Відео

Did you have fatigue symptoms from xcopri? My mom is having severe fatigue symptoms at 200 mg dose.

May God Bless You More ❤ Can you please tell me after your surgery, did you experienced any effects on your eyes or face?

Are you continuing to take cenobamate .if so how have you found getting use to long term side affects.do you still feel tired

With I get side effects from Clobazam, If I miss a dose, I find as I play my drums songs sound slower than normal, It's really weird but sucks as I keep time on drums. I was asked to have a VNS as well, but with the list of side effects, it worries me to much as a musician. My Neurologist suggested Xcopri today, great video

My doctor just put me on this I'm on the 1 pill now , he just uped me from a half of one. I'm on 5 different seizure medications depakote ,vimpat abivact zonagan. I just found out after 17 years I also have focal seizures.

I've been dealing with some pretty severe appetite suppression/weight loss on this med, anyone else? From what I researched it's a pretty rare side effect

Is word finding an issue specifically for this medication or do you take another with it ? I’m on high doses of Carbamazepine and Topiramate (vision issues/high labs) that I just swapped to a new neurologist and she is starting me on Xcopri and taking me off my Carbamazepine

I take lamotrigine 200mg 2x a day. My last seizure was 4 months ago. I been taking xcorpri for 4 months and so far so good. However, I think it's made me gain weight. But no seizures so far and that's fantastic for me. Usually every 3-4 months I have 1-2 seizures.

Thank you for posting. They’ve been working for decades to control my seizures. So they’re trying this. I hope it’s gonna do something. The lamictal I have been on helps but it’s not working great. I soooo hope it works

And you r blessing us with your words of encouragement

Thank you so much. Your calming caring voice perfectly delivered the info I was looking for. And God bless u 😊

I just wanted to say thank you for making these videos! I'll be starting Xcopri and I've been really surprised how few people have posted any videos or long-term feedback about how it's affected them. Are you still doing okay on Xcopri? I'm finding this video about 11 months since you posted this, and I'm curious if it's still making a difference for you.

How are you doing now with Xcopri?

Congratulations!! You say it's been 2? or 3? years without a seizure since you started taking xcopri. That's fantastic.(I wish you had said which other meds you're taking.) Since my doctor started me on xcopri I've had the same success. It's been approx a year since my last seizure. Or aura. Nothing. And yes, like you said the side effects are minimal. Xcopri basically gives me none at all. I'm taking 150mg at night. My other med is Keppra which I take during the day (8.) He weined me off of vimpat, onfi, and for me the xcopri has been THE ANSWER. I've taken tons of other meds like you probably have. I don't have a VNS. My doc was leaning towards that or possibly RNS but xcopri to the rescue! I'm finally getting my license back in July after having an accident last July. Can't wait. I've had temporal lobe surgery as well, (in 2006) but it didn't do a thing. Congratulations again! Xcopri really is a good medication.

husband is seizure free with xcopri for 2 years now ,also take keppra we are blessed ,

18 to 1300 a bottle for a 30 day supply Manufactures coupon through cvs has been a life saver. Let me repeat 1800 to 1300 dollars a bottle care mark might pay some of it.

Do you know what causes your epilepsy

I tried vimpat it make me feel like I was starving to death as if I hadn’t eaten in a week. I have no side effects with lamictal Keppra was the worst for attitude problems and gave me side effects anyway but w keppra I never passed out during the keppra gran mals I hope to get brain surgery

Congratulations

Congratulations. First time hearing about it today. Stats look great.

Do you think it is similar to topamax? I was prescribed this because topamax is giving me anemia and serious cognitive decline. Does this medication cause serious weight loss like topamax?

Hey Liz! How are you now?? I’m trying to switch from Vimpat but I’m scared I’ll react to Xcopri like I did Vimpat - the first initial 2 weeks I almost had to check myself into a hospital due to the almost mental psychosis I was going through (racing thoughts, extreme mood swings etc) but 3 weeks in I balanced out BUT still feel anxious and unhappy.

Well.. good luck.. when you are on multiple it sucks.. Transitions geZ Can I get it outsider the USA,? Or is it like zonigram & others that big pharma keeps in USA borders ... It is interesting when new ones come out. did you get CBS or Charles Bennett syndrome after the brain surgery? )( I did l+)) a

My son doctor want tonten to he is turn 18 on July thuu it s year. And I Swiss this medicine is not .

I started this med because I had break through seizures on my other meds and what I has noticed is ( at 100) server tiredness.... and omg like no seizures but oh dear God help me if I miss a single day I will has a seizures ..and it wasn't that server before ...like now it's guaranteed I will has a seizure when before xcopri it was please pray to that I don't get over stressed until I get my meds ..I mean I hope that makes senses ..I'm kinda a mess, as we has been figuring this out but this med has been a life saver for me

Welcome back ❤️!

Praise the Lord! Glad to see you, pray for speedy recovery!

I love your videos! Thank you!

How r u doing now? Is it working?

You’re starting to sound like a drug company wants you to not be open and honest. Which is entirely how your earlier videos looked. Not having a go at you at all - I think you’re amazing. Just worried that you’re being paid now to not say what you think. So. Simple question. From someone who’s cared about epilepsy since he was a student helping kids with severe epilepsy at the world famous Chalfont Epilepsy Centre, in the UK. Has your seizure frequency improved with cenobamate? You’re recording a really important story here. It means a lot.

Wow, cool video. I am at 150 MG getting ready to go to 200. I have had seizures for 50 years, with 40 years of Dilantin. How has epilepsy impacted your memory? I feel like mine is rapidly declining, so I hope Xcopri works. I hope you continue to do well. I do not know your story but you have the VNS, surgery and medication -- I understand it is a battle.

Thanks for the update. I was wondering if you had to discontinue this medication. I wish you were doing better as far as side effects. They sound very similar to what my daughter has. She plans on starting Xcopri next week. I hope you continue with your videos.

Hello Elizabeth how have you been doing with Xcopri? My daughter is going to start taking this medication in a couple of weeks. Would like to hear how you have been doing with it.

I'm on xcopri 250mg/day. It hasn't helped as much as we had hoped for, but it is somewhat ok. When I went up to 300mg/day, I had double vision for a couple of hours every day (I took the meds at 6pm just in case) then I went back down to 250mg, and the double vision improved. Just to let you know! Good luck!!

Thanks for sharing, looking for updates on xcopri 6 mos. Are you still taking it?? Less seizures ? Very curious! Thx

Good luck on your journey Elizabeth :)

my husband just started xcopri on 5/1/2021,

Thank you for sharing. Would love to hear how you are doing on it, now that you are a few weeks in.

Que lindo! Esos pájaros cantando son efectos especiales? 😍😍

Like your purple hair

Congratulations my love ❤️❤️. Praise the Lord!

Woo-hoo! Praise the Lord! 🙏🙏

This is awesome, Elizabeth! May you bless many with your encouragement!!!