I'm wondering how reliable this data is. I am also interested to know how exactly an autistic child would cope with the sound of the MRI machine, the small space and all of the equipment. Then how would researchers separate the DVs from confounds. Taken together, it's hard to reliably test children using fmri let alone autistic children, (except they are sleeping infants or very still children). And, looking back at my comment from a year ago, it makes little sense and I understand the reactions it may have caused lol.
@@lizmcgrory8379 I'm not familiar with it but thanks for letting me know about it:)