Відео

The minute i flared and couldn't walk, they ran away from me. Fuck you Todd and Jason.

I have the same complain also alot off burning in my Toes I try everything the medication from many Doctors nothing is helping me I don't know what to do next I am frustrated

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Great information + conversation! I love, love your natural hairstyle. Darlene

I've been dealing with getting harassed on the net from people who are ableist. They call me a fraud, and a government leech. If I experience any symptoms or flares, I'm told I have every ailment in webmd. I constantly get told that their tax dollars pay for me to be lazy. I'm constantly attacked, and people gang up on me for not working. Even when I did work I experienced discrimination. It's so depressing, and exhausting having to deal with so much ignorance and abuse. I got told if I can walk to the store that I can work a 9 to 5.

You gotta appeal! Your doctor must write you a letter with a diagnosis code. Stress makes every worse. I got approved. SSD will pay you back for past years. Stay strong! Need physician support!,

I won my disability case for lupus and mctd a few days ago 🎉 It took 2 years with the help of an attorney.

Hello, i would like to know what you take for the dryness, saliva???

Sweetie, my mom's identical twin sister, eldest sister z and the my mother all passed from lupus. They all had SSI disability. I have lupus now. I also have autism. But I keep getting denied. I need help because my flare ups are so bad, that I HAD to stop working. I need help getting disability. Anybody?😢

Thank you for making this video. I’m curious if you were able to figure out the problem and treat it. I was recently diagnosed with Lupus, and just like you, a little tingling and numbness in my hands and feet was not my initial priority. I went on a bunch of meds, and my other symptoms are getting better and now my tingling, like you, isn’t going away, so I’d like to do something about it, especially if that will stop progression. I’m planning to talk to my rheumatologist about it tomorrow, so this has helped me prepare. Good luck to you, and thanks again!

Thank you for your information. Blessings, Mona

I appreciate you and your sharing thank you. Blessings to you also

I feel your pain. People have no idea how hard working is for people with lupus. 🌻

If it hasn't happened for you, I pray your time is coming. You don't deserve to struggle. I found out today I have had lupus for the past 6 years (untreated) and the Dr failed to tell me. They kept blaming my diabetes. God bless you 🙏

Weird. I started taking garlic and my bone and muscle pain went away

Hi my Name is Rita I myself have Lupus Sle and suffering this same issue on my left side of my head and in the Center and my Skin is pretty fare but my main concern is my hair but most of all I’m just so Very grateful to be Alive 2-26- 2023 today’s date I watched this Video very helpful

It also depends on how bad someone is having symptoms. I'm not able to barely function at home and have problems with my heart and being able to walk along with excruciating pain in my bones and joints. I have blood work to see if my organs are being affected because of pain in my kidneys often. Some people have lighter symptoms but others more severe. There's no way I can work any more as I used to be a home health aid. I'm trusting the lord to put this entire awful disease in remission for good. Bless every one who suffers with autoimmune disease 🙏🏻

Do you have a handicap decal? If so, how did you go about it?

Do you have good results with the medication that prevents dryness? Is it Salagen? Are there bad side effects with it?

I don't even tell my employers about my medical exemptions because it makes me uncomfortable to ask for "special" treatment. I just go and do it too. Waiting on the government to help someone isn't an option, I agree, I'm not going to have some snotty judge tell me I'm just trying to get out of work..screw them, I'll go bench press the damn wimp judge even with two bad knees and whatever else hurts at the moment....

So true everything you’re saying…thank you for sharing your story and giving us the REAL DEAL on the difficulties of working when we have no other choice…it doesn’t make your lupus any less severe then the next person.. Take care Queen❤️❤️

Thank you for sharing your story..❤️

Hi how are you doing with neuropathy hands n feet?

Thanks for sharing. I was diagnosed with fibromyalgia in 2018. Then just recently my rheumatologist had me do labs and it was consistent with lupus and Sjogrens.

I'm dying to get disability I have lupus and ITP it's absolutely killing me I have no life, I need help I talk to a lawyer today

Also, have you filed for SSDI? If so, would you please share your experience? I’ve worked since 15 and am surviving to clock in another day. I want to enjoy my life and granddaughter and feel like I’m being a baby but I also saw my mom suffer the exact same as I described myself…minus the neck knot.

You spoke about keeping your neck and ears covered (at 7:50 minute mark on your video) from the cold. I have been realizing the past few years that even a cool breeze on my neck and back huuuuurrrrts! My mom was diagnosed with RA, and I am diagnosed a year ago with fibromyalgia and 2 months later with RA. Is that a symptom of Sjogrens or Lupus for you? I am 48 now, but at 26 I had a lymph node swell up on the front of my neck over night. I had to have it drained by the dr 5 times before he could get me in to remove it. I thought my skin was going to rip open. He said it was crazy because it was just old blood in there. Sent it off and was not cancerous. I also had belles palsy about 5 years ago after getting the flu. My face was soooo painful and droopy. Lasted about 3 weeks. Also have horrible TMJ. Migraines since 6, and just got those under control about 2 years ago from a Functional Neurologist. I am now having so much pain in my neck and spine that I’ve gotten nerve blocks to help the spasming. Then my feet started hurting like I had no padding and was walking on bruised bone. Chiro said to get Brooks tennis shoes and they have helped tremendously. No more cute sandals or ankle boots or sandals😢 Then my left big toe was getting locked up, and the next day it’s fine and my left hip would act up and hurt soooooo bad and go down into my groin. That’s what started the trigger point injections and working all the way up to the nerve blocks and even nerve ablation on my SI joint area. They said it’s bursitis. I’ve been seeing a Dr for every issue and taking over 10 meds plus vitamins. Does any of this sound like what you have experienced?

Excellent video and information

This is so true. I also have lupus and this is what I need to do to survive. How are you doing today?

Hey, how are you my mother got diagnosed with lupus years ago I was wondering how can she grow her hair back.

I really enjoyed this video. I hope you and your hair are still thriving! 💜

I'm still fighting for my benefits 14 years. The government full of it.

Ask your Dr about Benlysta. Relatively new..injected once a week..helped me alot. Started to feel half human for first time in years then lost my job and insurance. Fixing to move in to a tent to be able to keep up on car payments for a few extra weeks.

I know this is an old video. But I came here to reiterate the fact that if you have an autoimmune disorder DO NOT take melatonin for sleep. Especially the gummies at a higher dose. It can start a complete cytokine storm in your body causing inflammation and one of the worst flares of your life. In fact most melatonin gummies have this warning on the side of the label.

Thank you for sharing, I’ve gained 90 lbs on steroids

Well I want to gain weight but lupus won't let me. Im a 108lbs. So I'm the odd one out.

I was just diagnosed with an autoimmune disease. My main symptoms were hair loss around the hairline and fatigue. It took 3 years to get an accurate diagnosis. As opposed to steroids, I chose an aggressive anti-inflammatory diet plan. I'm 3 weeks in and feel encouraged. Thanks for sharing.

ur video is sooo informative...

I made $55000 a year. I went on disability at work. It took me 9 months to get approved.

I follow lots of vlogs from the chronically sick and I always see them living without any financial stress... I live in Italy and since 2018 all people unemployed and near the poverty line receive benefits, but the benefits for disability up to 99% invalid remain at €300 (euros - about the same in US$) per month (plus €150 if u have no other income)... as this was in force when I went on disability allowance in 2015 i too found myself in a dramatic situation - 450 euros a month is practically nothing - waiting-lists for Council (government) housing are endless and rents etc are high - at least here all my medical costs are covered by the State - life can be so cruel and for a single person like this lady can sometimes feel overwhelming - my very best wishes to you

My doctor recommend me melatonin is it okay?

Thanks for sharing! Awesome video! Hey I also have an autoimmune, I have scleroderma and i shared some tips on how i was able to improve quality of life in this video with tools, I hope this video can come to use for you! ua-cam.com/video/sbG2dIi8GZE/v-deo.html

Thanks for the encouragement! I've been on HIGH-DOSE Pred for years (asthma) and have gained about 60 lbs. I try to juice veggies which helps a bit. You are beautiful and I pray that you are doing well! God bless! (Tineka---on my daughter's account. lol)

Love her 😍

Thank you for posting about resources in Baltimore area. I’m in the middle of a diagnosis in the same area.

Do you have an email address? I live in Maryland and would like to communicate with you.

MAY GOD BLESS U

THANK U FOR THE MESSAGE I HAVE LUPUS I APPLIED FOR DISABILITY AND I HAVE A LAWYER ITS A LONG ASS PROCESS

Thank you for this. Ive gained so much from lupus treatments and this really gives me hope for losing the weight healthily despite having lupus. Wishing you blessing.

just found your chanell.thank for sharing.I have lups also