Відео

You might want to lose the weight before it kills you prematurely.

I have cerebral palay and looking for love .

I need to help my mom who has spina bifida. She doesn't live in the US, and it is expensive for her to travel. Is there a way to get a help online? She doesn't want to do surgery

Love your video. I am in the process of getting a new wheelchair and it is a lengthy process thru ADP. I am currently using an older wheelchair. I use a Kafo and forearm crutches to walk but using wheelchair is giving me more freedom. I am also exercising regularly. Aging with Spina Bifida can be challenging at times

Very happy you started this channel about Spina Bifida. It’s true there are not a lot of info about adults living with SB.

Thanks for such a great video. I'm currently looking because I need to change from a rigid frame to a foldable. Your personal experiences were very thought provoking and useful.

Thanks for your video and info about this wheelchair. I have Spina Bifida and I am about to go to a wheelchair clinic for a new wheelchair.

That’s an excellent review😊. My husband and I have had a foldable quickie for years and we love it, it has been a game changer. I believe that if he was to change it, it will look just like yours🤝.

Oh, I just thought of one question, you mentioned the foam filled tires being more difficult to push on carpet, are all solid core tires more difficult that way? Thanks!

Thanks very great informative w/c video! I had a few questions but by the time you finished you had answered 👍🏻👏🏻🤗

Will it for God’s approval. Congratulations!

Where can we buy these in ontario? This is what I need!!! 😊

Thank you for informing we don't need help every time and because we are a larger person our centre of balance is different,

Cool won't have to hand push anymore. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼💝👍👍👍👍🤲💞💞💞💞🎶🎶🎶💞💞

Wow...I'm surprised more people don't use one of these!! Great invention!

Technology. This is fantastic. 💕

Have you ever ridden a public bus with the Xenon and had the safety straps attached to it? Where do they usually attach the straps in the back? My current manual chair is a rigid chair with an axle tube they strap to but the Xenon doesn't have one of those.

Thanks so much for being honest and humorous about using a wheelchair. I have childhood polio and not able to walk with crutches anymore due to multiple cancer treatments. This is a model I will consider. You are right, most people are trying to help a fellow human being, not to look down on the disability.

I'm 'iffy' about wheelies too! Lol..maybe something to do with becoming a wheelchair user in my mid-sixties

I like the folding handles and your comments about people grabbing your wheelchair to 'help' without being asked...I hate that! Not only do I dislike being 'kidnaped', with COVID still around & mutating, I don't want other people touching my chair!

Awesome review of your Quickie Xenon 2. And thank you. I am in the process of getting one myself. It will take 3 to 6 months before I can have it, as I was told. I currently own a Quickie Q7, which I love. But this thing is nearing 10 years, and it has some squeaking every now and then.

One more subscribed, you’ll get 200 soon!! (Then hopefully a million by the end of the year! ;) )

I've been watching your journey/journey to adoption and not saying much as I am from the States and not familiar with CAS in Canada...but it is sounding a lot like how it is in the US when trying to adopt a child through the foster care system (Child Protective Services) and the related panels/court that goes with it. I think you are showing a lovely positivity given the delays/etc...that I know occur and can be so disheartening/frustrating. In Oregon, where I live, you can adopt children through CPS, but the way it works, you (and any other interested potential parents for that child) must, after completing your home study and classes, have your casework/information submitted to a panel...and this panel decides which prospective parent, the child is best to be with...which as you can imagine adds yet another level of uncertainty to the process...especially after multiple visits/time spent with a child, etc....and all of that only happens after CPS has made effort to reunify the child with their biological family for a year--children will not be available to adopt until that year/reunification has been completed/been unattainable. I only say all of this, because I have a slightly different perspective on what you are both attempting to do...because not only have I been a foster parent...I was a foster child. A foster child who spent too long in the system (I entered the system at age 12 and was bumped around placements throughout my teens) and would have considered myself really lucky to have had someone like the both of you want to make me part of your family--but back then there wasn't a set time allotment for possible reunification...it could drag on for much longer no matter how abusive your parents were, though in my case, mine were so bad the court eventually severed all parental rights (I was just too old by that time for any family to really consider adopting me). I know it's tougher, especially emotionally, than what you let on, but I just want to cheer you on and hope with you for a favorable outcome in your case. Whenever you are feeling frustrated or sad or that the process is taking to long, just remember there is a child out there, maybe more than one, who are counting on you to stick with it even if they don't realize it yet. I think the two of you will make awesome parents and hope any agency you are working with can see that too :)

I know it's not an easy journey. But, I know it's worth it. I think we could have a very long conversation about adopting.

Hello I heard in your video that you have a wheelie bar does that help you get up curbs? it would really help me if I could get one when I get my wheelchair instead of having to be pushed .

Great Video! Welcome to my channel :)

The update before May will be about how much you’re loving swimming at the Y! Looking forward to it!

1)Good luck with the adoption, hope things start going more smoothly 💕 2)Go swimming! 3) Call your Doctor 4) Sorry about your friend 5) I still don't think you and Joy age. It's an illusion 6) Look both ways! 🤦🏼‍♀️ Even in small towns. 7) 4pm dinners sound amazing and 7pm is definitely too late to be meeting up with people hahah 8)What are you watching on Netflix?

Swim!!!

I have 0 knowldge about spina bifida iam 27 iam married iam lady i give birth to 2 childs now living normal life in some other issues i found in mri i have closed spina bifida. I do not no about that. How many types r their in spina bifida. Now iam fealing pain in hands legs. I am fear about this

Whats ur age

Atleast any idea for surgery is their spins bifida

Sir my age is 27 i have spina bifida closed . Iam andhra pradesh .any suggestions to give for surgery

Excelent

I was 21-22when it really kicked in for me. I thought I could do what everyone else did but turns out iI was wrong, that lead to depression for awhile but eventually snapped out of it .

So I got my new chair and I love it even more than the previous one. That wasn't quite to my size (measurement error) but i still liked it. This one? Bloody awesome! Fits my body so well and rolls smooooth!

Oh Jonathan and Joy I soooo enjoy listening to you banter back and forth. So happy for you both and look forward to following your journey. Jonathan you are a natural in front of the camera. I just want to reach up and pinch your cheeks. Lol. I love that this is just a regular conversation for you. Keep up the good work!!!!

I am so happy i found your channel. I'm in the Niagara area and we are just starting the potion possess. Our first I guess 'class' is on the 27th and paperwork is just before that. He's the able-bodied one and I am not so much. We are also just a little younger than you. It makes it, it gives me hope to see your journey knowing that there are others like us and able to adopt. It's been my biggest worry and fear for me that adoption was just out of reach for me, Thank you and I can't wait to see your next video

Thank god! Joy ma'am is Fine now. Thanks for the wishes & Wish you both a very Happy new year.

Feel better Joy!

Like your perspective on the term “special needs”. Oh and I totally agree with the dislike of stupid Toronto traffic and love of dark roast coffee. Thanks for bringing us along.

Have a beautiful friend with SB. Have come to love her as a daughter. Thanks for the channel. I have shared it with her. #154 🇦🇺💜😘

I totally get what you are saying Joy! “Momming” two kids who need me to have some extra skills to parent them in the way they need is a big undertaking. It’s exciting and terrifying to feel the weight of the responsibility. It’s also the biggest blessing. You will be amazing!!! I’m so excited for both of you

I don't use the term special needs unless absolutely necessary. With my boy, we just adapt life to work for him. It makes me concentrate on what he can do, or accomplish. Nice intro by the way. 🙂

Totally with you on the “special needs” thing! Like people who get diagnosed with a condition ARE/CAN BE disabled in SOME WAY but we learn to adapt to it and over time it becomes second nature to us! Like in my opinion it’s not us that “disables” us further, it’s society!

Nothing wrong with being crazy, just look at my wife and me. Wishing you well with your exciting new journey. Savor the days, they pass quickly.

Hi Happy. Holluday Wbat do you think about Frog legs casters? Thanks josie

You probably can't do a wheelie bc your center of gravity is too far back. In the Xeon you can adjust it through moving your wheels a bit more to the front. But be aware, it can get really trippy. The weight distribution should be around 80/20 up to 95/5 (weight on caster wheels to weight on pushing wheels)

Well that is wonderful news! You two will make amazing parents for one special little girl, and she will be as lucky to have both of you, as you will be privileged to have her. Fingers crossed it all works out for you. I'm so excited for you both! Lots of love.

We are so excited to hear of this amazing journey opportunity! We will be praying 💕