Відео

I just went through this very same thing, the 20th of Nov was fine until abut 2 p.m started feeling sick as was in emergency surgery at 1:30a.m. due to scar tissue from other surgeries.. almost 3 weeks later still can't hardly get around.. never want this to happen again 😢

You. Will know when your gut twist happens. The worst pain next to gall stones 50 % full. Had. My. Gallbladder. Removed. But. Had. Stones. In my. Bile duct too. Had to get that removed. Too. They went through my mouth. Was on my. Belly for that day surgery for the other gallbladder removal. If you get sick or. Have pain after. Eating. It could be your. Gallbladder it was mine 😘

U r beautiful..... Brave to share ur story.... Ur smile is so attractive.... Love you....

Had a volvolus too, due to meckel diverticulum (was born with that apparently), appeared out of the blue one evening and required immediate surgery. They took out my terminal ileum and ileocecal valve. I'm fine now, though I need to go to the toilet more often than before (due to bile acid malabsorbtion).

Thank you for sharing your story! This video was posted 5 yrs ago and my hope is you’re in remission and your mental, emotional health is good! ❤️

Oh honey if you think you’re in control of your body with your IBD history… Well I got something to tell you. You are not out of the woods. You may think you are but you should know already that IBD is no not well understood by the medical community still. Also, I don’t believe that you have zero insecurities about your ostomy. You wouldn’t be going so hard out of your way to prove otherwise if you weren’t a bit insecure. But go ahead and go on and preach. You’re not gonna reach anybody though with your approach. Nobody appreciates preaching. I wonder, how long have you had your ostomy? And you don’t need to answer me obviously. But we are not all the same. Oh and trust me I am used to my ostomy. I just hate it still. I doubt that will ever change. I’m glad that the surgery saved my life but that’s it. It changed me. I have many PTSD related issues and all of my surgeries have given me some form of PTSD. I just really really don’t like it when people try to tell others how to feel. I pray that you can become more open minded.

SMH. What exactly makes you think that women are buying these products just to please someone else? Of course my partner loves me and thinks I’m sexy no matter what. It’s me that has the problem with it. I want him to see me look beautiful. And I mean beautiful in the way that I used to be when I was able to wear lingerie and feel very pretty and sexy. I don’t want to have to cover up with something baggy and hide my body just because of my insecurities. I want to get past it. These products help with that. I think that your viewpoint is very narrow minded.

Look girl, I’m glad for your self-confidence but I’ve had my colostomy bag for 11 years now and I’m still not over it. Now the love of my life for 26 years is terminally ill and I’m trying to make him happy and feel good. I can’t do that in regular underwear or lingerie. Your video is judgemental towards the hordes of people that struggle with insecurity over their Ostomy bags. I mean, what the hell is wrong with some thing that would make somebody feel more confident? Just because you’re so confident does it mean that the rest of us are. You’re not spreading Body positivity. We are criticizing those who don’t have enough confidence to do what you do. Sorry but not sorry.

Thank you for sharing your thoughts, your so brave and an inspiration :-) Your a beaut and real beauty shines inside/out, stay blessed and happy x

GOD BLESS YOU! THANK YOU 4 SHARING THIS FOR US!!

poor thing sorry you're going through all of these side effects. im supposed to take steroids but i hate them

Please if anyone has experienced this please let me know. My 2 year old son just had 2.5 feet of his small intestine removed. I’m scared to death of what will become of his future, they took ileum and valve. Please is there any hope for him. Please share. I’ve been crying desperately all day and night. I wanted him to have a healthy easy going future

I had a small bowel volvulus emergency laparotomy when I was 22. I spent 17 days on the hospital because I developed appendicitis and had to have an additional surgery. I was on suction through my NG tube for so long because of copious amounts of green bile! So horrific! An extremely painful experience and a huge scar as a reminder.

Thank you for sharing your vids. It’s really helped me go through similarly. How long did it take you to get over the blockage (your last surgery?)

Glad to see from your recent videos you have returned back to your old looks. 😁😊

I've been watching your videos in preperation for my own Total proctocolectomy, they've been very helpful especially since you're pretty much the same age as me, glad to see it all worked out in the end!

Thank you so much for sharing your experience video. I just got out of the hospital yesterday. This happened to me. When I was admitted to the ER I was sweating and shaking from so much pain and vomiting. My intestines untwisted Naturally, so I did not need surgery. It was the most painful thing I’ve ever experienced. I was in the hospital for three days. I have had no prior surgeries and the doctors could not tell me why it happened or how to prevent it in the future.

You have a sc

Hey

I think you're beautiful/sexy btw! ;) Do you live here in the USA? I have a temporary ostomy due to a bad car accident I was in 2 years ago which I'm due for reversal on August 16th. In addition to a hernia repair and abdominal wall reconstruction. Yes it's a lot lol!

How did the dongle do? xx

Thanks for posting. I've also had a volvulous and it's nice to hear from someone else who has too. I hope you're feeling better now.

Hey. Thanks for posting this video, I’ve found it very useful as am now 2 weeks post-op and again haven’t been able to find much info about recovery, especially for younger people. In regards to your infection I don’t know if I am experiencing something similar as I am in a little bit of pain during the night once my tramadol has worn off and am also finding a bit of discharge from the wound which is white and a little smelly. I have a follow up appointment with the surgeon next Wednesday so am going to get it checked over but just wondered through your experience whether this was similar to your experience? Thanks again for the video - very useful :)

cheers from america

im going through the same thing right now

I feel rest bad for you. I've had a very similar symptoms but I feel that the doctors have created a mountain out of a mole hill for you. I wouldn't even consider surgery I get ill but definitely remicade should be made available to people with ulcerative colitis because it does work. Good luck.

Hope you still exist darling.Question is, Is there a magic food or spice that will seriously reduce gas in the bag?Or is there a bag that wont make you smell while opening it up to reduce gas??Very curious......Thank you.......I truly have more questions......

hey kate so sorry to hear this! i feel your pain Sister, i really do! how are things with you today?

It happened to a friend of mine, because of adhesions from a hysterectomy. She also had surgery and recovered, and it did not happen again, since 7 years ago.

I hope you are still doing well. You have been very inspiring to me. Thank you. :-)

How long were you on steroids for and how long did it take for moon face to go?

I completely agree with you however I can also understand the appreciation (more so in a practical way not so much a sexy way) for having products made to help us. Me being single and not having a partner go through my struggles there are times I find myself wondering what if someone does mind my ostomy in intimate moments and me feeling so vulnerable......but then me being me (and where I agree with you 100%) I would toss the guy and not the bag hahaha. I guess like makeup i see benefits with underwear etc aimed for ostomates the same, I don't need them but just simply like them. I don't agree with the approach and what it may imply whether intentional or not, you're right, your body should be attractive because of confidence and appreciation, not product. I would be a hypocrite though if I said I don't want something with the pocket inside and still have a cute look to it. I wish Canada had products to actually choose from, sexy or not! I had ordered a pair from Vanilla Blush to try but didn't care for them :o/ Nothing wrong with them but just not what I prefer and too pricey for me to keep trying. Anyways that's a whole other rant hahaha.

The way people feel about their stomas is so individual. For me these garments don't increase the way I feel about my body. I am comfy with my stoma and love it to bits. I am waiting for surgery date to get it made permanent.

I think some people struggle feeling sexy after such a big change to their body; also, I've heard a few men and women say that it puts their partner off sex, rather than the person themselves, which sucks. For me, I love the Vanilla Blush range from a functional point of view, as I find that it supports the bag when it gets full with that little pocket thing in there, but I don't really use it as a way to hide the bag - couldn't care less about anyone seeing the bag! :D

Well said!:)

That's really good news, fingers crossed that is it now and you can get on with life in good health. Thinking I will get the op done may be end of this year/early next! Sounds like it's for the best long term, I get that feeling from most of the people I have been in contact with!

Congratulations on feeling better and the new job. There will be many more good days than bad in your future. I've had Crohn's since 1981 and you touched on extra-intestinal issues. I've since come down with arthritis in my lower back, which limits me somewhat, but even with that, I feel a lot better having had the Ostomy in 2002, than I did prior to it. Please keep up with the videos as they are not only good therapy for you, but you are teaching a lot of people the ins and outs of the disease. Even those of us who have had it for a long period of time.

Wonderful info videos. I've had an Ostomy since 2012 and still learning the finer points of living with it. But, I'd have it no other way. Loving life with the illeostomy. Cheers!

Glad to hear you're feeling better and more full of energy! Hope that top wound heals soon! Can't believe you have to wait so long for a follow-up appointment though, rubbish! Congrats on feeling non-colitis-ish :)

Glad to hear your operation went well, apart from the complication. I think I am going to have the same operation by the end of the year. However I think I will have an abdominal wound also, so two wounds to heal! From what I have read the majority of people are very happy with the outcome afterwards. Hope your recovery is swift and look forward to your next update! j

Blimey! Glad you're finally on the mend now though! Yay! :) Gas and air definitely took me by surprise on Tuesday, that light-headed distant feeling is so weird - thankfully it worked for me (I went through an entire canister!) Tramadol on the other hand made me sick! Blegh! Can't wait to hear how you are in a few weeks x

Arrrgh! What an ordeal! My proctectomy did not go well either - my large abdominal incision wound opened up, I had problems with the wound VAC I was on, my anal wound opened up after it had seemingly healed. But it does eventually get better! Hang in there!

I hope you you're feeling better. Fatigue is something that I had no idea would be such a battle! Have you asked your doctor about something to help? Thank you for being so honest and vulnerable! I think it's so important to not just show the good moments, but the bad also! Good luck with your upcoming surgery!!!

Thank you for making this most recent video. A lot of people would try to hide this side of themselves, but it's good to remember that we're all human underneath our brave faces. I just came out of the hospital after having an ileostomy reversal (which was initially what brought me to your channel). I'm always disappointed that health care doesn't provide more in the way of "positive motivation" to keep the patient's spirits up as well as their physical health. At home, I have favorite inspiring DVDs, music, and books to lift me up when I need a boost, but at the hospital all you get is a stupid TV they throw at you with game shows and Jerry Springer! What happened to the "Patch Adams" revolution? I never saw that movie, but didn't Robin Williams win the day at the end of the flick, clearing the path for "other" clown-doctors to heal the body as well as the soul? I'm only half-serious with that last bit, but you get my point. I hope your doctors are aware of your ups and downs, and can help you get through this. My wife and I both love your videos and are rooting for you! Get Well!!

I completely understand the fatigue! It really can be debilitating, but it certainly sounds like it's caused by your active illness. I'm really sorry that you've had this surgery rescheduled so many times, but I do think you'll feel much better when it's done. Until then, please hang in there!

You poor thing!! It's such a struggle :O( I do hope you get some relief soon. Take care and thank you for being so honest of how truly difficult it can be when sickness is constant. Before my ostomy surgery I felt so alone and emotionally depleted, let alone physically, when I was at my worst. Sending hugs and positive energy your way! XO

I feel the same! I'm so tired every single day. I could just sleep all day everyday. Some days I don't have energy at all. It's so exhausting. Can't wait to have my surgery next month. I hope that after it, I will have more energy. Hopefully you feel better soon.<3

Oh sweets 😞 I hope this passes for you soon. I think fatigue is very misunderstood by the general public, too, which doesn't help! I think the CCUK had some tips on managing fatigue? - T

Holy hell, that charger cable is looong haha.

I hope you have a quick and easy recovery!