Відео

My father 76, at a 5, creatine 9.6. Dr told him today,it's time and because he feel he ok still, he refusing. I know what will happen if he doesn't, but 76 diabetic on pills,HBP, high cholesterol, grieving over my mom 12/21/24, clotting disorder, is it worth me pushing him to get it done.

I started dialysis when my GFR was 2.4. I was working full time up until then. I didn’t want to start dialysis either but I felt a million times better by the end of my first treatment in the hospital. My quality of life immediately got exponentially better. I no longer needed naps everyday. I spent every Friday at Cedar Points water park and at the beach. I got my transplant November 2023 and honestly wish I hadn’t. It rejected after almost 7 months and my GFR is back down between 18-22. My life was easiest when on dialysis. I have a new transplant evaluation in four days but when the time comes for dialysis again I may just choose to opt out of transplant and just remain on dialysis. I did HHD with the Tablo machine by the way. I can’t recommend it enough.

I had kidney failure about a year ago. My kidney function was 12%. It was probably caused by lupus but possibly vasculitis. Thankfully the function has gone up to 29-31% although I’m still getting protein and high creatinine levels. I feel I’m just surviving most days but hopeful.

I was at stage 3b for a couple of years and never told

A million thanks for sharing your professional knowledge and personal experience with your husband. Your information is invaluable for patients who feel trapped or hopeless. I am currently Stage 3B at 67 yrs old. No drug or substance history. Non smoker, but was born premature and was sick a lot with respiratory issues from infancy. That is what I think caused my ckd. I am trying to mentally prepare for the day that I need dialysis. Watching this video and hearing the stories of dialysis patient's helps to keep me realistic yet hopeful. Peace and blessings to you in Christ Holy Name. 🙏❤⚘️⚘️⚘️

I’d rather die than go on dialysis.

I was on dialysis temporarily because of an acute problem (for 2 months) it was rough sometimes, but it saved my life

My mother is 82 and had bad kidneys but never on dialysis I’m assuming her base line dialysis/ creatinine was around 2 . She got really sick had hospitalizations of over a month and starts dialysis 3 times a week for about a month . Now she came home went to 2 of her appointments and says she isn’t going anymore . Her creatinine level is around 4.4 . He has accute kidney injury . She thinks she will be fine and if not she says it’s her time to go . Everything I need says she will pass in a week or so is this true ?

had this done today and was super easy... lay on your stomach, doc goes in with two needles to numb top then deeper, slight pinch but not really painful. goes in grabs a sample... shows you on screen your little circle kidneys moving , hold breathe you hear a click( sample being taken) in my case did it four times becuase they took a fatty one, a thin sample and then wanted better lol after that they apply pressure make sure nobleeding. I had small amount but was ok, you wait a few extra hours after in a room. pee take sample to ensure no blood get fluids and food and check vitals every 15 minutes, then blood check and your released on your way😊

Where I live we can see our lab tests and I realized I was close to 60 on my eGFR. I was diabetic and took dramatic steps to changes mt diet and started getting non-diabetic A1C tests and my eGFR went all the way up to 74 over a year and several tests. Several times in my life I have doctors not telling me things I feel I should have known. I firmly believe knowledge is power and doctors should not hold back results not to worry someone.

Very interesting video. I have been in dialysis for 8 years. 7 of those in home hemo dialysis (hhd). To get hhd is the best decision I have made for myself. That is when I really started to feel strong and healthy. I have suffered from kidney failure since I was a kid, and got my first transplant just after I turned 14. I was never good, but kept me out of dialysis for almost 7 years. The next transplant was when I was 20. This one worked a little bit better, but the anti rejection meds were horrible to me. I was in and out of hospital with repeating infections, always nausea and diarrea.. Was constantly underweight. When this kidney failed, and I had to start dialysis at the age of 28, I really thought that this was the end for me. I absolutely hated the in center dialysis. The center was good and the nurses kind, but I felt awful and all my time when not in dialysis I just had to recover from the treatment… That until I started to train myself to to hhd. My life really started when I got hhd. Now I do five dialysis sessions every week. 3 or more hours every time, amd I feel great. I have the normal energy level for women of my age, my weight is normal, my appetite is normal, I am stronger than ever and I look overall healthy. Because of my past experineces with kidney transplants, I have decided not to be on the waiting list. Hhd is definetely the best treatment for me.

It's difficult to get donor in Singapore. Waiting time is 9.5years. HOWNi wish NUS & Duke University can speex up the research for stemcell to reverse kidney. I am still preparing for dialysis, and looking for a donor too. If I dont think about my 2 boys, I rather not going to dialysis and just wait for my time.

What happens when transplant not an option? I can’t have a new kidney until they find out what’s killing my kidneys

My dad has been on dialysis since October 2024, after a kidney removal. He is so weak after dialysis, that there are times that he will not go to dialysis because he doesn't want to feel like crap. The part I don't understand is this... when he goes, his urine is amber, he hard urinates and he is really weak; I mean we can barely get him back in the house afterward. But when he doesn't go, his urine is normal yellow and he goes to the bathroom normally, more than when he does go to dialysis and he doesn't have any swelling from not going and he feel good. I don't see how that can happen if he actually needs dialysis. Now the hospital says he has acute myeloid leukemia (AML). Since the AML diagnosis, he has stopped dialysis and gone into hospice care at home. I am just wondering if its possible that he didn't even need dialysis at all. 😢

My 73 yr old husband is refusing dialysis at gfr 20. Nephrologist said he will need between 3-6 months as it dropping 3 pts in a month. Heart failure too. HBP is now controlled so hopefully will not need dialysis this soon.

Hi my partener is going through alot he is 77 never had health issues until 3 weeks ago He got sick This is his newest update could u help me understand PROGRESS NOTE Urology Service/Team 77 year old female, Room/bed: 0510/A LOS: 10 days Assessment/Plan: Urinary retention with bilateral hydronephrosis that didn't resolve with foley, right PCNT placed by IR on 12/16, subsequent hematuria from right kidneyUOP 2.2 liters from right PCNT 1.6 liters from foley - Both PCNT and foley urine clear (light pink) today (no significant hematuria) - Watch Hct, down to 27.5; may have some plt dysfunction due to renal failure - No significant drop in Cr after PCNT CREAT 8.56 (H) 12/19/2024 - Can consider removal PCNT and foley as outpt - Follow up Dr Park as outpt Subjective/Interval: Sleeping IMAGING: 12/17/24 IMPRESSION 1. Right nephrostomy catheter in place with mild right hydronephrosis and probable hemorrhage within the collecting system. 2. Mild left hydronephrosis and hydroureter to the level the bladder. No obstructing stones. 3. Marked thickening of the collapsed bladder. Findings may be due to chronic outlet obstruction. Superimposed infection or bladder wall lesion cannot be excluded. Prominent prostate enlargement, extending into the bladder base. 4. Mild nonspecific gallbladder wall thickening. 5. Small to moderate bilateral pleural effusions with extensive adjacent atelectasis. 6. Right inguinal hernia containing distal ileum without obstruction. Moderate retained stool. 7. Additional findings as above. CT C/A/P (From outside hospital): IMPRESSION 1. Marked bilateral hydroureteronephrosis without obstructing stone, possibly due to dilated urinary bladder. 2. Incompletely imaged right inguinal hernia containing small bowel. No proximal dilation to suggest obstruction at this time. 3. Left lower lobe 2 mm nodule. Small solid pulmonary nodule, 5 mm or smaller. Management according to guidelines (please see below)* is recommended, unless the patient has a significant history such as malignancy. Vitals: Vitals: 12/18/24 1238 12/18/24 1600 12/18/24 2038 12/19/24 0442 BP: 136/76 125/69 125/75 120/67 BP Patient Position: LYING LYING LYING BP Location: RA-RIGHT ARM RA-RIGHT ARM RA-RIGHT ARM RA-RIGHT ARM Pulse: 72 77 78 79 Resp: 18 18 18 Temp: 36.3 °C (97.3 °F) 36.3 °C (97.3 °F) 36.3 °C (97.4 °F) SpO2: 96% 100% 95% Weight: Height: Systolic (24hrs), Avg:129 , Min:120 , Max:137 Temp (24hrs), Avg:36.3 °C (97.4 °F), Min:36.3 °C (97.3 °F), Max:36.3 °C (97.4 °F) Intake/Output Summary (Last 24 hours) at 12/19/2024 0819 Last data filed at 12/19/2024 0600 Gross per 24 hour Intake 1320 ml Output 3850 ml Net -2530 ml Intake/Output 12/18/24 0700 - 12/19/24 0659 12/19/24 0700 - 12/20/24 0659 0700-1459 1500-2259 2300-0659 Total 0700-1459 1500-2259 2300-0659 Total Intake P.O. 480 340 -- 820 -- -- -- -- I.V. 600 -- -- 600 -- -- -- -- Volume Infused (+ml) (Sodium Chloride 0.9% IV Premix) 100 -- -- 100 -- -- -- -- Volume Infused (+ml) (Lactated Ringers IV Bolus) 500 -- -- 500 -- -- -- -- Total Intake 1080 340 -- 1420 -- -- -- -- Output Urine 900 1200 1750 3850 -- -- -- -- Urine Cath (-ml) (Urine Cath Indwelling) 600 500 500 1600 -- -- -- -- Urine Cath (-ml) (Urine Cath 8.5 Nephrostomy;Right) 300 700 1250 2250 -- -- -- -- Other -- -- -- -- -- -- -- -- Unmeasured Stool (#) 0 x 1 x 0 x 1 x -- -- -- -- Total Output 900 1200 1750 3850 -- -- -- -- Net I/O 180 -860 -1750 -2430 -- -- -- -- Physical Exam: Comfortable Abd: soft, nt - Both PCNT and foley urine clear (light pink) today (no significant hematuria) Recent Labs: Recent Labs 12/19/24 0445 12/18/24 0621 12/17/24 0607 WBC 6.5 6.4 5.9 HGB 8.9* 9.5* 9.8* HCT 27.5* 29.8* 30.4* PLT 168 172 156 NA 136 136 137 K 4.9 4.8 4.5 CL 104 103 103 CO2 20* 19* 20* BUN 101* 98* 93* CR 8.56* 9.12* 9.11* GFR 4* 4* 4* ANIONGAP3 12* 14* 14*

There are some incredible stories of people using diet to slow down and even slightly reverse. Some in Plant based and others on Carnavore.

No one can predict your future just adjust your time you have being on borrowed time. Watch movie soy lent green. 9:14

Dr.James mchie is a fake dr...I had stage 5 kidney failure and he as a friend put me out after he tricked me into a marriage not to be alone, nut was alone the whole time. Im sueing.

Donating your kidney to him is commendable! Many blessings to you! Dialysis isn't so bad anymore with a smartphone and winter clothing.

So I’ve been on dialysis for two years due to congested heart failure. I spent a year in the hospital. I received what called an LVAD. After a year in the hospital I’m glad to be alive. Have you heard anything to improve kidney health. I’m looking at plant based foods. What do you think?

I've been on dialysis for 18 months, waiting 5 years for a transplant, was called in September but the kidney wasn't viable so still on dialysis, I pray to god every day for my transplant

This very thing happened to me with my PCP he never told me I was at stage 3A. I'm with Vanguard and so we have a patient portal that we can go on and check any blood work we had done or info on the visit we had with the doctor. So I was do for my annual exam on Nov 18 so a week before I went on the patient portal and was just looking around my last visit and the results. As I searching around I see this one entry "chronic kidney disease Stage 3A". What, my doctor never mentioned this fact to me ever. I was so upset, that sounds pretty bad I thought. So when I saw the doctor for my annual I told him I was pretty upset that he never told me. He didn't seem to be that concerned. The day after I go on the portal again and there's a note that he wrote saying he sent a referal to a kidney specialist for me to see. He didn't tell me he was going to do that. I'm so upset with this doctor I'm going to start and look for another PCP asap.. My GFR is 41 and my creatinnine is 1.64. I'm still so upset with him!

I Hate Going To Dialysis! It’s 3 Days Out Of The Week! It’s Depressing I Can Still Urinate I Think Only 20% Of My Kidneys Work! Had This Device In My Chest Almost 7 Months I Jus Got The Surgery Few Weeks Ago! On My Left Arm It Hurts Like Hell When They Stick You! With Those Needles.. I Tried Using The Arm Cream Numbing Cream It Doesn’t Work Good In My Opinion.. Sometimes The Female Nurses They Don’t Know How To Stick Me Correctly Like The Men When The Female Nurses Tried Sticking Me In My New Vein I Had To Grown My New Vain About 2 Months The Female Nurses Don’t Know How To Stick Me At. My Arm Swollen Up Real Bad And It Felt Like It Was About To Explode When They Was Using That Syringe. I Had To Alway Wait On The Mike Or George Comes In They Know Exactly Where To Start… Being On Dialysis Mess With You Mentally And I Can’t Blame Nobody For Walking About Hell My Homegirl Had The Surgeon To Remove Hers Out Of Her Arm And She Quit Dialysis It Jus Too Painfu.

I gave up dialysis recently. Actually it wasn't so much giving up dialysis but the courier service and dialysis company, with various excuses, stopped sending me supplies needed for Peritoneal Dialysis. What can one do? So I just quit, no reason to live in disappointment

Hi there do you maybe have any info for stage 3 and hiv? Thanks.. Doctors should be more transparent imo. As a patient it’s better to be informed & educated on what’s happening to our bodies and what can help us..

Glad I found your channel ❤

A relative has stage 4 ckd. Has had it now for 3 years and about 11 months I think. They were pretty stable in the 20%'s for 3 years or so. Within the last year they have dropped 5%. They were diagnosed with kidney failure at about 20 to 21%. They are now at 17%. 83 years old. Have diabetes. High blood pressure and high cholesterol both controlled. Dropped 5% in a year. 3 to 4% within about 4 months or so. They are now being checked for home dialysis. Via the abdomen. Appointments were 3 to 4 months apart but now it will be in 2 months for the next one. What is the outlook?

I started dialysis 3 months ago. I don't want to do it anymore. In addition to suffering depression after I started the dialysis treatments I have to replace a catheter once per week due to blood clots. A grapht was placed inside my arm and that didn't work either. It was very painful and now I'm told they may have to do the same in my other arm. I don't want to go through the painful procedure again.

Could you please provide feedback or refer me to a video with extensive information about how a person will be able to know that it’s time to go onto dialysis? I’m trying to avoid it like the plague as I am deathly afraid of the next step. My mom had the connection on her arm and sometimes when we changed her bandage blood would end up all over the bathroom as if someone had been killed. It was scary not knowing if we would be able to stop the bleeding since it would shoot out in volumes. Because of this I decided I wanted to try the PD at home but my concern is lack of available space and fear of infection. My electrolytes are basically in the normal range. My Nephrologist had me on Procrit which I just stopped since the last couple of weeks my BP has been going up to levels where it’s never been before. It would only happen for 3-4 days after the shot in the middle of the night. My eGFR is at 11 and has fluctuated between a 9-15 for the last 2 years. I’m not really comfortable with my new doctor since my regular one retired. Between my fear of the process and my healthcare I’m feeling cornered . I know I need to seriously get moving on this but I need to know that I’m in good hands and I’m not sure if I have the convenience of time with my current CKD situation. I don’t have any breathing issues, no edema, no nausea, no eating problems. I just need to know how much time I actually have to work with to see if I could transfer right now to the nephrologist that took care of my mom. Especially right now since it is open enrollment time until December 7th and I could switch my health plan. I’m at a loss. Please excuse my message, I’ve got so much to cover and what I’ve written may not make any sense. Basically I’d like to know how can I tell when I should start dialysis. What symptoms do I look for or which blood tests will tell me I’m getting closer. Currently I’m stable. Thanks ahead of time for your understanding and thank you for your care and concern you show for others.

@5:00

I'm in need of a kidney donor if you feel lead to share and help me please reach out to me. God bless and thank you so much ❤

I just hit stage 5. I'm out. No thank you!

Great video

Love you ❤❤❤❤ thank you... I feel your pain

My husband's numbers in Oct 2022 was stage3b, by December,kidneys failed! He was on one kind of high blood pressure as young as 40 ,he was 72 when kidneys failed.

Thank you. My partner is 69 and end stage 4 kidney failure, just had a fistula put in. She is a frail lady and has already indicated dialysis might be too much for her. As a stroke patient, sometimes it is not always easy to know if she is fully aware of situations. I feel like I am losing her. But I will respect her decisions and I will be there for her no matter what. And we will just have to take things as they come. Your video elucidated feelings I have been having. And you are a lovely caring person. Thank you.

As a transplant patient that has a transplanted kidney that’s at end of life. I have chosen to go back on dialysis eventually, and lessen my risk of continuously have cancer from all of the immunosuppressants

Didn’t hear about CKD until second Dr. sent me for kidney test already stage 3 had to catch up on Kidney Disease real fast. Some Dr’s. Need to up their game when it comes to kidney disease. Rheumatologist should monitor this so much closer than they do.

I've been off dialysis 3 years. I'm functioning on one kidney at 9 percent. Don't give up or just listen to your doctors. I'm living proof. Take control of your body, diet and mental health

I’m 70 years old and I have polycystic kidney disease. It’s genetic, my mom had it, my sister had it and my son has it. My kidneys have big cysts growing in them and there’s nothing doctors can do for it. My GFR is at 14 and the nephrologist I see is telling me I need dialysis now and it scares me to death!’Nobody here is mentioning weight! I was normally at 104 but I’ve dropped to 87 and I can’t gain it back because most foods I like, I can’t eat! Plus I don’t have much appetite anymore. I have finally agreed to going and getting vein mapping to see where to put a fistula to start dialysis and it’s a long process. I just hope my kidneys don’t fail while I’m waiting to do the fistula and then it has to heal which takes time. When it comes down to it, I don’t want to die yet and I have a lot of other very serious health issues, like an abdominal aneurysm and losing so much weight! I’m so tired of doctor’s appointments not to mention the cost! I only have Medicare and a Medicare Advantage Plan so it leaves me owing a lot of money which I don’t have!! I have a severe case of scoliosis and it’s making everything worse and it’s painful. It’s like everything hit me at once and at my age there’s not much they can do for scoliosis other than physical therapy and that’s when my kidney function went down, when I got scoliosis. I trust in God and I am asking Him to heal me and I have people praying for me or it could be a lot worse! I am scared, but who wouldn’t be with all these bad health issues? At this point mg nephrologist is more worried about my weight than what I eat! He told me I can eat anything but I won’t eat the things that’s bad for my kidneys! I don’t have family or the money for a transplant either so I’m looking at how long I can live on dialysis with everything else that’s wrong with me!

Wow! You gave your husband your kidney! Simply beautiful! I stumbled across your channel and I subscribed immediately!

What are the symtoms besides the GFR, mine is 13. I am dieting and walking, exercises. is dialysis better ón the arm or the stomach and do dialysis at home?

❓Question❓ If they told me they won't do a kidney transplant as I have some other health issues. Why did they put me on Dialysis? For reference 80 years old - 4% function left - 9 hours a day in home dialysis using typically the 1 yellow 2 green and 1 purple solution each day thru that machine. Realistically how much time is it buying me?? I can't understand most of what the Dr's talk about during my appointments and continually need help to get this machine working. Really beginning to wonder if it's worth it. Any information would be helpful.

My primary care resident told me not to worry about an eGFR of 60 since I’m 62 years old…. My A1c is 5.7and creatinine was slightly high. One time my eGFR was 54…. My 3 deceased brothers and both parents had kidney disease. My mother died from ESRD and septic multi organ failure. So, hell yeah, I’m concerned and I want to be followed more closely!

My mother went on HD in 2019 and very recently passed away. Her kidney function level hovered between 13 and 20%. She had other comorbidities though and this year she started to not be able to tolerate HD because her blood pressure would drop. When her blood pressure would drop too far, the accumulated fluid could not be siphoned off by the machine. Even giving her blood pressure raising medication did not work after a while. When doctors told my father that he had to go on dialysis, he went to several HD appointments before deciding it was not for him. It took about three weeks for him to pass away.

My oldest sister was on kidney dialysis for about a year and a half. She always used to say this is not living. This is existing.. about a year and a half after she started she said I’m done. And they took her off dialysis put her in hospice care made her comfortable and let her die.

Im currently at stage 4 and contently suffer from gout the pain is terrible im told its common amongst kidney patients. Its there anything i can do to stop it

I did parotoneal for 6 months before getting a transplant that lasted 13 1/2 years. Now doing hemo and I hate it. I will be going to evaluated for another transplant soon. If I'm not able to get one, to Hospice I will go.

Ty for your time