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Brookelyn's World
Australia
Приєднався 8 жов 2019
Brookelyn 's World - Welcome to my channel
I am a Lupus Warrior, diagnosed in 2012 when my world changed and life has never been the same since
I hope my channel can give some helpful ideas to other warriors, not only to people who have Lupus, but to anyone with a chronic or invisible illness
I hope to be able to educate, empower and give hope to everyone who watches
Come on the journey with me
I am a Lupus Warrior, diagnosed in 2012 when my world changed and life has never been the same since
I hope my channel can give some helpful ideas to other warriors, not only to people who have Lupus, but to anyone with a chronic or invisible illness
I hope to be able to educate, empower and give hope to everyone who watches
Come on the journey with me
Відео
Air New Zealand Sky Couch (53)
Переглядів 1426 місяців тому
A general overview of Air New Zealand's Sky Couch Melbourne - Honolulu March 2024
Spirit of Tasmania - night and day sailing (52)
Переглядів 7218 місяців тому
An overview of the Spirit of Tasmania. We had some rough seas on our journey both ways!
Zoledronic Acid Infusion for Osteoporosis (51)
Переглядів 2,9 тис.11 місяців тому
Come with me whilst I get an infusion of Zoledronic Acid- a treatment to help my bones get stronger
Microwave Lemon Curd (50)
Переглядів 59Рік тому
Learn how to make lemon curd in the microwave. I designed this recipe so I would not experience too much pain in my hands and wrists due to some of my medical conditions
Hyperthyroidism, my next challenge (49)
Переглядів 76Рік тому
I have been recently diagnosed with hyperthytroidism. I am now ready got my next challenge after the initial shock passed
Autoimmune Hives (Urticaria) (48)
Переглядів 132Рік тому
Another diagnosis but hopefully treatments help in the case of Brookelyn vs The Itch
ACNES - a new pain diagnosis and treatment (46)
Переглядів 583Рік тому
Another day another new diagnosis to add to my what seems like a never-ending list. ACNES and no, it is not pimples Music : Believe (instrumental) - NEFFEX
Interstitial Cystitis Neuromodulator Surgery take 2 (45)
Переглядів 280Рік тому
2nd attempt of trying to stop my neuromodulators from sticking out through my skin causing me pain This has been a huge challenge and undertaking and it is all due to the weight loss I experienced when I developed gastroparesis and SMAS
Interstitial Cystitis Neuromodulator surgery (44)
Переглядів 175Рік тому
I needed an operation to get my 2 neuromodulators, that assist my bladder to properly function, re-implanted further into my body
Splanchnic Nerve Block Review for pain management (43)
Переглядів 88Рік тому
An overall review of how having a Splanchnic Nerve Block worked for me Link to the procedure ua-cam.com/video/fzXONwpoUf4/v-deo.html
Splanchnic Nerve Block for pain management (42)
Переглядів 4,2 тис.Рік тому
Follow my journey with getting a splanchnic nerve block for pain management of gastroparesis and SMAS
Hawaiian Airlines Business Class Flight experience (41)
Переглядів 1,8 тис.Рік тому
Melbourne, Australia to Honolulu, Hawaii Nov 2022 (41)
Riverine Floods, Victoria, October 2022 (40)
Переглядів 88Рік тому
I share with you my experience during the Victorian October 2022 flooding events Brookelyn vs the Floods
Fractured arm updates. I'm still broken! (38)
Переглядів 1,9 тис.2 роки тому
Fractured arm updates. I'm still broken! (38)
Fractured arm is still fractured and Tumor results (37)
Переглядів 1,9 тис.2 роки тому
Fractured arm is still fractured and Tumor results (37)
Fractured arm sagas - they found a tumor! (36)
Переглядів 9782 роки тому
Fractured arm sagas - they found a tumor! (36)
Living with a fractured arm, cast and sling. It's not easy (35)
Переглядів 5 тис.2 роки тому
Living with a fractured arm, cast and sling. It's not easy (35)
Pain and oops, I fractured my arm (34)
Переглядів 2,9 тис.2 роки тому
Pain and oops, I fractured my arm (34)
And for something different ...more appointments(33)
Переглядів 2212 роки тому
And for something different ...more appointments(33)
Lupus and Fibromyalgia complications - bracing for developments (32)
Переглядів 2572 роки тому
Lupus and Fibromyalgia complications - bracing for developments (32)
Eating Disorder? and more appointments (31)
Переглядів 1142 роки тому
Eating Disorder? and more appointments (31)
Interstitial Cystitis and more appointments. Progress is being made (30)
Переглядів 1102 роки тому
Interstitial Cystitis and more appointments. Progress is being made (30)
Lupus update and new Gastroenterologist (27)
Переглядів 1552 роки тому
Lupus update and new Gastroenterologist (27)
NJ Tube is gone. What happens now? (25)
Переглядів 5343 роки тому
NJ Tube is gone. What happens now? (25)
The same problem but fell off of a roof. I’m trying to find out what the healing process is like and what I shouldn’t be doing. hard to find this out.
Are you Brooke? I just kidding myself.
Have the same problem almost same situation..waiting to find out what’s next after X-ray revealed t12 fracture…
Waiting is so annoying!
Do you feel like burning in intestines and along side of body?
Sure do
Thanks for the info, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
It’s very hard to hear the video 🥺 glad you went ahead with it in the end - well done ❤️
I have so much trouble with my bladder too. It's been life long. I appreciate you sharing what you are learning. Thank you my favourite warrior princess 🥰
Oh wow! I'm so sorry you're going through this but I appreciate you sharing to help other people. Thank you Brooke. Sending you love and hugs 💕🫂
Excellent you didn’t get any side effects 😊❤
None at all
It’s a shame they couldn’t give you any pain relief before you left the hospital but well done for having your own pain relief on you. I always carry my medication with me also. Well done Brooke ❤
Gosh you poor thing. I’m so glad you have advocated for yourself ❤
Gosh this must be a horrible feeling for you Brooke. I’m in the Facebook IC group ❤Thank you for sharing ❤
Has there been any improvement in bone condition after 7 months of therapy using zoledronic acid? Thank you
I won’t know until I have another bone density scan in 1-2 years
How does the price compare to normal economy?
Mine was double economy
@@brookelynsworld4937 would you say it’s definitely worth it?
Normally it is $1300 additional for sky couch. New York is $1700 and that is just for one leg. I have been researching as we are choosing between economy and PE
@@cherrytraveller5915 definitely a consideration if it’s significantly cheaper than PE or Business
Thanks for sharing . May God Bless you🙏🏽🙏🏽🙏🏽
Thanks for sharing 🙏🏽🙏🏽🙏🏽
I had terrible side effects that lasted several days. Worse than flu. I think the worst was the skeletal pain.
I got mine 4 days ago and the n/v and shivers hit me 12 hours after. Now the skeletal pain. I feel like it's morphing my bones. How long did this last for you? And did anything else happen,?
The first week was the worst. I started to improve after that but would still get hit out of the blue with strange pains in my jaw or shoulders. The occasional bout of shivers and headaches. I'm over the worst of it I hope but still not feeling great after 3 weeks. I wish you well.
Every year … i was told only 3 infusions allowed
Funnily enough my friend in Werribee went by this ferry to Tazzie recently. I liked the look of it but on my own it’s not a financially viable option, so I guess if I ever do it I’m flying to Hobart :( Looks pretty ok though :) nice to see the Kipling bag enjoying itself too!
The Kilping bag is my adventures bag 😀 The seas were rough, nearly threw me out of bed going over there!
@@brookelynsworld4937 I had a very rough 6 hour overnight crossing from ouistreham in Normandy to Portsmouth back in April 99 - I’d eaten prawns that didn’t agree with me - thank god I had a cabin but I spent a very long night in that bathroom! As a general rule I travel pretty well but that was a baaaaaad night These days I’d just fly to Paris and get the train and Bugger that ferry - it’s not civilised hahaha
That's when I really noticed something was very wrong was I couldnt travel anymore and I traveled for work and I just couldn't do it anymore.
Travel is tough, that’s for sure
How are you doing now
I am doing ok
Everything I have is always thrown under the Fibromyalgia diagnosis, so I just barely go in for help anymore unless I'm feeling like; death like when my Appendix ruptured, and hemorrhaging after my Gallbladder was removed. In America, you can't afford to keep going to doctors to try and figure out what's wrong because you will be bankrupted very soon if you're just a working-class person. I've already lost everything financially, and you all know the psychosocial issues that come with a chronic pain diagnosis. I had a Barium swallow that I asked for myself because I was a RN for 20 years so thankfully, I have some idea of what I think is causing problems, but my blood work always seems to be negative for whatever they've checked me for which over 11 years has been quite a few things. My stomach motility started really getting worse these last few years and I've had the arthritis and other chronic pain issues for over 11 years already. I'm going to ask for my B12 to be checked and put myself on some Thiamine supplements. I'm in some kind of flare again for the last 6 days. This gets to be too much to manage and have a "normal' life. Thanks for sharing your story.
People's comments towards people with chronic conditions can be quite hurtful.
They certainly can
Really glad you didn’t get side effects!
Me too!!
Yay and what the heck? Glad someone listened as there’s nothing worse than not being believed - it makes you want to go back to those doctors and say see?? I find unless it’s their area they don’t want to know and you need someone to take a holistic view at you are a person and not as a series of parts - here’s hoping for a positive result!
In case it helps, I use a file clip to loosen my seatbelt, jsut enough to take pressure off my belly. I put it up right against where it comes down near the ceiling.
Thanks for the idea. I will give it a go 😀
This video is a year old and this type of behavior is still going on. Well explained!
So what we’re saying here is that you had a bum lift ! 😂
Pretty much lol
Thanks you for sharing all this! Great ideas!
Oh that’s Nice!
It’s first class
Beutiful😵
Do you have anything for exhaustion?
I wish I did
Have you changed your laundry soap bodywash or soap? I have severe itching so the doctor DERMOTOLIGIST changed me to cetaphil body wash and lotion cream and laundry detergent "ALL FREE AND CLEAR " best things every.no more scratching the blood out of my body until I wake myself up in the night scratching until I have blood running down my back.
I changed my body wash and moisturising creams as well as adding medicated cream and nappy rash cream to the mix. I’ve got quite a collection of products I am using now
can you fold your elbows after your cast? im struggling right now
I’ve had chronic fibromyalgia for over 20 years flower 🌸 I have to rest and just go on slow mode until I’m back to normal. Whatever normal is. Xxxx
Normal can change everyday
I have had exactly the same treatment ect. Big hugs xxxx ❤
Normal changes everyday
Wow, You've endured so much with so much courage and grace. Sending you love and gentle healing hugs
Broke my collar bone and had a plate fixation and had to deal with things on my own for several months. I had friends help me with lots of things but when they weren't around, I had to go have a neighbor open a jar for me.
I feel your struggle and know exactly what you were going through
Beautiful in the brace to
Is it smelly or sweaty yet
Being in a full arm cast is so annoying. Does your arm get itchy under the cast? After you have this full arm cast removed will you need a shorter cast or a brace? Have a full and speedy recovery. Have a wonderful day
Show your cast, i love fractured and casts
Have you got someone to help you now that you are in the cast? I really hope so. Also will you let anybody sign your cast? would really love to sign your cast. Can you write my name on your cast? If you dont want to no problem I just asked. Have a wonderful day
All your videos are fantastic. Is this the first time you are in a cast? I really hope the last as well. I have a video idea for you. Can you make a video describing the most difficult things for you to do with the cast? Best wishes and take care
Yes this is the first time I am in a cast and hopefully the last! I will work on more videos but they are a hard task to film and edit with one arm that isn’t my dominant arm, but it will happen. I don’t give in easily 😀
When will you have your cast removed? I was in a cast too. I broke my wrist and thumb playing football. I had my third cast removed months ago. Have a full and speedy recovery. Have a wonderful weekend
Not sure when my cast will be coming off yet 😕
I got diagnosed with painful bladder syndrome but the urologist didn't help me atal. No pain meds, nothing!. I've asked for a second opinion. I'm waiting for an appointment. In the meantime the doctors treat me for a UTI every 2-4 weeks with antibiotics. They stop the pain temporarily but I know they are not the answer. I just don't know what else to do at the moment so I take them. I'm also pregabalin which doesn't help atal.
A second opinion is always good
Great video. Idiopathic medicine. As a lupus person conventional medicine is inadequate. Still finding answers
I just got diagnosed with both in the past 2 years I'm 33 Almost died in jan from hemorrhaging I'm terrified
The diseases are certainly a challenge. All I can say is make sure you look after yourself and get a good medical team behind you to stop the risk of damage to your body It’s a lifelong challenge full of surprises along the way
@@brookelynsworld4937 definetly I got hooked up with lupus ontario and so many support groups and leading docs in the field to help with tips and tricks I'm so glad I was able to find them
@@brookelynsworld4937 I'm going to get immunoglobulins! I'm so excited! I hope you keep posting videos like this
What you need is to lock all these people in a room and figure it out. This cracks me up too - no one taking responsibility or taking a holistic view :(
Definitely no responsibility- each for their own and it is sad that I have to take things into my own hands rather than the medical profession doing their job properly and holistically helping me as a group
I find your persistence, courage and resilience inspiring. You don't sugar coat it. You tell it as it is. Thank you Brooke ☺️
Thanks Karen x I’m not a big sugar coater as everything is as it is