![Cynthia Veronica](/img/default-banner.jpg)
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Cynthia Veronica
United States
Приєднався 23 жов 2011
I am the mother of two beautiful children. My oldest is a boy, Sebastian, and has achondroplasia, the most common form of dwarfism. My youngest is a girl, Samantha. They are two years apart. This channel documents my journey about self-discovery, inspiration, and connection, as I navigate motherhood and balance it with self-care. As part of my journey I have and am still discovering what an incredible opportunity I have been given to raise amazing children, including one with differences. I have learned a lot about embracing diversity and finding peace and serenity throughout the process.
I AM WONDERFUL // Sebastian Singing with his Classmates
In this video Sebastian sings I Am Wonderful with his Classmates
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Відео
LP-INSPIRED DANCING // Kids Move Like DJ (LPA Conference 2023)
Переглядів 273 місяці тому
Sebastian and Sammie put on sunglasses and dance like DJ, who they met at the LPA Conference in Austin.
SAFARI WEST // Sebastian and Family Adventures at a California Safari
Переглядів 373 місяці тому
Sebastian and Family Adventures at Safari West - August 2023
Sebastian's Journey So Far Playing the Ukulele (7-8 Yrs Old)
Переглядів 563 місяці тому
In this video, Sebastian plays the ukulele. I hope this video inspires you and/or your child.
HE'S HOW OLD?! // When Other Children Question My Child with Dwarfism's Age
Переглядів 277Рік тому
In this video I describe an incident at soccer practice where another child questions my child with dwarfism's age.
10 PRODUCTS THAT ENCOURAGE INDEPENDENCE IN KIDS // Helping My Child with Dwarfism Gain Independence
Переглядів 97Рік тому
Here are some suggestions/examples of must have products for encouraging independence in children: 1. Shower head holder: www.animicausa.com/shop/trunky-dory-shower-head-holder-detail 2. Creamer jar: chirpy.st/u7577_WJDMfL 3. Handheld cordless vacuum: chirpy.st/u7577_hgHdjk 4. Water container with spout: chirpy.st/u7577_7uLsV2 5. Fun Shot glasses: chirpy.st/u7577_ZFzf99 6. Anywhere Lights: chir...
5 COOL THINGS ABOUT SIBLINGS WITH DISABILITIES // My Son with Dwarfism Paved the Way for His Sister
Переглядів 505Рік тому
What I learned from my children about siblings of children with disabilities.
THIS MAN'S DWARFISM COULD HAVE SAVED HIS LIFE // Zoltan Hirsch: World-Renowned Circus Performer
Переглядів 3872 роки тому
This is the story of the incredible life of Zoltan Hirsch, a Jewish Hungarian dwarf. At the height of his career as a circus performer, his luck took a turn when the Nazi regime took over. Zoltan lived during one of the darkest times in our world history. Although he was killed in 1944, his legend lives on in his book and in the mechanical toy named after him, the Roli Zoli (created in the 1970...
The Seven Dwarfs of Auschwitz // Survival in One of the Deadliest Concentration Camps
Переглядів 23 тис.2 роки тому
Story time! This is the incredible story of seven dwarfs from a small village in Rozavlea, and their survival in Auschwitz, one of the deadliest concentration camps in Poland in the 1940s, during the Nazi occupation in Europe. Playlist: Dwarf Stories Source: Giants by Yehuda Koren and Eilat Negev #DwarfHistory
CAR SEAT SAFETY // Dwarfism & Rear-Facing vs. Forward-Facing Car Seats
Переглядів 3682 роки тому
This video depicts several simulations of children in car seats that are rear-facing versus forward-facing during frontal collisions, and the importance of protecting the head, neck, and spine, especially in children with certain types of dwarfism. Car seat safety laws summary by State: saferide4kids.com/car-seat-laws-by-state/
DWARFISM & SPORTS // Highlighting Inspirational LPs in Sports
Переглядів 3622 роки тому
In this video, I discuss certain sports on the Dwarfism Sports Participation Possibilities Chart published June 21, 1993, as well as a few other sports not mentioned on the chart. I also highlight certain athletes with dwarfism. Resources and references: Article on sports for people with dwarfism: lpamrs.memberclicks.net/assets/documents/School.PE.Sports.pdf Football (Zach Schreiter): ua-cam.co...
TOILET HYGIENE TIPS FOR CHILDREN WITH ACHONDROPLASIA // Tips and Tools for Wiping
Переглядів 5272 роки тому
In this video, I go over 4 tips for assiting your child with toilet hygiene.
HOW MOTOR SKILL DELAYS MAY CONTRIBUTE TO SOCIAL SKILL DELAYS IN THE DEVELOPING CHILD
Переглядів 3502 роки тому
Clarification: the difficulty in the development of social graces is specific to the developing child, whether they have achondroplasia or not. More specifically it’s auditory processing and the ability to carry out motion at the same time, which becomes even more difficult when motor skill delays are a factor, which is the case in most children with achondroplasia. This does NOT mean that chil...
WHAT TO DO WITH CLOTHES THAT YOUR CHILD OUTGROWS // $ from Clothes Your Child with Dwarfism Outgrows
Переглядів 742 роки тому
Ideas for when your child with dwarfism outgrows their clothes: 1. Little People of America (LPA) is a wonderful organization. They often have clothing swaps where you can find clothes and also donate your old clothes. 2. There are several Facebook groups for clothing swaps for people with dwarfism. 3. Marine Layer has an upcycle program. You can donate five pieces of clothing that you no longe...
THE IMPORTANCE OF BOYS HAVING A MALE ROLE MODEL // Sebastian and His Uncle Building a Table Together
Переглядів 1462 роки тому
La tribute to all male role models, highlighting the important part a male role model plays in a young boy's life. Thank you to all the role models out there, you are appreciated more than you’ll ever know 😊
OCCUPATIONAL THERAPY (OT) FOR CHILDREN // What We Work on During Sessions
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OCCUPATIONAL THERAPY (OT) FOR CHILDREN // What We Work on During Sessions
CLIMBING THE PLAY STRUCTURE // Proud Moment for Parent of Child with Achondroplasia
Переглядів 2162 роки тому
CLIMBING THE PLAY STRUCTURE // Proud Moment for Parent of Child with Achondroplasia
WHAT YOU CAN SAY WHEN SOMEONE SAYS THE M WORD // Ideas on how to deal with derogatory statements
Переглядів 2483 роки тому
WHAT YOU CAN SAY WHEN SOMEONE SAYS THE M WORD // Ideas on how to deal with derogatory statements
PARENTS REACT TO THEIR CHILD HAVING DWARFISM // Two Very Different Reactions to the Same Diagnosis
Переглядів 6923 роки тому
PARENTS REACT TO THEIR CHILD HAVING DWARFISM // Two Very Different Reactions to the Same Diagnosis
5 LESSONS LEARNED WHILE RAISING MY BABY WITH DWARFISM // Achondroplasia Parenting Tips
Переглядів 9443 роки тому
5 LESSONS LEARNED WHILE RAISING MY BABY WITH DWARFISM // Achondroplasia Parenting Tips
GROCERY SHOPPING WITH 4 & 5-YR OLD // Opportunities for Kids to Learn at the Store
Переглядів 1923 роки тому
GROCERY SHOPPING WITH 4 & 5-YR OLD // Opportunities for Kids to Learn at the Store
SCHOOL ACCOMMODATIONS TO CONSIDER FOR DWARFISM // List of 30 Achondroplasia Modifications
Переглядів 1,8 тис.3 роки тому
SCHOOL ACCOMMODATIONS TO CONSIDER FOR DWARFISM // List of 30 Achondroplasia Modifications
5 TIPS FOR ENCOURAGING YOUNG CHILDREN TO ADVOCATE FOR THEMSELVES // Promote Confidence & Support
Переглядів 2393 роки тому
5 TIPS FOR ENCOURAGING YOUNG CHILDREN TO ADVOCATE FOR THEMSELVES // Promote Confidence & Support
SHORTENING LONG SLEEVES AND PANTS WITH CUFFS // Quick, Easy, No Sew Way to Take In Material
Переглядів 5 тис.3 роки тому
SHORTENING LONG SLEEVES AND PANTS WITH CUFFS // Quick, Easy, No Sew Way to Take In Material
TUTORIAL: TAPERING PANTS WITHOUT SEWING // Easy & Quick Non-Traditional Method
Переглядів 1,7 тис.3 роки тому
TUTORIAL: TAPERING PANTS WITHOUT SEWING // Easy & Quick Non-Traditional Method
CREATE A MANTRA & SAY IT DAILY FOR INNER PEACE // Easy Way to Release Fears & Anxiety & Find Harmony
Переглядів 233 роки тому
CREATE A MANTRA & SAY IT DAILY FOR INNER PEACE // Easy Way to Release Fears & Anxiety & Find Harmony
A STRANGER TOOK A PHOTO OF MY CHILD WITH DIFFERENCES // Storytime: How My Reaction Backfired
Переглядів 2953 роки тому
A STRANGER TOOK A PHOTO OF MY CHILD WITH DIFFERENCES // Storytime: How My Reaction Backfired
4 REASONS I REGRET MY SON’S TONSILLECTOMY AND ADENOIDECTOMY // For Obstructive Apnea
Переглядів 3,6 тис.3 роки тому
4 REASONS I REGRET MY SON’S TONSILLECTOMY AND ADENOIDECTOMY // For Obstructive Apnea
WHAT TO TELL YOUR CHILDREN WHEN SOMEONE MAKES FUN OF THEM // Raising a Child with Differences
Переглядів 4743 роки тому
WHAT TO TELL YOUR CHILDREN WHEN SOMEONE MAKES FUN OF THEM // Raising a Child with Differences
CARRYING EMOTIONAL BAGGAGE // How to Let Go of Resentment When Someone Targets Your Child
Переглядів 593 роки тому
CARRYING EMOTIONAL BAGGAGE // How to Let Go of Resentment When Someone Targets Your Child
How you felt was right, a normal reaction. He knew you were getting back at him. Had you taken a photo of his dwarf son... He would have gone through so much (in your shoes)... to the point of a stranger taking a photo of his dwarf son. He wasn't hit in his sensitive spot. You are so smart to have learned from that situation.
Thank you! I have a child in my class this year with achondroplasia. Your video was very helpful!!!
We found out that our daughter is dwarfism who is 2 months old. We are using Nuna PRX Car seat right now. Is it still ok?
You had me entranced all the way through. Whar a haunting story, God bless them all,
This is sick. Poor people
Thank you, for this excellent video, even though it is heartbreaking. The presentation is really topclass.
The picture you keep showing of a graveyard is a Catholic graveyard it is obviously a church in the picture because there are crosses everywhere it's not accurate to use that when telling the story.
Not with other inmates often the illnesses were actually from the soldiers themselves because they was in Auschwitz an area where they kept some of the prettier inmates for purposes of being comfort women to quote the Japanese.
It's pronounced Ow shwitz you mispronounced the name every single time.
You may not know this but apparently there's a special blessing on those who make others happy specifically as you pointed it says that one who entertains the bride and groom one who entertains specifically in a certain modest way is guaranteed both life in this world and in the next, I guess that's exactly what he got.
I can't believe I've never heard this before. It's a gripping story. Well done.
Pronunciation of Auschwitz...
Exactly, makes me cringe every time she says it…there is no Ch on the end lol
Can you use their names not the label of dwarves?
It's historically accurate which makes it the correct word choice in this instance. We shouldn't sugar coat history.
Auschwitz. Pronounced "Oushvitz.". Not "Ouchwitch." It is amazing that they survived. After watching this, and others about the Holocaust and WWII, I still find it incomprehensible that people could be so horrible.
Wooden doors.
God bless you Cynthia!
I am amazed at the good fortune and tenacity of this incredible family. This is probably the most uplifting Holocaust story I've ever heard. Thank-you for your well-presented tale.
Thank you very interesting.
how you tell story without your mouth open wide
O o o that’s me! I said 15!! I was the one in the article :) my name is Arianna :) Thank you for quoting our names… people keep taking the quotes from the article and not quoting us. So thank you’
Easy read about this family is the book "G😊iants - The Dwarfs of Auschwitz."
Is he getting the vosoritide injection now?heard it helps a lot!
Did anybody tell you; you are a genius?
Hello Cynthia, thank you for sharing your experience. My name is Miryam and I work for Medicys LTD. I would like to offer you a collaboration. Is there an email where can write to you? Thank you in advance!
Hi Miryam - thank you for your message! You can DM me on Instagram: cynthiaveronica_oninsta
They were saved by GOD'S mercy to tell their story that many didn't get to tell.
My son is average height but didn’t sit up till 13 months old, we found out he has low muscle tone, hypermobility, autism and sensory processing disorder. When your child takes longer to reach milestones it makes it that much more exciting when they finally reach them!!
Warwick Davis hosts a Documentary about this family that was just released on UA-cam; The Seven Dwarves of Auschwitz I just watched it and I think I need a little break, but look forward to seeing your perspective.
This was a good story, but I had trouble with the mispronunciation of Auschwitz. Very distracting. Watch Warwick Davis' version of the story.
What is the purpose of the tubes up the nose?
Animal rights were recognized and cruelty was punished by the Reich legal code.
Yes. But also euthanasia of human beings, depriving Jews of their rights, unleashing a second world war, and genocide. Context there.
Omg now I’ve really seen everything…. 🤦♀️
Thank u ❤
Thank you so much it's really helpful video ,
My oldest typical child was rear facing until age 7 in the Graco Extend2fit. He was average for a typical child. I'm expecting and found out she has dwarfism. Should I keep her rear facing even if she's 7-8-9-10?
Congratulations on your pregnancy! It’s best to keep her rear-facing as long as you can. I recognize that this is so hard to do. It’s actually amazing to me that you were able to keep your other child who is average height rear-facing for as long as you did. My son with dwarfism is 8 and is forward-facing. We switched him earlier than we would have liked, but we also did a lot of research on the safest car seat options.
Hello im extremely grateful i found this video as my 3 year old Everett is scheduled to have tonsils and adnoids removed tomorrow at 6:20 am. He does have very mild sleep apnea and mild breathing issues. He also has an abnormally runny nose. After hearing your video I'm leaning towards canceling. Are you able to talk with me and advise me. Thanks in advance
Hi there! Did your son end up going through the surgery? I’m not a doctor and cannot give medical advice, but I can speak on my experience as a parent. You can DM me on Instagram (@cynthiaveronica_oninsta)
Great example...of letting go!
You shouldn’t feel upset at yourself you have a right to feel the way you did. The man did not have your permission to take a picture of your child. You should have approached him and asked him why he took the picture. That would have taught him a lesson that’s it’s not ok to take pictures of minor children without the parents consent.
I started sweeing in elastic when hemming my baby's pants. If you take your time it ends up looking like cuffs and fit great.
My daughter 2 years achondroplasia... I am India... Please help me hight ingers treatment...
Hi there! The only drug that is currently available on the market is Voxzogo, developed by a company called Biomarin. There are a few other drugs undergoing clinical trials (including an oral drug that is taken daily and in pill form) and will likely not be available until 2 or 3 years from now. For the current drug on the market you can visit www.voxzogo.com. Also, here is the link to the slides providing an update on the oral drug: investor.bridgebio.com/static-files/25c6cab1-cbec-4c26-96a6-067367e8e170 I hope this helps 🙂
I admire your strength and resilience mam! My 10 years old daughter was born pre term she has a huge head, she got bully everywhere she goes, it worse at sch, she's very intelligent and smart with no medical condition but just the awful comments people make, I'm so sad that this might affect her self esteem in the future
You must have been over the moon..when he said those things!
Hi Cynthia.. please guide me about speech problem.. like my son is near to 2 years but he is only saying mamaa and dadda
Hi... My son has been diagnosed with achandroplasia last week.. he is my first baby... He is doing his activities very well..like he will be 2year in this June.. my concern is that he is not speaking.. like now he is 22 months . And he is only saying mumma and papa . And somehow I feel that he doesn't know the meaning of momma and papa.. please guide me about speech .. thank you
Hi there - first of all congratulations on your sweet boy! In general, children with achondroplasia are prone to fluid buildup in their ears due to their compressed anatomy, and this can have a negative impact on hearing. Has your son been seen by an audiologist and/or an ear nose and throat (ENT) doctor? If not, I would make an appointment soon. He may be hearing like he’s ‘underwater’ which may be causing speech delay. My son sees both an audiologist and ENT on an annual basis. He has had two sets of ear tubes, and both times the ENT doctor said there was a lot of fluid to clear out. They monitor him annually to determine whether or not he needs another set of tubes. It’s also important to make sure you have an anesthesiologist who is experienced with achondroplasia because intubation is slightly different for achon anatomy.
My son also same diagnosis
Thank you for sharing. I’m not sure where you are in your journey, and even though it can be hard in the beginning, it gets easier and it’s also incredibly rewarding in so many ways. 💚
I have been following your videos and everyday we face the same issues. ❤
Thank you for sharing. I hope you and your child have developed tools to help manage emotions during these incidents and turn it into a positive experience 💚
I enjoyed this account very, very much! Greetings and new sub from Illinois! History is the best!
Good come back
I wholeheartedly Agree healing for us all
Proud of him ❤
Thx for ur video . My son has same issue he was 3 years he was operated for adenoid removal and in just 15 months recurring and it’s not grew back as before. Can you guide me what should I do at this stage ? I hope your son will b ok
I’m so sorry to hear your son’s surgery was not successful and that adenoids have grown back to where they were before. I’m not a doctor, and I do not know your son’s medical history, but what I would do if I were in your position is I would have him followed by an ENT that you trust and that has a lot of experience with your son’s condition, also I would make sure to see a pulmonologist on a regular (e.g., annual) basis to monitor for obstructive sleep apnea. If the apnea is mild or moderate I would look at non-surgical ways to remedy the apnea (e.g., CPAP), but if apnea is severe, I would be very concerned and likely consider another surgery if that is what the doctor recommends. According to the my son’s previous ENT, the younger the child the higher the likelihood that the adenoids will grow back. So the older they get the less risky the surgery in terms of adenoids coming back in. I hope this is helpful. Hugs 🤗