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Jaycee Smith
United States
Приєднався 10 жов 2011
Ima share bits of my life with ya.
That deaf girl
That deaf girl
Hot coco in coffee maker.
In Airbnb and they have Mr. Coffee.
No experience using this machine. I guess you don’t have to mix hot coco at least. But it’s terribly watered down. 2/10
No experience using this machine. I guess you don’t have to mix hot coco at least. But it’s terribly watered down. 2/10
Переглядів: 54
Відео
Kanso 2 Upgrade
Переглядів 4,5 тис.2 роки тому
Cally is back with her new update! She has Kanso 2 From Cochlear company. Her Kanso is rechargeable and can be controlled from her phone. This upgrade gives her more ability to change sounds. Currently she has 2 programs on her implant: old program and the new program. She’s still getting used to it.
I have Addison’s Disease
Переглядів 5 тис.2 роки тому
Addison’s Disease is an autoimmune disorder where my body does not produce hormones that behaves. The hormones harms my body and are hyperactive. I take medication to keep my body balance leveled. I’m sharing my experience about the time I discovered that I have Addison’s Disease. If you have any questions or comments, let me know! Subscribe to learn more about me
The NucleusSmart app
Переглядів 1,3 тис.3 роки тому
How to use NucleusSmart App. I’ll also talk a bit about my experience with this app. I like to use it to see how well I can hear depending on my situation but tend to stick to one program often. The program scan isn't my favorite but it maybe it is for someone else If you have any questions or comments, let me know in the comments! Thank you!! Have a wonderful day. Let me know what else I shoul...
Nucleus 7 aqua kit
Переглядів 4,5 тис.3 роки тому
I’ll be talking about the aqua kit and its accessories. I will demonstrate how to put a nucleus 7 processor into the waterproof case. Let me know what other topics you want to know about the nucleus 7 cochlear implant.
Painting Calvin and Hobbes on a rock
Переглядів 1584 роки тому
Mural of Calvin and Hobbes chilling by the tree 2/28/2020
Nucleus 7 update
Переглядів 13 тис.4 роки тому
opening the package for the nucleus 7 update. If you guys want to see specific things I got in the package, I can make a new video.:) I'm excited for my new journey wearing nucleus 7. What do you think? Thank you for watching.:)
Cally opening her kanso kit
Переглядів 6 тис.7 років тому
Cally had an old upgrade, freedom cochlear implant. She decides to switch over to Kanso!! EXCITING!
Addison is low cortisols. Cushing's is high cortisols.
Thanks for sharing
My daughter has Addison’s disease and she gets so happy when she sees another person that has it❤
Beautiful job telling your story. Thank you!! Stay well. 🤍
You poor little darling. ❤
Listening to you makes my heart break as I both identify with you and feel so bad for what you went through. You are a beautiful young girl and you don’t deserve this. ❤ Thank you so much for sharing your story. You’re helping others.
Thank you for sharing your story! I was recently diagnosed with Addisons. I've got other multiple illnesses too. I'm concerned I'll have an adrenal crisis,bc I'm caring for my mum, she has Alzheimer's, trying to keep myself well, my business going etc. Anyways, thank you, & blessings from Australia x
Hi, just wanted to say that you're not alone but then again we are alone in dealing with this... We need to be gentle with ourselves, self love is everything.... learn how to deal with difficult situations with grace and ease. I know how devasting Alzheimer's is.... Hang in there and you're so lovely for taking care of your mother. I suggest taking reduced glutathione sublingual (under the tongue) it has helped me so much. Also liposomal vit c double or triple dose but spread out throughout the day. I'm sure you're taking a high quality vit b complex stay away from cyanocobalamin and bad forms of b's. ( have you been tested for MTHFR? try and get some genetic tests done) "an attitude of gratitude brings great things." I wish you all the best. You can do anything you put your mind to I just wanted you to know that.
in my country Norway we are 5 million people i read that there is only a little bit more than 1000 addison's damn yeah the sleep is true i sleep 4 to 6 hours and i struggle to fall asleep as quick as my parents : P they fall asleep within 1 hour i can spend up to 3 hours before i fall asleep
U and me safring same deses
My medison is hydrocortisone and dalta cotton
Hae cute I am pashent of adisondeses and Iam 24 I am from pakistan
Hey don't be worry I am really sad about u...my wife is also caused a Addison disease and it's convert now in anemia every month she wants blood nowm.but she is happy with me..don't be worry.. 😭
My mother also a addison patient ... i felt like steroid also a slow poison .... It breaks my heart whenever i think about side effects of those medication ..
Hi! I wanted to suggest reduced glutathione under the tongue (sublingual) morning and night. I buy powder so there are no fillers. It really has helped me a lot. Is she taking vitamin c frequently? Whole food vit c is best, I take liposomal with acerola cherries and camu Camu. Best to spread it out and take it 2-4 times a day. take care sweetheart, all the best to your mom! Don't worry, things happen in life and it could be so much worse, everything will be ok <3 love and care heals.
❤️ keep up the good work it will pay off
Hi beautiful. Your such an inspiration ✨️ 💖 . I wish you all the best. I just was diagnosed 1 month ago as a side effect from immunotherapy for cancer. Thank you for your post. ❤️
I am currently using a nucleus 6. Switching to kanso 2 soon. 🇱🇰
Kanso 2 surgery how much cost bro
It breaks my heart to see someone your age dealing with Addisons. I am at risk of developing adrenal insufficiency so found your story interesting and informative. I give you so much credit with how you’re handling what I know is a tough disease to live with.
Did you go back for a new setting? Greetings from Switzerland
Cally did go back and got a new program. She can control most of what she hears on her nucleus smart app. Welcome!
@@jayceesmith4 Hi 😊
I have Addisons. Looking back stresses in life played a role. I was very ill when I was diagnosed. Now 13 years later im attempting to heal myself. The steroids have harm by bones and im only 39.
Hi Jill! How is your healing journey?
@@katryanaorange2092 I’ve been lifting weights in the gym for over a year for my skeleton 🩻😎 amazing results. I’ve gained so much muscle and working towards power lifting now. Im reducing my steroid dose on my own and playing with my levels to use as little as possible throughout the day. No major crisis so far this year but bloodwork looks awful recently while on a lighter dose. I also am learning to walk away from unhealthy relationships including my work life. I am going to give up my career in medicine I believe that is the biggest cause of my stress. No work life balance they are awful
🙏🙏🙏
Thank you for making this video! I am a 36 year old Canadian. I suffered from ny late teens untik I was diagnosed at 27. Last year I was diagnosed with hypothyroidism. Addison's, thyroid issues, celiac disease, diabetes and more are all related conditions; endocrine disorders. Watch what you eat! Less processed food, more veggies and lots of protein. Stay strong and carry on! I wish you well Jaycee
I have a white body , I was born white, I have a black face, Black elbows, Black joints, Black hands, Only because of Addison's disease, If humanity get their act togetherI I wasn't going to be so darke , I wasn't diagnosed until 15 years later, When I was completely a different person in hospital bed in coma , 15 years the doctor's never got it right , Addison's disease should be classified as disability it's not
Addison is the most dangerous when not diagnosed, but still a crisis is very rare. I had undiagnosed addison when i had 3 week stomach flu with vomtting etc. Still no crisis
EXCELENTE VIDEO :D ME ENCANTO -w- nice video amazing !!!! <3
It's great to hear some with Addisons is feeling well.
Did you also experienced extreme tanning of skin or skin getting darker
I was pretty tan already as a child. I did get darker when I got sick.
Nucleus 7 uau
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Hi Jaycee. Thank you for sharing your story! You are so beautiful and inspiring. I could listen to you all day. I currently work at a school supporting a child who has a cochlear implant. So I have come across your clips when searching for information about the aqua set. You have been very helpful, thank you. I wish you all the best. Greetings from Australia.
Nice sharing dear. Thank you
How are you feeling now ?
I’m doing pretty well.:)
That was so interesting. I didn’t know the full story. Is the gluten intolerance part of Addison’s disease?
After I was diagnosed with Addison’s disease, the doctors thought it would be good to check for other related issues. They sent me to get biopsy and saw that I was gluten sensitive and said that I had celiac disease as well. I believe it’s different for everyone. I just happen to have celiac disease.
@@jayceesmith4 Oh. Okay. I get it. I guess if you have one autoimmune disease, it’s good to check for others. That sucks! But good for you for handling it all so well! You’re an inspiration.
@@ivyskinner1 yeah i have addison to, its not related. She was unlucky. Living with addison is hard at first but u can still do anything.
@@jayceesmith4 i also have Addison and celiac in my country Norway we are 5 million people i read that there is only a little bit more than 1000 addison's damn yeah the sleep is true i sleep 4 to 6 hours and i struggle to fall asleep as quick as my parents : P they fall asleep within 1 hour i can spend up to 3 hours before i fall asleep
I think so
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very nice. Thanks for video
Processor ye price ?
Hey hi. I had the cochlear from 1988.. been using spectra 22 from 2000.. due to no insurance till now. I will get the newer N7. In 1 or 2 weeks could not wait to see how that will sound..
I dont know the accident but its super cool!
👍
Nice video! I’ve been SSD for 12 years got activated two months ago absolutely amazed I do use my water resistant boot with the lanyard works very well good luck!❤️
Mine N 5 is broken 2 weeks ago. Just ordered N 7. Thanks for video.
Hi , My niece is using till now Necleus espirt 3g , It is very old, I want to replace it for her ,but please just i need to know how could be coast that same like when u update urs
Hi. Congratulations, it is my dream to have an N7 sound processor. I have the N5 but it has not been working for 5 months. greetings from Mexico
Hey, lovely video. I saw your other videos too. And just curious to know would you compare Kanso with the Nucleus 7. I mean hearing quality etc. My son will go into CI process next month and he is getting N7. But I am more interested in kanso. Don't know if hearing wise one is better than the other. How is your experience !!
My experience has been a great one. I have four settings and I switch them depending on the social situations. I usually stay on one setting since it's the one I'm comfortable with. My sister has kanso and she likes it and all. I'm not too sure what the difference is. My N7, I have my phone which can change the settings and set up bluetooth and mike easy. kanso actually does not have rechargeables and N7 does, if that matters to ya. :) I think, based on my experience I can hear better. It's more clear than my old one which was nucleus 5. Good luck!
@@jayceesmith4 Thanks for your reply. Unfortunately, my son's op. got postponed due to covid 19 lockdown here in NZ. I guess you guys would be facing the same issues currently. You stay safe and stay happy. Thanks again.
Jaycee Smith hi Jaycee I'm Justin 39 years old I have N7 and it's great I hope we can be freinds and get to know each other since we have cochlear devices. I tried to find you on Ingram.
Looks really cool, I'm actually going to have implant surgery Feb 12th so it's new for me. Use to wear hearing aids most of my childhood life and stopped for years. It's my son who pushed me into this and one of my main concern about it,is it sweat proof without in needs of aquatic kit? He is 9 so during summer we are pretty active and I sweat alot, always been issue with hearing aids in the past
Nucleus 7 should be water resistant for sprinkler, sweat, and rain. There's also a container you can put CI into for drying and storage, it can help to keep the processor nice and dry after getting little wet. :)
@@jayceesmith4 awesome!! Really excited about it, nervous of course lol but excited though and thank you for taking time to respond back, I appreciate that
@@jayceesmith4 hey 😊
What is really heard is the price, how much dollars
$30K to $50K
You funny good job making videos sorry it 2 months ago 🤷♂️
Nice unboxing 👏🏻😊
Hair clips are better. At first I cannot figure it out with hair clip. But I got it. It's safer to have it on.
Hey Cally! U got your Kanso turned on. Way to go!!!! My hair is short but no one even noticed. Yea!!!