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The Life Of Me Smile Magee !
United States
Приєднався 17 сер 2015
“ Megan Marjorie “.
Documenting #chronicillness , #chronicpain , chronic #faith . and chronic #joy. #thechurchofjesuschristoflatterdaysaints #smileon🐷
Along with this UA-cam channel , You can follow my journey daily on Facebook and Instagram under “ The Life of Me Smile Magee “
Very random videos I have made on Tik tok under the same name
And to See articles I have written about experiences With my health you search for Megan Majorie
on themighty.com
#raredisease #chronicillness
Documenting #chronicillness , #chronicpain , chronic #faith . and chronic #joy. #thechurchofjesuschristoflatterdaysaints #smileon🐷
Along with this UA-cam channel , You can follow my journey daily on Facebook and Instagram under “ The Life of Me Smile Magee “
Very random videos I have made on Tik tok under the same name
And to See articles I have written about experiences With my health you search for Megan Majorie
on themighty.com
#raredisease #chronicillness
The Beginnings of my Tragic Garden 2024
How was the “turn out “ of your garden this year ?
As you all know I love gardening .. and well anything to do with plants .
But #spoileralert
Between multiple hospital hospital stays , symptoms , appointments, out of town infusions and procedures .. let alone a RIDICULOUSLY hot summer . I absolutely murdered EVERYTHING in my garden this year 😂😅😅. I bought WAY more plants than this , and have a lot more garden footage saved on my phone to make more videos .
But .. Not a dang thing this year survived 😂😂. .
( Even the cute fairy gardens me and the girls made )
I don’t even dare buy any mums or cute fall plants for my garden right now… because everything I plant outside this year is destined for death
( gratefully my house plants seem to thrive from neglect ) 😂😅.
Did your garden turn out better than mine ?
Tell me about it below !
And if you wanna really entertain me ..
tonight is a very symptomatic night that will definitely lead to a “rest day “ tomorrow..
Send me pics of your garden or comment them below !
#smileon🐷 #chronic #chronicillness #plantkiller #murderer #bucketgarden #flowers #gardening #vitaminc #flareday #oops #flowers #raredisease
As you all know I love gardening .. and well anything to do with plants .
But #spoileralert
Between multiple hospital hospital stays , symptoms , appointments, out of town infusions and procedures .. let alone a RIDICULOUSLY hot summer . I absolutely murdered EVERYTHING in my garden this year 😂😅😅. I bought WAY more plants than this , and have a lot more garden footage saved on my phone to make more videos .
But .. Not a dang thing this year survived 😂😂. .
( Even the cute fairy gardens me and the girls made )
I don’t even dare buy any mums or cute fall plants for my garden right now… because everything I plant outside this year is destined for death
( gratefully my house plants seem to thrive from neglect ) 😂😅.
Did your garden turn out better than mine ?
Tell me about it below !
And if you wanna really entertain me ..
tonight is a very symptomatic night that will definitely lead to a “rest day “ tomorrow..
Send me pics of your garden or comment them below !
#smileon🐷 #chronic #chronicillness #plantkiller #murderer #bucketgarden #flowers #gardening #vitaminc #flareday #oops #flowers #raredisease
Переглядів: 21
Відео
Going to a MALL For The First Time In 10 Years
Переглядів 6014 днів тому
During last weeks craziness .. I was able re live the glory days .. and hit up an ACTUAL PHYSICAL MALL.. for the first time in like 10 years 😂❤️. It was SO fun walking around and being able to go to a bunch of different stores ( I know online shopping is convenient and all.. but malls are just a VIBE ) And I was able to go to one of my my FAVORITE stores in highschool and middle school ( that a...
Copper Infusion Update ( It’s Not Great News )
Переглядів 2514 днів тому
This whole situation has stressed me out so bad .. it’s drove me to drink …. 🤪😉 ALOT of Diet Dr Pepper with coconut 😂😅. But in all Honesty.. Im Trying to give it all to God, bluff with the cards I’ve been given and play them like a royal flush , and just make the best out of the situation. But when no one can figure out why I have this severe and dangerous vitamin deficiency . And I litterally ...
She Use To Be Mine @sarabareilles @WaitressMusical “‘Hospital Cover “
Переглядів 4914 днів тому
With this mix of very imperfect notes , and my IV pump and oxygen concentrator being the only instrumentals . I hope this video captures a feeling .. whither than “ show my amazing vocal capabilities 😅 “.. ( I know I’m no Beyoncé lol 😂. Just someone who is grateful my lungs are still letting me sing ) I share this video because lately my illnesses have felt like this leech , sucking up.. everyt...
Question For Those With Mast Cell Activation Syndrome
Переглядів 33Місяць тому
Question For Those With Mast Cell Activation Syndrome
Thoughts On My First Sleep Therapy Session #insomnia
Переглядів 52 місяці тому
Thoughts On My First Sleep Therapy Session #insomnia
Nail Art With Worsening Weakness In My Left Hand #4thofjulynails
Переглядів 73 місяці тому
Nail Art With Worsening Weakness In My Left Hand #4thofjulynails
Book Basket Party And Neuro Flare Chaos
Переглядів 183 місяці тому
Book Basket Party And Neuro Flare Chaos
I’m A Finalist In The “ Social Health Awards “ 🤯🥰 #patientadvocate
Переглядів 73 місяці тому
I’m A Finalist In The “ Social Health Awards “ 🤯🥰 #patientadvocate
Craft Time During Copper Infusions #miniverse
Переглядів 124 місяці тому
Craft Time During Copper Infusions #miniverse
Mothers Day and Motherhood , From Someone Who May Never Be One “
Переглядів 194 місяці тому
Mothers Day and Motherhood , From Someone Who May Never Be One “
One Of My Favorite Stories About My Mom . Mothers Day 2024
Переглядів 234 місяці тому
One Of My Favorite Stories About My Mom . Mothers Day 2024
FINALLLY Have An Answer On My “ Fractured (?) Foot !
Переглядів 194 місяці тому
FINALLLY Have An Answer On My “ Fractured (?) Foot !
“Day In My Life “Unplanned Appointment
Переглядів 245 місяців тому
“Day In My Life “Unplanned Appointment
“ 5 Survive “ By Holly Jackson Book Review
Переглядів 65 місяців тому
“ 5 Survive “ By Holly Jackson Book Review
Book Review “ The Reappearance of Rachel Price” by Holly Jackson
Переглядів 345 місяців тому
Book Review “ The Reappearance of Rachel Price” by Holly Jackson
Fracture Misdiagnosed As A Tumor ? Foot Update
Переглядів 565 місяців тому
Fracture Misdiagnosed As A Tumor ? Foot Update
Interesting Facts About CVID , MCAS, and Copper
Переглядів 236 місяців тому
Interesting Facts About CVID , MCAS, and Copper
Growth “ Sunday On A Monday “ #comefollowme
Переглядів 146 місяців тому
Growth “ Sunday On A Monday “ #comefollowme
Due to personal reasons *RAAAAAAAÆÆÆÆ*
you are so Pretty 🎀
You are to kind! ❤️
🧢
@gxeditz4 no cap lol, this is my life 😂
Cant fit in the screen
They did hurt my veins so badly, they had to stick a new canula in every two to three days. It also hurt my veins permanently. It is 16 years and my veins still are bad and disappear or rupture more often than them cooperating with the needles.
What illness do you have?
@@nightshadetalestoo I’m a bit of a problem casserole 😂😅. I have CVID, UCTD, and MCAS , along with asthma, epilepsy , fibrosis in my lungs , gastroparesis glaucoma , ITP , and a history of sarcoma cancer . I share way more about all that on my instagram and Facebook under the same name
@@thelifeofmesmilemagee8511thats so much i genuinly thinking you’re faking, lol if youre not, im sorry, if you are, I hope you realize that youre crazy.
@austinwhitehead9107 dude ., I WISH I was faking 😂❤️ . Basically my immune system attacks itself causing a lot of these diseases. And I have 2 diseases where my immune system just misfires or doesn’t produce what it needs to produce . Most people with complex health sadly usually have multiple health conditions. If you have any curiosity seriously feel free to look at my content and ask me any questions . Hope this little interaction helped you learn something you didn’t know before ! ❤️ have an awesome night !
@@thelifeofmesmilemagee8511just watched some more, OOF….. i feel so bad for you, im glad you are doing a lot to be ok, sorry if you feel offended by that, i saw it as too much, i hope you get better soon. 😃
@@thelifeofmesmilemagee8511also have a awesome night
When your doctor tells you that you need to lose weight then walks in with you making a TikTok eating pizza
@@oaken8431 pretty much sums up my life 😂😂😂😂
@@thelifeofmesmilemagee8511 lmao
Congrats!❤ you made it!💕
peace.. peaca!🍕
@@iSlayHehehehe the best combo 😂❤️
@@thelifeofmesmilemagee8511 tysm for commenting!
Yessss!Your a fighter ❤
@@KAMkitty-cl4sv ❤️🥹 thank you. And I have just been so incredibly blessed . God is good ❤️
@@thelifeofmesmilemagee8511 Your welcome.Keep on being amazing!
Did it leave a scar behind? My lip doesn't feel same anymore 😢
Yeah mine is partially numb. So angry the dr hit the nerve!😡
GL and it's because some people are sad or not content with their life whether it be through the hate of other religions or just religion in general or they just dislike when they see true kindness because they didn't get it when they considered they needed it most. most of us unknowingly project something else onto something we think has no repercussions.
Hey! Usually if someone is offended by this they know the person sending the thoughts and prayers doesn’t actually mean it and is being malicious. They could also have religious trauma or are just frustrated by people saying the are sending thoughts and prayers that make them feel better about themselves and not actual support the person needs! It can feel patronizing or dismissive and demeaning to some
In a world that praises masculine physical action, it's easy to view feminine energetic action as less effective and less valuable. Btw, I wish you well 🙏
Good vibes and good health, girl. Said a prayer for you ❤
Thank you 🥹❤️!! I will take each and every prayer I can get !
Keep fighting love ❤❤❤
❤️❤️❤️
My prayers are with you,and praying that Jesus will heal you.
I had to pull the emergency cord in the bathroom as my call button had pulled out of the wall. I was hooked up to a monitor and on bed rest but needed help. When you pull that cord, people appear from everywhere and they were all out of breath!
Right ! When they come running it makes me feel SO Bad 😅
I’m not an expert. But have they checked your esophegus? My mom had trouble swallowing and it turned out to be a tumor. Prayers for healing. ❤️🩹
@@heathero.1323 They have checked it a little bit and I know the motility of it isn’t so great . ( I have gastroparesis that affects my whole GI tract ) but besides that I don’t know much about it! I’ll have to ask more questions about that
Add a bit of levity, but my moms gastric person came and they tried to check the wrong end! 😂 thank God my dad was there to course correct that situation. I pray for you and healing. Make those doctors be thorough, and find the ones that like challenges. 🙏🏼❤️
@@heathero.1323 😂😅 that litterally made me lol!! Bless your sweet dad!! And thank you! I will take all the prayers I can get !
Ye, speech therapists do swallow studies 😂
See .. now that’s something they should teach you in highschool 😅😂 I felt like such a dummy
@@thelifeofmesmilemagee8511 tbf, I didn't know until I got into a career that required me to know 😂 but yeah, I can't imagine how many confused patients that therapist sees, the paperwork should have been more clear (also I hope you're ok!)
Awesome!!!
Thank you!!! ❤️❤️
No nodes on the vocal cords? Difficulty in swallowing with muscle weakness sounds neurological. CT or MRI the brain and spine.
I actually have one of those scheduled for next month ( thank goodness ! ) I’m also starting PT and OT once my pnemonia has stoped and my lungs aren’t so flared because the weakness in my left hand and left leg are getting pretty bad
@@thelifeofmesmilemagee8511My mother in law had something called myasthenia gravis. It caused muscle weakness and she had a hard time swallowing also.
@@bethlanious4092 I’m actually getting checked out by a neuromuscular doc next month to look into more diseases like that ❤️
100% you/mother/grandmother took a vxxxine or birth control.
You got this, Philippines 4:13❤!!!
One of my FAVORITE verses !
(:
It is so cute 😍
Thank you!! 🥰❤️ I can’t stop looking at it lol 😂❤️ I love it !
GoOsE oN dA LoOsE😂😂
🤣🤣🤣. And it wasn’t until I posted this I realized she was wearing a “silly goose “ shirt 🤣🐱
😮😂🎉hej😊
BRO ITS 2024 IABAKDJFHAI😊
I’m the first commenter Yay Also the black and white filter looks so good on the vid idk why And why do you get copper infusions
Amen. Thanks for also reminding me that the lord is there for all of us.
Have you ever listened to FM radio? What do you call that hiss sound?
Hi
❤❤
Omg that’s such good news!!! I know I don’t personally know you but that is absolutely amazing to hear ❤❤❤❤
Thank you so much!!
Laughing so hard only air comes out
I was 7-
A Beach 2019 and 2024 a beach I can’t say the b word so I jest put beach I don’t want to get ban
i was 8
I was 10 lol
I was 5❤
That’s crazy
Brup
What happened hope that isn’t rude 😅
Not rude at all ❤️. Progression of some of my Chronic illnesses
I hope the infusions work for you. I completed my 4th round nearly a month ago...my copper went down with this last round!!! What the what?!? I hope it works for you!
Hope you feel better soon hunny...❤❤❤
Thank you!! ❤️❤️ still working on it 😂❤️ but hopefully IVIG finally knocks this infection out of my lungs !
❤
Fractures sometimes do not show up because of inflammation
I guess that makes sense , maybe it’s just been so swollen it’s been hard to see the fracture
Great for a mom and kiddo
Haha honestly .. that was the only reason I could see behind jt 😂👌
Why wouldn’t they have you stop taking the steroids prior to the test so it wouldn’t affect it??
With my other conditions they thought it would cause more harm than good
Isn’t there a blood test for sjogrens?? I’m pretty sure I had one 🤔
I think there is . But with the steroids and immune suppressants I already take it makes all the testing inconclusive. ( dumb right ? )
@@thelifeofmesmilemagee8511 But the lip biopsy was inconclusive also 🤷♀️
@@CheapsKate77 they think that could also be due to the immune suppressants and steroids. The biopsy test inflammation and when I’m already on anti inflammatories. The test is kind of an oxymoron . We want to re test if I’m ever able to get off the steroids. But until then I’m just being treated symptomatically
That's right my dear..put it in God's hands. Since I got interstitial lung disease I find faith helps me through the tough times. Thanks again for your honest words ❤
Thank you for your comment ! ❤️ I feel the exact same way . I don’t know how people endure chronic illness without faith in Gospel ❤️
If only this could work that way, but hilarious when I see people doing things like this in real life hoping for the impossible to happen.
Haha right !! I guess we can dream 😂❤️!! My infusions are 10 hours and good grief if they came with a fast forward button my life would be so much easier