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Vlad's ME Diary
United Kingdom
Приєднався 16 лис 2021
This channel is about living with Myalgic Encephalomyelitis (ME), a chronic illness affecting 1/250 humans. ME is one of the most disabling conditions on earth. The most severely affected patients unable to walk, talk, eat, tolerate light or touch. Women get ME more often than men, with a ratio of about 75/25.
Whether you are interested in what it's like to live with ME, or Long Covid, or in chronic illness generally, welcome aboard!
My diary about living with ME has been on Twitter for the past year, with over 150 episodes.
Whether you are interested in what it's like to live with ME, or Long Covid, or in chronic illness generally, welcome aboard!
My diary about living with ME has been on Twitter for the past year, with over 150 episodes.
MORNING HEALTH SAMPLE - 70% of my time looks like this.
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis
Vlad's main channel - ua-cam.com/users/VladVexlervideos
Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos
Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Support Vlad's work on Patreon!
www.patreon.com/vladvexler
Support Vlad via PayPal
www.paypal.com/paypalme/vladvexler?country.x=GB&locale.x=en_GB
Vlad's main channel - ua-cam.com/users/VladVexlervideos
Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos
Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Support Vlad's work on Patreon!
www.patreon.com/vladvexler
Support Vlad via PayPal
www.paypal.com/paypalme/vladvexler?country.x=GB&locale.x=en_GB
Переглядів: 2 310
Відео
HEALTH UPDATE DROM VLAD (ME/myalgic encephalomyelitis)
Переглядів 8 тис.9 годин тому
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's main channel - ua-cam.com/users/VladVexlervideos Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos Support Vlad's work on Patreon! www.patreon.com/vladvexler Support Vlad via PayPal www.paypal.com/paypalme/vladvexler?country.x=GB&loca...
A health update from Vlad (ME/myalgic encephalomyelitis)
Переглядів 7 тис.Місяць тому
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's main channel - ua-cam.com/users/VladVexlervideos Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos Support Vlad's work on Patreon! www.patreon.com/vladvexler Support Vlad via PayPal www.paypal.com/paypalme/vladvexler?country.x=GB&loca...
I am laughing here but this is serious! ME not a joke.
Переглядів 2,1 тис.Місяць тому
Response to the Rest is Politics Long Covid discussion coming up on the Chat channel - when I can!
5 WEEKS ON UPDATE (covid + myalgic encephalomyelitis interaction)
Переглядів 4,6 тис.Місяць тому
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis ME QOL study - www.healthrising.org/blog/2015/08/05/chronic-fatigue-syndrome-worse-mulitple-sclerosis-cancer/ Vlad's main channel - ua-cam.com/users/VladVexlervideos Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Navigating Covid with ME (Myalgic Encephalomyelitis)
Переглядів 8 тис.2 місяці тому
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis ME QOL study - www.healthrising.org/blog/2015/08/05/chronic-fatigue-syndrome-worse-mulitple-sclerosis-cancer/ Maeve story - ua-cam.com/video/10hCNt6ajSE/v-deo.html Vlad after sitting up for yesterday's Chat ua-cam.com/users/shorts6vDRjxecjfQ?si=M3iU1JIGlIFZTKDC Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad's...
The treatment of Severe ME patients in NHS hospitals
Переглядів 3,5 тис.6 місяців тому
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad's main channel - ua-cam.com/users/VladVexlervideos Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Christmas message for people with ME
Переглядів 3,5 тис.10 місяців тому
Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad's main channel - ua-cam.com/users/VladVexlervideos Vlad's Chat channel - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
People with ME Want to Live.
Переглядів 8 тис.Рік тому
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - ua-cam.com/users/VladVexlervideos Vlad Vexler Chat - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
Holiday Message for people with ME
Переглядів 2,8 тис.Рік тому
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - ua-cam.com/users/VladVexlervideos Vlad Vexler Chat - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
10 tips for navigating Christmas with ME (or Long Covid)
Переглядів 2,6 тис.Рік тому
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - ua-cam.com/users/VladVexlervideos Vlad Vexler Chat - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
What 19 Years of Living with Pain Taught Me
Переглядів 24 тис.2 роки тому
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - ua-cam.com/users/VladVexlervideos Vlad Vexler Chat - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLMg.htmlvideos MEpedia entry on ME - me-pedia.org/wiki/Myalgic_encephalomyelitis
#MillionsMissing London 2022 #myalgicencephalomyelitis
Переглядів 2,4 тис.2 роки тому
Myalgic Encephalomyelitis (ME) is one of the most disabling conditions on earth. It affects 1/250 humans. Most ME patients are women (75%). My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - VladVexler Vlad Vexler main channel - ua-cam.com/users/VladVexlervideos Vlad Vexler Chat - ua-cam.com/channels/n7XHZiW6EUgSuxItybLLM...
Severe ME Awareness Day: My Thoughts.
Переглядів 2,4 тис.2 роки тому
Severe and very severe ME affects about 25% of people with myalgic encephalomyelitis (ME). me-pedia.org/wiki/Severe_and_very_severe_ME Myalgic Encephalomyelitis (ME) is one of the most disabling conditions on earth. It affects 1/250 humans. Most ME patients are women (75%). My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 160 episodes - twitter....
My message on ME Awareness Day 2022 #MyalgicEncephalomyelitis
Переглядів 1,4 тис.2 роки тому
ME is the greatest public health injustice in the West. Myalgic Encephalomyelitis (ME) is one of the most disabling conditions on earth. It affects 1/250 humans. Most ME patients are women (75%). The term CFS / Chronic Fatigue Syndrome is unhelpful, and I generally refer to this condition as ME. I am sadly aware that many patients with Long Covid are joining the ME community. MEpedia entry on M...
We MISREPRESENT people with ME & Long Covid
Переглядів 2,4 тис.2 роки тому
We MISREPRESENT people with ME & Long Covid
Tiny message for you if you have ME or Long Covid
Переглядів 2,9 тис.2 роки тому
Tiny message for you if you have ME or Long Covid
Why we should SPEAK UP for Myalgic Encephalomyelitis
Переглядів 2,9 тис.2 роки тому
Why we should SPEAK UP for Myalgic Encephalomyelitis
A CRISIS OF MEMBERSHIP for people with disabilities
Переглядів 1,5 тис.2 роки тому
A CRISIS OF MEMBERSHIP for people with disabilities
What if most ME patients were men, not women? | Myalgic Encephalomyelitis
Переглядів 2,8 тис.2 роки тому
What if most ME patients were men, not women? | Myalgic Encephalomyelitis
CRASHING during social interaction | ME ( Myalgic Encephalomyelitis )
Переглядів 9 тис.2 роки тому
CRASHING during social interaction | ME ( Myalgic Encephalomyelitis )
How I got Myalgic Encephalomyelitis (ME CFS)
Переглядів 37 тис.2 роки тому
How I got Myalgic Encephalomyelitis (ME CFS)
It is heartbreaking to see this Vlad. You remain in my prayers.
❤
🤍
Still a sense of humour! Congratulations! 🎉💐 Thinking of you lots! 🙏🏻🫶🏻💪🏻
Dear Vlad, please 🙏🏻 hold on. I hope you have the best doctors and your family supporting you ❤
Beautiful
I think you are so courageous, Vlad. Thank you for sharing. We are all with you.
Making the goods jealous, what did you expect. I'm hiding my genius for decades now for exactly that reason. So no sympathy from my side.
👍😊
Soooo sorry, dearest Vlad 😢. Anything that might help you understand yourself and your destiny better might be good. Get better soon 🙏
Thank you for the descriptive words of your suffering. I appreciate you. Thank you for staying in touch and letting us visit with you 🙏🌿🥹☺️❤️
god damn, this is your life and _politics_ is what you chose to cover? i guess we don't have much choice in what interests us but mad respect for You my man
❤
If ever find myself in a shitty situation, I want somebody with your sense of humor nearby
Thankyou for sharing your journey & willingness to be vulnerable. Sending you much love from your beautiful community ❤
I’m listening to how you feel …. Brings up claustrophobic feelings, I don’t know how you get those symptoms every day but it speaks to your inner strength mentally physically emotionally!! What is strong, resilient, humble, graceful spirit you are Dealing with those symptoms Vlad daily, you are more powerful than you realize ✨✨ You are so funny…. ❤Perhaps God finds your genius grows and deepens when the symptoms are challenging. 🙃
I love you Vlad. Thank you.
Dear Vlad. Sending you support and healing spirit from Oakland California. Lots of love…
You have my utmost sympathy Vlad. I developed ME in the 1980s so can imagine how you must be feeling. I guess my symptoms might be classed as ‘mild to moderate’, compared to your own , but even they can be challenging at times, so I understand how difficult it must be for you. I do sincerely hope you begin to feel better very soon.
Dear Vlad I have tried to reach you before. Please believe me try the carnivore diet. I myself have been a vegetarian for 15 years and despite the necessary supplements still got sick. For 18 months I eat only meat, eggs and bacon and I feel so much better, when you don't eat carbohydrates the higher cholesterol level is not bad for humans at all. Believe me study it on the carnivore channels there are many doctors and specialists, because that is necessary to learn why and to be stimulated to keep it up and why it is so much better to get all the vitamins and nutrients that your body benefits from
It really is a separate world, an unseen world, a world of permanent lockdown, a world that people don't want to look at let alone imagine and try to understand.
Thank you for trying to increase awareness of what this illness entails. I hope you get some more life force back soon. Xxx
Humor is such a wonderful gift.
We love you vlad! Keep your spirits high, I'm with you in my thoughts.
It breaks my heart to see you suffering such Buddy. I have CFS/ME and am on a crash cycle currently and it is awful to see others, particularly those with wit and genius. I'll consult with the universe about it lending a hand. I'm an atheist, so no point in saying god bless, and I also know how futile it is to say get well soon, but, I know that you recognise the sentiment. Looking forward to seeing you on the up.
It is not our system, but the more you struggle, your awareness of the Higher Power and Intelligence increases. It is good to hear you talk about the Higher Power, it's character is Love, what is happening to you is Universal, the Universe has no rules, our worst behaviour has it's orignins in the Universe. It is the Universe that will take your life. the Universe can be destroyed, The Higher Power cannot be destroyed. When you can, silent chant I Love, Vlad, I Love (those that concern you,) countries, beliefs. The Highest Intelligence, will not be jealous of your intelligence, we know nothing compared to 'It,' but it is a source of Love, you can merge with it controlling your breathing, exercise, music, reading, thinking is telepathy with this Higher Power. 'It,' is helping you in your struggle.
😘😘😘❤❤❤
I hate seeing you suffer Vlad, but I thank you for honestly sharing. Your sense of humor is amazing. Wishing you good health.
I hope we can find a way to treat people with this malady one day soon. Here's to a future of you being able to sit up and talk with ease.
Love your humor Yes it’s clearly jealousy Sending ❤
My thoughts are with you dear Vlad, hugs to you dear fellow 🤗
Love your content. I'm so sorry you're not feeling well. Thank you for sharing these wonderful resources about your condition. I have a milder form of it as well and it's completely derailed me for years. We're in this together. Keep the comedy coming
"Oh. My. God." 💔💔💔 Thinking of you, Vlad
🤍
Loved your humour. 🎉
Pace yourself, please, Vlad. Rest up when you need to, we will see you when you're up to it. I'm sure all agree with me on that. Just put yourself first... "the rest can wait!" (To quote my Mama). Wishing to see that 30% increase for you, my friend.
We love you, Vlad. If only our love could heal you in an instant, you would be up and running a marathon. Hope against hope; the final chapter is not written..💔💔❤️🩹❤️🩹
Don't worry I feel like that most mornings lol
Vlad do get better soon, your very missed for your humour and great informative blogs. You will get through this terrible time and return to yourself soon 🙏❤🦋
ahhh jesus vlad
So sad, Vlad. I don’t know what to say, but I’m rooting for you. Hang on. Prayers continue.
Pain us constant, soul destroying, we with chronic illness, are aware of the limited days free painless ones that make us see the lighting a stronger fame of mind that nothing penetrative ..Stay strong 💪 💪 💪
Sending prayers has obviously backfired. Sending best wishes to you, Vlad.
70% of your time... Your mental fortitude and composure in analysis in your circumstances are truly emblematic of the qualities of the great philosophers. Not to mention your philosophy itself. If I were God I'd feel jealous too.
Vlad, I’m sending you much love and wishes from Western Canada .. with daily prayers too for improvement to your health ❤ xx
I'm so sorry you have to spend so much time suffering- I really appreciate how much of you precious time you spend on us.
I wish we could do more for you!
My personal religious conviction, is that God only allows the Devil to create suffering in those whom he trusts to retain their innate goodness, despite worldly trials. It is in this way that He shows the Devil that love is stronger than pain. Which it most definitely is. Warm thoughts, my friend.
god is such douche bag. Lots of love. Take care, and get well soon. I have a chronic illness myself, but it has been “dormant” for the last ~15 years. I know what you are going through. There was a time in my life I spent hours of my day in severe pain that I could do nothing about. I feel for you.
It funny (or sad), but I don’t think them healthy people would understand the reality of ME even after watching a video like this.